Make a Wish (and other organizations!) - Wish Trippers...UNITE!! Volume 2!

Discussion in 'Community Board' started by maroo, Dec 25, 2008.

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  1. maroo

    maroo DIS Veteran

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    I agree...more prayers for Noah...and Nicole...and her whole family. I know they appreciate it right now!
     
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  3. MondoWishes

    MondoWishes MondoWishes

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    Yeah! I found the new thread.... I've been reading and really need to get my game on to get our family ready for this Wish Trip. 3 months 12 days, and counting! Abbie is the tiniest soon-to-be-seven year old and I hope she's tall enough to ride rides! Emma is 10 and loves to go from ride to ride, so I'm sure it will be a busy trip. Part of Abbie's wish is to meet Cinderella and be in a parade... I wonder if that will happen? Getting so excited!!!princess: Where do I even begin?????
     
  4. oklamomof4boys

    oklamomof4boys DIS Veteran

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    Yea! Very cool. I do know that when we were watching the Christmas parade on Christmas day, they showed several MAW kids whose wish was to be in the Christmas Parade. I was wishing my son had asked for that! Hopefully she'll be able to!

    Carol
     
  5. AmberGreenawalt

    AmberGreenawalt Mouseketeer

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    YAY Kellie! Welcome back! I'm excited to have you guys over to look at our wish trip photos on Saturday. At the rate I am going with my trip report you will be the first to see the pics...aren't Ya'll jealous..HEE HEE:laughing:
     
  6. maroo

    maroo DIS Veteran

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    Hello!! :) Glad you found the new thread!!! :)

    Oh, I hope you will write a pre-trip report (and then a trip report, if you can!)...

    Oh, being in a parade would be so much fun!!!!!!

    Let us know what your plans are and we would love to help you plan! Is this your first trip to Disney??

    WHAT?!?!?! :scared1: No fair!!!! :sad2:

    We want pictures!!!!! And stories!!!!! Oh my goodness! :)

    I guess you get a pass since you have been so, so busy...

    but it is time to get out .... the.... popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn::
     
  7. mom2lilnick

    mom2lilnick Mouseketeer

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    I had the most brilliant idea to share with everyone who is going soon. I was at Target yesterday and they still had some advent calendars left. Nick and Noah this year didn't have chocolate calendars since I splurged and bought them Lego advent ones.

    So... we are counting backwards to our MAW dates.. sort of like Christmas all over again! I thought it was a pretty cute way to count down the days.
     
  8. maroo

    maroo DIS Veteran

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    What a great idea! How much fun. I wish we were counting down again...looking back, it was one of the best parts of our trip...the anticipation. So enjoy it!! :) It is all part of the FUN!!! :banana: :banana: :banana:


    AND>>>> We have good news from Nicole (Noah's mom)...they did surgery today and they have a new line. The scar tissue was not as bad as they orginally though. Noah made it through surgery fine and is doing better tonight!

    for more info: check out their blog...http://noahgrantjohn.blogspot.com/
     
  9. LindaBabe

    LindaBabe <br><img src="http://www.wdwinfo.com/dis-sponsor/i

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    Prayers for Noah - the last blog post seemed a wee tad positive, thank goodness. Prayers also for Amber and her family during this difficult week.

    I am continually blown away by how strong and courageous you all are - the titans of industry and the moguls on wall street that dominate the news could learn a myriad of important life lessons from you.

    The quote above is from me - I thought if it was highlighted, more families might see it. :)

    Anyone at GKTW 1/11 or 1/12, 1/17 or 1/18? Those are the days I'll be working there and love to meet you and your kids.
     
  10. mom2lilnick

    mom2lilnick Mouseketeer

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    Oh.. that is such a BUMMER. we will be arriving 1/19! :sad1: I would have loved to meet you!
     
  11. mom2lilnick

    mom2lilnick Mouseketeer

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    Okay.. airline question.. Nick uses a booster seat, just a cheap, plain ol' booster seat that we bought at menards. Technically (legally) he is old enough to go without here in Nebraska but he doesn't know that so he still uses it. I talked to MAW and they said that if we want him to use it in the Limo and in the rental car, we need to bring it with us... will he also then use it on the plane? or can we check it? Do they have requirements for that? This does seem like a huge hassle. It is a high back booster, should we just forget about it? I don't even know what the laws are in FL for kids and boosters.
     
  12. maroo

    maroo DIS Veteran

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    check with your airline...you should be able to pull something up on that from google? I think we ended up on the TSA website for Lauren (but her situation is totally different). We ended up using her carseat on the way to the airport and back (no limo, though), but did not use it on the plane. It was easier to "strap" her to the airplane seat with a large velcro strap. It would be easier to get off in an emergency. (Which I thought was totally stupid, until last week when that plane caught on fire on the ground and they all had to get out. THAT would have been interesting with our crew.) Flying is the safest form of transportation known to man.

    I do think that the booster seats are a no-no. I think you have a 5 point harness to use on the plane. But, you can check it. Don't know if it counts as luggage. But I do think you can "gate check it" so that it comes off first and is handed directly to you at the gate. I would do that rather than send it through security, if you are able.
     
  13. LuvGoing2Disney7

    LuvGoing2Disney7 Mouseketeer

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    What a cute idea. I bet the kids are loving that!

    I've been praying for their families too!

    I wish we were going to be at GKTW on those dates. I want to go back so bad.

    We took Ryan & Madilynn's seats. They used them to and from the airport and in our rental van in FL. On the way to FL we checked the seats with our luggage. On the way home we did not check them and they sat in the overhead bin. In order for a booster to be used on an airplane it has to buckle to the seat and the child buckle to it seperately. You can not use the airplane buckle for the seat and child.
     
  14. maktrk96

    maktrk96 Mouseketeer

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    I checked out the web page and it's the same as others. You have to be terminally ill with only a few months to one year to live. Thanks for the information though
     
  15. oklamomof4boys

    oklamomof4boys DIS Veteran

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    I have an internet friend who has a similar disease as my son's ( so do her 2 children). It is a heart disease and is considered life threatening-not necessarily terminal. She told me they just took a trip to WDW through Memories of Love- it was her wish, not her kids ( they chose a tv and computer through MAW). It is an organization for families with a critically ill parent. She had the same tickets we did- 3 days WDW, 2 days US/IOA and Sea World. They were gone 7 nights and got to stay in a fancy hotel.
     
  16. maroo

    maroo DIS Veteran

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    Hey guys...

    I have a prayer request. William has been having some blackouts? Where his eyes go black for a few seconds at a time. This coupled with the headaches and nausea he has had for months has everyone worried. He went to the doctor today and they are admitting him right now to the hospital.

    Please pray for William...and for his family!

    Thank you guys so much!!!!!!!
     
  17. oklamomof4boys

    oklamomof4boys DIS Veteran

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    We certainly will keep William in our prayers! Could those be the symptoms of migraines? I don't really know because I don't have any experience with migraines. Let us know what they find out!

    Carol
     
  18. LindaBabe

    LindaBabe <br><img src="http://www.wdwinfo.com/dis-sponsor/i

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    Oh Dear! Prayers for William. And for Noah, and all in need.
     
  19. tinytreasures

    tinytreasures DIS Veteran

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    prayers for William
     
  20. maroo

    maroo DIS Veteran

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    Update on William...

    They have ruled out some "bad" stuff...he does NOT have a tumor, brain bleed, or any visual (eye) disorder that they can see. They are going to keep him in the hospital tonight and may do the EEG (to check for seizure activity) either tomorrow or Monday.

    They moved pretty fast...which was good but also made us a little nervous today.

    Thank you all for your prayers! It was quite something to walk back in this same Children's Hospital that Lauren spent so much time in this time last year. We were not excited to be back here. But hopefully he will get out of here tomorrow and they can figure something out. They are thinking migraines or seizures at this point.

    William's parents are both staying here tonight (at the hospital) and I will be with Lauren through tomorrow. We will get to go to church and go out to eat! Go us! :) And then...it is possible that William will be home tomorrow night, maybe. Hopefully.

    I will keep you guys posted...thanks for your prayers!! :)

    And definitely prayers for Noah...we are not anywhere NEAR that need...ya know what I am saying!?!
     
  21. keetmommy

    keetmommy Mouseketeer

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    I will say a prayer for William...

    I am joining in we are just starting the Make A Wish process for my DD, she is 6 has a genetic disorder called NF1, it has caused her to have multiple brain tumors, hydrocephalus, which has left her legally blind, she is a year into her chemo and has about 4 months left..so we feel this is the time...so tomorrow I make the call to get her signed up...she has several ideas...and most of them are things we have done already...she really likes routine...we shall see where this leads us...Her friend who has similar issues went on a Disney Cruise last summer....

    Amie
     
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