So, where to start? My name is Susan, mom to 3 beautiful children; Perrin-age 8, Julianna-age 4, and Aleksander- age 2. My oldest was born at 25 weeks at 1 lb 13.8 oz. As a result, he has CP, Hydrocephalus controlled by a VP shunt, blepharospasm, Meige's Syndrome, dystonia, ADHD, and dysgraphia. Wow, what a mouthful! LOL. He just had his 11th surgery in Dec of '09 for a shunt revision. Unfortunately, the neurosurgeon made a mistake and pushed the catheter too far into his brain and nicked the corpus colloseum. So, with that, he regressed horribly. Complete 180 in attitude, school work, attention, etc. We have been slowly progressing back to where he once was but it is still an uphill climb. He has been quick to anger, depressed, and just overall more moody than he ever was. In November '10, I call the local chapter of MAW and did a short intake over the phone and gave the office our Neurologist's phone number. I hadn't heard anything in a couple of months so I called the local chapter a few days ago. GREAT NEWS!! We had been deemed eligible right away and a letter was apparently sent back in November, I guess that got lost in the mail... We also have already been paired with volunteers. They should be contacting us this week to set up a time to come meet with him to "discover" his wish. I have already told the local chapter what his wish is and they said it won't be a problem to set up. He wants to go to WDW for Star Wars Weekend to meet Darth Vader and the Stormtroopers! I think I failed to mention that he is THE BIGGEST Star Wars Fan!! LOL. The woman at the local chapter said we should be able to set up the trip for this June!! More to come after we meet with the volunteers!!!! More to his story: The Birth and NICU Story Bumps Along the Way! The Shunt Story How he is doing today!!