I have to have a hysterectomy

[rnd4life]

I knew this would happen so I tried to prepare myself for it. I've been dealing with severe endometriosis and so much pain from it for so long, part of me is a little relieved that maybe there is an end in sight and I can be pain free for once.

DH and I have 2 beautiful boys, sweet angels . We both discussed and agreed that we don't want anymore but it's still hard think about the fact that I will never be able to have another baby. Just strange, I guess. Being only 30 years old, it just all seems odd but I know it's the best thing to do for me.

Guess I just wanted to say what was on my mind. I'm not normally one to ask for prayers and pixie dust but if you have some extra to spare, I'd appreciate it.

 

[pattyT]

 

[LBAK]

My best friend went through the same thing 2 years ago and she says it's the best thing she's done. No more pain! She was also sad about no more babies but she also knew in her heart she was done. Prayers and pixie dust on the way.

 

[Christine]

I think it's very normal to feel that way. I did not have a hysterectomy but, at age 31, decided that I was not having any more children. I knew I didn't want any more, but just knowing that that phase of your life is over is kind of sad and "final."

 

[Mom2Ashli]

I knew this would happen so I tried to prepare myself for it. I've been dealing with severe endometriosis and so much pain from it for so long, part of me is a little relieved that maybe there is an end in sight and I can be pain free for once.

DH and I have 2 beautiful boys, sweet angels . We both discussed and agreed that we don't want anymore but it's still hard think about the fact that I will never be able to have another baby. Just strange, I guess. Being only 30 years old, it just all seems odd but I know it's the best thing to do for me.

Guess I just wanted to say what was on my mind. I'm not normally one to ask for prayers and pixie dust but if you have some extra to spare, I'd appreciate it.

Trust me I know how you feel. I also have endometriosis very bad. I am just now finishing up a New Drug Research Study. It is a new drug they are trying to fast track thru the FDA. This is the 2nd Human Study that is being done. The drug has had very good results so far in the past study.

 

[kdibattista]

 

[rnd4life]

Thank you everyone!

Mom2Ashli- I certainly hope that new drug will be able to help so many others dealing with endo. It's a terribly painful thing to go through. Good luck to you with it, as well.

 

[OhMari]

I had my last baby at 28 and my ob told me no more. I have 4 children and all were very large babies. I think the feeling you get, knowing you won't be having any more children will always be there. It does dim away, but every once it awhile you think about it. I'm 44 and I have been having thoughts about having a baby-but I know I am done.

Hope everything goes good for you.

 

[clutter]

I take bcps to supress my cycle because of endo. My gyn thinks that we may actually get me through the big M without the big H. (Which I've had hanging over me for 25 years, since my first diagnosis.) Have you looked at that option with your gyn (or gotten a second oopinion?)?

 

[Shugardrawers]

You certainly have my and I had a hyst at 30 for the same thing. I had never had children and was not in a serious relationship so who knew how long I'd have to endure until I could have a baby. As it turns out it was 7 years and I could never have made it. My doc told me that pregnancy often helps a great deal with endometriosis and so sorry that it didn't in your case. Whether you have 1 child or 10, losing the ability when you think you may want more is so hard. For me though, the thought of finally being pain free far outweighed the sadness of not being able to have children.

 

[jajuan]

I had edometrial albation almost a year ago. My OB said he would not do it without tubal so I did it. I have 4 beautiful children but it was one of the worst feelings to know they I had to give that option up. I still have bad days...but I also still have the pain. If your pain goes away, it will make the pain of the other go away too. I will be thinking of you. It is nice to vent because most of the people I have talked to did not understand the loss you feel.

 

[BelleMcNally]

Definitely sending prayers your way.

My mother had a hysterectomy a few years back; it was emotionally difficult for her to face it, but she feels SO much better now. Much less pain.

Which makes us all happier!

 

[rnd4life]

I take bcps to supress my cycle because of endo. My gyn thinks that we may actually get me through the big M without the big H. (Which I've had hanging over me for 25 years, since my first diagnosis.) Have you looked at that option with your gyn (or gotten a second oopinion?)?

I did 6 months of the Lupron Depot shot, which put my body in a state of menopause. The purpose of this shot was to make the endo stop spreading and I was actually feeling pretty good during those 6 months. Little by little, though, the pain has started coming back.

I had surgery almost 2 years ago to remove my left ovary because of a large 6cm cyst. At that time my right ovary was in good shape but it's gotten worse since then. Before I started Lupron 2 more cysts were found on my remaining ovary.

I am so sorry for all of you who have shared your stories with me about your problems with endo. I didn't realize or even understand that something could be so painful and hard to deal with until I started having problems myself 15 years ago.

Thanks to all for your kind words and prayers. It means so much to me.

 

[Hermosa11]

P and PD being sent to you from westcoast...........

 

[Poohgirl]

Sending Prayers and .

 

[robinb]

{{hugs}} I'm sorry that you need the operation . It must be very diificult to give up your fertility, even when you already have two children.

 

[TEENEE]

I know how you feel. I had a hyster last year, Dec 17 to be exact. I have two children and didn't have any plans for having any more kids. I still didn't like the idea that that ability was being taken away from me. I expected to be upset about it after the surgery but it really hasn't been a problem. Before the surgery I was so run down and had pain on a daily basis due to fibroids. I'm so glad I had the hyster. I feel better, have more energy and no monthly problems. Good luck to you. I don't think you will regret having the surgery.

 

[tiff211]

No words of wisdom but !!

 

[ilovepcot]

Only thing I can say is....wish I'd done it sooner! It radically changed my life for the better. And DH's! Plenty of pixie dust and good wishes coming your way.

 

[ForTheLoveofDisney]

I too have endometriosis and know the unbearable pain every month. My heart goes out to you.

Currently I'm looking into two specialists in the treatment of endometriosis.

One is the Center for Endometriosis Care which is in Atlanta, GA and the other is in Bend, Oregon and it is called the St. Charles Endometriosis Treatment Program . I would encourage you to look into these two centers. Endometriosis is a disease that is estimated to affect 80% of women but unfortunately only about 20% of that 80% know they even have it. Many doctors are not skilled in the treatment of removing endometriosis (although they think they are) but there are specialists out there whos life work is dedicated to the treatment and (hopefully one day) cure of endometriosis.

I also belong to a great online support group for women who suffer with endo and that group can be found on Yahoo groups and it's called ERC which stands for Endometriosis Research Center

Good luck in whatever you choose.