Korissa's Magical MAW/GKTW PTR....4 HUGE Big Give (2-18-11)..page 40

[cantwaittoseemickey]

Great pictures! Looks like everyone had a great weekend. I hope all the sickies is going away and everyone is feeling better.

 

[Mom2mitokids]

Kylee is in the hospital again for her tummy. Hopefully this won't be a long stay like last time.

 

[that's nice]

Awwww man. I hope she is in & out quickly.

 

[my2girlsrock]

I just read your PTR, we are also going on my daughter Taylor's Make A Wish trip March 13 - March 19.... You will be at GKTW? Did you get your flight schedules yet? It would great to see you there....

I hope that everyone is starting to feel better.... Please let us know how it is going when you get a chance....

 

[fulseasmama]

Just checking in on Kylee. I hope you all are home and she is feeling better!

 

[Mom2mitokids]

Just checking in on Kylee. I hope you all are home and she is feeling better!

Thank you

 

[Mom2mitokids]

Awwww man. I hope she is in & out quickly.

Thank you

 

[Mom2mitokids]

I just read your PTR, we are also going on my daughter Taylor's Make A Wish trip March 13 - March 19.... You will be at GKTW? Did you get your flight schedules yet? It would great to see you there....

I hope that everyone is starting to feel better.... Please let us know how it is going when you get a chance....

Thank you for coming by. I would love to meet up and yes...we will be staying at GKTW. We don't have fight schedule yet. They said they would do it mid December.

 

[Mom2mitokids]

We are home!!! Another long admission. New meds, so hopefully we can stay out of the hospital. Thank you for all your thoughts and prayers.

 

[my2girlsrock]

We are home!!! Another long admission. New meds, so hopefully we can stay out of the hospital. Thank you for all your thoughts and prayers.

I am very happy that you are home now.... I hope that the new medicine works & she feels better.....

 

[Mom2mitokids]

My oldest isn't going with us She doesn't want to miss collage and have to make up homework. In a way I'm proud of her to choose school over a trip, but I have never been away from her that long. Not going to be the same without her. On another note...Korissa's friend now gets to go with us. They first said no because the Villa only hold 7 people. Now that Kerri isn't going we will have space. She still has to pay for everything though. She can eat at GKTW, so that's good. Her parents are discussing it, but it looks like she can come. Now we need to find theme park tickets cheap. Anyone know how? lol. We need 3 day hopper passes to DW, 2 day hopper passes to US/IOA, and 1 day Sea World.

 

[fulseasmama]

My oldest isn't going with us She doesn't want to miss collage and have to make up homework. In a way I'm proud of her to choose school over a trip, but I have never been away from her that long. Not going to be the same without her. On another note...Korissa's friend now gets to go with us. They first said no because the Villa only hold 7 people. Now that Kerri isn't going we will have space. She still has to pay for everything though. She can eat at GKTW, so that's good. Her parents are discussing it, but it looks like she can come. Now we need to find theme park tickets cheap. Anyone know how? lol. We need 3 day hopper passes to DW, 2 day hopper passes to US/IOA, and 1 day Sea World.

While I am sure you are sad she is not coming with you guys I bet you are really proud of the decision she made. Korissa must be excited that her friend is going to be able to come along. I have no idea how to find cheap tickets. I could not believe how expensive 3 days of Disney tickets alone with no park hopping were. I hope you find some deals!

 

[Mom2mitokids]

We are down to 3 months to our trip!! Much better than the 7 months we started with.

 

[that's nice]

We are down to 3 months to our trip!! Much better than the 7 months we started with.

3 months go quickly! Yay for 90 days!!!!!!

Hope everyone is feeling well at your house.

 

[Mom2mitokids]

3 months go quickly! Yay for 90 days!!!!!!

Hope everyone is feeling well at your house.

Thank you Tim. I'm sure the 90 days will go by fast. The kids will have almost a month off from school for winter break, than we have tons of doctors appts. I really really want to go, but the flight is making me not want to go. So far everyone is doing ok. Korissa is back getting sick every month. She just got over another cold. I think it's time to think about taking her tonsils and adenoids(sp) out.

 

[hollie1974]

Just read your PTR. Wow your kiddo's have been though a lot! I love all the pics......you have a very beautiful family!

They originally thought Lily had Mito do to her MRI but she has Canavan instead.

Hope everyone is feeling better!!

 

[Mom2mitokids]

Just read your PTR. Wow your kiddo's have been though a lot! I love all the pics......you have a very beautiful family!

They originally thought Lily had Mito do to her MRI but she has Canavan instead.

Hope everyone is feeling better!!

Thank you for coming by

 

[Mom2mitokids]

Scott and kids on our local news last month. Kyra is the one that said she likes the dragan ride. Korissa speaks and then you see the family shot and Scott talking about the kids having Mitochondrial Disease. Kylee and I stayed home. Kylee was having stomach issues and landed in hospital 2 days later. It's not the best quality as I video it off my Iphone.

 

[that's nice]

Awesome video!!!

I love how your MAW has events like this!!!! It looked like everyone was having a great night! I hope you are saving all these clips for your girls!

 

[hollie1974]

Super cool video! I bet that was really exciting!