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Old 11-26-2012, 08:14 PM   #16
ohiotinkfan
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Just back last night from our trip. We had a great time and DS did fine with his UC. We just relaxed and just enjoyed the wonderful Christmas decorations. DS (18) and DD (16) walked in at Chef Mickey's on Saturday and got table with only a 30 minute wait! DH and myself went to Trails's End and only waited about 5 minutes. DS didn't have any problem with the food at Chef Mickey's. He mainly did quick service the other times, but made wise choices and avoided things he thought may cause a flare. He does need to be more selective but he was fine. Stress levels were good too.
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Old 11-27-2012, 12:09 PM   #17
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[QUOTE=ohiotinkfan;46793915]Just back last night from our trip. We had a great time and DS did fine with his UC. We just relaxed and just enjoyed the wonderful Christmas decorations.


So glad you had a great trip! I leave Thursday. I hope being away from it all will be a great healer for me! The stress level with everying going on over the last two weeks has not helped my symptoms, and I'm still trying to find the right meds. I'm so looking forward to being in my happy place!!
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Old 11-28-2012, 05:29 PM   #18
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Have a wonderful trip! I can't wait to hear all about it when you get back.
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Old 12-08-2012, 07:32 PM   #19
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How were your trips?
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Old 12-09-2012, 10:46 AM   #20
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Quote:
Originally Posted by chefmb
Does anyone out there have experience in the World with Crohn's disease? I was diagnosed in August, am trying my fourth medication with no success, and am getting frustrated. We go to Disney in 2 weeks. Lately, I've been eating a pretty boring diet--lots of yogurt, applesauce, cheese and crackers, jello cups. Still trying to figure out what I can eat, but I think the medicines have been making my symptoms worse, although they are still quite manageable (thank God!) Just want some ideas on what/where to eat. I expect to be eating grilled chicken sandwiches. Hoping to get some Silk Milk and cereal and eat breakfast in the room. I feel bad for DH who really enjoys eating out. I don't want to put a damper on our trip, but I know I'll have to be rather selective. We've only made 2 ressies--one for Wishes Dessert Party and one for dinner at Cape May (DH is a seafood lover and I really wanted to do this for him
Thanks for any ideas. I'm sure I'll be able to find some stuff, but it never hurts to ask!
Hi! So glad I saw your post. My daughter was diagnosed with Crohns at age 11. She was on many meds and continued to get sicker! She is now 19 and symptom free med free! Please go to Amazon and purchase the book "Breaking the Vicious Cycle" by Elaine Gotshall. Read the reviews posted by others with IBD. It will change your life! Don't let the Doctors tell you diet doesn't matter with this disease...IT DOES! I am a nurse and very experienced with this diet and have seen it work for many who suffer with this disease! Feel free to PM me or e mail me. I would be happy to answer any questions!
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Old 12-09-2012, 08:40 PM   #21
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Back from my happy place!

Thanks for the inquiries. The trip was wonderful! The weather was really perfect--not a drop of rain. Eating was a little challenging because my symptoms just haven't been great. The Touring Plan app to search menus was a great help during the trip! One day, all I wanted was chicken noodle soup. I was amazed at how hard it was to find! I did finally find it at 50's Prime Time since we were at DHS that day. Our server was great--I felt kind of bad ordering just the soup and I asked if it was possible to get some bread with it. Our server, Cousin Bruce ( I think) told me he could probably run down to the Piggly Wiggly and get some for me(50's PT is a fun place to eat if you haven't tried it). I really appreciated it!
michelleiada--I tried ordering it a few weeks ago but just received notice that it is no longer available on Amazon. I haven't had a chance to look elsewhere. I did get the cookbook for the SCD and another book Living with Crohn's and Colitis I go to the doc Wednesday and want to talk about getting completely off the Entocort ASAP (I just tapered to 1 pill) and going with the diet for awhile. This just seems to make sense to me since the only thing that has helped me so far is the probiotic. I may PM you when I have a little more time to really look into the diet! I appreciate the offer
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Old 12-09-2012, 09:04 PM   #22
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Quote:
Originally Posted by chefmb
Thanks for the inquiries. The trip was wonderful! The weather was really perfect--not a drop of rain. Eating was a little challenging because my symptoms just haven't been great. The Touring Plan app to search menus was a great help during the trip! One day, all I wanted was chicken noodle soup. I was amazed at how hard it was to find! I did finally find it at 50's Prime Time since we were at DHS that day. Our server was great--I felt kind of bad ordering just the soup and I asked if it was possible to get some bread with it. Our server, Cousin Bruce ( I think) told me he could probably run down to the Piggly Wiggly and get some for me(50's PT is a fun place to eat if you haven't tried it). I really appreciated it!
michelleiada--I tried ordering it a few weeks ago but just received notice that it is no longer available on Amazon. I haven't had a chance to look elsewhere. I did get the cookbook for the SCD and another book Living with Crohn's and Colitis I go to the doc Wednesday and want to talk about getting completely off the Entocort ASAP (I just tapered to 1 pill) and going with the diet for awhile. This just seems to make sense to me since the only thing that has helped me so far is the probiotic. I may PM you when I have a little more time to really look into the diet! I appreciate the offer
Amazon will be carrying it again. I believe it is because they are releasing a new edition the end of January. You can preorder at Barnes and Noble. It is truly the best thing to ever happen to us. It changed my daughters life! Please feel free to PM me anytime and I can give you the details of my daughters story and complete recovery!
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Old 12-10-2012, 07:50 PM   #23
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chefmb,

Glad you had a nice trip! We always have a dinner at 50's PTC. My husband loves eating there.
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