I do; I'd never even heard of it before I found out I had it, and I've never met anyone else who had it. Well, I haven't met them when I've known they had it. Apparently there was a doctor's wife in my small hometown who had it, but, while she was a dear friend of my mother's, by the time I knew her she was an (understandably) reclusive person, so I only met her a few times. I've been on the TNA boards, but I feel so guilty afterwards - mine is pretty managable. I've discovered that if I eat ketogenically, I don't have pain problems unless one of two specific triggers for pain is involved. (I thought about talking to my doctor about seizure meds, which I hear can work - if this diet works, the meds would likely work, but as DH has pointed out, my diet doesn't have any side effects other than me whining about not being able to eat a donut or a yeast roll.) Anyway, I'm feeling very alone and very sorry for myself right now because I am going to have all my wisdom teeth out and I know I will be in for a week or two of horrible pain afterwards, even if I'm so far into ketosis that I have to watch that I'm not going into ketoacidosis. I'd just like to have some normal person say "yeah, I have it too and I manage, and yeah, it SUCKS big time." Anyone? Bueller?