Discussion in 'disABILITIES!' started by maroo, Sep 27, 2011.
Such a beautiful video. My heart is just broken. Prayers going out to their family.
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I am just in tears today. Suffering for these families, so heartbreaking. I am speechless . Glad hubby and kids are boy here to See me cry my eyes out
Thank you so much for sharing the video. My heart is breaking for sweet Mia's family.
Sending prayers and love to Mia's family. Such a beautiful little girl and family!
A few questions... (Sorry for the duplication)
1. How do your kiddos adjust to the time difference? We will be traveling from California.
2. My daughter is g-tube fed only, but always seems interested in food when I am eating, and I used to give her a taste here and there, but now she can't at all have a taste due to her condition. How do you handle eating in front of your children? Here at home, I can separate myself and eat while she is doing her own thing. We don't eat out much mainly because of that. She always loved having a taste of ice cream, but that is one of the worse things she can have now. What is it like to go to GKTW having a child that can't eat what they have and what all the other kids are eating, etc.
3. How does the transportation work from GKTW to parks, and how often does it run?
Thank you all.
Just a heads up... Our airline allows you to carry on extra bags free as long as they only contain medical equipment and no nonessential things. This will really help us. So if you will need this you might check with your airline.
We arrive at GKTW on Sunday and we are going to MNSSHP. Does anyone know if you can get you GKTW pin before orientation not sure if we will make the afternoon orientation.TIA
We arrive on Sunday also! If you are going with Make A Wish they gave us another button and said that it would help with lines as well. Obviously havent tried it though.
Yay maybe we will see each other I'm sure you will hear me 100 times saying Aiden or Julie lol our chapter is Dreams Come True they did give us a pin but they told us the GKTW button is better I guess I'll see
Oh I hear ya! Just listen for the "Gavin Ryan" and "Gracie May"s. they know its serious when I throw the middle name in I have to remember to pack lots of patience!
Thank you for sharing the video, it is beautiful. My heart is heavy for all the hurting families right now, hopefully they will be able to find peace soon.
Sunday is our arrival also, we can hardly contain our excitement. Braden is taller than his countdown chain so it's becoming very real for him. I think our plane is suppose to land at 11:15 and we've planned to just hang out at the village and relax the first day. It's weird to think that this time next week we'll be trying to get Braden to nap so he can go to MNSSHP that evening!!
There are so many of you leaving next weekend for your wish trips! I hope you all have a magical time! I can't wait to hear about all of your trips when you come back!
I'm not quite sure, but I think I was reading the PDF brochure on the GKTW website (there's a family section, click on that, takes you to another site, then there's a spot that has their Guide online. In there I think I saw the info about shuttles to the parks.
Which airline is this?
Sunday is our arrival also, we can hardly contain our excitement. Braden is taller than his countdown chain so it's becoming very real for him. I think our plane is suppose to land at 11:15 and we've planned to just hang out at the village and relax the first day. It's weird to think that this time next week we'll be trying to get Braden to nap so he can go to MNSSHP that evening!! [/QUOTE]
And Yay!! Again!!! So excited for all of you!!!
call GKTW and ask if they will do a private orientation or at least a mini one so you can get your button. I bet they will
we leave in ten days 10/19 so if any of you see me while you are there come see if I still have mickey bracelts. My gorgeous Chinese daughters should help you pick us out
I have been giving my kids little packets of treats and stuff for the trip every ten days. we call them bonus days. Today was the last day and they got sunglasses and gift cards to spend at disney. pretty exciting stuff!
what I cant figure out is how I thought I could ever have so many appointments these last two weeks and get another thing done. UGU. at least none of them should be bad news appointments except maybe the orha dontist telling me M needs braces....but that is just normal stuff.
Let GKTW know that you have plans that night and they will work with you. I'm sure that will find someone to give you an orientation and get you everything that you need.
It is US Airways
It is a Federal Rule that any piece of luggage that is exclusively medical supplies and equipment is considered outside of all normal limitations for both checked and carry on baggage and is no charge.
When I travel by air I have all my medical supplies and equipment in a backpack which I carry on board, the basket and charging unit of my ECV which I carry in another bag, and then my computer case.
On a trip of only a few days I have those two, gate check my ECV, and have a regular carry-on suitcase for clothes and other stuff.
Thank you, all, for your kind words and prayers for David and his family. He and his big sister got to go trick-or-treating at Abby's school this afternoon and they were dressed as Woody and Jessie! SO CUTE!! I heard David was pretty tired but he still had some smiles and, I saw that he met Cinderella! Christmas is on Saturday. We have lots of gifts (LOTS!), a live tree that will be planted in the yard so the family can decorate it every year, should they choose, to honor (or...remember) David. Praying for clear skies (it's supposed to rain) and a happy and strong David. Snow is in the forecast (it's being driven up by a company in Houston- being met halfway by some wonderful people b/c something fell thru and the co doesn't have the manpower to send someone on a 8 hr round-trip drive)! I won't be there to see it, but I can't wait to see the pictures!!!!
It's simply wonderful how communities of people come together for one child. Kind of takes a bit of the sting (I hit the "k" first to spell "stink" and, well, it STINKS too!) out of things.
I've seen lots of posts from various heart families on Facebook about sweet Mia.
Hugs and blessings to all of you.
For those about to head off on your trips, HAVE A SPECTACULAR TIME!!
I can't believe there is only 1 month and 1 day left til we leave! Goodness...In all the preparation for David's big day, my Disney focus has been off. At least I have been fretting about something big instead of a bunch of nit-picky things that, in the end, won't make or break our trip! Fretting...Ok, I'm trying not to fret. Focusing on the positive and breathing in and soaking every minute of my little boy up b/c he's just too precious not to
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