~How TWO trips became...who knows? ~ It's a TRIP! and an upgrade.... 4/22

[Matt1026]

I am so sorry to hear that about Lauren. Please let Lauren know that she has alot of prayer warriors out there that are praying for her.
We are praying for you too!!
I was telling Lucas last night that you are going back soon. He said if you see Ed, Barbara or Kent please let them he said HI. And to make sure that you ride Lilly Belle for him.

 

[maroo]

Thank you all for your responses!

Lauren would be laughing her head off if she got Botox...what a trip!

I am actually a pt advocate for my "real" job - and I have fought with her wheelchair company and such and straightened a few people out in the last few yers...but they had stopped paying for PT long before I knew them...They would not even cover it after her last surgery for scoliosis...for that brand new problem. She met a lifetime max or something?

She does have access to school PT's...and that was mentioned today.

Unfortunately...when Lauren is at school...there is no time for ANYTHING else. She goes early...stays late...does homework 3 hours a night. I just don't know when they would do PT at all. Either at school or outside of school. But they will have to do it one way or another.

Do any of you guys have kids in High School? Do they do homework CONSTANTLY??? Lauren even has hers "cut" some, because of her disability...but last week...she had 50 "short answer" questions for The Scarlett Letter and the finished product was TWELVE pages (front and back) to answer them. Took me 6 hours writing for her. REDICULOUS. The teacher said she could do half...but her test would cover it all. So Lauren, of course, did them all. And that was for one class. No wonder she can't hold her head up.

There is talk of having her cut WAY back on her classes...but that messes up all of her stuff at school...not just that she can't graduate on time...but also the services the school can provide, if that makes sense.

Very crummy situation.

 

[eyor44]

Isn't Lauren a Junior or Senior? They really seem to pile on the work to them. In addition to expecting them to participate in extra curricular activities, volunteer and hold a part time job.

and of course they are to get 8-10 hours of sleep a night.

 

[Sandy321]

BTDT - and I know when ds had his IEP the same nonsense was about - IEP had her work cut, but teachers just doubled the weight! (like if a spelling test the normal load was 20 - he'd do 10 - but they were worth twice as much, and the teacher picked the 10 out of the 20 - so what was the point? In the end - he still needed to know all 20 anyway )

Look at the BIG picture - find the point... you can work thru the school work - ds wasnt "allowed" to take AP classes, but could take the AP tests anyway - and get the college credit...

its a messed up world for sure!

 

[maroo]

Isn't Lauren a Junior or Senior? They really seem to pile on the work to them. In addition to expecting them to participate in extra curricular activities, volunteer and hold a part time job.

and of course they are to get 8-10 hours of sleep a night.

She is a Junior. I remember it being my hardest year.

She has cut out Student Council this year. And doesn't do as much volunteer stuff with the church (which is sad...but it was just too much for her).

But she IS going to be participating in the big Christmas program...

I just told her...ya know...if you get a B - so B it!

Lauren really needs 12 hours of sleep a night. If she is allowed to sleep, she almost always sleeps a full 12 hours. But during school she is lucky to get 7 or 8 - up so early to do her stretching and morning routine.

BTDT - and I know when ds had his IEP the same nonsense was about - IEP had her work cut, but teachers just doubled the weight! (like if a spelling test the normal load was 20 - he'd do 10 - but they were worth twice as much, and the teacher picked the 10 out of the 20 - so what was the point? In the end - he still needed to know all 20 anyway )

Look at the BIG picture - find the point... you can work thru the school work - ds wasnt "allowed" to take AP classes, but could take the AP tests anyway - and get the college credit...

its a messed up world for sure!

Her teachers...for the most part...are very kind to her. Mainly because they know how hard she works. It shows in the work she does. So they do cut her some slack. She has almost always been exempt from exams...even if she had one too many absences or something...because hers are legit.

And she has a WONDERFUL assistant with her at school that assists her 1 on 1 all day long - we are very fortunate to have a school district that will provide that for her.

She is in Honors classes...no AP yet. We drew the line for her on that one. She wanted to take one, but we just told her to hold off till next year. She thanked me for that the other day.

She told me the other day that she could no longer keep her head above water... "So I will just learn to breathe like a fish!" Bless her heart!

 

[All7OfUs]

Ahhh, Lauren! She is one of those rare students who goes the extra mile and then some. God bless her!

Lisa is a wise mother and you are a more than great advocate- everything will work out fine, I just know it!

 

[tinytreasures]

so sorry about Laurens struggles
I know we are going to be in the same boat with Avy one day it is already hard now for her
tell her life is short and she needs to stop and smell the roses sometimes

 

[jenb1023]

Sorry I've been MIA but you know where I've been hiding!

Tell Lauren we are thinking about her! I am so sorry to hear about the neck issues and the troubles with school and activities! It sounds like the botox suggestions were good ones (and Lauren will get a kick out of telling eveyone she had botox!). Lauren is such a trooper worrying about school when she can barely hold her head up!

I saw the new deal but ignored it because I can't go for a week so why look.

Hang in there! And you can be blah any time you need to be - that is what we are here for!

 

[Sandy321]

Maroo are you swimming with the fishes too?

Hope you are adjusting to your new schedule, and Lauren is finding relief!!

 

[eandesmom]

Thank you all for your responses!

She does have access to school PT's...and that was mentioned today.

Unfortunately...when Lauren is at school...there is no time for ANYTHING else. She goes early...stays late...does homework 3 hours a night. I just don't know when they would do PT at all. Either at school or outside of school. But they will have to do it one way or another.

Do any of you guys have kids in High School? Do they do homework CONSTANTLY???

Yes and Junior year is tough, a lot of the key testing for college takes place this year and there is a lot of prep among other thing, not to metion the fact that she is in Honors. It is brutal.

Her poor poor neck, that is just awful! I hope she can be seen very very soon and a plan figured out, it exahusts me to think of that effort.

She told me the other day that she could no longer keep her head above water... "So I will just learn to breathe like a fish!" Bless her heart!

She is inspirational that one!

If you are an AP holder or have a PIN code, then maybe the 4/3 is not such a great deal. For those of us who are not, depending on the size of your group, it can be fabulous. For us FD is a better deal simply because we are largely all adults but the 4/3, sure beats a big fat nothing!

Or if you are us, you just take what you saved on the 4/3 and use it to pay for the dining plan!

 

[maroo]

I am resurrecting this here pre-trip report!

It will change a bit...

But I have no where to put all of my exciting news right now!

I have been BANNED from looking at All7ofUs's pre-trippie right now because there are top secret activities being discussed over there! Which cracks me up! I am dying to go look...but I will talk to you guys instead!


So...I am not going to do a big index...and I am not going to make you guys remember ANYTHING between my posts...

I will just let each one stand alone.

Each time I post about a trip - I will tell you guys which trip it is...where we are staying and who is going...and then just talk.

This will be for us "friends"...of course everyone is invited to join the fun. This will be my sounding board. Even if it no one hears it!

I hope you will continue to subscribe and follow along on my musings!

Things are guaranteed to change early and often!

 

[maroo]

Trip Dates: December 14-20, 2009
Resort: AKL - Savannah View
Cast: Ray-Ray (Rachel), Oma (Ray-Ray's Mom), Rosie (Ray's BFF), The Boo (Ellie - Ra's 4 year old niece), Big Boss (Ellie's Mom) and Grumpy (Ellie's Dad)

ETA: Oh yeah...and me...maroo!


Discussion topic of the day: Shirts

We are going to get two sets of shirts...one will remain a secret for now. I gotta hold on to something here!

But the other set is going to be pretty cool and I just had to share them with you!

We are each going to get a sweatshirt with DISigns that look like these...

Ellie's Dad has refused to wear any matching shirts...so we are going to make him a shirt.

I am not sure what is going to be on the front of it yet...but on the back...he will have THIS...

And the idea is that we will put it on the back of the shirt and the brown strips will be the "tape" - like we have taped it to his back!

I have more updates on other trips! But that is about all I have time for today!

I hope you guys will hang with me!

 

[kimmylaj]

love the shirts but the grumpy is my fave

 

[StefaniLyn]

Did you unsubscribe from your own TC3 PTR so you don't get any accidental tidbits of information? K, I know this may be spilling the beans a little but Leisa told us all that she -wait, you didn't reeeeeaaaaalllllly think I was going to tell, did you?

Woo Hoo! What a great way to CPR this TPR back to life! I love your new format idea. It will make it easier for those just jumping on board as well as those of us (ahem! ((me))) with a memory that extends no farther than last night's dinner.

I LOVE the shirt designs! Especially the Grumpy! Too darn funny! Now to think of something just as funny for the front. Did you make those yourself? You continue to surprise me with your hidden talents! What will your next revelation be?

I can't wait to hear about more of your plans!

 

[that's nice]

This PTR is back huh? Maybe you should change the name.. How TWO trips became TEN? It is ten right?LOL

Welcome back! See what happens when Liesa kicks you out of the TC3 TR?

 

[maroo]

This PTR is back huh? Maybe you should change the name.. How TWO trips became TEN? It is ten right?LOL

Welcome back! See what happens when Liesa kicks you out of the TC3 TR?

Lets see...

Two became 3...then two...then four...now it is....SEVEN.

He he.

But more on that later.

 

[maroo]

love the shirts but the grumpy is my fave

Thanks! I did not design it! I want to make sure that is clear! A former DISer designed them for me!

Did you unsubscribe from your own TC3 PTR so you don't get any accidental tidbits of information? K, I know this may be spilling the beans a little but Leisa told us all that she -wait, you didn't reeeeeaaaaalllllly think I was going to tell, did you?

Woo Hoo! What a great way to CPR this TPR back to life! I love your new format idea. It will make it easier for those just jumping on board as well as those of us (ahem! ((me))) with a memory that extends no farther than last night's dinner.

I LOVE the shirt designs! Especially the Grumpy! Too darn funny! Now to think of something just as funny for the front. Did you make those yourself? You continue to surprise me with your hidden talents! What will your next revelation be?

I can't wait to hear about more of your plans!

I have been told to stay away from that pre-trippie for a little while. Liesa said she would let me know when I can come back!

I told her that was fine...I am overwhelemed with pretrippies right now! Which is a great thing!

I did not do the DISigns! A former DISer did them for me. But I will be ironing them on the shirts...which is frankly harder than it sounds. You should have seen my first set. Jen will have to fill you guys in on that!

 

[jkCT]

Maroo! I'm here to read along during your exile!

LOVE the Grumpy shirt! Need one of those for our next trip, only it would be my 12yo DD wearing it. (I'm soooo not a cool mother, according to her. Meh, preteens, what can you do.)

 

[All7OfUs]

Did you unsubscribe from your own TC3 PTR so you don't get any accidental tidbits of information? K, I know this may be spilling the beans a little but Leisa told us all that she -wait, you didn't reeeeeaaaaalllllly think I was going to tell, did you?

I can't wait to hear about more of your plans!

LOL!! OK, that was pretty fuh-nee! for a minute you had me going, like you thought I wasn't over here playing too.

Just so you know the plans change daily...

This PTR is back huh? Maybe you should change the name.. How TWO trips became TEN? It is ten right?LOL

Welcome back! See what happens when Liesa kicks you out of the TC3 TR?

You got that right. I think when Disney sells APs, they didn't really count on having maroo using one like every weekend!

Maybe I should ban her more often???

 

[eyor44]

Hi I was wondering when you were going to come bach over here. Of course, I am one to talk. I still have a trip report I haven't finished.

Tim you are too funny.....ten..... but when I think about it you might be right.......

Maroo, exactly how many trips do you have planned at the moment? You are my hero, you know that don't you. You are my Disney hero..........