Well, I have posted on here a couple of times in regards to my DD's fever syndrome. In my last post we were getting some genetic testing done that would hopefully lead to an answer. Well, we got one. My DD has a rare genetic mutation called TRAPS, tnf-receptor associated periodic syndrome. This is the one fever disorder we did not want her to be diagnosised with....because in our thoughts the symptoms and reprocussions are the worst. So, my prayer for an answer has been answered.....it was just not the answer I was searching for. I have taken a few weeks to process this before we return to see her specialist. I want to be sure I have all of my questions ready and my research done. It looks like we will have to start giving her shots of Enbrel at home once or twice a week. So, I have begun to prepare her for this new routine. Hopefully the Enbrel will lead to less or no more fevers and the prevention of protein collection on her organ down the road. I just hope that I can keep it together and prepare her for these shots and the new routine that will be in her life for a very long time.