It’s about time! Obsessions and a life worth living. June 5th -11th 2011

my3apsons

Earning My Ears
Joined
Apr 15, 2011
Messages
37
I’m H (39), M (43), P (16) , S(12), MM (11), A (8)

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From Left to Right. MM, A, P, S

This trip report is years in the making. I would spend countless hours online looking at Disney vacations and knowing that it wasn’t possible but still yearning to give my children something I never had. Vacations were not something we did as a family. Affording them was not a possibility. There is a ton of background, as to the whys vacations were never considered. All 3 of my boys are on the autism spectrum. 1 out of the 3 has co-occurring medical, immunological and mental health issues. We were 100% focused on doing what needed to get done to help our boys and making our daughters life as normal as possible.

Through the years I’ve watched my 12 year olds love of all things Disney grow. He use to have an obsession with carrying VHS tapes, that started around age 2 and which still sort of continues today. Now he doesn’t carry them but has to own them. (Regardless of the fact we don’t have a VHS player anymore) He can tell you a lot about Walt Disney and Disneyworld. He’s an amazing kid and for years I wanted to make his dream come true.

This past year has been a struggle for me. I’ve done it all for so long. My dh is a wonderful man but he also works up to 80 hrs a week. In June of last year, while shopping with Sean, I got sick, dizzy and couldn’t walk. DH came to pick us up from the store and went straight to the hospital. No one knew what was wrong but they knew it was something. It started me down a path of multiple doctor appointments and finding out that I have multiple things wrong. MRI’s reveled several areas of back and neck disc problems and moderate sacral arthritis. My S1 nerve is compressed bilateral, my medial nerve from my neck is compressed. I have what is called ankylosing spondylitis. I’ve had 2 operations in the last year and there are more to come. I ended up at an ENT to deal with multiple swollen lymph nodes in the neck area. All were biopsied and one came back inconclusive. I had my tonsils removed , which was horrible. Knowing that things were bound to continue in a downward spiral, while we found out how to deal with what was going on; I booked Disney. It’s only money and I can figure that all out. It was time to enjoy my children while they are a little and I can still walk and pain is minimal. We needed a real vacation. I’ve spent 3x’s as much on medical as this vacation will cost.

Booking was not as easy, trying to get a vacation in between M’s work schedule, the kids school events and my work schedule. We settled on June 5th -11th. Staying at Pop Century - Free Dining Pin (that post card came at just the right time).

Up next an exciting event two weeks prior to our departure.
 
What an incredible story! I am so happy that you and your family are getting to see the World. I love your comment about "It's only money." Remember that while you are down there... Have a MAGICAL time. Please make sure that you post after your trip. I can't wait to hear about it!:cool1:
 
It's a rainy day here in upstate NY and I'm home with S, who has off of school every monday for the rest of the month.

Booking this trip was hard because finding a week where the kids were not obligated to school events was close to impossible. May and June are always so busy. My 16 year old is one busy young man. SAT, Choral Concerts and a super special Prom.

P has known the young lady that went to the prom with him since they were 9 and in a special ed program at our local BOCES. They both moved back to our home district the following year and became great friends. I believe she was his first real and only crush. At the start of Junior year they both decided to admit that they have had a crush on the other for years and started dating.

This past Friday was prom. What a wonderful event that years ago we were not sure would ever be possible. Both kids are well liked in school and participate in a lot of music based programs.

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The young lady in this picture was crowned Prom Queen. This speaks volumes about the community in which we live. P was so proud to have his girlfriend have her time in the spotlight.

For those at Disney over this coming weekend, our school band will be there marching down main. P's girlfriend will see Disney for the first time. Can't wait to hear her reaction.
 
16 more days :banana: till we load the car and head out on a long roadtrip. Hotel is booked for Saturday night. Trying to convince DH that a hotel Friday night with an earlier leave time is a must. I'll wear him down in the next few days.

One band concert, one concert, a few 5th grade parties, one special needs school intake for the 12 year old and why not throw in multiple doctors appointments. Yea, 16 days will fly by and I'll need some of the Disney Magic just to calm down.
 

Just 20 hours till we load in the car and start the log drive to our first vacation. We are mostly packed and whatever we miss can be bought.

Today - Batteries, Gas, Heartburn meds ( mine have been lost in the house somewhere)

2 hr work meeting from 7pm - 9pm tonight. Yuck. What a way to end my work week.
 














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