Update on Rachel - The DIS Discussion Forums

3kids4me · 01-29-2003, 07:32 PM

Thank you so much everyone. Our local news covered Rachel's story last night, and CBS News Radio (New York City area) is coming on Friday. We have received calls from Shays' office and Stripp's office, as well as Senator Dodd's office. Lieberman's office, interestingly, seems to be less involved. All of the offices have assigned people to work on this with us, and Shays sent us a personal letter.

We still are working on the appeal for the State Insurance Board, but we hope that the publicity and pressure makes the insurance company "change their mind".

I want to thank you all for the ongoing support. It means a tremendous amount.

wdw4us2 · 01-29-2003, 07:53 PM

Sharon,

I really hopes the media coverage gives you the extra "push" you need with the insurance company.

lovingthemouse · 01-29-2003, 08:12 PM

You know you have tremendous support on this board Sharon - and we wish you all the best! Good things are surely going to come your way! Caroline

Parkhopper · 01-29-2003, 08:48 PM

We're hoping and praying that the media coverage makes those jerks at the Insurance Company finally stand up and do what's right!

Suzi

Mickey527 · 01-29-2003, 09:38 PM

Sharon,
I know the media will help. the little segment on Channel 12 was really great. The newspeople told the story great.
I am glad Chris Shays is involved. I think he will do more for you than Lieberman.
Chris Shays was the one to get Richie the 4 months of Rochephin when his insurance turned him down. His doctor asked for 12 months to eliminate all symptoms, but at least the 4 managed to help him a little.
I hope he can do that and more for Rachel.
You all looked great on TV , you, hubby Rachel and David. But someone was missing..... Was she running the camera? Peggie

atlnewf · 01-30-2003, 09:23 AM

Keep us updated! IT's good to know you're getting support from the media. I hope it'll help you guys out. Many hugs and prayers!

Ashley

daber · 01-30-2003, 10:54 AM

Hang in there Sharon. It sounds like you've turned the corner.

3kids4me · 01-30-2003, 05:26 PM

News 8 CT is coming on Monday, and Lieberman's office called today since News 8 called them. The staffer at Lieberman's office spoke to a lot of doctors which convinced her that this treatment would indeed be appropriate for Rachel, and we may see one of those doctors to get additional back-up for our appeal. I'll keep you posted.

Sharon

suzanneb · 01-30-2003, 05:33 PM

Your latest update is very encouraging...I do hope it all works out!

JudithM · 01-30-2003, 05:57 PM

Sharon, it was so easy to send letters to Congressman Shay, Senator Dodd & Senator Lieberman. I composed the letter off line & send each of these folks an email from their web sites - too easy! Let us all hope & pray this issue gets better for all of you. Thank you to you, Sharon, for the information. Continued prayers & pixie dust to all of you ...

JudithM · 01-30-2003, 05:59 PM

Meant to ask ... who is Stripp? Someone else we can contact on your behalf?

mousefan · 01-30-2003, 08:14 PM

certainly hope they can help you back those hmo folks in a corner.
just let us know if you need some more squeaking, like it has been said before the squeaky wheel gets oiled....willing to send support letters to who ever you think it might help just let us know who , what and when ( sent some to my senators to put a bug in your senators ears figured maybe a bit of pressure from piers might help) Thanks for the update, hope the remaining ones are as positive.......keeping ya'll in our prayers....

ivanova · 01-31-2003, 02:00 PM

Sharon,

I am crossing fingers & toes & sending truck loads of pixie dust your way ... I'm also hoping that one of the national news shows (like Primetime, 20/20 or 48 hours) picks up the story and puts some NATIONAL pressure on the insurance company for you.

TTFN,

3kids4me · 02-01-2003, 12:32 AM

Thanks everyone.

The WCBS 880 broadcast will be Monday. A woman named Fran Schneidu came to my house this morning to do the interview. She is a veteran reporter and seemed to have a lot of ideas that might help.

I think the media attention is great, but I'm not sure it will necessarily make the insurance company change their mind since we've exhausted all appeals with them. They might as well make us go to the State Insurance Board and take their chances...they have nothing to lose (except the bad publicity, which they will have already gotten).

We're looking forward to our trip to DLR during President's Week, but the appeal is due on the 21st, so we will really have to rush to get it ready. These things can take up several binders of information so they take a lot of work to prepare. At least after this all, I'll be able to help anyone else that needs to go through this horror.

atlnewf · 02-01-2003, 09:16 AM

Good luck with the last appeal. May it work out for you for the best!

Ashley

01-29-2003, 07:32 PM	#1
3kids4me Besotted Pin Lover Has trained her children to say "Look at the pins...don't touch!" ;) It's not nice to fool Mother Tag Fairy. .... :D Join Date: Jan 2002 Location: Fairfield County, CT Posts: 882	Update on Rachel Thank you so much everyone. Our local news covered Rachel's story last night, and CBS News Radio (New York City area) is coming on Friday. We have received calls from Shays' office and Stripp's office, as well as Senator Dodd's office. Lieberman's office, interestingly, seems to be less involved. All of the offices have assigned people to work on this with us, and Shays sent us a personal letter. We still are working on the appeal for the State Insurance Board, but we hope that the publicity and pressure makes the insurance company "change their mind". I want to thank you all for the ongoing support. It means a tremendous amount. __________________ Sharon Mom to two small pin traders and one in training!

01-29-2003, 07:53 PM	#2
wdw4us2 Not only a DIS Vet, but a 33 year MK Vet! Enjoys being sung to by David Cassidy Join Date: Jun 2000 Location: Jensen Beach, Florida Posts: 4,059	Sharon, I really hopes the media coverage gives you the extra "push" you need with the insurance company. __________________ Lisa "No capes!"

01-29-2003, 08:12 PM	#3
lovingthemouse You must believe......and then send cold, hard cash!!! ;) magic is in the heart of the beholder... Join Date: Dec 1999 Location: western MA Posts: 2,888	You know you have tremendous support on this board Sharon - and we wish you all the best! Good things are surely going to come your way! Caroline __________________ In loving memory of my DH

01-29-2003, 08:48 PM	#4
Parkhopper Disney Collector The Tag Fairy will trade you a tag for a pin! Great green globs of greasy grimy gopher guts anyone? Join Date: Dec 1999 Location: Gaithersburg, Maryland, U.S.A. Posts: 2,887	We're hoping and praying that the media coverage makes those jerks at the Insurance Company finally stand up and do what's right! Suzi __________________ E-mail Parkhopper

01-29-2003, 09:38 PM	#5
Mickey527 DIS Veteran Join Date: Feb 2000 Location: Bridgeport, CT USA Posts: 3,949	Sharon, I know the media will help. the little segment on Channel 12 was really great. The newspeople told the story great. I am glad Chris Shays is involved. I think he will do more for you than Lieberman. Chris Shays was the one to get Richie the 4 months of Rochephin when his insurance turned him down. His doctor asked for 12 months to eliminate all symptoms, but at least the 4 managed to help him a little. I hope he can do that and more for Rachel. You all looked great on TV , you, hubby Rachel and David. But someone was missing..... Was she running the camera? Peggie __________________ My mother named me Margaret, but I answer to "Fiesta Margarita" 55 is not so old after all. Cancer really makes you realize how important life is

Sponsored Links
DIS ad Register to remove Join Date: 1997 Location: Orlando, FL Posts: 1,000,000+	<div align="center">This information cannot be displayed because your browser does not support inline frames.<a href="http://www.wdwinfo.com">Click Here</a> </div>

01-30-2003, 09:23 AM	#6
atlnewf Keeper of the BIG dogs Has "sucker" stamped on her head Join Date: Sep 2001 Location: metro Atlanta, GA Posts: 1,497	Keep us updated! IT's good to know you're getting support from the media. I hope it'll help you guys out. Many hugs and prayers! Ashley __________________ Ashley McLure

01-30-2003, 10:54 AM	#7
daber DIS Veteran Join Date: Mar 2000 Location: Penna Posts: 1,802	Hang in there Sharon. It sounds like you've turned the corner. __________________

01-30-2003, 05:26 PM	#8
3kids4me Besotted Pin Lover Has trained her children to say "Look at the pins...don't touch!" ;) It's not nice to fool Mother Tag Fairy. .... :D Join Date: Jan 2002 Location: Fairfield County, CT Posts: 882	News 8 CT is coming on Monday, and Lieberman's office called today since News 8 called them. The staffer at Lieberman's office spoke to a lot of doctors which convinced her that this treatment would indeed be appropriate for Rachel, and we may see one of those doctors to get additional back-up for our appeal. I'll keep you posted. Sharon __________________ Sharon Mom to two small pin traders and one in training!

01-30-2003, 05:33 PM	#9
suzanneb Itching for the Hot Seat - has it been 30 days yet? Join Date: Mar 2000 Location: Austin TX Posts: 633	Sharon Your latest update is very encouraging...I do hope it all works out! __________________ <BR>suzanneb <img src=http://www.howskaren.com/suzanneB.gif>

01-30-2003, 05:57 PM	#10
JudithM DIS Veteran Join Date: Dec 1999 Posts: 5,762	Sharon, it was so easy to send letters to Congressman Shay, Senator Dodd & Senator Lieberman. I composed the letter off line & send each of these folks an email from their web sites - too easy! Let us all hope & pray this issue gets better for all of you. Thank you to you, Sharon, for the information. Continued prayers & pixie dust to all of you ...

01-30-2003, 05:59 PM	#11
JudithM DIS Veteran Join Date: Dec 1999 Posts: 5,762	Meant to ask ... who is Stripp? Someone else we can contact on your behalf?

01-30-2003, 08:14 PM	#12
mousefan DIS Veteran Join Date: Mar 2000 Location: Pgh, Pa Posts: 958	great news for you. certainly hope they can help you back those hmo folks in a corner. just let us know if you need some more squeaking, like it has been said before the squeaky wheel gets oiled....willing to send support letters to who ever you think it might help just let us know who , what and when ( sent some to my senators to put a bug in your senators ears figured maybe a bit of pressure from piers might help) Thanks for the update, hope the remaining ones are as positive.......keeping ya'll in our prayers.... __________________ Remembering Tinkerbell2300 and Sparkle Zoe , who left this earth to sprinkle their pixie dust thru the heavens. We miss you Steph.6/30/00..and Bev 10/28/03

01-31-2003, 02:00 PM	#13
ivanova DIS Veteran Hi, my name is Ivanova and I am a pinaholic. Join Date: Jan 2002 Location: Middle Tennessee Posts: 5,418	Sharon, I am crossing fingers & toes & sending truck loads of pixie dust your way ... I'm also hoping that one of the national news shows (like Primetime, 20/20 or 48 hours) picks up the story and puts some NATIONAL pressure on the insurance company for you. TTFN, __________________ Susan aka Ivanova --- "A PBS mind in an MTV world" --- "IS IT CRUISE TIME YET?????" PAST: 04/2000 - WDW - off property, 2 weeks 04/2002 - WDW - off property, 2 weeks 11/2003 - Disney Wonder, 4 nights Bahamas (pin cruise) 11/2003 - WDW - Coronado Springs Resort, 4 nights 11/2004 - Disney Wonder, 4 nights Bahamas (pin cruise) 03/2005 - Carnival Elation, 7 nights Western Caribbean 08/2005 - Disney Magic, 14 nights Eastbound Panama Canal Crossing 11/2005 - RCCL Monarch of the Seas, 3 nights Baja 07/2006 - Disney Wonder, 3 night Bahamas 09/2006 - Disney Wonder - 10 night Southern Caribbean 11/2006 - Disney Wonder - 4 night Thanksgiving 02/2007 - Star Princess, 7 night Western Caribbean 03/2007 - NCL Norwegian Sun, 7 night Western Caribbean 04/2007 - RCCL Monarch of the Seas, 3 night Baja 05/2007 - RCCL Liberty of the Seas, 2 nigh Pre-inaugural 06/2007 - RCCL Radiance of the Seas, 7 night Northbound Alaska 05/2008 - RCCL Monarch of the Seas, 3 night Baja 11/2008 - Celebrity Solstice, 2 night pre-inaugural 11/2008 - RCCL Enchantment of the Seas, 5 night Western Caribbean NEXT: 11/2009 RCCL Oasis of the Seas (pre-inagurual)

02-01-2003, 12:32 AM	#14
3kids4me Besotted Pin Lover Has trained her children to say "Look at the pins...don't touch!" ;) It's not nice to fool Mother Tag Fairy. .... :D Join Date: Jan 2002 Location: Fairfield County, CT Posts: 882	Thanks everyone. The WCBS 880 broadcast will be Monday. A woman named Fran Schneidu came to my house this morning to do the interview. She is a veteran reporter and seemed to have a lot of ideas that might help. I think the media attention is great, but I'm not sure it will necessarily make the insurance company change their mind since we've exhausted all appeals with them. They might as well make us go to the State Insurance Board and take their chances...they have nothing to lose (except the bad publicity, which they will have already gotten). We're looking forward to our trip to DLR during President's Week, but the appeal is due on the 21st, so we will really have to rush to get it ready. These things can take up several binders of information so they take a lot of work to prepare. At least after this all, I'll be able to help anyone else that needs to go through this horror. __________________ Sharon Mom to two small pin traders and one in training!

02-01-2003, 09:16 AM	#15
atlnewf Keeper of the BIG dogs Has "sucker" stamped on her head Join Date: Sep 2001 Location: metro Atlanta, GA Posts: 1,497	Good luck with the last appeal. May it work out for you for the best! Ashley __________________ Ashley McLure

Thread Tools
Show Printable Version Email this Page
Display Modes	Rate This Thread
Linear Mode Switch to Hybrid Mode Switch to Threaded Mode	Rate This Thread: