Guillain-Barre syndrome / GBS - The DIS Discussion Forums

Bambi5826 · 02-03-2013, 02:26 AM

I was diagnosed with GBS back in early October 2012. I searched the posts, but only found previous posts from 2010 and further back. I was wondering if there is anyone here on the DIS that has GBS?

It has been one hell of a road, and with further research I am doing, I guess the road can continue to get rocky my entire life. I have been having symptoms for about 10 years now, but nothing as serious as what hospitalized me.

Just looking for people to talk to who may have been though the same thing or similar.

mommasita · 02-04-2013, 01:57 PM

Oh my. I am so glad you have overcome this, but sorry to hear about the fact you still have lingering effects.

I lost my Grandmother to GBS years ago. It was very rare back then, as it still kind of is.

My husband's cousin's little boy also had this at the age of 2. They attributed to the flu shot he had a little before. I do know this is a huge argument, but it was horrendous. He was touch and go for months. He still has issues walking, has a brace, but thank goodness he pulled through.

How are you doing? Please share anytime. Again, I am sorry you have gone through this, it is SO personal to me.

StitchesGr8Fan · 02-06-2013, 09:57 PM

My great uncle had GB years ago, when it was still relatively unknown. His was attributed to getting 2 flu shots that year. No words of advice because I was young and he was already in his 70's. I just remember he was on a lot of medication, but lived several more healthy years after he was diagnosed. Hugs to you.

GrumpyJR · 02-26-2013, 08:35 PM

I was diagnosed and hospitalized in late February 2011. Doctors figured it was related to previously having walking pneumonia. I was hospitalized for three weeks and spent a month in two rehabilitation centers. Would have never thought I would have to learn to walk again! I was lucky they caught it quick and started treatments. Never had to be on a ventilator!
It has been two years and I still have residual problems. I do receive IViG treatments to help combat these which helps me tremendously. I hope to be in full remission by the end of the year. I am able to work a full time job and travel frequently. The best advice I can give you is enjoy everyday to its fullest. Somedays are worse than others. Rest and keep your stress down.
I can honestly say that I truly believe Disney keeps me going. We had planned a cruise and 5 days at Disney World just days before getting sick. I was back to part time work late May 2011 and full time by August. Trip was in September and I wasn't missing it! I made it and it was the best trip ever! It was tough and painful but worth it. Headed to Disneyland next week!

Bambi5826 · 02-28-2013, 12:55 AM

Thanks everyone, for your stories and encouragement

02-03-2013, 02:26 AM	#1
Bambi5826 Mouseketeer The Tag Fairy says "HI"! :o) Join Date: Mar 2004 Location: Metro Detroit, Michigan Posts: 570	Guillain-Barre syndrome / GBS I was diagnosed with GBS back in early October 2012. I searched the posts, but only found previous posts from 2010 and further back. I was wondering if there is anyone here on the DIS that has GBS? It has been one hell of a road, and with further research I am doing, I guess the road can continue to get rocky my entire life. I have been having symptoms for about 10 years now, but nothing as serious as what hospitalized me. Just looking for people to talk to who may have been though the same thing or similar. __________________ WDW 04/04 Pop Century ~Girls Week Out~ WDW 05/06 Pop Century ~Mom & Me Trip~ Coming Soon: 05/13 2yo DD first WDW trip

02-04-2013, 01:57 PM	#2
mommasita I am like HELLO IT IS TEN OCLOCK...Anderson is on Has a sweetie who is Furbilicious Join Date: Aug 2004 Location: Montreal, Canada Posts: 18,322	Oh my. I am so glad you have overcome this, but sorry to hear about the fact you still have lingering effects. I lost my Grandmother to GBS years ago. It was very rare back then, as it still kind of is. My husband's cousin's little boy also had this at the age of 2. They attributed to the flu shot he had a little before. I do know this is a huge argument, but it was horrendous. He was touch and go for months. He still has issues walking, has a brace, but thank goodness he pulled through. How are you doing? Please share anytime. Again, I am sorry you have gone through this, it is SO personal to me. __________________ It's nice to be important, but it's more important to be nice.

02-06-2013, 09:57 PM	#3
StitchesGr8Fan DIS Veteran Join Date: Jul 2009 Posts: 1,875	My great uncle had GB years ago, when it was still relatively unknown. His was attributed to getting 2 flu shots that year. No words of advice because I was young and he was already in his 70's. I just remember he was on a lot of medication, but lived several more healthy years after he was diagnosed. Hugs to you. __________________ '86-offsite, '91-Buena Vista Palace, '92-offsite, '97-offsite, '98-Magic Music Days, '06-ASMu, '07-FtW, '09-ASMu,'10-POR,'12-Poly (Honeymoon!)

02-28-2013, 12:55 AM	#5
Bambi5826 Mouseketeer The Tag Fairy says "HI"! :o) Join Date: Mar 2004 Location: Metro Detroit, Michigan Posts: 570	Thanks everyone, for your stories and encouragement __________________ WDW 04/04 Pop Century ~Girls Week Out~ WDW 05/06 Pop Century ~Mom & Me Trip~ Coming Soon: 05/13 2yo DD first WDW trip

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02-26-2013, 08:35 PM	#4
GrumpyJR Earning My Ears Join Date: Jul 2012 Posts: 1	I was diagnosed and hospitalized in late February 2011. Doctors figured it was related to previously having walking pneumonia. I was hospitalized for three weeks and spent a month in two rehabilitation centers. Would have never thought I would have to learn to walk again! I was lucky they caught it quick and started treatments. Never had to be on a ventilator! It has been two years and I still have residual problems. I do receive IViG treatments to help combat these which helps me tremendously. I hope to be in full remission by the end of the year. I am able to work a full time job and travel frequently. The best advice I can give you is enjoy everyday to its fullest. Somedays are worse than others. Rest and keep your stress down. I can honestly say that I truly believe Disney keeps me going. We had planned a cruise and 5 days at Disney World just days before getting sick. I was back to part time work late May 2011 and full time by August. Trip was in September and I wasn't missing it! I made it and it was the best trip ever! It was tough and painful but worth it. Headed to Disneyland next week!