kellyw8863
DIS Veteran
- Joined
- Jun 4, 2009
- Messages
- 647
Just stopping by to say hello. I realized today that after introducing myself last week, I virtually disappeared. After the initial elation of hearing from MAW that if Ali's doctor confirms her diagnosis, she will most certainly be approved, we are now experiencing a let down of sorts and all the uncertainties that accompany having a child with mitochondrial disease seem to be magnified. This is all compounded by the fact that she is currently sick, and since most viruses with her explode into bacterial infections, there is a medium to high likelihood that she will spend Thanksgiving in the hospital. She also has multiple drug allergy syndrome, which means that she is allergic to every. single. antibiotic. If she needs abx, even for something as innocuous as a run of the mill ear infection, she will need to be admitted to the PICU at our children's hospital two hours away. We're keeping our fingers crossed that this runs its course quickly and uneventfully.
So I am still reading, and very excited for all of you getting ready to leave over the course of the next couple of weeks - so exciting!
Kelly
So I am still reading, and very excited for all of you getting ready to leave over the course of the next couple of weeks - so exciting!

Kelly