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Old 01-28-2013, 11:27 AM   #16
figmentswife
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Too funny both of you said take extra clothes. We talked about it this weekend and he decided what kind of bag he wanted to take into the parks. I will be getting him a Star Wars draw string bag (light weight, and Disneyish) He thinks he is NOT going to want am ECV, but has decided to not take it off the table completely.

He has been reading, Daily, the Ihaveuc.com forums and website. But I will tell him to check out the crohnsforum tonight.

We have an appt with a surgeon Thursday afternoon. We didn't want to wait for the test results (which should come this week) as it wants the surgery no matter what.

Another little hint we found was to wrap up in an Ace bandage for the rides. We will buy a few of them just for the trip.
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Old 01-28-2013, 06:51 PM   #17
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Originally Posted by figmentswife View Post
Too funny both of you said take extra clothes. We talked about it this weekend and he decided what kind of bag he wanted to take into the parks. I will be getting him a Star Wars draw string bag (light weight, and Disneyish) He thinks he is NOT going to want am ECV, but has decided to not take it off the table completely.

He has been reading, Daily, the Ihaveuc.com forums and website. But I will tell him to check out the crohnsforum tonight.

We have an appt with a surgeon Thursday afternoon. We didn't want to wait for the test results (which should come this week) as it wants the surgery no matter what.

Another little hint we found was to wrap up in an Ace bandage for the rides. We will buy a few of them just for the trip.
I would advise against an Ace wrap. Some ileostomys are very active especially within the first year after surgery and the pouch can fill very quickly. My DH's ileostomy has been know to fill up as often as every 15-20 mins in the summer months when he is drinking alot of fluids. If you restrict it then that can cause leaks. I would suggest an ostomy belt if he wants extra protection for it to stay in place. If you guys are visiting WDW within 6 months post-op he more than likely will need a scooter.
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Old 01-28-2013, 08:33 PM   #18
figmentswife
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I would advise against an Ace wrap. Some ileostomys are very active especially within the first year after surgery and the pouch can fill very quickly. My DH's ileostomy has been know to fill up as often as every 15-20 mins in the summer months when he is drinking alot of fluids. If you restrict it then that can cause leaks. I would suggest an ostomy belt if he wants extra protection for it to stay in place. If you guys are visiting WDW within 6 months post-op he more than likely will need a scooter.
OH!!!!

We plan to get the belt also.
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