Adri's MAW/GKTW trip to meet Cinderella (July 17-23, 2010)

Discussion in 'Pre-Trip Reports and Plans' started by Adrismommy, Mar 25, 2010.

  1. Adrismommy

    Adrismommy Earning My Ears

    Joined:
    Mar 24, 2010
    Messages:
    62
    My family is so excited about our (hopefully) July trip to Disney so I'm ready to get started planning and ask you all lots of questions. Let me share our story.

    My daughter, Adri, is a spunky little toe-head that is quite the princess and never stops talking. In early January she had a weird spell of staring into space... we found it strange but she did it 3 times the next day so I called the doctor. They said to bring her in and she actually did it while we were there. The doctor felt pretty sure she was having absence seizures and scheduled an EEG. I have some cousins that had childhood epilepsy so we were prepared for that diagnosis. Six days later we were keeping her up late for her scheduled EEG and the seizures got longer and progressively worse. We called 911, were rushed to the ER via ambulance, had a CT scan that revealed a lesion, had an MRI that revealed a brain tumor, were admitted to PICU and had surgery 4 days after that. Her surgery was 2 days shy of 2 weeks from the first time anything abnormal had happened at all. It was truly a whirlwind! We were in the hospital for 2 weeks then once week after we left, we closed on our old house, bought a new one, and moved all of our stuff! In the midst of that my husband was juggling his dissertation proposal and we had a then 4 month old. Our life was C-R-A-Z-Y. We're just over 2 months removed from that time and I wonder how my head is on straight.

    The good news is that the tumor was grade 2, not very aggressive, and the immediate follow-up scan showed that it was all removed from the resection. There was one tiny spot that was somewhat questionable that will be watched closely. Her first follow-up MRI is in a month. If you saw her today you'd think I was telling you a lie because she looks and acts like any other 3 year old. It's really remarkable how resilient kids can be. If the tumor comes back or if any is still there she will have another surgery or chemo. Hopefully neither!

    Some friends of ours had a similar story with their 14 year old a few years ago. She did Make-A-Wish and that was the first time I realized that it wasn't just for terminal patients. She referred us, they got the information to our doctor, and then we got a letter in the mail few weeks ago telling us that Adri was eligible. We were so so so excited!

    I knew without a doubt that she would pick Disney. She is quite the princess and was Cinderella for Halloween. We actually took a quickly planned 4 day Disney trip last spring. I was 16 weeks pregnant and it was one of those, "well we may as well go while she's still free" trips. We had fun - but being pregnant and taking a just-turned-2-year-old was exhausting. We didn't do any character meals or anything like that. It was fun and we were so glad we did it, but we definitely didn't get to do it "all the way."

    When our wish granters came out, they talked with us a little about the trip and told us that we'd be staying at GKTW. I think I may have heard of it but didn't know much about it. The more I read and find out, I am just giddy with excitement. I know that this trip is going to be an amazing opportunity for our family. And after the month from hell and having to watch your 2 year old go through brain surgery, it's nice to have something to get excited about!

    My husband is a school administrator and is finishing up his PhD. Yesterday we realized that the dates we initially put down as our 1st and 2nd choice were going to be the weeks leading up to his defense of his thesis, which is bad timing. I called my wish granters and changed our preferences so that's where we stand now. I'm so anxious to find out for sure when we'll be traveling and get started with planning. I'm learning so much just by reading through all of your TRs and just this entire thread in general.

    When we take the trip Adri will be about 3 1/2 and Cooper will be 9 months. We wouldn't do it without the whole family, but I hope that having a nursing baby in tow doesn't hinder Adri from doing everything she wants to do. I'd love any and all tips about traveling with a baby. Luckily, Cooper is a very very easy baby. Hopefully he'll adapt well and take naps in the stroller.

    I guess I'll update this thread with our for sure dates and keep questions going. Thanks for following us on this exciting journey!
     
  2. Avatar

    Google AdSense Guest Advertisement


    to hide this advert.
  3. Mtopher4

    Mtopher4 DIS Veteran

    Joined:
    Mar 5, 2008
    Messages:
    532
    Welcome ..... :goodvibes

    Glad you started your PTR.. I'm subscribing :-):woohoo:
     
  4. yinyanggirls

    yinyanggirls DIS Veteran

    Joined:
    Sep 27, 2009
    Messages:
    1,872
    I'm here to follow along!
     
  5. pouty_tink

    pouty_tink Mouseketeer

    Joined:
    Jun 15, 2005
    Messages:
    139
    Subscribing!!

    As a mom of a newly granted wish kid as well I look forward to reading about your planning as we plan our wish trip too. :goodvibes

    Your children are absolutely adorable!!!! (saw them on the other thread) I look forward to reading more about your family. popcorn::
     
  6. Adrismommy

    Adrismommy Earning My Ears

    Joined:
    Mar 24, 2010
    Messages:
    62
    We have dates! July 17-23 :banana::banana:
     
  7. wishin' on a star

    wishin' on a star DIS Veteran

    Joined:
    Mar 22, 2010
    Messages:
    508
    Yay for dates! :cheer2: I'm subscribing and following along! Can't wait to hear more plans.
     
  8. pouty_tink

    pouty_tink Mouseketeer

    Joined:
    Jun 15, 2005
    Messages:
    139
    How exciting!! :banana: Now let the fun begin!!!
     
  9. wish_upon_a_star35

    wish_upon_a_star35 Mouseketeer

    Joined:
    Mar 17, 2010
    Messages:
    414
    This is going to be so exciting for your little princess!! My son is 3 1/2 also and we are going to GKTW also. We don't have our dates yet but should very soon!

    I'm subscribing, can't wait to read more!
     
  10. tinytreasures

    tinytreasures DIS Veteran

    Joined:
    Oct 27, 2008
    Messages:
    1,696
    you will have a wonderful trip
    GKTW is so much fun
     
  11. Adrismommy

    Adrismommy Earning My Ears

    Joined:
    Mar 24, 2010
    Messages:
    62
    I asked our volunteer about her meeting Cinderella, since that was her wish. She called the office for me and said that they are working on something but that it will be a surprise in our itinerary. So tonight I went ahead and make reservations myself. She'll go to BBB first and then we'll go have lunch at CRT. Since I know I'll be refunded my money as long as I cancel two days out, I wanted to go ahead and get those things on the calendar since that's the main reason we're going.

    I'm so excited! I can't wait to start planning.

    One question: all I was told today was my dates. Should I assume that we'll have the 3 day Disney parkhopper, 2 day Universal, and 1 day SeaWorld passes? I want to start thinking about which parks to hit on which days. I booked CRT for Tuesday (day 3 of the trip).
     
  12. wishin' on a star

    wishin' on a star DIS Veteran

    Joined:
    Mar 22, 2010
    Messages:
    508
    That's just like us! Catherine wished to meet Sleeping Beauty, but I have no idea if MAW has something up their sleeve for that. We just went ahead and booked BBB and CRT just like you did. I don't want to miss out on reservations that were really important to us, so we just made all the plans we wanted. Everything can be changed. :goodvibes
     
  13. Adrismommy

    Adrismommy Earning My Ears

    Joined:
    Mar 24, 2010
    Messages:
    62
    Is it silly that I'm already stressed about how to fit everything in? I want to experience all that GKTW has to offer, I want to make the most of Disney, I guess I want to do SeaWorld but I'm not sure if that's the best fit for a toddler and a baby, and I don't know enough about Universal. Ahhh, help me! I KNOW that so many people say that you can't do it all and I realized from experience last year that when you try to squeeze too much in it = no fun for mommy and daddy. But, can you guys help me prioritize?

    Cooper won't care about anything, he'll just be going with the flow. I have a morning appt booked at BBB with lunch following at CRT. Should we take a day to go to GKTW? Is there enough to do there to spend one day just hanging out around the village? What would you consider a "can't miss" thing at GKTW? I definitely want to be there when Santa comes. I haven't read enough of the spoilers yet (not because I want to be surprised but because there is so much to read that I'm a bit overwhelmed, LOL), so I don't know a lot of what to expect.
     
  14. yinyanggirls

    yinyanggirls DIS Veteran

    Joined:
    Sep 27, 2009
    Messages:
    1,872
    From all the TRs I've read, the village sounds like it has plenty to do for a full day. I'm planning to have 2 or 3 parts of days where we hang out for a few hours, but not all in one.
    I've heard great things about the Cmas party, the bday or Princess/Pirate party sound pretty fun. The game night sounds great for school ages kids. Candyland game also. Most kids love the carousel. Mini golf, movie theatre, boats, train, dress up, character meets, etc, etc, etc
     
  15. wishin' on a star

    wishin' on a star DIS Veteran

    Joined:
    Mar 22, 2010
    Messages:
    508
    I think so many of us are stressed about fitting it all in, and the more I read other's trip reports here, the more I decide it's not worth stressing about! We have lots of "plans", but I think we really need to live in the magic of the moment for this trip. We can go to any of the parks again, but we will only stay at GKTW once as a wish family. :goodvibes
     
  16. Adrismommy

    Adrismommy Earning My Ears

    Joined:
    Mar 24, 2010
    Messages:
    62
    Well said, Laura. I was actually talking to my husband about the same thing. I want to sit down and just really weed through what the "can't miss" things are and just allow this trip to be laid back and fun for everybody. If I'm worried about cramming it all in it won't be as enjoyable.
     
  17. Adrismommy

    Adrismommy Earning My Ears

    Joined:
    Mar 24, 2010
    Messages:
    62
    I think I'm confused about what to post in my PTR and what to post in the Wish Trippers thread. I guess it's all part of learning the boards!

    There was discussion about rental cars on the other thread, but it was all from people who have flown and then driven a rental to GKTW. Our chapter (SC) isn't flying anyone right now, so they gave us the option to drive our own car or a rental. Our van has 180K miles on it so we opted for a rental, but then I started questioning whether or not they'd give us a van. If they were going to rent a small car, then we'd much rather have a van. I called yesterday to inquire and our wish granter said they send everybody in a van. She was going to double check for sure.

    Tonight I had a big "proud mommy" moment. Basically through some friends I found out that MAW is the philanthropy for Chi Omega. There is a chapter at Clemson University, where I went to college, so I contacted some of their members and asked if I could stop by and bring Adri by. They do huge fundraisers for the SC chapter and I thought some of the girls might want to meet a "wish" kid. They invited us to their end of year banquet and had a little slideshow of Adri from the hospital and gave me the chance to share her story and then presented her with a basket of goodies for her trip (a Cinderella doll, a notebook, some bubbles, a beach towel, and a bedtime book). She ate it up. I mean, a room full of about 75-100 college girls ooohing and ahhhing over her. I was so proud of her though. She just turned 3 so honestly I didn't know how she'd respond. She got up there, told her name, her story ("I was sick but Dr Troup took that ball out of my head and I'm all better now"), and what her wish was. It was great for us and them. They've asked us to take lots of pictures and come back in the fall to share about the trip.
     
  18. Momofwishkid

    Momofwishkid DIS Veteran

    Joined:
    Oct 8, 2009
    Messages:
    729
    Im glad your going to get the van. What a big girl Adri is. I bet she felt like a princess with all those college girls lovin on her. :goodvibes
     
  19. HeatherSue

    HeatherSue Join Date: March 2004

    Joined:
    Sep 20, 2007
    Messages:
    3,250
    I'm enjoying following along with your pre-trip report! I love Cinderella too, so I love it that Adri's wish is to see her!

    I'd love to see some pictures! If you're not sure how to post them, I could help you out.
     
  20. Adrismommy

    Adrismommy Earning My Ears

    Joined:
    Mar 24, 2010
    Messages:
    62
    So I've been reading some TRs and other threads and my wheels are spinning. I know I need to have a flexible plan in case weather messes things up (that happened to us last year -- we saved MK for the last day and a terrible storm came and most of the rides were shut down for a couple of hours) or MAW has a plan or whatever. But, I think I've decided that we're just going to commit to come back for naptime every day. With the button I think that's doable and I feel like our trip will be so much more enjoyable that way. Cooper is a great napper but I know a stroller nap won't be the same thing and I don't want two cranky kids. We have some very close friends that live in Tampa. Adri was the flower girl in their wedding last August. They are going to come over one day and keep Cooper for an afternoon/evening so we can have that time with Adri. Whatever day it ends up being, I know we'll be able to hit more things when it's just the three of us, so that will be fun.

    Yesterday we found out that after her MRI (on Thursday), the neurologist wants to do an EEG before making any changes to her seizure meds. Adri started having seizures before her brain tumor diagnosis and an EEG had been scheduled for the following week. Kids are only allowed four hours of sleep before this procedure so we had a plan to keep her fully engaged and keep her up all night with lots of fun stuff. Well that plan didn't work because her seizures got worse and worse until we had to call 911. That was the worst night of our lives. But, last night I started thinking that by time we get the results from the MRI and get the EEG scheduled, we'll be getting close to our trip. So I'm thinking that we'll fill that evening with lots of fun Disney stuff. I'm trying to think through what some of that might be. I'm just glad we're going to get a "redo" on that nightmare experience from before!
     
  21. Momofwishkid

    Momofwishkid DIS Veteran

    Joined:
    Oct 8, 2009
    Messages:
    729
    Taking nap time at the village is a great idea. Dont forget the Wish lounges are available also. They have a couch and big pillows to get comfy on at the MK one.
    Im glad you get a redo for the EEG. I hate those nights. Im sure you can come up with lots of fun Disney stuff to do. :goodvibes
     

Share This Page