Drop Seizures. Anyone have luck with any particular meds??

[D L and K's Mom]

DS who is 19 and at a developmental age of an 18month. I put that in so evereyone understands he does not speak or communicate so he can't tell us how he feels. DS used to have grand mal seizures. He was seizure free and on Tegratol for years. During puberty he started back with the seizures. He is now on Topamax and Lamictal (sp??). The grand mal seem to have calmed down, we still have about 1 a month but he is having drop seizures. Sometimes he has 4-5 a day. He looks as though someone is punching him in the gut and he just falls. Dr. is adjusting the meds but I just dont think it is the right combination for him. We are going back in 3 weeks. Anyone have any good advice about meds to ask about. We love our neuro, he is a great Dr and will talk to us , gave us his home number etc but I just feel these meds are not the right ones for my boy. We now have to have a helmet and that is going over like a lead balloon!! Thanks.

 

[Eeyores Butterfly]

Do you know of any internet forums for people with seizure disorders? that might be a place to get the answers you want. I was able to find several diabetes websites and that is how I have gotten the info I need on how to treat my disease. It might help you to go there since you will have a group of people who exist to share informtion on that subject.

 

[mechurchlady]

http://www.epilepsyfoundation.org/
They and epilepsy boards should be able to help you.

http://www.coping-with-epilepsy.com/forums/
I think they might help also.

http://www.coping-with-epilepsy.com/forums/f27/atonic-aka-drop-attack-seizures-atonic-epilepsy-5030/
That is a poll and some posts by people with atonic seizures aka drop seizures.

Sue will eventually wake up and she might have more info.

 

[CWE]

Hi D,L and K's Mom,

Atonic ("drop attack") seizures are hard to control. My wife used to have them daily when she was experiencing a period of heavy seizure activity. She made changes to her meds while also using EEG neurofeedack, adopting a special diet and establishing a regular 9hr/night sleep routine.

Suggested reading (remove spaces to fix the links):

http : // www . coping-with-epilepsy . com/forums/f22/proactive-prescription-epilepsy-1254/ - Things you can do in addition to taking medication

http : // www . coping-with-epilepsy . com/index.php?p=alternative-treatments - Click the links for each item to learn more about EEG neurofeedback, neurobehavioral therapy and special diets that have been clinically studied for seizure control. All of these can be tried in addition to medications.