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Old 04-07-2014, 08:10 AM   #76
lovedonaldduck
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Glad you guys are home!

Sounds like a good plan to pack some toys and food in the trunk in case you need it in the future.
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Old 04-07-2014, 12:21 PM   #77
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So glad you guys got to go home! I don't know if your doctors allow it but we are able to go home on IV antibiotics after a certain amount of time. That is what we did the week before last after 4 days inpatient.

Love that Elmo and Grover come to the hospital - too cool.
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Old 04-12-2014, 09:08 PM   #78
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We have been enjoying the beautiful weather this weekend. We come in to eat and sleep pretty much.

We haven't heard much from MAW, but they did say that they were really busy right now and it could be awhile that we would hear from them.

Her immunity numbers were still low this week--to low to start the next round of chemo. So the doctors said to enjoy the outside and "bulk up"--because once she starts chemo again, her appetite drops dramatically. Lately we have been drinking a lot of fruit and vegetable smoothies. We make "monster shakes"--green is Mike Wazowski (spinach, banana, mango and pineapple) or blue "Sulley" (blueberries, banana, greek yogurt).

Here are some pictures from this weekend.





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Old 04-13-2014, 06:41 AM   #79
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Awww... I just love the pictures! She is so precious!

It looks like you are enjoying some beautiful weather. I am glad to hear that Reese likes the smoothies - when my girls were little they probably would have turned their nose up - but I love how you've named them after Disney characters.

You've all been on my mind... I think of you often.

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Old 04-14-2014, 10:19 AM   #80
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Glad that you guys are home and enjoying the nice weather. Sorry that Reese's immunity numbers are still low.

Very creative way to get her to drink her "Mike and Sulley" smoothies. I may give that a try on my 2 year old.
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Old 04-14-2014, 11:33 AM   #81
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What an adorable and strong little girl. I love your creativity with the Monsters Inc smoothies; such an excellent idea.

My thoughts are with you, Reese, and your entire family.
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Old 04-15-2014, 01:39 AM   #82
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Glad your able to enjoy the weather. Hope you hear from MAW soon. She is adorable.
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Old 04-15-2014, 11:33 PM   #83
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She is so cute!!! Hope you hear soon
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Old 04-22-2014, 08:23 PM   #84
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So Reese needs to be wrapped in bubble wrap.

This Saturday, she was walking. (Not running!) And she tripped and fell. She used her hands to break her fall, which is normal. However, she lifted her hands too early and face planted on the wood floor and knocked her front teeth loose. So in addition to everything else, we had to go to the dentist for X-rays and now she is on a softer food diet for the next two weeks!

Our life is NEVER boring.

Tomorrow we head to CHOP for chemo. Hopefully her numbers are good that we can start this week. Her ANC has to be 750. Last week it was 660. I wish there was a way to know her numbers before we make the trip.

Here is a picture from the egg hunt this weekend:
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Old 04-26-2014, 12:15 PM   #85
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I got a call from MAW, she is tentatively approved for the wish. We don't have dates or anything like that. They will get the doctors clearance for her to go a few weeks before the trip.

We are so excited!
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Old 04-26-2014, 01:30 PM   #86
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Aww... Poor Reese... I bet that really hurt.

Glad to hear that you are starting chemo this week.

Yay for hearing back from MAW!!!!

((( Hugs)))

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Old 04-26-2014, 04:35 PM   #87
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I hope chemo goes well.

How exciting that you got a call from MAW
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Old 05-02-2014, 12:34 PM   #88
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I'm sorry to hear she managed to loosen those front teeth! I'm sure that hurt! As if she doesn't have enough to deal with. Poor kid! Love seeing her with her Easter basket!
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Old 05-07-2014, 08:54 PM   #89
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Well Reese easily adapted back to the "new normal" routine. Everyone is disbelieving of me when I say that you would NEVER know Reese was going through weekly chemo (and sometimes daily) if she didn't lose her hair. Then they see her and realize I am completely right. She is seriously an energizer bunny and as of right now, really hasn't had any side effects. (sometimes she complains that her belly hurts---but not much to stop running through the house for .5 seconds).

She seriously is on the go even the day after chemo. She is eating normally---eating her favorite foods, just REALLY really happy. She definitely is exhausting!

We had her joint family birthday party this weekend---we didn't want a birthday party at our house, and my niece turned one, so we had it at my brother in laws house--less germs (or at least less lingering germs--since we could go home.) She amazingly lasted throughout the party with no nap. She had a blast playing with the kids and running around outside. We tried to keep her outside in the fresh air as much as possible.

Here is a picture from the party.



I can't believe she will be 3 soon!
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Old 05-08-2014, 12:03 AM   #90
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Such a sweet picture!! Glad she was able to celebrate!
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