Getting a new kidney!!!

Discussion in 'Coping and Compassion' started by CTDisneyfan816, Jul 2, 2015.

  1. CTDisneyfan816

    CTDisneyfan816 DIS Veteran

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    I scheduled a trip to Disney and Universal July 11-19. Little did I know I would be cekebrating some incredible news! Got the call this morning that they found a kidney for me. August 3 is the tentative surgery date!
     
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  2. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    That is wonderful news! Wishing you all the best.
     
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  4. mommasita

    mommasita DIS VETERAN Moderator

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    Fabulous!!!!!!!!!!!!! LOts of great things happening
     
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  5. CTDisneyfan816

    CTDisneyfan816 DIS Veteran

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    Well sadly the offer of the new kidney had to be revoked. It was part of a paired exchange (my donor is not compaitble with me so they look for other like pairs to arange a swap). One of the recipients declined the offer (likely they felt it was a high health risk kidney meaning donor had some past issues). So the chain is broken and I go back to waiting.
     
  6. mommasita

    mommasita DIS VETERAN Moderator

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    Ugh that sucks.. Best of luck for the next one. I hope you have a great trip.
     
  7. CTDisneyfan816

    CTDisneyfan816 DIS Veteran

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    Thanks. Leave in two days!
     
  8. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    :hug: So sorry this did not work out for you. Hold onto hope. I hope that you will have a wonderful time on your vacation.
     
  9. CTDisneyfan816

    CTDisneyfan816 DIS Veteran

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  10. mickyduck705

    mickyduck705 Earning My Ears

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    thats graet news! i acully donated a kidney to my mom... good luck!:love2:
     
  11. TheDisneyDoll

    TheDisneyDoll DIS Veteran

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    Best of luck you find one soon! :D
    I've been on and off the lung transplant list since i was small, but a lot of the transplant regulations have changed for the better.
    I hope you get your call soon!
     
  12. danny1649

    danny1649 <font color=green>Will be wearing some lime green< Moderator

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    Great news I'm ao happy for you:):):)
     
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  13. CTDisneyfan816

    CTDisneyfan816 DIS Veteran

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    I haven’t posted on here in some time as the time since my transplant have been difficult to put it mildly. I had complications from the start including multiple infections amd viruses. I spent a total of 39 days in the hospital, 10in ICU. I almost died in May of 2016 from a nasty virus called CMV. I also lost the ability to walk from atrophy. I used Disney and Universal as incentive to work hard to get my walking back. Last visit to Disney was July of 2015 but I am close enough to walking should be my return. I am transitioning from a walker to a cane now. Getting there. Kidney thankfully is working great.
     
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  14. Hootenany

    Hootenany Mouseketeer

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    Hang in there! Our son (16) had a heart transplant this past February! It was a tough recovery for him as well! He also atrophied and had months of physical therapy to help him regain strength and stamina. It was an upcoming trip to Disney that kept him motivated! You've got this and will be walking Main Street in no time!
     
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  15. mommasita

    mommasita DIS VETERAN Moderator

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    I’m glad to hear you on the mend , sorry about all the complications. Look how far you have come ! I am thrilled for you
     
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  16. Rapunzeland

    Rapunzeland Mouseketeer

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    Congratulations I hope you enjoy your trip and all goes well
     

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