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Old 04-22-2013, 12:28 PM   #16
lahughes2
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Thanks for your help

This is cathug10's mom. I appreciate some of the advice given to her.

Her psychiatrist has told her to take challenges. She needs positive support and encouragement. She's travelled with me around Europe, including Romania. We've been across the US. This is the first holiday we are planning together.

It's somewhat overwhelming, with such a large amount of hotels and experiences to choose. This has Cat a bit paniced because of this. Her triggers are criticism, dirty areas, rudeness, poor manners and crowds.

So, we needed practical info - best clean places to stay and eat, best times (like early morning), quiet areas for a break. A nap will be necessary during the hot afternoon.

We live in a small town in Ireland. She's trying new things all the time. She needs to hear good stuff!
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Old 04-22-2013, 01:12 PM   #17
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Quote:
Originally Posted by lahughes2
This is cathug10's mom. I appreciate some of the advice given to her.

Her psychiatrist has told her to take challenges. She needs positive support and encouragement. She's travelled with me around Europe, including Romania. We've been across the US. This is the first holiday we are planning together.

It's somewhat overwhelming, with such a large amount of hotels and experiences to choose. This has Cat a bit paniced because of this. Her triggers are criticism, dirty areas, rudeness, poor manners and crowds.

So, we needed practical info - best clean places to stay and eat, best times (like early morning), quiet areas for a break. A nap will be necessary during the hot afternoon.

We live in a small town in Ireland. She's trying new things all the time. She needs to hear good stuff!
I am afraid I don't understand what you mean, I get that she needs to try new things but I can't imagine it being going to WDW as her first new thing when it seems like she doesn't know what gets her upset or is a trigger. People are just being realistic here and trying to give advice even if its something one does not want to hear.

And everything is subjective when it comes to clean places to stay and eat, personally I love POR because its not decorated crazily and has a laid back feel though I loved The Beach Club and the Yacht one as well when we walked around there before breakfast.
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Old 04-22-2013, 01:21 PM   #18
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Originally Posted by cathug10 View Post
Hi there.
In February 2014 my mum,friend and I are going to WDW and Discovery Cove for the first time.

My mum and I both have high functioning autism. My mum can control her autism better than me.

We have considered a GAC for me. Would it be worth it?

Do you have any tips on how to handle adult autism? Would it be the same as some of the child tips?

Sorry for all the questions but I want to be ready for WDW and DC.

Thanks in advance for your help.
Hi,

When you say "high functioning autism" do you have Aspergers?
What are the things that you find difficult?
Do you have any sensory issues?
Are you OK with crowds?

You may not need a GAC and from our experience they don't actually do much to help ASD people but it will depend on your needs.

My daughters have different forms of autism. One has Aspergers, the other is very low functioning. They both have different difficulties and need different levels of support.

If you can give me more information about what you find difficult, I'll be happy to give you my advice on coping at WDW

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Old 04-22-2013, 02:03 PM   #19
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Quote:
Originally Posted by lahughes2 View Post
Her triggers are criticism, dirty areas, rudeness, poor manners and crowds.
She is likely to encounter all of this at Disney. Not all the time, but I would say that she will frequently run into dirty areas, rudeness, poor manners and crowds. I understand that you say she needs to be challenged, but maybe before you go to WDW, you can try someplace where she is likely to encounter one or two of her triggers at a time instead of all of them at once.

You know your daughter best and if you feel she can handle it, go with lower expectations and you may be pleasantly surprised. However, I don't believe a GAC will help with any of her triggers. As others have said, maybe a good touring plan and use of fast passes would be more of a help to her.
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Old 04-22-2013, 02:11 PM   #20
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Quote:
Originally Posted by lahughes2 View Post
This is cathug10's mom. I appreciate some of the advice given to her.

Her psychiatrist has told her to take challenges. She needs positive support and encouragement. She's travelled with me around Europe, including Romania. We've been across the US. This is the first holiday we are planning together.

It's somewhat overwhelming, with such a large amount of hotels and experiences to choose. This has Cat a bit paniced because of this. Her triggers are criticism, dirty areas, rudeness, poor manners and crowds.

So, we needed practical info - best clean places to stay and eat, best times (like early morning), quiet areas for a break. A nap will be necessary during the hot afternoon.

We live in a small town in Ireland. She's trying new things all the time. She needs to hear good stuff!
I get it now. Thank you for coming on and explaining. This makes a big difference in the type of advice that you'll receive.

Is she expected to make decisions about hotels and restaurants or will she just be saying if she likes your decisions or not? It would probably help her a LOT for you to at least narrow down her choices and list the pros and cons of each. We'll gladly help you with that if you'd like. If you list things like budget (max per night), how many beds you need, can you handle double or do you need queen size beds, do you need your room door to open on a hallway or can it open to the outside, does she do better with bright or mute colours or is there no difference, does noise bother her, can she handle transportation that's like public busses, is there anything in particular that scares her (clowns, large icons, etc), is there anything specific about the pool that's important to you (slide, sprawling vs more contained, availability of a plain pool with no features, etc) or anything else you can think of. The more detail you give us, the better we can help you narrow down your choices.

We've had no problems with cleanliness in any of the restaurants. For TS restaurants I'd recommend for first seating ADRs because the restaurant is almost guaranteed to be running on time at that point and because they tend to not be filled when you're first arriving so they're quieter. For QS restaurants try to eat outside of the peak dining periods. We rarely encounter lines by entering the QS location for lunch by 11:20 and for dinner by 4:30. We tend to eat breakfast in our room using groceries ordered from Garden Grocer so that we're not as rushed in the morning.

I would HIGHLY recommend a touring plan service. I really like easywdw.com but I know that others like other services. There are 2 ways in which these kinds of sites help. The first is that they tell you which parks will be least crowded on a daily basis and the IMO the better sites give reasons why. The reason this is important is that crowds happen between attractions and at bus stops and you're much less likely to be caught in a crowd in the least crowded park compared to the most crowded park. The second is that they tell you the best time to be at each attraction in order to minimize lines and waits at attractions. As you can imagine, this is invaluable. They include all sorts of strategies including how to maximize fastpasses. Building touring plans can also help a lot because your daughter can have a sense of what to expect every day and even as the day goes along she'll know what's coming up. This is huge. Another benefit I've found with detailed touring plans is that in addition to figuring out ahead of time which attractions we want to see, I also look at which locations we should eat at and I include heading to that location in my plan so that I can be sure we'll get that at a time when there won't be lines. If your daughter's particular about what she eats that also means looking over menus to be sure that there will be options she'll like at your chosen location so that you don't have to search for something on the fly. The detailed touring plan also includes the time to leave the park. It helps prevent the "just one more thing" scenario so many of us are prone to fall into. We leave for a break before our autistic daughter is overwhelmed rather than waiting until she's already struggling. The plan encourages this and being as obsessive compulsive as my daughter and I are, we definitely follow the plan.

WDW really is in general a pretty clean place. Obviously you'll find dirt and people will make messes as it's a huge place with lots of people but they do a pretty good job in general. They've actually done studies of things like how far apart the trash cans should be so that people won't toss trash on the ground. They take really good care to ensure it's clean. If you find something that's not clean (my experience is that it's most likely to be a room at checkin not being properly cleaned but that's pretty rare too) then just tell a CM and they'll get somebody on it.

Rude people and poor manners unfortunately you can't do anything about. They're all over the world as you know. Practicing responses to the behaviour is the best thing you can really do and using tried coping strategies when it upsets her. We've encountered mostly really nice people at WDW but there will always be those who are just plain rude unfortunately. But really, in all of our trips I can't actually remember more than a handful of negative people that we've run across but I do remember a lot of really nice and friendly people. We've got a lot of great stories of super people we've come across.

Does she have any trouble with things like noise, unexpected things happening, speed, flashing lights, anything? That'll help to identify if there are any attractions she should avoid. Does she really like any of these things? Does she like the Fantasyland type rides or is she more into the Tower of Terror and Rock'n Roller Coaster type thrill rides? Just trying to get an idea of how to even direct you for attractions you'll really want to go to vs ones you'll want to avoid.
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Old 04-22-2013, 02:16 PM   #21
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Quote:
Originally Posted by lahughes2 View Post
This is cathug10's mom. I appreciate some of the advice given to her.

Her psychiatrist has told her to take challenges. She needs positive support and encouragement. She's travelled with me around Europe, including Romania. We've been across the US. This is the first holiday we are planning together.

It's somewhat overwhelming, with such a large amount of hotels and experiences to choose. This has Cat a bit paniced because of this. Her triggers are criticism, dirty areas, rudeness, poor manners and crowds.

So, we needed practical info - best clean places to stay and eat, best times (like early morning), quiet areas for a break. A nap will be necessary during the hot afternoon.

We live in a small town in Ireland. She's trying new things all the time. She needs to hear good stuff!

My suggestions are as follows: stay out of Hollywood Studios, at least for the first trip. EPCOT and Animal Kingdom are probably the easiest parks to 'manage' in.

There WILL be dirt and there WILL be more poor manners and there WILL be crowds. You can't avoid these. Practice techniques before you go to identify these triggers and, I cannot emphasise this enough, HAVE A PLAN.

Write yourself a social story. What will you do if you are politely walking toward a long line and suddenly a loud crowd of rude people cuts in front of you and laughs? What then?

"I will take a deep breath. Sometimes bad things happen. I cannot control those things, but I can control how I react. I will need to walk away and sit down for a bit. It might help me to hum/rub something between my fingers/flap my hands. Stimming might help make me feel better. Then I will get up and try again. If I don't feel like trying again, it is ok to say that I will go back to the resort for a lie down."

I suggest staying at a moderate or a deluxe resort rather than a value. The rooms are bigger. The Deluxes have patios and add a feeling of spaciousness.

Plan to be at the park about half an hour before it is schedule to open. Use TouringPlans.com to create a touring plan and stick to your schedule. Be sure to take those afternoon breaks.

Challenging yourself is GREAT. But be sure to recognize if maybe it's better to call it a day and head back to your room rather than spoiling your whole holiday.
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Old 04-22-2013, 03:48 PM   #22
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We got a GAC last time, but then I found I can also wait longer then I used to without a meltdown. So next time we'll get one as insurance but I can probably wait in most lines if we make the effort to get to rope drop or late at night when they aren't as bad.

That's just me though.
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Old 04-22-2013, 03:54 PM   #23
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OP - Yes, many of the tips for kids will also work for adults (obvious exception is the "stroller as a wheelchair" tip). I think that Clanmcculloch provided some great tips. If you have specific ideas of resort/restaurant, you can post which ones you are considering and people should be able to provide some insight in terms of your triggers.

Last edited by SueM in MN; 04-22-2013 at 10:22 PM.
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Old 04-22-2013, 04:08 PM   #24
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I loved AKL/Kidani so much because it was nice and quiet, it would be very relaxing after a sensory filled park day! The values are very bright and colourful and loud and I imagine not very restful or good for someone who's already in a sensory overload!
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Old 04-22-2013, 04:57 PM   #25
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If you can swing it stay on site at a deluxe or a moderate.

Summertime it works best to go at rope drop and take a break around noon when it gets hot and crowded. Use Fast pass. GAC will help with crowds where alternate waiting areas are available. Come back after it cools off if you are up for it. Enjoy the peaceful places at the resorts.

Lot of good get always, our favorites are

Tom Sawyer island MK
2nd floor of the train station MK
Just riding around on the train MK

Gardens in the back of England EP
Train area by Germany EP
Sitting area outside the international gateway EP

Area around beauty and the beast when there is not a performance HS

Small trail when you start crossing over form Africa to Asia AK
Terrace overlooking the river as you pass the mid bridge on the way to Asia AK
Rear seating area as you head toward Kali river rapids (plus you get to laugh at all the soaked people) AK
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Old 04-22-2013, 05:11 PM   #26
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My mum knows my triggers and will keep me under control. I was fine in DL Paris. I do breathing exercises. The gac is just for incase. I'm also taking calming tablets ( rescue remedy) and they seem to work. I'm not sure of what stimming is but if it is what I think it is I shake my leg and hands.
I just wanted to highlight the experience with DLP. It seemed to me like not everyone saw that.

To the original poster, it sounds like you need to get your mother to help with doing things like planning. That way you can get things down to manageable choices. You have most of a year so work on it in chunks.

WDW is much bigger than DLP. DLP is one park and WDW is four parks (and some of those larger than DLP). I don't know how long you spent at DLP, but it's worth thinking about how long you can spend and how many days in a row you can manage that sort of experience. If possible, I'd really suggest building in some extra time on your trip so that you can take days off from going to any park. There are plenty of things to do at the resorts and you can always just hang around the pool or sleep or walk around. I think you have more coping skills than you think since you did manage DLP well enough that you now want to go to WDW.
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Old 04-23-2013, 05:11 AM   #27
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Your suggestions!

That tourig plan sounds great!

Cat has no trouble on rides. We went to Disneyland Paris and went on the Indiana Jones ride. I screamed my head off. She just laughed at me.

We are both doing the planning. Cat changes her mind every day. The hotel budget is 100-120 euro per day. I'm currently looking at villas/condos. I can't drive, so we are looking at public transportation (Lynx). \I need a kitchen and two three beds. I'm bringing a friendforCat(no disability).ometimes Catwantsto stay onresort, sometimesnot. She's myprincess, but I think off-site is best andmoreaffordable. We get upvery early - 6am. We enjoy walking, too.

We wanttogo toDiscovery Coveand swimwithdolphins. Since it's to celebrate my 60thbirthday, I want to go on the scariest rollercoasters possible. Would that be Busch Gardens?

Rudeness and such are all over. I know that. Cat, however, takes everything to heart. She's been severely bulliedand we had to leave my alcoholic husband. Herself esteem ispractically non-existent. Someof the comments here have disillusioned her and made her not want to go. She doesn't wantto admit her triggers. She needssmall goals and this trip will allow her to fulfill a lot of hergoals towards idependence from me. She needs to make decisions about where we go, the costs of hotels, planes, food, restaurants, transportation. We've done it on a small scale. We need to go bigger.

I want her to have a great experience. I want her confidence to grow, even if it is just a little. This is in preparatio for college and a career. Emotionally, she is stuck at 5 yearsold. She's twenty now. She had to be homeschooled by me and graduated secondary school (high school) last year. Shehas Aspergers. I have high functioning autism. We believe the difference is thaqt she wants people around her and friends. I prefer to do things on my own.

I don't want her to emulate me. She needs social interaction. We go to shops and malls and she has started conversations with make up saleswomen. We script before hand and practice until it becomes morecomfortable. We have no family to practice with. Catherine's interests are makeup and special effects. She becomes absolutely obsessed. I need a multiple group of activities to teach her to break her obsessions and move onto something else. She needs stimulation. Then she needs rest to process it. She's on Abilify and Effexor XL. This has made her gain weight. She also has PCOS and substantial facial hair (tried waxing, epilation, depilitories, lasers, shaving). So more embarassing situations to overcome. I know she can do it.

This may help me explain what we are doing this for. Thank you for your patience and help.
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Old 04-23-2013, 07:14 AM   #28
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I know you said you were looking on and offsite. If you stayed on site, you could take Disney transportation free everywhere except discovery cove. You could take Magical Express to and from the airport, and Disney transportation to the parks. Then you could set up a Mears shuttle to Discover Cove. I just don't want you to get overwhelmed trying to figure out the Lynx system and it gives you ability to go back to your room if you all need a break.

Busch Gardens is at least an hour away, so transportation costs might be considerable. I'm not sure, hopefully someone else will chime in.
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Old 04-23-2013, 07:31 AM   #29
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Originally Posted by StitchesGr8Fan View Post
I know you said you were looking on and offsite. If you stayed on site, you could take Disney transportation free everywhere except discovery cove. You could take Magical Express to and from the airport, and Disney transportation to the parks. Then you could set up a Mears shuttle to Discover Cove. I just don't want you to get overwhelmed trying to figure out the Lynx system and it gives you ability to go back to your room if you all need a break.

Busch Gardens is at least an hour away, so transportation costs might be considerable. I'm not sure, hopefully someone else will chime in.
I agree.

If you want some extreme roller coasters, Universal's Islands of Adventure has some and is much closer (plus has the Wizarding World of Harry Potter, if you are interested in that).
Universl is quite easy to get to from a Disney resort - you can arrange pick up by a Mears bus.
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Old 04-23-2013, 02:23 PM   #30
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I am an adult with Aspergers who visits the parks frequently.

I've found that it's helpful for me to rent an ECV so that I have a little bit of a "safe space" to prevent people from standing too close or bumping into me. This is usually helpful, especially in some lines, but can be a nightmare for parades. It has been my experience that it feels like parades are the perfect excuse for some rude guests to have their children crowd in front of wheelchairs and ECVs for a better view, but it means that there are then children standing on my legs. We tend to avoid parades because of things like this, though if there is a second later parade in the Magic Kingdom it's usually tolerable in terms of crowd level because most people leave after Wishes. Over the years I've gotten used to Wishes, though I still find Fantasmic and Illuminations to be too loud and bright and close to tolerate. I will often duck into a store and put on noise-canceling headphones during the show.

It does get harder to move through crowds at the Magic Kingdom. Epcot is more open, but can get bad at night when people are attempting to find spots to watch Illuminations. Hollywood Studios does have a lot of loud, crowded areas, but it also has some of the more tranquil spots as well. Animal Kingdom is my favorite park, as much of it is open and peaceful. The one area that tends to bottleneck is the path between Asia and Africa. There is a beautiful quiet path that runs above the main path that is rarely traveled.

I think that staying on property would be a HUGE benefit. My favorite resort is Port Orleans French Quarter, as it is small and quiet. Having access to Extra Magic Hours has been very helpful. We find that the later evenings are preferable to rope drop because it is cooler and less crowded, but have used travel plans for morning trips and done well.

On a hot day, we will often take breaks by riding the monorail back and forth between the TTC and Epcot. It's very cool and peaceful. Prior to trying each new thing, we watch a video on YouTube of each show or attraction so that I know what to expect - I can't stand surprises

Above all else, relax. A little bit of preparation goes a long way, and I am sure it will be a good trip.
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