Korissa's ~MAGICAL-AMAZING~ 10 day MAW/GKTW Adventure!! Discovery Cove day started

[brookerene]

I loved the photos.... it looked like soooo much fun! Thank you for taking so many photos....!

 

[Mom2mitokids]

I have just sat here fr about 2 hours reading all about your trip. The most amazing trip and bought back some wonderful memories of our gktw stay.
Thank you so much for sharing your trip and I wish you and your family all the best for the future xxxx

Thank you for taking the time and reading our TR. We are hoping one day and go back to GKTW and volunteer.

Wow what an amazing trip! Luved all your pics

Thank you Emma

I loved the photos.... it looked like soooo much fun! Thank you for taking so many photos....!

Thank you Brooke. I had a blast doing.

 

[Mom2mitokids]

I just wanted to let everyone know that Kylee is getting admitted today. Hopefully not a long stay.

 

[kayrosek]

Prayers for Kylee, that she is home soon.

 

[mommy2mrb]

sending lots of pixie dust and prayers it is a short stay!!!

call me if you want to talk!!

 

[ellenbenny]

Loved the trip report, so sorry it had to come to an end

Hope Kylee's stay is quick and she can be home in plenty of time to celebrate her birthday!!

 

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Awe I just love this family picture

 

[mommy2mrb]

checking in to see if Kylee is home yet?
hope she is feeling better and home!

 

[Mom2mitokids]

checking in to see if Kylee is home yet?
hope she is feeling better and home!

Hi Lisa,
We are still here. Kylee had a slow going on the stools. She finally started going Thursday night. They are trying to set up a test on Monday and that takes 3-4 days to do so we maybe in here until Wednesday. thank you for checking up on us.

 

[p00h4me]

Glad to hear that Kylee was able to empty out some. Is the test she having going to help with this in some way? We'll be praying for her and so glad that you'll be able to go home on Wednesday before her birthday!

 

[mommy2mrb]

sorry to hear you're still in the hospital with Kylee....hope the tests will help her out and she's home to celebrate her birthday in style!

 

[Mom2mitokids]

Glad to hear that Kylee was able to empty out some. Is the test she having going to help with this in some way? We'll be praying for her and so glad that you'll be able to go home on Wednesday before her birthday!

The test is called Sidz(sp) marker. She eats these tiny rubber band looking things and they take xrays to see where these bands are. They are looking to see if she has any narrowing in her colon. If she does than they can take that part out and resew the colon back up. Just as long as we can be home for her birthday... I will be happy. They said it can take anywhere from 3-4 days.

 

[Mom2mitokids]

sorry to hear you're still in the hospital with Kylee....hope the tests will help her out and she's home to celebrate her birthday in style!

Thank you Lisa

 

[Mom2mitokids]

Kylee with her Mito friend.

 

[jj0plin]

She's still got that big, adorable smile Hope you all get to leave soon and the tests all come back good!

 

[mommy2mrb]

cute photos of the girls....looks like her friend is a disney girl too

 

[Mom2mitokids]

cute photos of the girls....looks like her friend is a disney girl too

Katlyn is also a disney fan. Her Neuro denied her her MAW saying she isn't terminal, so her mom is going to talk with the GI. She wants to go to Disney World.

 

[p00h4me]

Hi Kris,
Stopping by to say Hi and seeing if you and Kylee are out of the hospital and home again! Hoping things went well with the test and no narrowing was found in Kylee's colon.

 

[Mom2mitokids]

Hi Kris,
Stopping by to say Hi and seeing if you and Kylee are out of the hospital and home again! Hoping things went well with the test and no narrowing was found in Kylee's colon.

Thank you Gail..
We got home yesterday(Tuesday). They didn't do the test yet. They all think it's too close to being cleaned out and we wouldn't get a true results. We are going to start it next week..after her GI appt. We can just do it outpatient.

 

[blessedmom4]

I am sick...I just typed a long message and received an error message about the DIS Database and an error...my original message is gone! I hope this one posts!!!

Dear Sweet Kris,

First, Please forgive me for being so far behind on signing in on your TR that I missed the end...and what a SPECTACULAR end it was! I am so blessed to read about it and see all of the incredible pics and your day at Discovery Cove...Simply AMAZING!!!! Billy and Gail are extraordinary people and I am so happy they made Korissa's biggest wish come true! I KNOW Gail loved the book you made for her, what a great way to show her your gratitude. It looks like the most amazing trip, I can't believe all you managed to pack in; however, I can tell it was tiring for Kylee. That is my worry on our trip, to ensure everyone gets some down time...although to really have enough time, we would need a month....sounds good to me!

I am happy that Kylee will be home for her birthday. I hope it is a magical day for her, full of presents, laughter and PAIN FREE!

Praying Korissa's breath test today goes well!
for your special family!!!