Come to the Dark Side...4 Weekends of Fun with the Force(Updated 11/12)

[jane2073]

Oh, wow, that is really different from my daughter's. Poor JJ.
And you are totally right: everything I have heard says to not make a big deal about it. And we don't.

 

[mickeystoontown]

I'm so sorry to hear that JJ's tics aren't any better. I had so hoped and prayed that the new meds would help. I'll continue to pray for my little friend.

 

[lovethattink]

Oh, wow, that is really different from my daughter's. Poor JJ.
And you are totally right: everything I have heard says to not make a big deal about it. And we don't.

Yes, we had no idea what it was when it started back the end of April. It was just occasional then.

I'm so sorry to hear that JJ's tics aren't any better. I had so hoped and prayed that the new meds would help. I'll continue to pray for my little friend.

Thanks, Lisa. Appreciate the prayer. I'd hate to think what things would be like without everyones support, prayers, pixie dust and good thoughts. Today he had a seizure as well. Tonight seems fine. He's playing.

 

[lsenquiz]

I got a little behind so trying to catch up. I love the interaction with JAT. We have not started those yet because Gabriel still believes the costumed characters are real and it would be confusing for him to see a person who does the voice for the costume

We loved 50's prime time on our last visit. The food was awesome. I did ask for no experience during our meal because I was not sure how Gabriel would handle it. We plan to go back in September so maybe I will just let them know that Gabriel is sensitive so we can still have the experience but not have to worry.

The picture with Kit and Shaak Ti is great.

I hate that the air conditioning broke and I hate that JJ got sick because of it. Totally the wrong family for this to happen to! I am glad things got better in the new room and you were able to get a good nights sleep.

 

[lsenquiz]

I know how you feel about forgetting your TiW card. As you know we had three meals last trip before I got get my mind straight enough to remember that silly card!!!

I am defintely going to have to look into having breakfast at 1900PF. I really want to see the Mad Hatter!

I am so beyond envious about your character experiences at Limited Time Magic: Long Lost Friends . If only I loved in Florida I would have so been there! The pictures are just incredible!!!

 

[blessedmom4]

REELMOM: THANK YOU for the warning about Sharknado..yikes!

Michelle, just a quick note to let you know I am here and praying! I will be back for a better response later. Tell JJ we are thinknig of him.

 

[lovethattink]

The last two days have been big challenges for JJ. Hopefully today will go better and I can get a SWW update in there. I'm use to cranking them out fast and that just hasn't been able to happen this time.

I got a little behind so trying to catch up. I love the interaction with JAT. We have not started those yet because Gabriel still believes the costumed characters are real and it would be confusing for him to see a person who does the voice for the costume

We loved 50's prime time on our last visit. The food was awesome. I did ask for no experience during our meal because I was not sure how Gabriel would handle it. We plan to go back in September so maybe I will just let them know that Gabriel is sensitive so we can still have the experience but not have to worry.

The picture with Kit and Shaak Ti is great.

I hate that the air conditioning broke and I hate that JJ got sick because of it. Totally the wrong family for this to happen to! I am glad things got better in the new room and you were able to get a good nights sleep.

I appreciate you stopping by. The interaction with JAT was great. Maybe the cartoon characters wouldn't be as difficult to start with for Gabriel? I can understand not wanting to ruin the magic of the movie characters.

We ate at 50's PTC 3 times during SWW. Each time the food was fantastic. The interactions were something else, but I'll get to that eventually.

Ask for Jamie if you are there at lunch time. She was great.

We originally were in an upgraded room, so the switch put us in a smaller room and it was right by the bus stop, so we heard a lot of foot traffic and brake squeals. But the room was fine and most importantly...cool!

I know how you feel about forgetting your TiW card. As you know we had three meals last trip before I got get my mind straight enough to remember that silly card!!!

I am defintely going to have to look into having breakfast at 1900PF. I really want to see the Mad Hatter!

I am so beyond envious about your character experiences at Limited Time Magic: Long Lost Friends . If only I loved in Florida I would have so been there! The pictures are just incredible!!!

Make sure you keep it in your bag so you don't forget it! I now have it in my wallet.

Oh yes! Gabriel will love it! We saw Pooh and Tigger 3 times. Alice, Mary and the Mad Hatter once. I love eggs benedict, so I really enjoyed the lobster benedict.

Thanks. We've been to a few of the Limited time magic events. This was my favorite so far. We didn't get to Brer Bear, Fox and Rabbit. The lines were long and it was just too hot. I thought maybe we'd see them when we went back on Sunday, but it was even hotter so there was no way.

REELMOM: THANK YOU for the warning about Sharknado..yikes!

Michelle, just a quick note to let you know I am here and praying! I will be back for a better response later. Tell JJ we are thinknig of him.

Thanks, appreciate you stopping by. I will tell JJ.

 

[WDWRids]

Behind and catching up (again....)! That feels like the story of my life lately!

Have to agree with everyone 50's PTC is GREAT! We eat atleast once, if not twice, while we are visiting the Mouse. The interactions are so much fun!! Especially if you let loose and join in with them.

So sorry to hear JJ has been having so many issues lately. Finding the fish had to be very difficult for him. How are things today? Hopefully better!!

We were able to get my Grandfather out of the rehab facility yesterday and home. Home health is going to be checking on him and we go back to urology on 8/9 to see what the next steps are in dealing with a nonfunctioning bladder. What a month this has been for him - hospital, rehab, hospital and back to rehab. Hopefully we can get on the right path now and things will go smoother.

Got plans for the weekend? I hope something fun!!!

 

[lovethattink]

Behind and catching up (again....)! That feels like the story of my life lately!

Have to agree with everyone 50's PTC is GREAT! We eat atleast once, if not twice, while we are visiting the Mouse. The interactions are so much fun!! Especially if you let loose and join in with them.

So sorry to hear JJ has been having so many issues lately. Finding the fish had to be very difficult for him. How are things today? Hopefully better!!

We were able to get my Grandfather out of the rehab facility yesterday and home. Home health is going to be checking on him and we go back to urology on 8/9 to see what the next steps are in dealing with a nonfunctioning bladder. What a month this has been for him - hospital, rehab, hospital and back to rehab. Hopefully we can get on the right path now and things will go smoother.

Got plans for the weekend? I hope something fun!!!

Thanks for catching up! Glad you've had good experiences at 50's PTC too.

Today went better, though he still had a lot of tics.

Glad your grandfather was able to come home. I hope his appointment goes well as do things with the visiting nurse. I'm sure he's much more comfortable at home too.

I now have plans for the weekend. A friend and follower DISer gave us a huge sprinkling of pixie dust! As she put it, she's turning my lemons into lemonade.

 

[ladylyons]

Poor JJ! Continued hugs and prayers coming your way.

Have a fun weekend!

 

[WDWRids]

Thanks for catching up! Glad you've had good experiences at 50's PTC too.

Today went better, though he still had a lot of tics.

Glad your grandfather was able to come home. I hope his appointment goes well as do things with the visiting nurse. I'm sure he's much more comfortable at home too.

I now have plans for the weekend. A friend and follower DISer gave us a huge sprinkling of pixie dust! As she put it, she's turning my lemons into lemonade.

Yay for pixie dust!!! Hope you are having a great Saturday full of "lemonade" and less tics!!!

 

[lovethattink]

Poor JJ! Continued hugs and prayers coming your way.

Have a fun weekend!

We had a great weekend! Thanks.

Appreciate the huge and prayers. Yesterday was his best day. This morning while watching tv he began with one of his throat tics. He was worried about Pac Man on the tv show he was watching.

Yay for pixie dust!!! Hope you are having a great Saturday full of "lemonade" and less tics!!!

Saturday was a nice day, though there were lots and lots of tics. At check-in he was so excited to there that he had a very nasty throat tic. I had just handed my photo id to the cm and I had to excuse myself and take care of him. When I went back to the counter, it wasn't the same cm, it was a manager. He sprinkled some pixie dust which I will share later.

Sunday JJ had lots of tics. Things started off great though. He made some crafts and had a great time doing them. Then we went for lunch. One long and nasty one happened. We had to leave the restaurant mid-lunch. He couldn't eat anything that day. We went for a boat ride and he got so relaxed he fell asleep. That afternoon we saw a beautiful full rainbow out our window.

 

[ladylyons]

Appreciate the huge and prayers. Yesterday was his best day. This morning while watching tv he began with one of his throat tics. He was worried about Pac Man on the tv show he was watching.

Poor JJ! I really do hope your able to get through these and figure out the best way to treat them.

 

[mickeystoontown]

Just wanted to drop by and tell you that I am continuing to pray for ya'll. I hope that they figure out a good medication "recipe" that will help the tics.

 

[momabaarjo]

Can't wait to hear about the managers pixie dust!

 

[lovethattink]

Today was a really good day for JJ. He woke up with a throat tic and the choking. I thought, uh oh. Not a good start to the day. But that was it! Just that one. The rest of the day went great. We made lots of crafts and other than that stayed pretty low key. I just discovered tonight that Artist's Palette accepts TiW.

Poor JJ! I really do hope your able to get through these and figure out the best way to treat them.

I hope so too.

Just wanted to drop by and tell you that I am continuing to pray for ya'll. I hope that they figure out a good medication "recipe" that will help the tics.

Thank you. I do too.

Can't wait to hear about the managers pixie dust!

It's a good one. And last night, JJ got pixie dusted at Artist's Palette!

 

[ladylyons]

Today was a really good day for JJ. He woke up with a throat tic and the choking. I thought, uh oh. Not a good start to the day. But that was it! Just that one. The rest of the day went great. We made lots of crafts and other than that stayed pretty low key. I just discovered tonight that Artist's Palette accepts TiW.

Glad JJ was able to have a good day!! Maybe getting it out of the way in the morning helped have a good rest of the day? Can think positive right? Hope your able to sleep tonight and have another good day tomorrow!

 

[lovethattink]

Today I am taking JJ to the dentist for a tooth that is bothering him.

Glad JJ was able to have a good day!! Maybe getting it out of the way in the morning helped have a good rest of the day? Can think positive right? Hope your able to sleep tonight and have another good day tomorrow!

He only had two that day! The one in the morning and another around 11 at night.

Yesterday, he only had 1 bad one. He had a few little ones that only lasted seconds.

 

[Threeboysandachickie]

I just wanted to speak up and let you know our family is praying for JJ. We love reading about his adventures. My 9 year old suffers from seizures. They damaged his brain when he was an infant. He would have 50 seizures a day. I remember the horror you are going through. Thankfully his meds are working now. He is still a bit self injurious and has some tics, but thankfully he is not overwhelmed by them. He doesn't understand what is happening to him, he has pretty significant ID issues. I hope JJ and your family finds relief soon. I am sure you have tried everything with his meds! We were lucky that risperdal takes care of most of my ds's tics. Continued prayers from my family!

 

[WDWRids]

Glad JJ has had several good days with less tics! Sounds like the crafts were fun! How's the tooth? Did they have to pull it?