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Old 01-25-2013, 06:45 PM   #1
jrnunzio3
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possible diagnosis of Fibromyalgia

Hi all,

Just back from my doctor's office and he gave me a possible diagnosis of Fibromyalgia. We won't know for sure until the blood work comes back to ruleout other possible diagnosis (arthritis for one).

Does anyone know of any good resources to do a little research on this?

My Dr. has me trying a medication (I forgot the name and I haven't picked it up at the pharmacy yet).

If you have this condition, can you give me some insight on if you have controlled it and how you are doing? Do you have good days and bad days?

I have been given the OK to exercise, so I will start that tomorrow.

Thank you in advance.
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Old 01-25-2013, 06:49 PM   #2
Southernmiss
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Quote:
Originally Posted by jrnunzio3 View Post
Hi all,

Just back from my doctor's office and he gave me a possible diagnosis of Fibromyalgia. We won't know for sure until the blood work comes back to ruleout other possible diagnosis (arthritis for one).

Does anyone know of any good resources to do a little research on this?

My Dr. has me trying a medication (I forgot the name and I haven't picked it up at the pharmacy yet).

If you have this condition, can you give me some insight on if you have controlled it and how you are doing? Do you have good days and bad days?

I have been given the OK to exercise, so I will start that tomorrow.

Thank you in advance.
Not to make light of your situation, but

Any time I hear fibromyalgia I wonder if Vitamin D levels were checked. After DS 14 was born, my thyroid went wonky and the dr. thought it was fibromyalgia, and gave me a referral to my now endocrinologist and a prescription for cymbalta which did nothing. It wasn't fibro, but my thyroid and low Vitamin D.

Vitamin D deficiency has many similar symptoms to fibromyalgia and so many people are now discovering they are deficient. I am and I ache something fierce and get headaches when the levels are low, but once they bounce back up, I am sooo much better.

Good luck and I hope they get to the bottom of it for you soon.
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Old 01-25-2013, 06:52 PM   #3
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Here is the link to a thread over on the disabilities board all about Fibro and many people who suffer with it. You should post there and you will get some great information:

http://www.disboards.com/showthread.php?t=2164036
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Old 01-25-2013, 08:31 PM   #4
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I was diagnosed with it 15 years ago.

Google for fibro forums and info there's tons.

3 drugs are fda approved for fibromites:

Lyrica - made my hands and feet itch and turn red
Cymbalta - can't take because i'm on another anti-depressent
Savella - worked great until it sent my bp thru the roof which is common

As someone else said check your Vitamin D. Bottom of normal is 20, I was a 4. I've been taking 8000 iu daily for 3 years and finally hit 24!

There's no cure, just things to help you cope and improve your life.

There's lots of great books too. Anything tallking about chronic fatigue syndrome helps as it mimics fibro very closely.

You'll need a neurologist and/or rheumotologist.

Ask any questions!
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Old 01-25-2013, 08:46 PM   #5
North of Mouse
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Quote:
Originally Posted by jrnunzio3 View Post
Hi all,

Just back from my doctor's office and he gave me a possible diagnosis of Fibromyalgia. We won't know for sure until the blood work comes back to ruleout other possible diagnosis (arthritis for one).

Does anyone know of any good resources to do a little research on this?

My Dr. has me trying a medication (I forgot the name and I haven't picked it up at the pharmacy yet).

If you have this condition, can you give me some insight on if you have controlled it and how you are doing? Do you have good days and bad days?

I have been given the OK to exercise, so I will start that tomorrow.

Thank you in advance.
I feel your pain I've had Fibro since my last child was born (extremely bad complicated delivery). Of course then (1984) they didn't know what was wrong with me. Had tests, after tests - was 1994 before a rheumatologist diagnosed me.

The *main* thing to do is exercise daily, whether you feel like it or not. I have tried meds that either didn't do anything or had too many side effects. So now I don't take anything regularly.

I *make* myself exercise and am determined that Fibro will *not* take over my life. My strong determination has helped me more than anything the Dr. tries to give me. I eat right, keep my weight down (another very important thing) and I try to be as *normal* as possible. The days I let myself *give in* are few and far between. I'm determined to *win* and mind over body works wonders. The more you give in, the more you hurt.

My best of luck to you!

By the way, my vit. D levels and thyroid are fine - they've even been checked recently.
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Old 01-26-2013, 07:18 AM   #6
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I'm assuming your doc did an ANA test on you. A positive result can mean several things (including rhematoid arthritis). I have experience with this with my DD, who was very ill for about 2 years - undiagnosed. She finally got to the right doctor (after many wrong ones) and he diagnosed (and quickly confirmed with a blood test) Hasimoto's Thyroiditis. His first indication that it was autoimmune was her vitamin D levels - incredibly low. Prior to this, she had several ANA tests, some came back positive for speckled ANA, some didn't. They still aren't sure why.

She had wicked joint pain and exhaustion that kept her in bed most of the day. And crazy headaches. Once treated (and thankfully the treatment is very simple), she got better quickly. However, her joint pain lingered (although not as bad) and she was sent to a Rheumatologst who further diagnosed Fibro and put her on Lyrica. She simply couldn't function with it so they switched her to gabapentin (not sure if that spelling is correct). She eventually came off that, too, because it wasn't doing anything for her.

What her Endo discovered (who treats her thyroid/Hashimoto's) is that when her thyroid levels are a bit high, her pain goes away. So he keeps her a wee bit on the hyperthyroid side. He thinks that the Fibro diagnosis is wrong and they should have looked into other possibilities before treating her for it. They really can't test for it (or this is how it was explained to me), but it's a diagnosis by elimination. There was a pressure point test done by her Rheumatologist and she responded (loudly) to all the points. So we're still not sure. But I can see that when she's eating right (and I mean really right - tons of fresh, organic fruits and veggies), she feels a lot better. She's at college so it's hard for her to do nowadays. And routine exercise (she runs) makes a difference. If she runs occasionally, it's painful. If she runs daily, she feels great.

She also can tell when her vitamin D levels are down. She gets tired more easily and gets moody.

Good luck to you - I hope you get answers quickly.
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Old 01-26-2013, 12:59 PM   #7
jrnunzio3
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Op here. Thank you so much for your responses.

I had my bloodwork done today and one of the tests was ANA, I can't remember the others, they were panels. Maybe my lipids, one for rheumatoid arthritis.????? Hopefully, we will get the results by the end of next week.

I am going to start an exercise routine in the morning before work. I am also going to try to get my weight down.

Thank you again!!
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Old 01-26-2013, 03:31 PM   #8
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I have hashimoto's and fibro. I have learned that sweet foods make mine worse. I crave them, but when I give in, I have more muscle spasms and pain. Exercise does help, but sometimes it's hard to make myself do it. Vit D as well as magnesium helps some.
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Old 01-26-2013, 05:15 PM   #9
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Sjogren's here. It's fibro with extreme dryness, mouth, eyes, anything that should be moist. I control it with supplements and diet. You need to follow an anti-inflammatory diet. All the joint pain and fatigue is a result of inflammation. That will be sugar free, gluten free, low carb. Primal Blueprint is a good one.
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