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Old 04-08-2013, 01:00 AM   #16
DisneyBarlans
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Praying for your sweet baby boy!!
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Old 04-08-2013, 05:31 AM   #17
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P&PD and as many hugs as you can handle

Pregnancy is so scary anyway, but at least you have some time to think about this and do your research - but remember there is a lot of disinformation on the internet as well as the "real" stuff, so be careful what you read! I'm sure the specialists will recommend good sources, and perhaps there is a support group you can join.

I'm a bit far away for realy practical help, but anything you need from the UK to help you through (I'm good with tea) let me know
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Old 04-08-2013, 01:07 PM   #18
tyniknate
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Tons of hugs and prayers to you, DH and baby dacky. I agree with the previous posters when they said "You are gonna be Rock Star parents".
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Old 04-08-2013, 01:41 PM   #19
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For you, DH and baby Let us know if you need anything!
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Old 04-08-2013, 04:52 PM   #20
dacky041208
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Thanks so much ladies! We're getting stronger every day and so much of that is due to the kind and inspiring words of our friends and family. <3
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-2 weeks at AKL, thanks DVC! 6/19-7/2/2011 Pictures/Video: Part 1 Part 2
-Pixar Weekend at ASMu 5/12-5/16/2011
-First Time during the holidays at PC!! 11/18-11/22/2010
-First DVC Trip to SSR 7/29-8/7/2010
-1st Anniversary Trip at AKL 6/23-6/30/2009
-2 week Disneymoon at CSR 5/28-6/11/2008
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Old 04-08-2013, 05:30 PM   #21
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Hugs and prayers being sent your way. You will be prepared and great parents!
My cousin's grandbaby has had lots of challenges but she told me this: "You never wish for a disabled child but it makes you appreciate every moment and milestone that much more."

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Old 04-08-2013, 09:16 PM   #22
Poppins2000
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Prayers to you and your Sweet Baby Boy - I love your video, brought a few tears, beautifully done
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Old 04-09-2013, 05:22 AM   #23
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Some more hugs and good thoughts headed your way. As you said you were chosen for a reason. I think that reason is because you're strong and your baby boy needs that. Please keep us posted. Hugs hugs hugs!
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Old 04-09-2013, 07:57 AM   #24
dacky041208
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Quote:
Originally Posted by DisNorth View Post
Hugs and prayers being sent your way. You will be prepared and great parents!
My cousin's grandbaby has had lots of challenges but she told me this: "You never wish for a disabled child but it makes you appreciate every moment and milestone that much more."

I read that quote to DH and he said he already couldn't agree more. It'll make it all that much sweeter!


My thinking has been a lot for family members- I'm very matter-of-fact and very worse case scenario (wheelchair life, deaf, deformed). I'm praying I'm wrong but I have to be prepared- not only that, but with a pessimist mind, I'll feel like everything that is not as bad as my image will be a blessing.

I'm waiting on CHOP (Children's Hospital of Philadelphia) to figure out a date that we can meet for a consultation- they wanted tomorrow, but told me yesterday! If we weren't doing state testing at my work and if DH's schedule would have accommodated, we would have jumped on it. Hopefully they have an opening for at least one of the dates I gave them! We have to plan for that kind of appt- it's an hour and a half drive!
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Expecting Baby Dacky August 2013


-2 weeks at AKL, thanks DVC! 6/19-7/2/2011 Pictures/Video: Part 1 Part 2
-Pixar Weekend at ASMu 5/12-5/16/2011
-First Time during the holidays at PC!! 11/18-11/22/2010
-First DVC Trip to SSR 7/29-8/7/2010
-1st Anniversary Trip at AKL 6/23-6/30/2009
-2 week Disneymoon at CSR 5/28-6/11/2008
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Old 04-09-2013, 09:37 AM   #25
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I love CHOP. My son sees the allergists there and everyone we have encountered has been wonderful. Just top notch.
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Old 04-09-2013, 11:33 AM   #26
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Vicky, you have such a wonderful frame of mine dealing with everything, staying positive will be such a help to you both! hope you can get the appt .at CHOP soon...a dear friend takes her DD up there for her heart surgeries and loves the hospital and staff there.

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Old 04-09-2013, 03:21 PM   #27
DisNorth
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You will be prepared for the worst, but we will pray for the best! I've heard good things about CHOP, and hope that they can work the appt to a day that works for you.
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Old 04-09-2013, 04:09 PM   #28
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I will be remembering your family in my prayers as well.
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Old 04-09-2013, 05:43 PM   #29
jadelane1
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Prayers to the baby and your family. CHOP is a wonderful place. My son sees a urologist and just had surgery there. They are absolutely wonderful. My daughter has been going to one of the gastrointestinal drs for quite sometime now. Things are not going well with her but I have full confidence in the hospital and drs that work there. It is the best place around for you to be. On a lighter note, I have friend whos daughter has brittle bone and her legs are only really for the most part affected. She is a beautiful 9 year old little girl and and has had some set backs here and there but is a very happy little girl with tons of friends. You will be OK, have faith. Sending prayers your way!
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Old 04-09-2013, 07:46 PM   #30
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Quote:
Originally Posted by dacky041208 View Post
I read that quote to DH and he said he already couldn't agree more. It'll make it all that much sweeter!


My thinking has been a lot for family members- I'm very matter-of-fact and very worse case scenario (wheelchair life, deaf, deformed). I'm praying I'm wrong but I have to be prepared- not only that, but with a pessimist mind, I'll feel like everything that is not as bad as my image will be a blessing.
Prepare for the worst, hope for the best. You aren't a pessimist, you are a realist.

DS12 has a friend with brittle bone disease, it's not the worst case but he had multiple broken limbs up until a few years ago. While he's on the small side, he is healthy and stronger than he was 5 years ago. He also runs Cross Country with DS12.

We are continuing to send prayers Baby Dacky's way.
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