I was wondering if anyone out there dealing with a special needs child does when they are sick themself? My DD is 9 and has a rare genetic disorder . She requires constant care. I was disgnosed with Lupus and feel thankful that I finally know why I suffers so much everyday. My family thinks Lupus is NBD and I should live my life like I always have. They can not understand how hard it has been for me and I always kept pushing myself because everyone thaought I was in pain from having to lift my 80lb DD and I was tired from all the stresses of her medical care. Now that I know why I feel sick I know I need to slow down but can not figure how.I have no support system other then DH (we dont live by any family) And I can not afford to pay for a sitter. I feel like there is no solution. I am hopping my Dis freinds can help.