sejejoemmiev
Mouseketeer
- Joined
- May 18, 2006
We are going on a Disney Cruise in Feb 2007 and spending 5 days in the parks as well. My 8 month old daughter is 100% G-tube fed. Hopefully by the time our trip comes around she will have made some progress taking something orally as well. She will be 1 1/2 when we go so things might be a whole lot different or most likely things will be going pretty much the same. She has a MIc-Key button and Uses a Zevex pump for overnight feeds. I am not worried about the overnight part. She also gets 3-4 bolus feeds during the day that take 1 1/2 hours to complete. If we go any faster than that she throws up!! I think it will be easier on the cruise because you are sitting around alot and we can take her back to the room easily to feed her there if we need to. I am worried about how this will work in the parks though. Packing everything we will need for the day and completing the feedings at the park seems like an overwhelming ordeal. Has anyone experienced this? Any Tips on what works and what doesn't? Also we really wanted to go to Palo on the cruise. Will the nursery watch her on the boat? If we pre fed her and her button was closed up in her clothes they wouldn't even notice she had a feeding tube. Unless they changed her diaper! Is this something they would do if they didn't even need to touch it? It would only be 2 hours and we are close by if they need us. Does anyone know if they deal with children that have Special needs at all? A couples massage would be nice too................. I can dream cant I? Any help would be greatly appreciated. I am already worrying about all the details about how this will work!