Korissa's Magical MAW/GKTW PTR....4 HUGE Big Give (2-18-11)..page 40

[tinytreasures]

those back packs are great
Loving all the big give stuff and pictures

 

[Mom2mitokids]

YAY!!!!! We are getting very excited over here!!! How about you all????

The girls have us at 28 days.... I guess they are trying to rush it....

How is everyone feeling? I LOVE the BIG GIVE pictures!!!! They all look so happy!!!

I think it's 28 days. I can't figure it out...lol. I just know I need to get my butt in gear and start making my list of things we need to bring, and notes for all our meds and Kylee's pump for the airline.

Everyone is doing ok. Getting over colds. The Big Gives are so awesome.

 

[Mom2mitokids]

those back packs are great
Loving all the big give stuff and pictures

Thank you. The back packs are great. Going to come in handy in the parks.

 

[Mom2mitokids]

Hi Kris,

You asked about information on SkyVenture Orlando. Seems like you need to make the reservation during your stay at GKTW. Maybe do it on the last day at GKTW? Here's a link to more details:

http://www.gktw.org/newsletter/cc_spring10_web.html

Gail

Hi Gail,
Our last day at GKTW..we are going to IOA. I was hoping we can do this on our last day in Florida. We have 6 hours to kill before going to the airport. I thought going to DTD to do the ridezmarker and then head and do this. I will ask GKTW when we arrive. Looks kind of cool. Not sure if I would do it though.

 

[Mom2mitokids]

Today Kyra went to the Ped's for her well check up(more of get to know doctor). She was suppose to go last Thursday, but the doctor was sick.

First...I got news that Steven and Kerri are both severely Vitamin D deficient. They will both now be taking Vitamin D pills. Not sure how they can...they drink enough milk and they do go outside. The Ped thinks it could be just a Mito thing.

Steven curve is a 20% curve, but he does have sway back. Not sure what the Ortho will do about it.

We talked about Korissa and girly stuff she is suffering from.

Kyra... ugh...Again..I go in thinking she is my healthy one and come out with another child that needs to see Specialist. She needs to see a Cardio. Her blood pressures are high and her heartrate was really high. Since I have Tachy-Brady syndrome..she wants Kyra to have an EKG and Echo done.
She also needs to see an Eye doctor( I forgot the Specialist name) as her left eye isn't tracking like it should be.

Tuesday Kyra and Korissa will be having their blood tests. Praying everything comes out normal, but not holding my breath. Hopefully we can get everything done before our trip, so that way we can go on our trip and not have to worry about something is wrong with Kyra's heart.

Oh..and Kylee has only had 1 BM since coming home last Monday and that was last Thursday. With all the stuff she is on..I just can't believe she isn't exploding.

 

[petals]

Luvin the autograph books

 

[brookerene]

Stopping by to say hi.....!

 

[Mom2mitokids]

Today we received part 2 of Lynns(canjunfan) Big Give. We got 2 boxes on Friday and their was 3 boxes. This box was for Kylee and Kyra. Please excuse Kylee in jammies. She was having stomach pains today and didn't want to get dressed. She and Steven both didn't have school today as it was a furlough day.

I thought I posted this card the last time. I love it because it's the 7 dwarfs and we are a family of 7.

Kylee showing off her socks that she loves

Kylee getting excited as she saw her elephants through the tissue

The beautiful backpacks

All of Kylee's loot

All of Kyra's loot

Thank you Lynn for everything. The kids loved everything. The back pack will come in handy so they can carry all their stuff to the parks.

 

[Mom2Miracles]

Sorry today was such a hard day, I wish things could be more simple and stress free. As tough as it was, try and concentrate on Disney. Its SO soon, and that all of this will be behind you for at least a week.

 

[Mom2Miracles]

We were posting at the same time. Such great stuff, the bags are great. Love the PJ's, my daughter has the same ones.

 

[Mom2mitokids]

We were posting at the same time. Such great stuff, the bags are great. Love the PJ's, my daughter has the same ones.

Thank you Kristy.

 

[mommy2mrb]

wow lots of fun stuff for the girls! hope Kylee is feeling better tonight!!!

 

[brookerene]

What a great bunch of things for Disney... wow it is getting soooo close for you all. Thanks for posting photos!

 

[Mom2mitokids]

Today Ashlee came over and finally got her Big Give gifts. She is usually here on tuesday and Fridays after school, but all last week she was sick. She loved everything and wanted me to say thank you. He mom just called me and was just Amazed. She too wanted me to say Thank you for including her.

First was from Lisa and Megan

All three girls match with their bracelets. They are like the 3 musketeers

Next was from Lynn(canjunfan)

Ashlee got everything Tink. She loved the backpack and the crayon roll up

All the cool gifts

Next is an autograph book from Michelle(miprender). Ashlee loved the Sleeping Beauty

Thank you everyone!!!!

 

[Mom2mitokids]

With only 3 weeks 4 days left..we finally got a room after we leave GKTW. It's actually a 3 bedroom townhouse. They gave us an awesome discount since we were on a Wish trip. Took so long because we were looking for 2 bedrooms with 2 bathrooms place(2 bathrooms is what we really need). With 3 teenage girls..we needed it or we would never get out.Everywhere were charging outrages cleaning fees and pool fees.

 

[Mom2mitokids]

Korissa and Kyra both had blood test done this morning. Can you believe they took 13 big tubes of blood from Kyra and 11 big tubes from Korissa. I don't think I have ever gave that much for a tests. Poor Kyra has been stressing about this for a week and I told her it's nothing. Not only did she get 1 poke...she got 2 Lets just say I treated them to a donut after....than they went back to school.

 

[blessedmom4]

Korissa and Kyra both had blood test done this morning. Can you believe they took 13 big tubes of blood from Kyra and 11 big tubes from Korissa. I don't think I have ever gave that much for a tests. Poor Kyra has been stressing about this for a week and I told her it's nothing. Not only did she get 1 poke...she got 2 Lets just say I treated them to a donut after....than they went back to school.

I can certainly relate.... (Maybe I should have gotten MINE a doughnut...I'm a bad Mommy)!
I am so excited for you as everything is coming together!!!

 

[that's nice]

With only 3 weeks 4 days left..we finally got a room after we leave GKTW. It's actually a 3 bedroom townhouse. They gave us an awesome discount since we were on a Wish trip. Took so long because we were looking for 2 bedrooms with 2 bathrooms place(2 bathrooms is what we really need). With 3 teenage girls..we needed it or we would never get out.Everywhere were charging outrages cleaning fees and pool fees.

I'm glad you found somewhere to stay after GKTW! It is going to be so nice to have the extra days to fit everything in and not be too rushed.

 

[Mom2mitokids]

I can certainly relate.... (Maybe I should have gotten MINE a doughnut...I'm a bad Mommy)!
I am so excited for you as everything is coming together!!!

Yor not a bad mommy. Maybe I am for giving them a donut..lol.

 

[Mom2mitokids]

I'm glad you found somewhere to stay after GKTW! It is going to be so nice to have the extra days to fit everything in and not be too rushed.

Even though we are staying extra days...we still have a long busy days. I wish we did 1 more extra day just to relax.