Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[maroo]

My son Preston is 12 years old and he has Synovial Cell Sarcoma. He really wants to go to Disney for his Make a Wish. He would really like to stay at the Contemporary at Disney, but I don't know if that is possible. Synovial

This was Saturday, right? How did it go??

I think he can do both...but it depends on the chapter and how they do things.

 

[maroo]

I could not wait and I started our PTR! http://www.disboards.com/showthread.php?t=2743297

I hope I did it right!

Melissa
Mom to Emily (wish kiddo) and Abby (best little sister)
http://www.caringbridge.org/visit/emilywallace

You did a great job! I have linked it on the first page for us - so everyone can find it!

 

[Em'swish]

You did a great job! I have linked it on the first page for us - so everyone can find it!

Thanks so much. I can't wait to really start planning the trip once we get our dates!!

So here is a really silly question but need to cover my bases. Em's wish granters are coming Wednesday night. I have seen that they tend to bring the wish kid a little gift. Do they bring something for the other sibblings? I just want to makes sure if they don't that I have something to give Abby. I don't want her to feel left out. She is only 3 so she can't really understand what's going on.

Thanks,

Melissa
Mom to Emily 4.5 (wish kiddo) and Abby 3 ( best little sister)

 

[maroo]

Thanks so much. I can't wait to really start planning the trip once we get our dates!!

So here is a really silly question but need to cover my bases. Em's wish granters are coming Wednesday night. I have seen that they tend to bring the wish kid a little gift. Do they bring something for the other sibblings? I just want to makes sure if they don't that I have something to give Abby. I don't want her to feel left out. She is only 3 so she can't really understand what's going on.

Thanks,

Melissa
Mom to Emily 4.5 (wish kiddo) and Abby 3 ( best little sister)

This is a very good question!

I would get her a little something, at least...and hide it, maybe? Just in case.

We had that problem with Lauren and William was 8 or 9 at the time...he was really jealous of her trip because he had some medical problems himself and had spent more days in the hospital than she had around that time - so we had that issue, too...but we didn't think of the gift issue (this was before the wish trippers thread, of course!)...but that is a good thought! I would definitely get her something just in case.

We did explain to William (although I am not sure how this would go over for a three year old)...but we did explain that Lauren had picked a special wish that was for her whole family! That she could have wished for something just for herself...like a shopping spree or something...but that she chose something that he could enjoy, too. This helped the situation some.

 

[Happy Dreams1]

I'm tending to see that maybe all the families hear have had their wish granters come to THEIR house. Why is it that we have to go their office tomorrow?

 

[angeque143]

I'm tending to see that maybe all the families hear have had their wish granters come to THEIR house. Why is it that we have to go their office tomorrow?

Each chapter does things their way. I would not be discouraged. I heard the sometimes going to their offices can be really fun! On meeting with the wish granters! Cant wait to see how it goes!

 

[Happy Dreams1]

Each chapter does things their way. I would not be discouraged. I heard the sometimes going to their offices can be really fun! On meeting with the wish granters! Cant wait to see how it goes!

Yeah, either way I'm really foward to it! I'll be posting tomorrow in my PTR.- it's in my signature.

 

[Menfusse]

Hi everyone! I'm totally new and came here specifically to find out how wish trips worked! Well, specifically Dream Factory. My name is Melissa and my daughter is 5 and was referred by her pediatrician Thursday and I got an email from them saying they would be calling me tomorrow! I understand that they require the child to talk. Emily is fully capable of talking, but has pretty severe social anxiety and I'm worried she won't. But I guess there are things that must happen before we even get to that?
Is this the right place to ask for details? I'm very detail oriented when it comes to things I don't know anything about, lol.

I don't want to bombard this thread with all of my questions if there is a better place .

Looking forward to getting to know all of you!

I should make a siggy I suppose, lol.

 

[Em'swish]

Hi everyone! I'm totally new and came here specifically to find out how wish trips worked! Well, specifically Dream Factory. My name is Melissa and my daughter is 5 and was referred by her pediatrician Thursday and I got an email from them saying they would be calling me tomorrow! I understand that they require the child to talk. Emily is fully capable of talking, but has pretty severe social anxiety and I'm worried she won't. But I guess there are things that must happen before we even get to that?
Is this the right place to ask for details? I'm very detail oriented when it comes to things I don't know anything about, lol.

I don't want to bombard this thread with all of my questions if there is a better place .

Looking forward to getting to know all of you!

I should make a siggy I suppose, lol.

Hi Melissa!

I thought I would say Hi, my name is also Melissa and my daughter who is 4.5 is also Emily! We just stated out journery with Make-A-Wish. Sorry I can't help you out with anything from Dream Factory. Good luck and this board has been great with helping me with all my questions, I am sure you will find the same thing!

Melissa
Mom to Emily4.5 (wish kiddo) and Abby 3(best little sister)

 

[Em'swish]

Yeah, either way I'm really foward to it! I'll be posting tomorrow in my PTR.- it's in my signature.

Just wanted to tell you have fun tomorrow!Look forward to hearing how it went. Our's come Wednesday!


Melissa
Mom to Emily 4.5 (wish kiddo) and Abby 3 (best little sister)

 

[Menfusse]

Hi Melissa!

I thought I would say Hi, my name is also Melissa and my daughter who is 4.5 is also Emily! We just stated out journery with Make-A-Wish. Sorry I can't help you out with anything from Dream Factory. Good luck and this board has been great with helping me with all my questions, I am sure you will find the same thing!

Melissa
Mom to Emily4.5 (wish kiddo) and Abby 3(best little sister)

Oh my goodness! My other daughter is Abby! She is the older though. She's 9 and Emily is 5. How funny! Nice to "meet" you.

 

[Synovial]

Preston's wish granters came to see him Saturday. They were really nice and brought him a present. They helped us fill out all the paperwork and got his wish from him. We are looking at going to Disney World around October or 1st week of November. They said we should know in 2 weeks if he gets his wish. I have tried to start a pre- trip report, but I am not good with computers so I don't know if I did it right. Synovial

 

[maroo]

I'm tending to see that maybe all the families hear have had their wish granters come to THEIR house. Why is it that we have to go their office tomorrow?

Each chapter is different...but my hunch is that they don't have very many volunteer wish granters...so getting to all of the kids is difficult for them. I bet they have several "appointments" to meet with children and they do it all at the chapter so that they are efficient and grant the wishes quicker. That is totally a guess...??

I am so excited to see what they say!!!

Hi everyone! I'm totally new and came here specifically to find out how wish trips worked! Well, specifically Dream Factory. My name is Melissa and my daughter is 5 and was referred by her pediatrician Thursday and I got an email from them saying they would be calling me tomorrow! I understand that they require the child to talk. Emily is fully capable of talking, but has pretty severe social anxiety and I'm worried she won't. But I guess there are things that must happen before we even get to that?
Is this the right place to ask for details? I'm very detail oriented when it comes to things I don't know anything about, lol.

I don't want to bombard this thread with all of my questions if there is a better place .

Looking forward to getting to know all of you!

I should make a siggy I suppose, lol.

Hello!

This is the place to ask lots of questions! All questions are welcomed and encouraged...if you are wondering the answer, someone else may be as well!

From what I understand Dream Factory grants two types of wishes - one is for the children with life threatening conditions and the other is for chronically ill children that don't have anything life threatening.

Do you happen to know which type of wish your child was referred for? It may make a difference as to the answers to some of the questions.

Hi Melissa!

I thought I would say Hi, my name is also Melissa and my daughter who is 4.5 is also Emily! We just stated out journery with Make-A-Wish. Sorry I can't help you out with anything from Dream Factory. Good luck and this board has been great with helping me with all my questions, I am sure you will find the same thing!

Melissa
Mom to Emily4.5 (wish kiddo) and Abby 3(best little sister)

Wow! What a coincidence!!

Preston's wish granters came to see him Saturday. They were really nice and brought him a present. They helped us fill out all the paperwork and got his wish from him. We are looking at going to Disney World around October or 1st week of November. They said we should know in 2 weeks if he gets his wish. I have tried to start a pre- trip report, but I am not good with computers so I don't know if I did it right. Synovial

Awesome!

Did they say where you guys will be staying? I was going to put that on you pre-trippie report.

I will link it on the first page.

 

[Em'swish]

Oh my goodness! My other daughter is Abby! She is the older though. She's 9 and Emily is 5. How funny! Nice to "meet" you.

That is crazy!!! How funny. The names Emily and Abby sound great together. I have met a few people who have daughters Em and Abby.

Melissa
Mom to Emily 4.5 (wsih kiddo) and Abby 3 ( best little sister)

 

[Menfusse]

Hello!

This is the place to ask lots of questions! All questions are welcomed and encouraged...if you are wondering the answer, someone else may be as well!

From what I understand Dream Factory grants two types of wishes - one is for the children with life threatening conditions and the other is for chronically ill children that don't have anything life threatening.

Do you happen to know which type of wish your child was referred for? It may make a difference as to the answers to some of the questions.

Hello . I'm not really sure. I don't see anything about life threatening vs. chronic illness on their website, at least the chapter we will be going through. It only says for "critical and serious chronic illness". So I don't know. My daughter has mitochondrial disease. It can definitely be life threatening and in many forms does shorten life span , and she is dependent on a feeding tube as well as a boat load of meds. But, the nature of the disease is to wax and wane with an over all slow progression, and it effects everyone differently. She has good stretches and can be "normal" and then land in the hospital for a week with a cold. It's very unpredictable. They are suppose to call today so I guess I will get more info. then.

I am so detail oriented, I'm just very curious to know how it works from beginning to end. Paperwork and so forth, to visits, to approval, and if we are approved to the expense we can expect over what they provide. It's going to be a long day waiting for that phone call!

 

[Menfusse]

Just a quick update that I talked to the DF volunteer this morning . She's sending out the paperwork which apparently is a lot, lol. She said as soon as we get it back to them they will put things through and it happens fairly quickly. The scheduling would depend on GKTW village's schedule for booking. We are totally open for dates, so hopefully that will help as well. I'm getting excited, but trying to be reserved until it's all official.

 

[katieb4]

I just figured out we will miss Christmas at GKTW We will be there Friday-Thursday. Bummer!

Ah well.

Is the Birthday party night fun/comperable?

 

[Happy Dreams1]

Each chapter is different...but my hunch is that they don't have very many volunteer wish granters...so getting to all of the kids is difficult for them. I bet they have several "appointments" to meet with children and they do it all at the chapter so that they are efficient and grant the wishes quicker. That is totally a guess...??

I am so excited to see what they say!!!

It's exactly that! Go look at my PTR!

 

[Happy Dreams1]

Hey everyone! I updated my PTR. We met the wish granters!


While we were there, we heard a child with Treacher-Collins Syndrome being denied a wish. I guess it just depends on the child's condition 'cus most of the time it is no life-threatening but unfortunately disabling.

 

[Synovial]

Preston told the wish granters he wanted to stay at the Contemporary, but they said they didn't know if he would get that or not. They would turn in the paperwork and let them decide there and let us know in a couple of weeks. Our wish granter was really new and didn't know a whole lot. We were only her 5th case. I hope he gets his wish the way he wants it. Synovial