Hi,
I just came across your trip report. I am all caught up... I read the Pre-Trip report too!! What cute little kiddos you have. I am so glad that you all were part of the Big Give!! We were too and it was such an AMAZING experience. I have enjoyed reading about your family and your adventures so far!! Hooray that Grandpa got to come too!!
My wish trip kid and one of your daughters share a love for Rudolph. In fact it looks to me like they have the same build a bear Rudolph. My daughter also shares something in common with your son... They both have pulmonary atresia. And if I'm reading your trip report correctly they are the same age and in the same grade (8 years old and going into 3rd grade right )!! They should be pen pals!!
Have you heard about the camp in Southern California for kids with heart defects. Here is the website http://www.campdelcorazon.org/aboutus.html. I know you would have to fly or make a long drive but I thought I would share since I saw that you were planning on driving down to San Diego. The camp has the round the clock medical care available and is free of cost. Our daughter will be 9 years old next summer, so we think (at this moment in time) that it is old enough!! Maybe this would be a possibility and something new to look forward to!! Kids go from age 7-17 so you have lots of opportunities to attend.
I am sorry to hear that so much of your trip was rained out!! On a small level I can relate because when we were at the airport waiting to fly to Orlando we heard over the loud speaker that our plane had serious mechanical difficulties and was grounded. They assured us that they would attempt to get us another flight. Well after waiting for what seemed like ever they called us up to the counter with our Make-A-Wish shirts on and all.. and said now you are the people we have bad news for. We are unable to get you a flight!!! I stepped away from the family to call Make-A-Wish when I ended having a meltdown. In the end we were able to extend the trip so it worked out okay for us, but that day I just had this huge feeling of sorrow. I think it is hard for some people to understand because they have not been through it and feel like it should be easy to just grin and bear and look on the bright side. But I feel for you... since it is a Make-A-Wish it is about so much more than a vacation. Hugs to you !! Keep in mind that you did everything you could to make it a wonderful wish trip and luckily for us the kids don't have the same guilt/feelings that we do about the situation. For them it was about the rain, for you it was so much more. I totally get it!!! I'm surprised and happy to see that you were able to make the best of it!!! I think it is great that you have chosen to focus on the Star Wars Wish Day!!
I remember one day at Disneyland it poured, we tried to have good attitudes and succeeded for the 1st couple of hours, but one can only be soaked and disappointed for too long then you feel you just have to throw the towel in (actually I wish we had some towels to throw in that day, maybe we could've dried off some )!! It seems like the rain gave you the opportunity to do more at Give Kids the World then you might have otherwise. Looking back we wish we would have spent more time at Give Kids the World. After all we only got to have free ice cream once!! Reading trip reports I see that many other families felt Give Kids the World was not just a place to sleep, but a main attraction too!! I hope that brings you some comfort!! We also know families who return to Disney World and visit Give Kids the World after their wish trip. I hope that for you and your family or at least a trip to Disneyland you talked about!!
Wow did I go on and on... I hope that something I said helps!!! I promise I don't usually ramble on like... okay maybe I do... but I try not to!! I'll just blame it on the fact that it is almost 1am!!
I'm looking forward to reading more of your trip report when you have time. I know you busy with surgery. I'll say a prayer of health and happiness for all of you!!
See you soon,
Madeline
PS Did I mention I'm slightly obsessed with the smilies!!
I just came across your trip report. I am all caught up... I read the Pre-Trip report too!! What cute little kiddos you have. I am so glad that you all were part of the Big Give!! We were too and it was such an AMAZING experience. I have enjoyed reading about your family and your adventures so far!! Hooray that Grandpa got to come too!!
My wish trip kid and one of your daughters share a love for Rudolph. In fact it looks to me like they have the same build a bear Rudolph. My daughter also shares something in common with your son... They both have pulmonary atresia. And if I'm reading your trip report correctly they are the same age and in the same grade (8 years old and going into 3rd grade right )!! They should be pen pals!!
Have you heard about the camp in Southern California for kids with heart defects. Here is the website http://www.campdelcorazon.org/aboutus.html. I know you would have to fly or make a long drive but I thought I would share since I saw that you were planning on driving down to San Diego. The camp has the round the clock medical care available and is free of cost. Our daughter will be 9 years old next summer, so we think (at this moment in time) that it is old enough!! Maybe this would be a possibility and something new to look forward to!! Kids go from age 7-17 so you have lots of opportunities to attend.
I am sorry to hear that so much of your trip was rained out!! On a small level I can relate because when we were at the airport waiting to fly to Orlando we heard over the loud speaker that our plane had serious mechanical difficulties and was grounded. They assured us that they would attempt to get us another flight. Well after waiting for what seemed like ever they called us up to the counter with our Make-A-Wish shirts on and all.. and said now you are the people we have bad news for. We are unable to get you a flight!!! I stepped away from the family to call Make-A-Wish when I ended having a meltdown. In the end we were able to extend the trip so it worked out okay for us, but that day I just had this huge feeling of sorrow. I think it is hard for some people to understand because they have not been through it and feel like it should be easy to just grin and bear and look on the bright side. But I feel for you... since it is a Make-A-Wish it is about so much more than a vacation. Hugs to you !! Keep in mind that you did everything you could to make it a wonderful wish trip and luckily for us the kids don't have the same guilt/feelings that we do about the situation. For them it was about the rain, for you it was so much more. I totally get it!!! I'm surprised and happy to see that you were able to make the best of it!!! I think it is great that you have chosen to focus on the Star Wars Wish Day!!
I remember one day at Disneyland it poured, we tried to have good attitudes and succeeded for the 1st couple of hours, but one can only be soaked and disappointed for too long then you feel you just have to throw the towel in (actually I wish we had some towels to throw in that day, maybe we could've dried off some )!! It seems like the rain gave you the opportunity to do more at Give Kids the World then you might have otherwise. Looking back we wish we would have spent more time at Give Kids the World. After all we only got to have free ice cream once!! Reading trip reports I see that many other families felt Give Kids the World was not just a place to sleep, but a main attraction too!! I hope that brings you some comfort!! We also know families who return to Disney World and visit Give Kids the World after their wish trip. I hope that for you and your family or at least a trip to Disneyland you talked about!!
Wow did I go on and on... I hope that something I said helps!!! I promise I don't usually ramble on like... okay maybe I do... but I try not to!! I'll just blame it on the fact that it is almost 1am!!
I'm looking forward to reading more of your trip report when you have time. I know you busy with surgery. I'll say a prayer of health and happiness for all of you!!
See you soon,
Madeline
PS Did I mention I'm slightly obsessed with the smilies!!