Flying with an Autistic child.

jondvl

Mouseketeer
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Apr 22, 2009
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113
We are planning a trip to WDW in August of 2010. I do not know how he will react to the flight. It could go good or bad. He likes airplanes so I am hoping for the best.

Does anybody have any suggestions for me or any issues you might have had I could be aware for.

Thanks :upsidedow
 
Depending were your child is “on the spectrum”, only parts of our experience may apply.

Since he has an interest in airplanes, that is a big plus.

We flew for the first time (since he was 1) with our DS9 Aspergers last year. I did a lot of research before so I was familiar with disability rights on airplanes. We did a lot of “briefing” about security and the airport. We did the disability pre-board, which allowed us to get settled before the crowds “arrived” We had lots of favorite activities (leapfrog, DVD player etc.) to help pass the time. We did advise the flight attendants that he was Aspergers so if there were any significant manifestations that they would handle it “correctly”. For seating we sat 3 across DW isle, DS9 mid and DS6 with me in front of DS9 in case he kicked the seat. In the end it was very easy, with no significant issues, the boys were even “competing” for who could sit in the window seat to see the “ants” on the flight back.

IF there are any sensory issues (auditory, tactile, etc) they need to be accommodated for to the extent it is possible.

We are actually flying out tomorrow morning for WDW and it DS9’s anxiety levels are normal we may not even use the disability pre-board.

One thing is I am a very comfortable and knowledgeable flyer so that helped a lot, only a little anxiety transfer from DW.

bookwormde
 
One important thing to remember if you bring any electronic toys along.

Once the cabin door is closed, and until such time as the aircraft is above 10,000 feet, all electronic items must be turned completely off. Likewise, once below 10,000 feet and until on the ground all electronics must be off.

So make sure he is aware that there are some times on the plane that he cannot use any games.
 
Just wanted to add: NOISE CANCELING HEADPHONES. I got my DH (who has Asperger's) a set just because I thought he'd like them for music (but it has a detachable cable so you can just wear the headphones without plugging them into music) and he now wears them for all sorts of things--dishes, vacuuming, airplanes, etc.
 

I think the biggest thing for us was front loading. My daughter has Asperger Syndrome and is extremely high functioning. We go over every step of the process ahead of time so she knows exactly what to expect and what is expected of her. She really needs to know ahead of time even things like how long she should expect to wait in line and then have to sit around waiting. Knowing that she had to take her shoes off at security and then the possibility that security may want to pass a wand slowly over her whole body to check her for metal might happen are examples of details that were important for us.

We also made sure that she had a drink for take off to help with her ears, though we did also explain in detail about the feeling she would likely experience in her ears on take off so she wouldn't be surprised or upset. She also enjoys learning the science behind why things happen so we also go over that. It makes things that much more interesting (for both of us since sometimes we have to research things to get answers) and knowledge seems to really help ease her fears.

My daughter can handle pretty much anything as long as she's prepared for it.

Here's my disclaimer. Every child is different. If you've met one autistic child then you've met one autistic child. :-) What works for one won't necessarily work for the next so you need to think about what kinds of things work best for your child and plan accordingly. This is what works for mine.
 
Good point about the electronic devices. Depending on the flight conditions, it may be a while until you can get the electronic devices out. You can use them while on the ground until the door closes, but if putting it away is going to cause problems, you probably would not want to get them out at all.
Also, one sound to be prepared for is babies crying. If there are any babies on board, they may cry from being overtired or just not liking the feelings.

If you go to the disABILITIES FAQs thread, there is one post about travel. It includes links to some thngs about your rights as a traveler and links to he Transportation Security Administration. They recently put some really good videos up so you can look at / show the process. I put links to those in the disABILITIES FAQs transportatin post. You can get to that thread near the top of this board or follow the link in my signature.
 
Things to bring: leapster or some kind of hand held electronic toy; m&m's; goldfish crackers; noise cancelling headphones; a picture schedule that indicates what's going to happen and when its going to happen; a favorite toy.
good luck
 
My 10yo son is PDD-NOS . We are DVC members and have visited every year of his life .Our last 2 visits have been difficult and he has had a lot of problems with the crowds. This year he has decided he does not want to fly anymore. He is aware of the recent plane crash on the Hudson and AirFrance disaster .I have already bought tickets for our party of 9 for August .We live in Boston and he would never be able to be in the car that long or I would consider it!!!! I have contacted JetBlue to see if they could arrange a visit to a cockpit for us as my son is also into the science of things and I am hoping that with some explanation of how the plane flies and safety of flying it may help. They have been helpful and say they have contacted a flight crew and will get back to me to set something up. I also read that it is possible to meet the flight crew at boarding time if this would help .
 
My ds is 11 with Autism and I've always been too afraid of taking him on an airplane so we always drive. He is not high functioning and on the level of a 3 year old so explaining things to him just goes out the other ear. I'm thinking of booking a shorter flight somewhere close to home for a test run, something not more than 30 minutes. I figure the cost wouldn't be too much and it would be close enough to have my mom drive to get us if he decided not to get back on the plane. Every kid is different, it's just too hard to predict until you actually do it. Good luck!
 
We have two children with autism and as expected both react to things very differently. We are going to Disney from the UK in August for our third visit with the children and we find that taking things that they are familiar with and use for comfort at home very useful on a flight for example my DS (11) has a fleece blanket that is very soft to touch (he is very tactile) and always sleeps with this on his pillow so he associates it with home and it calms him. My DD (16) is calmed by lavender so we have bought a lavender stress ball that she can squeeze as he lavender sprays are not allowed on the flight. We also find the pre boarding very useful as it is the best chance we have of them being calm at takeoff. With both of them we try to talk through every detail of what will happen and use the internet and books to provide as many pictures to back this up as we can.
I hope you have a good flight which will be all the better for the forward thinking that we all have to do with autistic children.
 
We have a 6 year old daughter with non-verbal ASD and these are the things we did to make the flight more comfortable for everyone.

We asked to pre-board and this allowed us to get Madelyn belted in and comfortable before people started herding in. She has a tendency to touch other people and this isn't always appreciated. The flight attendants have often offered us the bulk head seats because Madelyn does have a problem with kicking the seat in front of her.

We bring a bag of small toys, snacks and a portable DVD player. Madelyn refuses to wear headphones and we were told last flight that they were required or we couldn't use the DVD player on the plane. Before we fly again we are working at getting her comfortable wearing headphones.

Before flying we take a "field trip" to the airport just to familiarize her again with planes, airports etc... We have a special needs stroller for her that keeps her safe in the airport and we gate check it.
 
Thanks everyone for the information. DS heard me and DW talking about the trip and said" Are we going to Mickey" It was so cute.
 
It helped my ds to prepare him in advance by watching the DVD Shae by Air and a couple books on flying. The unknown for him causes anxiety.
 
We just flew with our DS4 in April for the first time. He has high functioning Autism, with some high levels of anxiety about a lot of things. We had a trip to WDW planned, but had to cancel it because last year, he was EXTREMELY scared of airplanes and was very vocal about NOT wanting to fly on one (and we live in California, so it would be a LONG flight). So, we scrapped the WDW trip plan and decided to hold off on that.

However, he came around to the idea of a plane ride, so we figured we should keep it short and semi-local, just in case it went horribly. We flew from Orange County to San Francisco, via Southwest. We appreciated the ability to sit wherever we liked, and from various posts on here, I got advice to sit in the BACK of the plane. This was excellent advice for many reasons! No one walking past us every few minutes, easy access to the bathroom and flight attendants if we needed anything, no one behind our seats, in case our kids got wild (which they didn't, but I was nervous they might). Plus, it was very quiet back there, since no one wants to sit in the back, so most people sat up front, and the plane was not full, so we had few neighbors, and we could stretch out a bit.

Long story short, our son did BEAUTIFULLY. Much better than I had anticipated. He did choose to bring his HUGE stuffed dog from home, which is his nighttime comfort object. He had to carry him on the plane, since he didn't fit in the suitcase. :lmao: He hung onto that dog like it was a life preserver, but he was very quiet and well behaved during the flight. I think he was taking it all in. He did very well with the security and airport time. We didn't do much to prepare him for it...we just sort of told him about it day of, and gave him a run down of what we would be doing "next" as it came up. He has issues if you prepare him for something and then it doesn't happen EXACTLY that way, so we have learned to NOT get too in detail with plans, in case stuff does not happen that way.

For example, we drove to the long term parking lot, and then told him "next we will ride a little bus to the airport" (the shuttle)

At the ticket counter: "now we have to wait in line to get our tickets (boarding passes) and put our suitcases on the scale"

At security: "now we have to scan all our bags and strollers, just like at the supermarket"

After security: "now we're going to buy some water and snacks, use the bathroom, and then wait until it's time to get on the plane."

He did remarkably well with this sort of 'play by play'. We continued this during the plane ride itself, during taxi, takeoff, landing, de-boarding, etc.

For the return trip, we didn't have to really do this stuff, as he remembered from the previous trip and HE was doing the 'play by play'. He has a remarkable memory, and once he does something, he's got it down. :cool2: He actually fell asleep about five minutes into the return flight, and slept most of the way. :thumbsup2

The only part that was a bit rough for both kids was the descent and ear pain. We had dum dum lollipops for them, as well as gum for the older one, but it didn't help. They both panicked and started crying. My DS with Autism was very close to freaking out mode...he kept clawing at his ears and saying "what's that in there?". I felt so bad. I don't know of any way around this, though (he would never tolerate those Ear Planes in his ears). I kept trying to get him to swallow, but he was so distressed, he wouldn't drink, chew gum, or eat the lollipop. All I could do was comfort him and assure him that it would go away soon. :sad1:

I'm sure your son will do fine. We did not tell any staff about our son's condition, because we really felt that he would be okay. However, we were on a SHORT flight (less than an hour). If I were taking a longer one, I probably would notify them upon checkin, just in case.
 
We had last taken my son on a plane in June of '01. At the time (he was 6), he would not take medication (now takes pills, never would take liquid). Our doctor prescribed a Benadryl cream that we rubbed on his neck. We had to get it from a special pharmacy that will do compounding, but it helped to calm him down/make him sleepy. We skipped flying for quite a few years for reasons unrelated to his autism.

In December of last year, we went from not flying since '01 to flying to Europe (a must to visit my grandfather.) He has been on medication for a few years, but the one his new psychiatrist prescribed for the flight had a very bad reaction on a test-run, so we didn't give him anything special. We prepped by making a trip to the airport to look at the security set-up from outside (I wish we could still go all the way to the gates without tickets). I showed him tons of pictures of the process: security, the gate, the toilets on the plane, and etc. We talked through those pictures and what the process was. We watched videos on YouTube of take-off and landing (from inside and out) of the model of plane we were flying on. I wanted him to know what the engines sounded like, and talked about how your body feels when you take-off and land. We talked about how turbulence feels like an earthquake (which he enjoyed when we had a big one!) Our seats had video monitors, but he grew bored quickly.

Our biggest problems were boredom/anxiety. "Where are we? Why are we still in Canada? How much longer?" and complaining that he didn't like the answers to those questions (also, he is 14 now, so he does have a bit of a 'tude.) On the return trip, we had more daylight, and he freaked out a bit over Greenland, due to something he had heard about global warming. I told him to put a blanket over his head, and he did, and fell asleep. These are kind-of particular issues to a 10 hour flight, overseas flight, though. All in all, he did ok, and he is not a big airplane fan.
 
My daughter is 15 now and has always done well with flying. She is at the level of a small child. It is sensory for her so calming. I do bring an iPod, magna doodle, snacks, and various toys.

Can you go to an avation museum and see the planes? Go to an airport and watch the planes take off?
 
Our 10 year old (non-verbal, ASD son) loves airplanes, and we have flown several times with him. His only "real" issue seems to be that he really likes to head bang the seat. For the last couple of trips, we have requested back row seating....that way, he can rock and bang without bothering the folks behind him. We also try to put him in a cute shirt--he has an "autism rocks!" shirt--so others can recognize he has autism since from a distance he may appear neuro-typical. I hope you have a great trip...we are heading down next week...DS loves WDW!

Tracy
 














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