Here it IS! The Official 'unofficial' AKL LITE thread!

Discussion in 'Community Board' started by kimmar067, Oct 5, 2012.

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  1. Paula Sedley-Burke

    Paula Sedley-Burke Proud to believe in Rainbows and Unicorns...

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    Hello pleased to meet you wendypooh! Sounds like a great trip re F&W! We caught it this year by accident did not even know it existed omg brilliant! We are going 19th September - 3rd October so not sure if we will catch the F & B? Have to check what dates it is running.
     
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  3. franandaj

    franandaj I'm so happy, I could BOUNCE!

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    Hey Wendy! Provided that my world doesn't explode, our dates are totally overlapping!!!! We are going to be there from September 28 - October 6 or 7th. I can't completely guarantee that at this time, but it is likely.

    Fran is doing OK, but had a set back this week. She didn't spend enough time with her leg elevated and her wound got a little bigger. She was down to one hole in her leg, and now she has a few more. :headache: I have to change the dressing tomorrow, so we'll see if it has gotten any better since she's been putting her leg up a little more.

    We own our own scooters, I get her "hand-me-downs". Technically I'm not legally disabled, but I have tendonitis in my left foot (finally got the diagnosis a couple months ago), I can't walk over a mile without doing serious detriment to my ability to walk for the next week or three. You two are slightly younger than me, not too far behind, I think Fran would get upset if I said how old she is online.

    They have been advertising that ankylosing spondylitis on the radio in the LA area, sounds very painful. Fran has been on every sort of infusion drug and tried remicade as well. I hope that it is working for you. I don't remember why it didn't work, things either stop working or they throw her liver readings off and she has to quit taking it. Right now she has Actemera which was just recently approved in the American Drug Market. When it was a study drug, she got it for free now it's incredibly expensive, but it's worth it.
     
  4. Paula Sedley-Burke

    Paula Sedley-Burke Proud to believe in Rainbows and Unicorns...

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    Oh tendonitis painful poor you big hug! I was sat next to a lady receiving Actemera at my last infusion if it is tocilzumab or something like this? She was speaking highly of it. I have noticed that my liver readings are increasing so I hope that stabilises! Poor Fran I bet coming to Disney is great for you both. Do you do the cruise? We find that great also. We are on the dream this year sep 22nd for 4 nights then at SSR which is very accessible resort. May be are trying AKL! First time. :-)
     
  5. tiggrbaby

    tiggrbaby <font color=deeppink><marquee>We must work harder

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    Happy Friday Jamborinis and Kidanites!
    [​IMG]
     
  6. dgbg100106

    dgbg100106 Missing the Tag Fiary

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    Oh that's right.. I knew Elin and Bob were heading to OBX.... I forgot.. I am getting old and forgetting things.

    Sorry to hear you have to go back to work... Hope you get to come home on Tuesday...


    I head out on Saturday to be with family on Christmas. I love to watch the little kids see what Santa brings them...
     
  7. Paula Sedley-Burke

    Paula Sedley-Burke Proud to believe in Rainbows and Unicorns...

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    And too you! Omg Zebra domes..mmmmmmm come to mamma!
     
  8. dgbg100106

    dgbg100106 Missing the Tag Fiary

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    Peer pressure...:angel:
     
  9. dgbg100106

    dgbg100106 Missing the Tag Fiary

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    Thanks for the domes... happy Friday everyone..
     
  10. kimmar067

    kimmar067 TAGS?? It's all about the 'likes' now!

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    ....wow, these have been scarce around here lately....THANKS! :thumbsup2
     
  11. Pinkocto

    Pinkocto DIS Veteran

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    I couldn't help myself :rotfl:
     
  12. Pinkocto

    Pinkocto DIS Veteran

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    :blush:
     
  13. Pinkocto

    Pinkocto DIS Veteran

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    Happy Friday everybody :)
     
  14. kimmar067

    kimmar067 TAGS?? It's all about the 'likes' now!

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    ...you too....:wave:
     
  15. dgbg100106

    dgbg100106 Missing the Tag Fiary

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    Is that a recurring story...
     
  16. TyRy

    TyRy <font color=blue>Part of the problem is I wear my

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    Thanks!!

    Wendy - I'll try and get a couple of pics up of the fabulous shirts that we wore during the Disney Trek. :thumbsup2

    Has a thread been started for dates for the next Oct or Nov gathering? I know we were tossing around dates and wasn't sure if we decided or not yet (I remember the first week we talked about might be tough.)
     
  17. wendypooh

    wendypooh Cajun Tinkerbell Princess

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    Hey everyone! What a day, ive been sick all day about the shooting, its been scary too, This happened less than 15 min from Jess and Mac, they are fine, but OMG, its just so tragic and senseless!!! I just want to hug my babies tight tonight! Anyone heard from Pilferk? This was close to them too, i think. I hope everyone is good and that we all have a good, healing weekend!



    ,
    Hi, nice to meet you too, glad to have you here! I know a lot of us go for F&W, so watch for the list dates, im sure there will be a meet!!

    YAY!!! I hope u guys are there, id love to see you! Im sorry to hear about her setback, hopefully things improve ssom!!!


     
  18. Pinkocto

    Pinkocto DIS Veteran

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    That sounds like wonderful family time :)
     
  19. Pinkocto

    Pinkocto DIS Veteran

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    :laughing: it seems I need a lesson in self restraint!
     
  20. Pinkocto

    Pinkocto DIS Veteran

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    It is so awful I can't think about it too much. My patients had the news on all day and I still can't wrap my head around it.
     
  21. Pinkocto

    Pinkocto DIS Veteran

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    That looks awesome!!!
     
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