We are home!! Surgery went well! Thank you for the prayers! and well wishes

Discussion in 'Coping and Compassion' started by longing2Batdisney, May 16, 2009.

  1. longing2Batdisney

    longing2Batdisney DIS Veteran

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    I would like to ask for prayers for my baby(born July 2006)...from those who can share...
    My son was born with a right looped aorta (for those who do not know-your aorta loops to the left). When children are born w/this there is usually a vascular ring that forms. His is wrapped around his trachea; which has caused trachalmalasia. This is a rare condition (but I think it is not as rare as they think; just misdiagnosed).

    As a baby the doctors would tell me he had reflux (but did not have the typical symptoms), than I was told resp infections, than allergies, finally (and the final straw) asthma. HE DID NOT HAVE THE SYMPTONS; he wheezes when he eats and when he is active (we now know that is the malasia).

    According to the cardiologist if he does not have the ring cut it will eventually suffocate his trachea; Dh and my problem accepting this DX (we know they are right but are they on the money) the CT he has shows a nodule on his arota at the point of the trachea but NOT the ring (there is no blood flow through the ring--this is a good thing IF they are right about the ring). What if they are wrong does a simple surgery become open heart??? We have asked and they say it is a ring...

    All we can do is pray that they are correct and we are doing the right thing to help him... it ssooooo scary...

    Well, on June 8 he will have surgery to cut the vascular ring...
    I am having a hard time with this would really feel better knowing there is a prayer chain praying with us for a safe and successful surgery.

    Thank you
     
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  3. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    Prayers for your precious son. May God give you peace and comfort during this difficult time.

    I had a tumor that was crushing my trachea too and I did alot of wheezing when I walked which was difficult to do anyway plus I really couldnt swallow food well. My heart goes out to your ds. Blessings to you and your family.
     
  4. MinnyGranny62

    MinnyGranny62 <font color=teal>If I did the beach would be rolli

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    :hug:My prayers have already been sent your way. Shirley
     
  5. mommasita

    mommasita DIS VETERAN Moderator

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    Prayers said. :grouphug:
     
  6. Elfstar

    Elfstar Guarded by Dragons, Gargoyles...and Figment!

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    :grouphug: Thoughts and prayers for you and your little one! I'll add you to our prayer chain at work!
     
  7. longing2Batdisney

    longing2Batdisney DIS Veteran

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    Thank you all!!!
     
  8. Mskanga

    Mskanga <font color=navy>Can speak and read 4 languages fl

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    Absolutely. My prayers and thoughts for a full recovery.
     
  9. bertegirl

    bertegirl DIS Veteran

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    He will be in our thoughts and prayers!
     
  10. longing2Batdisney

    longing2Batdisney DIS Veteran

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    Thank you to all for your prayers...:grouphug:
    we have a week of family fun, bonding, and excitement...:flower3:
    hope this helps to settle the nerves before we return for the big day...
    the cardiologist said to go and have a great time!:wizard:

    hoping the magic helps to settle DH and myself and takes our mind off the gravity of things for a little while:hug:

    ** I need to add that we are very very thankful that he is a very healthy and active child other than a plumbing problem (as the doctors call it).:cutie:
     
  11. minniebeth

    minniebeth <font color=green>I count on y'all to keep me up t

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    Your little boy is in my prayers...
    Have a WONDERFUL trip! pixiedust:
     
  12. SeansMom

    SeansMom DIS Veteran

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    Sending you prayers for a safe and speedy surgery and even faster healing after.
     
  13. mickeystoontown

    mickeystoontown DIS Veteran

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    Girl, you know if I prayed about your older son's grades, I will CERTAINLY pray for your little one's medical condition. I will also pray that the doctor and the medical staff.
     
  14. Regina

    Regina <font color=teal>Maybe I’ll “accidentally” drop a

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    I'm sure the arrival of June has brought both a sense of relief as well as mounting concern.

    I'll be praying that your little guy comes through the surgery with flying colors. :hug:
     
  15. leamom2princesses

    leamom2princesses DIS Veteran

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    Many prayers headed your way!:hug:
     
  16. jngwright

    jngwright DIS Veteran

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    I hope you are feeling lifted up in prayer! There is nothing more frightening than being a parent, is there? May God guide the doctors and give you peace!!:hug:
     
  17. MaryAz

    MaryAz DIS Veteran

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    Lots of positive thoughts and prayers being sent your way!
     
  18. longing2Batdisney

    longing2Batdisney DIS Veteran

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    :angel: My DS's surgery tomorrow around 11:30 am. We are currently up letting him play w/his brother (16) trying to wear him out and drink as much as we can get him to. He cannot have anything after 3:30 am/clear liquids stop at 7:30 am. We are hoping he sleeps until it is close to time to leave so we do not have to try and keep him from asking for his beloved first thing in the morning "Pedisure", chocolate milk.

    I won't be able to update until Tuesday/Wednesday.

    Again, thank you for your prayers and well wishes; it has helped me get through this time up to now.:grouphug:
     
  19. quasar4legs

    quasar4legs DIS Veteran

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    Sending you all some BIG Koala cuddles.
    I shall be thinking of you all as you face this difficult time.

    :grouphug: Trish
     
  20. dee47

    dee47 <a href="http://www.wdwinfo.com/dis-sponsor/" targ

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    Thinking of you all and praying for a successful surgery and easy recovery!
     
  21. Regina

    Regina <font color=teal>Maybe I’ll “accidentally” drop a

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    I'm praying that the surgery goes even better than expected and that by the end of the day your little guy is on his way to a full and quick recovery. :hug:
     

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