A difficult and wonderful day! Long

LJC1861

DIS Veteran<br><font color=teal>Suffers from a Tag
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I am an administrator for 2 group homes serving teenagers and young adults with Autism. We recently had a new admission, a young man with Aspergers Syndrome who is 14 years old. He is very verbal and a bit higher functioning than most of our other residents. He has many many challenging behaviors and he is simply not able to live at home, regardless of how much his parents want him there. He loves rap music, robots, the Smokie Mountains, and reading his bible. He is a fascinating young man.

He came to us on 12/26/06....not necessarily the best day for him to be leaving home to come to a new residence. He is currently not enrolled in school. Due to his functioning level the 2 jr. high programs are trying to decide where he fits best. He is trying his hardest to get used to things at our little group home. He has been giving our staff a real run for their money. He has been swearing, aggressive, non-compliant with requests, teasing other residents and in general not a happy camper.

Tonite I spent several hours in the house, just being around. Today was my first day back from vacation. My last day was the day he was admitted. He started acting up and I went into gear. I kept him focused and was TOTALLY non reactive when he began to get verbally abusive. At one point it was so loud I turned my attention from him to another resident and that did not go well. The other resident and I began to do some sit-ups, which was what was next on her schedule. He began to make fun of her. I told him to "talk his talk"...if he could do them better he needed to show me! He marched himself over, plopped himself on the mat and began doing some of the best sit-ups I have ever seen. He even let me hold his feet, and he does not like to be touched. That seemed to turn his mood around and after about 3 hours of constant positive reinforcement he was able to tell me that I was strict, but that I knew how to smile. Needless to say, that made me smile even bigger. Later in the evening he helped me go out and get pizza for everybody and even loaded the dishwasher.

As we were talking later he mentioned that he would prefer that I use his nickname. Then he shyly told me I could call him another nickname that only a few people use. I told him how special that was and that I would be proud to use his special nickname.

Through the course of the evening we established a few rules about the volume of his music, when staff could be in his bedroom, what time bed time needed to be and lots of other things. He was able to express himself very well, and on 2 occasions let me know that he thought that a proposed rule needed to be changed. On both occasions he had a valid point and some compromise was in order. He seemed pleased to know that he had "won" if you will.

Underneath the aggressive and angry exterior is this smart, funny and generally caring young man who really responded to being told that he was "helpful". He needed to be listened to, something that some of our direct care staff have been unable to do this first week.

I left work exhausted tonite after a 14.5 hour work day, that was almost constant work with him and typing up what we had accomplished into things he could use. As tired as I was, it was a hugely satisfying day. I know that things might go sour again in the morning, but for tonite it was good.

I love my career, which is so much more than a career....I felt tonite that this is what I was meant to do. There have been so many times when I wanted to pack it all in....that it is just too hard and I have been at it for too long....over 25 years. Then I get a night like tonite and it all makes it worthwhile. When you give so much and it comes back to you almost immediately in such a rewarding way, I can't help but feel that it is a little pat on the back from God.

I drove home in tears, so thankful for the gifts I had received from our new resident. He has already gotten himself under my skin in a very special way. I just can't wait to see what the next weeks, months and years bring from this young man. I can't wait to see what I learn from him. I can't wait to watch him grow....

Thanks for letting me share.

Linda
 
What a great post!

I used to work in a group home for mentally ill adults, and found that sometimes just making someone feel that they count that can really have an impact on their life. It is amazing how some of the things we think of as ordinary life may not be so for someone else. One of the things in my life that really affected me most was at that group home, when I took in some ingredients/supplies to make Christmas cookies. One woman was in her late 30's and had 2 children. She was so excited to be able to bake the cookies, and actually did most of the work. Afterward she told me I was the first person to trust her to do that kind of thing without messing up. She was crying, and I cried too. It is something I will never forget.
 
What a great story!

Aspie's are all over the board. There are some so high functioning, the world will never know. Then, there are the ones that don't fit in no matter where they go or what they do:sad1: I have been fortunate enough to be blessed with a high functioning, albeit very quirky child. My heart breaks for those with children that cannot function on their own:sad2:

It's a tough job to work with some of these folks. Thank you for doing what you do:cheer2:
 
I'd like to give you a pat on the back and a big hug. Thanks for doing what you do. You make the world a better place for us all. :hug:
 

Aspie's do come in SO many shapes, and ability levels and often get lost because they can present so well. With this young man, he uses language that would lead you to believe that he "gets it" and his actions let us know that he doesn't. One of the things he shared with me tonite was that he felt like he was "different and alone" I shared with him that I had a nephew, just his age, with Aspergers. He began to ask all kinds of questions about Alex and he then said "that means you know about me too." I assured him that we would both learn about each other. I spent some time tonite looking for some information on famous people who might have Asperger's or other forms of Autism. He reads, and likes to read and I thought that some information about someone in the public who he could relate to might help. Can anybody offer suggestions?

Linda
 
I love my career, which is so much more than a career....I felt tonite that this is what I was meant to do. There have been so many times when I wanted to pack it all in....that it is just too hard and I have been at it for too long....over 25 years. Then I get a night like tonite and it all makes it worthwhile. When you give so much and it comes back to you almost immediately in such a rewarding way, I can't help but feel that it is a little pat on the back from God.

Linda

I love stories like these...you are in the work of service to others and sometimes it can be so very hard. It means so much to us in the trenches when you have a break-through with someone or something finally clicks. Bless you, Linda for your service...keep up your GOOD works! :)
 
I spent some time tonite looking for some information on famous people who might have Asperger's or other forms of Autism. He reads, and likes to read and I thought that some information about someone in the public who he could relate to might help. Can anybody offer suggestions?




Perhaps it is an urban legend, but I have read that Bill Gates may be an Aspie.

I like to believe it is true, as it gives many people hope for the HFA kids out there.
 
Aspie's do come in SO many shapes, and ability levels and often get lost because they can present so well. With this young man, he uses language that would lead you to believe that he "gets it" and his actions let us know that he doesn't. One of the things he shared with me tonite was that he felt like he was "different and alone" I shared with him that I had a nephew, just his age, with Aspergers. He began to ask all kinds of questions about Alex and he then said "that means you know about me too." I assured him that we would both learn about each other. I spent some time tonite looking for some information on famous people who might have Asperger's or other forms of Autism. He reads, and likes to read and I thought that some information about someone in the public who he could relate to might help. Can anybody offer suggestions?

Linda

Linda,

It gives me the warm fuzzies to read this-I'm the mom of a 10 year old Aspie. He functions emotionally at about 18 months, but academically is doing HS work. As a caregiver, you are amazing! Figuring out how to get through to this boy and make such progress is incredible!

No two Asperger's cases are the same, my son and my nephew are fine examples of this. :)

As far as famous Aspies, it's said that Einstein was, Bill Gates is and possibly Al Gore has a very mild case.

If you want more info, I recommend Barb Kirby's AS forum. Go to www.aspergerssyndrome.org and click on the link to the Delphi forum. There's tons of info. IIRC, sometime last year a member posted a list of books by and about Aspies. Temple Grandin is the only one I can think of off the top of my head who has Aspergers and has written about herself.

A former regional director I had at Disney was a great motivator. She said we should all leave work asking "Did I make a difference today?". I'd say you made a HUGE difference today!

Suzanne
 
Suzanne,

Thanks SO much for the info on the website. I will check it out this morning. I am lucky that here in Asheville we have a branch of the Autism Society as well as a local TEAACH office. TEAACH is the state agency that assist families of people with Autism. It is a wonderful organization and I know that they will be able to help me in my quest.

I called over to the group home late last night and he went to bed just fine last night, for the first time. As I was re-doing his schedule yesterday I noticed that the person who originally did it did not put a bed time down. She put on the schedule "get ready for bed", but did not tell him when it was time for bed. So, he thought he could set his own bed time. We talked about it last night and he accepted my weeknight time but asked for an hour later on weekends which was very reasonable. When I spoke to the staff last night they said that he said that he was glad to know what time bed time was. Things need to be SO concrete for people with autism, and it is amazing that something so simple made a huge difference.

We will see how the day goes today.

Linda
 
What a great story. Thanks for all the hard work you do.:hug:
 


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