Make a Wish (and other organizations) - Wish Trippers UNITE! Volume SIX!

[blondieboo]

I can not find this!!!!!! Not sure what I'm doing wrong.

Me either! Lol

 

[potsiemom]

for those who were able to extend their wish trip was their a limit to how many days you could add.My husband can only get the 1 week off work but I am hoping to extend the trip another week for the kids and I.

 

[chcmama]

for those who were able to extend their wish trip was their a limit to how many days you could add.My husband can only get the 1 week off work but I am hoping to extend the trip another week for the kids and I.

When we extended, our chapter didn't care how long we extended because the wish part ended when it ended and after that it was all up to us. They made it very clear that everything was our responsibility after the end date of the wish.

 

[FaithsWish]

I have started my Trip Report! http://www.disboards.com/threads/faiths-super-make-a-wish-trip-to-universal-disney-3-2-3-9.3388505/

 

[WendyLou]

29 days!!!! Getting so excited and nervous about if my plans are just right or bed a little tweaking. Gotta stop tweaking!

 

[chcmama]

29 days!!!! Getting so excited and nervous about if my plans are just right or bed a little tweaking. Gotta stop tweaking!

How exciting!! Don't get too worried about your plans, it will be great no matter what and sometimes the plans have to get thrown out the door

 

[WendyLou]

Thanks, I'm trying to just relax and let it go. Loving your trip report! Logan is obsessed with Captain America now and has to look at all your pics and Faith's over and over.

How exciting!! Don't get too worried about your plans, it will be great no matter what and sometimes the plans have to get thrown out the door

 

[mamaVonna]

Hi everyone! First time here. Finally decided to post after lurking a few weeks ! Quick intro, the hubs and I applied for a wish for our almost 12 year old princess Katyana...she wants to meet Princess Tiana and go to the awesome MVMCP. She was approved for a wish February 20 but we haven't heard from them since . Katyana has severe spastic quad cp and a host of other dx including inoperable scoliosis with >85° curve that has impacted her lungs. She's non-ambulatory and non-verbal. I never thought she'd qualify for MAW but she's been declining pretty steadily the last 2 years and has gone from a very happy kid to feeling pretty miserable more days than not, so I figured what the heck let's give it a try and she was approved!
Also at home is big brother Kavon (15), and two little sisters Kaylei (4), & Keira (2)-baby Keira unfortunately has the same condition as Katyana. Devastated us but we've already been down this road so it was easier to handle the 2nd time around.
Welp that's us. Hoping to hear from MAW again sometime soon and furiously scouring the web for all things Disney in the meantime

 

[mamaVonna]

Sheesh that was long. Should have broken that up into 10 posts so I could get to the good stuff!

 

[chcmama]

Hi everyone! First time here. Finally decided to post after lurking a few weeks ! Quick intro, the hubs and I applied for a wish for our almost 12 year old princess Katyana...she wants to meet Princess Tiana and go to the awesome MVMCP. She was approved for a wish February 20 but we haven't heard from them since . Katyana has severe spastic quad cp and a host of other dx including inoperable scoliosis with >85° curve that has impacted her lungs. She's non-ambulatory and non-verbal. I never thought she'd qualify for MAW but she's been declining pretty steadily the last 2 years and has gone from a very happy kid to feeling pretty miserable more days than not, so I figured what the heck let's give it a try and she was approved!
Also at home is big brother Kavon (15), and two little sisters Kaylei (4), & Keira (2)-baby Keira unfortunately has the same condition as Katyana. Devastated us but we've already been down this road so it was easier to handle the 2nd time around.
Welp that's us. Hoping to hear from MAW again sometime soon and furiously scouring the web for all things Disney in the meantime

Welcome! I bet you will here from local wish granters soon. Disney is such a fun place for a Wish

 

[chcmama]

Thanks, I'm trying to just relax and let it go. Loving your trip report! Logan is obsessed with Captain America now and has to look at all your pics and Faith's over and over.

I hope he gets to meet him on his trip, he was my favorite character we met, was by far the most interested in the Wish kids and very nice.

 

[blondieboo]

My daughter needs to stay out of sunlight as much as possible due to chemo, antibiotics and radiation. Of course I plan to give her a bath in sunscreen lol. It just doesn't look like the free Disney rental is going to cover her the way we need. Did anyone rent a stroller from an outside company? Or is it better to take our own? Are there extra fees if we do take ours? Also I was wondering about buffets/character meals. Right now my daughter gets 99% of her nutrition through a g-tube. She does drink water and juice and eat an orange or raspberries here and there but nothing tastes right to her and she had radiation to her head and neck area so eating has been hard for her. So if I make a reservation for say Chef Mickeys, Hollywood & Vine or Akershus will I have to pay for her too? I wouldn't mind paying but it's hard for me to swallow knowing I'm already paying over $600 a month for her nutrition and she can't eat anything. Also will it be too strange if we do a gtube feed at a restaurant? I want to keep her mealtime the same as ours.

 

[luvlabor]

My daughter needs to stay out of sunlight as much as possible due to chemo, antibiotics and radiation. Of course I plan to give her a bath in sunscreen lol. It just doesn't look like the free Disney rental is going to cover her the way we need. Did anyone rent a stroller from an outside company? Or is it better to take our own? Are there extra fees if we do take ours? Also I was wondering about buffets/character meals. Right now my daughter gets 99% of her nutrition through a g-tube. She does drink water and juice and eat an orange or raspberries here and there but nothing tastes right to her and she had radiation to her head and neck area so eating has been hard for her. So if I make a reservation for say Chef Mickeys, Hollywood & Vine or Akershus will I have to pay for her too? I wouldn't mind paying but it's hard for me to swallow knowing I'm already paying over $600 a month for her nutrition and she can't eat anything. Also will it be too strange if we do a gtube feed at a restaurant? I want to keep her mealtime the same as ours.

Not sure about any of the buffet/character questions you have but our chapter of MAW paid for a "special needs" stroller from an outside company.....it's worth asking your MAW represenatives.

 

[Madison Maylynn mom]

Does anyone know if it is a good idea to have a magicband? Just curious cause we are going on my daughters wish trip in May and trying to make sure I have all or ducks in a row!

 

[chcmama]

Does anyone know if it is a good idea to have a magicband? Just curious cause we are going on my daughters wish trip in May and trying to make sure I have all or ducks in a row!

We didn't have them and were fine without them, however I can see how some things would be easier, especially the pictures on the rides. Allison got them for Faith's trip so she can probably let you know better.
Your trip is getting close, hope you have a great time!

 

[Madison Maylynn mom]

We hope so to! We are going during her birthday so can't wait!

We didn't have them and were fine without them, however I can see how some things would be easier, especially the pictures on the rides. Allison got them for Faith's trip so she can probably let you know better.
Your trip is getting close, hope you have a great time!

 

[WendyLou]

anyone been recently enough to know how the new dolphin encounter at SeaWorld works for wish kids since the feedings have been discontinued? Any other animals that wish kids get to feed free of charge? Trying to budget for this day, hoping it can be a half to 3/4 day park.

 

[WendyLou]

welcome!

Hi everyone! First time here. Finally decided to post after lurking a few weeks ! Quick intro, the hubs and I applied for a wish for our almost 12 year old princess Katyana...she wants to meet Princess Tiana and go to the awesome MVMCP. She was approved for a wish February 20 but we haven't heard from them since . Katyana has severe spastic quad cp and a host of other dx including inoperable scoliosis with >85° curve that has impacted her lungs. She's non-ambulatory and non-verbal. I never thought she'd qualify for MAW but she's been declining pretty steadily the last 2 years and has gone from a very happy kid to feeling pretty miserable more days than not, so I figured what the heck let's give it a try and she was approved!
Also at home is big brother Kavon (15), and two little sisters Kaylei (4), & Keira (2)-baby Keira unfortunately has the same condition as Katyana. Devastated us but we've already been down this road so it was easier to handle the 2nd time around.
Welp that's us. Hoping to hear from MAW again sometime soon and furiously scouring the web for all things Disney in the meantime

 

[potsiemom]

I was wondering about the seaworld thing to our wish granter is looking at 1st week of june for our dates.Waiting for the dr to ok those dates so she can book.

 

[chcmama]

anyone been recently enough to know how the new dolphin encounter at SeaWorld works for wish kids since the feedings have been discontinued? Any other animals that wish kids get to feed free of charge? Trying to budget for this day, hoping it can be a half to 3/4 day park.

When we were there we were not told of any other things for wish kids, however we didn't try to do any other encounters, Caleb was mostly interested in the rides We were only there a half day and saw the dolphin show and orca show and rode the rides numerous times. At the shows you get some priority seating so ask the people that work there where you should sit. Gives you more time since you don't need to show up early to get seats.