Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney Trip Reports > Pre-Trip Reports and Plans
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 04-09-2013, 06:07 PM   #1
Jessicalynne
Mouseketeer
 
Jessicalynne's Avatar
 
Join Date: Nov 2012
Location: Utah
Posts: 177

Smile Jordyn's Journey to Disney-(MAW) Make a Wish Trip - Starting October 4th, 2013!!!

I have a wonderful little family of 4. Daddy is Jacob, Mommy is Jessica, and our two little ones, Jordyn who is 4, and Jeremy her little brother who is 2.

We are probably getting started maybe a little too soon, but we are just sooo excited!

Jordyn is an amazing 4 year old. She has the sweetest soul and is very empathetic to others. She was diagnosed in June of 2012 with ALL (Acute Lymphoblastic Leukemia) Pre-B cell. Our lives haven't been our own since that day, and I am not sure they ever will be. Jordyn is a super big helper at our house and always wanting to help out her mommy with anything she possibly can. She loves the color purple. Her favorite thing at the moment would be dressing up. Dressing up has been such a wonderful outlet for her since we have been stuck at home almost constantly since her diagnosis because her compromised immune system leaves her at a high risk for a life threatening infection. She loves princesses and Tinkerbell, and she is sooo excited to be able to meet (or if she gets the chance, to be) Ariel, Cinderella, or Rapunzel. She has not stopped talking about it since we learned she was going to get to make a wish. We are super excited to finally have something to look forward to other than hospital visits, chemo, and steroids...

This is a picture of her hospital stay last year. I think this was two days before she was officially diagnosed with cancer. Those first months were so hard... She felt so miserable and didn't even want to move because she hurt so badly.




Jordyn's blog with more of her story can be found here: www.triumphingoverall.blogspot.com

Here is her most recent picture:

Jordyn's little brother Jeremy has had a really hard time dealing with Jordyn having cancer as well. He lost his playmate and friend for a few months when she was super sick, and he ended up spending a lot of time away from us when we were staying at the hospital and going to appointments. He wasn't even two yet, so it was super confusing and scary for him to go through.

He is an amazing little guy. He loves his sister and really looks up to her and wants to be just like her. She is his best friend and I am so grateful they were able to share such a good friendship during the really hard time we are going through. He is a busy kid, and always trying to get into everything... He tries so hard to be helpful though, and listens and tries to help people when he sees a need before even being asked.



Here is a picture of Jacob:


And here is a picture of me:

We can't wait to get our dates for the trip and really get into planning for it! I just know it will be so good for our family and be good for us to get away. Jordyn could really use a boost of happiness too!

Last edited by Jessicalynne; 08-02-2013 at 01:05 AM.
Jessicalynne is offline   Reply With Quote
Old 04-10-2013, 01:31 AM   #2
Sorcerer Jody
Mouseketeer
 
Join Date: Oct 2011
Posts: 81

What a beautiful family and what a brave little girl! Best wishes for a wonderful time planning your special trip!
Sorcerer Jody is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 04-10-2013, 06:04 PM   #3
JWCJ
Mouseketeer
 
JWCJ's Avatar
 
Join Date: Jan 2013
Location: Canada
Posts: 244



Great start to your PTR! Gorgeous family
Waiting for a trip to Disney has been a wonderful distraction for my ALL girl! The time has been flying by (although I suspect these last 2 weeks are going to draaaaaaaaaag)!
__________________
Jo (Mom) W (Dad) C (5) Ja (4 - Wish Kid)


Ja's Make A Wish PTR

MAW TR!
JWCJ is offline   Reply With Quote
Old 04-11-2013, 03:20 PM   #4
Jessicalynne
Mouseketeer
 
Jessicalynne's Avatar
 
Join Date: Nov 2012
Location: Utah
Posts: 177

Thank you both! We are still at the beginning of the process, but I am sooo excited! I know it will be a wonderful thing for my kids to look forward to. None of us have ever been to Disney World, but I have always wanted to go. My hubby has been to Disney land when he was a kid.
__________________
Mommy Jessica and Daddy Jacob
Wish kid Jordyn Age 4 and Jeremy Age 2
Pre-trip Report: http://www.disboards.com/showthread.php?t=3093827

Facebook page:
https://www.facebook.com/pages/Jordy...25730070799917
Jordyn's blog: www.triumphingoverall.blogspot.com
Jessicalynne is offline   Reply With Quote
Old 04-11-2013, 03:24 PM   #5
Jessicalynne
Mouseketeer
 
Jessicalynne's Avatar
 
Join Date: Nov 2012
Location: Utah
Posts: 177

JWCJ - I hope you guys have the best time on your trip! It must feel so surreal to have it actually be happening! Have fun!
__________________
Mommy Jessica and Daddy Jacob
Wish kid Jordyn Age 4 and Jeremy Age 2
Pre-trip Report: http://www.disboards.com/showthread.php?t=3093827

Facebook page:
https://www.facebook.com/pages/Jordy...25730070799917
Jordyn's blog: www.triumphingoverall.blogspot.com
Jessicalynne is offline   Reply With Quote
Old 04-15-2013, 10:46 PM   #6
Jessicalynne
Mouseketeer
 
Jessicalynne's Avatar
 
Join Date: Nov 2012
Location: Utah
Posts: 177

Jordyn woke up with a fever this morning, so we spent most of the day at the oncology clinic getting iv antibiotics, and waiting for her blood results to come back. I am starting to think that every time I take her out, she ends up sick...
__________________
Mommy Jessica and Daddy Jacob
Wish kid Jordyn Age 4 and Jeremy Age 2
Pre-trip Report: http://www.disboards.com/showthread.php?t=3093827

Facebook page:
https://www.facebook.com/pages/Jordy...25730070799917
Jordyn's blog: www.triumphingoverall.blogspot.com
Jessicalynne is offline   Reply With Quote
Old 04-24-2013, 12:19 AM   #7
Jessicalynne
Mouseketeer
 
Jessicalynne's Avatar
 
Join Date: Nov 2012
Location: Utah
Posts: 177

This is not Disney related, but it is Jordyn related. She was in the hospital last week for a fever and low counts for 3 days. Maintenance has been so much harder than I expected. She is finally off of antibiotics although her counts are still super low.

She has some good news, and that is that she has a dance recital this weekend. She did a private class for most of the year in an effort to keep her healthy. In December, we were lucky to have another little girl join our class. They were both trying to stay away from sick people because her little sister has cancer as well. We are so excited to see her dance on the big stage, and she is super excited as well. It will be a little nerve wracking having her around all those people especially since her counts have been so low, but she is so excited for it, so I am going to let her do it. She has earned it and worked hard for it, dancing even when she didn't feel well.
__________________
Mommy Jessica and Daddy Jacob
Wish kid Jordyn Age 4 and Jeremy Age 2
Pre-trip Report: http://www.disboards.com/showthread.php?t=3093827

Facebook page:
https://www.facebook.com/pages/Jordy...25730070799917
Jordyn's blog: www.triumphingoverall.blogspot.com
Jessicalynne is offline   Reply With Quote
Old 04-24-2013, 05:16 PM   #8
suziedo
Earning My Ears
 
Join Date: Feb 2012
Posts: 19

What an adorable and strong little girl! I'm sorry you have had to go through so much but so happy she is getting a Wish! Also as a dancer I love that she has been able to do that and dance on the big stage. Ballet is such a powerful healer!

If you haven't yet I suggest you check out the Make a Wish board. Lots of good info and they'd love to hear from you!

http://www.disboards.com/showthread.php?p=47888607
suziedo is offline   Reply With Quote
Old 04-25-2013, 03:06 AM   #9
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
blessedmom4's Avatar
 
Join Date: Apr 2010
Location: I am not religious, I have a relationship with God.
Posts: 4,465

Hi Jessica! I just wanted to say what a BEAUTIFUL family you have!
blessedmom4 is offline   Reply With Quote
Old 04-29-2013, 11:24 AM   #10
SnoWhiteRabbit
DIS Veteran
 
SnoWhiteRabbit's Avatar
 
Join Date: Apr 2001
Location: Northern NJ
Posts: 2,271

You have a beautiful family.

Wishing you strength and pixie dust as you plan a special trip for your family!
__________________
Snow White Rabbit (15) (13) (12)
Our "Big Summer Blowout" PTR August 2014

Next Trip 8/14 So Much to Celebrate! ASMo * 12/10 Our Very Merry SuRpRiSe ChRiStMaS TRiP * 1/08 Grand Gathering POR - Papa's 70th & Blaise's 6th - Pirate & Princess Party! * 11/05 POR - Jersey Week - Food & Wine Festival * 12/04 POP & ASMo - MVMCP * 10/02 POFQ & ASMo - DD 4th Birthday & MNSSHP * 5/01 AKL & POR - Flower & Garden Festival * 5/00 ASMo - Flower & Garden Festival * Childhood trips... 7/83 Disneyland * 2/79 POL * 12/75 First Trip - age 6 (off site) Thanks Gramma for the best Christmas gift ever! I'll always remember the magic...*



SnoWhiteRabbit is offline   Reply With Quote
Old 04-29-2013, 02:48 PM   #11
Jessicalynne
Mouseketeer
 
Jessicalynne's Avatar
 
Join Date: Nov 2012
Location: Utah
Posts: 177

Thank you everyone!

Jordyn's dance recital was a two day thing. I missed seeing her dance most of Friday because I was a stage mom helping her little class make sure they made it on stage at the right time, but I was able to watch the whole recital on Saturday, and she did awesome!

She definitely impresses me with wanting to continue to dance through her treatments. It was really hard on her sometimes, and often she had to take it easy. Once or twice she was too tired to dance, but she kept at it and I am so proud of her.

The Make a Wish process is going a little slower than expected because Utah Make a Wish has a few big events right around this time, so their building is booked solid. We should be going in for her to make her "official" wish on May 20th. We know it will be Disney World because she is always talking about it and even says on an almost daily basis that she is ready to go to Disney World. She even plays with her dolls and pretends they are going to Disney World.
__________________
Mommy Jessica and Daddy Jacob
Wish kid Jordyn Age 4 and Jeremy Age 2
Pre-trip Report: http://www.disboards.com/showthread.php?t=3093827

Facebook page:
https://www.facebook.com/pages/Jordy...25730070799917
Jordyn's blog: www.triumphingoverall.blogspot.com
Jessicalynne is offline   Reply With Quote
Old 04-29-2013, 04:03 PM   #12
angel's momma
DIS Veteran
 
angel's momma's Avatar
 
Join Date: Jan 2004
Location: Central Illinois
Posts: 4,014

Your family is beautiful So sorry that Jordyn has been through so much So happy that she is getting to make a wish

We know all about being stuck at home for so long. I love that she was able to take a private dance class. Sorry she was inpatient , I hope her counts are doing much better now. Yay for the recital! Totally understand how nerve wrecking it is to have her exposed to so many people though.
__________________
Me - Christi DH - Tom DD - Angel 15 (wish kid)

Pretrip Report: Angel's Make a Wish Cruise on the Dream /and extended days at WDW PTR :We have dates 4/13-25
Trip Report: Angel's Make a Wish DREAM Cruise & extended days at wdw: April 13-25, 2013

Previous trips: 2013 Apr. 18-25 2010 May 8-15 2009 Dec. 4-11 2008 Dec. 15-24 2008 Aug. 30-Sept 7
2007 Sept. 1-8 2006 Dec. 9-16 2006 Sept. 26-Oct.3 2005 Sept. 25-Oct.8 2004 Dec. 11-21 All at POP
CRUISE 2013 Apr. 14-18 Disney DREAM
angel's momma is offline   Reply With Quote
Old 04-29-2013, 05:12 PM   #13
Jessicalynne
Mouseketeer
 
Jessicalynne's Avatar
 
Join Date: Nov 2012
Location: Utah
Posts: 177

angel's momma- We are super excited about Jordyns wish! It will hopefully give us a break from all the craziness we are pretty much always dealing with.

was your trip stressful at all because there were so many people? Do you feel refreshed after it? I am just wondering... It sounds like tons of fun, but I am a little nervous for Jordyn's trip for those reasons. I hope you were able to relax a bit on the cruise!

Jordyn's dance teacher is an amazing person. She really took Jordyn under her wing and helped her keep dancing. She even did a fundraiser for Jordyn last year. I honestly don't know how we would have made it through last year, particularly the winter, without her weekly outing to dance class.

We should know her counts sometime later today. Jordyn had a rehearsal earlier in the week last week and I had my first official public meltdown... There were tons of people and I knew her counts were low and tons of things going on and I just lost it... It was just too much... Thankfully her recitals were a little less stressful.
__________________
Mommy Jessica and Daddy Jacob
Wish kid Jordyn Age 4 and Jeremy Age 2
Pre-trip Report: http://www.disboards.com/showthread.php?t=3093827

Facebook page:
https://www.facebook.com/pages/Jordy...25730070799917
Jordyn's blog: www.triumphingoverall.blogspot.com
Jessicalynne is offline   Reply With Quote
Old 04-30-2013, 12:09 AM   #14
happybelle
DIS Veteran
 
Join Date: Dec 2012
Location: Computer
Posts: 535

Joining in!
happybelle is offline   Reply With Quote
Old 05-07-2013, 09:45 PM   #15
Jessicalynne
Mouseketeer
 
Jessicalynne's Avatar
 
Join Date: Nov 2012
Location: Utah
Posts: 177

We finally have the date that Jordyn gets to declare her wish! May 20th is when she gets to go to the wishing place to really start this magical process! I am so excited to really start planning for it!
__________________
Mommy Jessica and Daddy Jacob
Wish kid Jordyn Age 4 and Jeremy Age 2
Pre-trip Report: http://www.disboards.com/showthread.php?t=3093827

Facebook page:
https://www.facebook.com/pages/Jordy...25730070799917
Jordyn's blog: www.triumphingoverall.blogspot.com
Jessicalynne is offline   Reply With Quote
Reply

Tags
wish trip, wish trippers united



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 02:11 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: