Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > disABILITIES!
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 09-11-2012, 08:39 PM   #16
Talking Hands
|,,|/ DEAF DISNEY LOVER
Mom to 2 beautiful young ladies
SIGNS TO OLDIES ON THE RADIO
 
Talking Hands's Avatar
 
Join Date: Mar 2002
Location: Pooh's Thoughtful Place AKA SE Fla
Posts: 10,155

The chef or manager will also come out at CS restaurants if you have extensive allergies.
The chefs did a wonderful job with mine even though I was never contacted prior to my trip. I was amazed at the care that was taken. I have allergies to dairy, shellfish, mango and aspartame as well as diabetes. Yes a lot was off limits to me. Lots of things seem to have hidden milk products and many of the premade sandwiches had cheese on them.
I did have hot dogs several times with gluten free buns and sauerkraut on top. Had salmon, with rice and green beans sauteed in olive oil one night at Pop Century, spicy tuna rolls another night. Bunless hamburger and cucumber salad at the CS between Fantasyland and Tomorrowland. A shake made from Rice Dream milk and Chocolate Tofutti (could have had vanilla that was made with Rice Dream ice cream and Rice Dream milk). My problem are bad enough that even the smallest amount will make me sick so removing cheese from a pre-made sandwich is not an option so I no longer can get sandwiches at some of the CS. I just find out which ones can make a fresh one that will be safe. Had no sit down restaurants this trip. My biggest problem is with drinks. All the fountain diet drinks use aspartame so I order unsweetened tea which is not always available at CS restaurants. I do bring some cans of Splenda sweetened soda and ask for ice.
__________________

Talking Hands
|,,|/ DEAF Disney Lover
Talking Hands is offline   Reply With Quote
Old 09-11-2012, 09:24 PM   #17
clm10308
DIS Veteran
 
Join Date: Jun 2010
Posts: 785

I can understand your frustration.

If you do take his food into the parks with you, maybe you could heat it up at first aid or the baby care center. I don't know if that would be allowed, but people with babies can heat stuff up so I don't see why you couldn't.
clm10308 is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 09-11-2012, 09:32 PM   #18
jlr9882
Mouseketeer
 
jlr9882's Avatar
 
Join Date: Mar 2009
Posts: 258

Sending hugs to you! I have a 6-year-old son with over 20 food allergies. We went the summer before he turned 5. Both Pop and Cape May Clam Bake's chefs called me several times. POP order a watermelon just for my son because he loved them at that time, and Cape May said they would prepare him a special rice milk flan. Boma's, Kona, Cape May, and Chef De France (as well as all QS chefs) all came out to me and prepared something for him because he couldn't eat anything off the kid's menus (all meats are out except for lamb and seafood) and we were on the dining plan. Cosmic Ray's and Flame Tree's chefs and managers both went searching for something for him to eat at other places, because there was nothing he could eat at either place. He did 2 out of the 4 qs at POP, because I knew there was something he could eat there and the chef was prepared for him.

I hope they will be able to order some food for your son at each place like Pop offered us. I know it is hard, but you will have a great trip. Think of all the other great memories you will make (pool, rides, shows) and keep a smile on your face.
__________________


[/url]

July 2013- Our 1st July 4th trip with a party of 12- CSR w/DDP
Aug 2011- Bahamas Celebration Cruise and Disney -POP w/DDP (My DS with 20+ allergies was treated like a Prince!)
Feb 2011- Epcot trip and DTD- offsite rental house
Aug 2009- DS first trip! -POP
Tons more trips before then offsite with my first trip at only 6 weeks old. My cousin that went as our babysitter is now a CM!
jlr9882 is offline   Reply With Quote
Old 09-11-2012, 09:33 PM   #19
SillyFamily
Mouseketeer
 
Join Date: Sep 2012
Posts: 226

Ok here is an idea for in the resorts ts meals. For the restaurant that says they cant heat his food but you need to bring his, why not just sneak down to the qs location. They all have microwaves. Nobody will even think twice about u leaving and coming back in. I would bring something to clean the microwave with for cross contamination, but otherwise hot meals for him.

If you guys are having a 3 course meal why not pack him one. Yeah it might not be as fancy but it can still be great. The less u stress the less he will.

Just an idea hope this helps
__________________
me(Belle) dsis(Lady) dmom(Stitch)
SillyFamily is offline   Reply With Quote
Old 09-11-2012, 09:41 PM   #20
SillyFamily
Mouseketeer
 
Join Date: Sep 2012
Posts: 226

Oh yatchsman steakhouse has one grass fed steak. I think its the ny strip. I had it there 6months ago. Several of the signature restaurants will carry organic and grass fed meats, but i havent ever seen them anywhere else.

I havent seen any with organic fruits or veggies. Sorry
__________________
me(Belle) dsis(Lady) dmom(Stitch)
SillyFamily is offline   Reply With Quote
Old 09-12-2012, 09:01 AM   #21
clanmcculloch
DIS Veteran
 
clanmcculloch's Avatar
 
Join Date: Feb 2009
Location: New Hampshire
Posts: 5,570

I'm curious; what did he eat last time you went? Have his allergies changed since then? I can't imagine that chef won't prepare similar meals this time. Obviously if some of the foods were made with packaged products that'll be an issue since so many vendors have changed since 2009, but if you're talking about foods made with fresh ingredients then unless something has changed with his allergies since your previous trips, I would expect chefs to handle his allergies exactly as they did previously. While contact before trips has definitely become limited to almost non-existant most of the time, chefs have still been taking great care of us and this is as recently as 2 weeks ago.
__________________
Me DH DD(16) DD(14) DSD(32) DSSil (41) DGD (newborn) DSD(30) DGS(4)




Multi-Allergy & Autism Dining Reviews: February 2014 * DL & LA July 2013 * February 2013 * August 2012 * February 2012 * August 2011 * August 2010


February 2014 AKL: me, DH, DD15, DD13 * July 2013 DL offsite (Tropicana): me, DH, DD15, DD12, DSD30, DSSil * February 2013 WDW Poly: me, DH, DD14, DD12
August 2012 WDW FW Cabin & AoA Nemo: me, DH, DD14, DD12, DD12's BFF11 * February 2012 WDW Poly CL: me, DH, DD14, DD11 * August 2011 WDW YC: me, DH, DD13, DD11
February 2011 WDW Poly CL: me, DH, DD13, DD10, DSD28, DSSil * August 2010 WDW POFQ & Poly CL: me, DH, DD12, DD10 * June 2010 WDW Pop: me, DH, DD12, DD9
December 2009 WDW POFQ: me, DH, DD11, DD9 * February 2009 WDW Pop: me, DH, DD11, DD8 * August 2008 WDW SSR: me, DH, DSD25, DSD24, DD10, DD8
September 2007 WDW Pop: me, DH, DD9, DD7 * April 2002 DLR offsite: me, DH, DSD19, DSD17, DD4, DD1.5 * June 2000 DLR offsite: me(pregnant), DH, DSD17, DSD15, DD2
January 1994 WDW offsite: me, DH, DSD11, DSD9 * January 1992 WDW offsite: me, DH, DSD9, DSD7
clanmcculloch is offline   Reply With Quote
Old 09-12-2012, 09:52 AM   #22
MedicGoofy
DIS Veteran
 
MedicGoofy's Avatar
 
Join Date: Jan 2011
Location: Niagara Falls, Canada
Posts: 939

I can understand the frustation in dealing with food allergies. It's not easy trying to make a trip absolutely perfect, when in reality, it is so difficult to do. I just took my SIL on her first trip to Disney, which was also her first trip into Florida, AND only her 2nd time into the USA. She doesn't travel, her allergies make it too difficult. But hearing from everyone on here how great Disney is with allergies, made it easier to start to look into planning meals, cause other than that, it was going to be meals in the room with a mini fridge and microwave


My SIL is allergice to:

peanuts
treenuts
shellfish
sunflower seeds/oil
beans - any kind
all fruit (except pineapple, grapefruit, watermelon, lemon, oranges)
radishes
raw carrots
green beans
sweet potatos
squash
coconut
zucinni
nutmeg
cajun seasoning
'all' spice
no wine or beer (has extreme seasonal allergies, tried beer 2x ended up with hives in mouth and swollen tongue, yet can eat bread products?)


She ate SOOOO good!!! While some chefs contacted me prior to the trip, some did not. We went with the attitude, that if we got there and it worked out, it worked out. It's kind of how she deals with life. She knows that if she goes to an amusement park for a day, she can't eat there food, she has been told, 'sorry, we can't help you'. Each time we sat down, the server brought the chef over, who was EXTREMELY helpful and went over everything....like, in detail everything. It was crazy. She was in awe. They were more than willing to make her something, switch up sides, to accomodate. Her meals turned out wonderfully. She has never eaten like such a 'normal' person before.

We only did a short trip, so our list of restaurants is short, but here is were we ate and had wonderful experiences:

1900 Park Fare; can't say enough about this place. SIL had her first dessert in 12 yrs in a restaurant, had tears in her eyes. Chef TJ was FANTASTIC!!!
Sci-Fi Diner
Tusker House
Cape May Cafe
Cosmic Rays
Pizzafari
Port Orleans Riverside CS
Casey's Corner


While there were other places we would of loved to have tried, time didn't allow it. BUT, she knows now how well Disney works with those with allergies.

I do wish you a great trip while you and your family are there. I hope it is magical and works out. And I really hope it is not your last trip
__________________
MedicGoofy is offline   Reply With Quote
Old 09-12-2012, 10:49 AM   #23
Schmeck
Funny thing is now my 17 year old naps almost every day and so do I!

 
Join Date: Aug 1999
Location: Massachusetts Strong!
Posts: 8,483

Quote:
Originally Posted by clanmcculloch View Post
I would strongly recommend you check out the land pavillion at Epcot. Garden Grill gets all of their fruits vegetables from the pavillion and they don't use pesticides. You said he doesn't eat fish but they do get their fish from there as well
Not completely true - they get some of their produce and fish from the greenhouses, but not all (it's not big enough to supply the whole restaurant, and they do have crop failures), and they also use fish pellets that may contain corn. They also have infestations that require some pesitcides, although they are used offsite.
__________________
July '13 - CBR Aug '14 - PC
Mar '13 - PC Aug '12 - PC (Best Trip Ever!)
Aug '10 - PC June '08 - ASMo (school trip)
Aug '05 - BC Aug '04 - PC, AKL
Oct '02 - AKL, POR May '99 - CBR
May '96 - CBR Dec '80 - offsite
Schmeck is offline   Reply With Quote
Old 09-12-2012, 04:16 PM   #24
Ali
DIS Veteran
 
Join Date: Mar 2000
Location: Palm Bay, FL
Posts: 1,250

Have you thought about buying some hydroflasks, heating up the food, and taking it with you? They do keep things at the right temps. I really have no other advice except to say I empathize with you but also am not sure what you want the chef to do when you need organic food which Disney doesn't have. I think if you go to someone with a specific request for a food item they would either say sure, we can do that or no, sorry and then it would be clear. Telling them what you can't have is harder than telling them what you want them to do.

Good luck. I have a child who will only eat yogurt and crackers so I am used to bringing my cooler everywhere we go. Getting ice at CS places to keep things cold all day. Paying for character meals where he doesn't eat anything at all. Food is a tough issue.
Ali is offline   Reply With Quote
Old 09-12-2012, 09:16 PM   #25
SueM in MN
It's like combining the teacups with a roller coaster

 
SueM in MN's Avatar
 
Join Date: Aug 1999
Location: Twin Cities area,Minnesota,USA
Posts: 30,750
DISboards Moderator

I want to point out that the restaurants are not allowd to heat food for people for food safety reasons.
They can only bring things into the kitchen from commercial sources, so they can't heat things (or even bring into the kitchen) if they are not from one of the restaurant's suppliers.
Quote:
Originally Posted by clm10308 View Post
I can understand your frustration.

If you do take his food into the parks with you, maybe you could heat it up at first aid or the baby care center. I don't know if that would be allowed, but people with babies can heat stuff up so I don't see why you couldn't.
I don't think First Aid has any microwaves - at least I have never send any.

Baby care does have microwaves and I am quite sure you could use those.
Quote:
Originally Posted by SillyFamily View Post
Ok here is an idea for in the resorts ts meals. For the restaurant that says they cant heat his food but you need to bring his, why not just sneak down to the qs location. They all have microwaves. Nobody will even think twice about u leaving and coming back in. I would bring something to clean the microwave with for cross contamination, but otherwise hot meals for him.

If you guys are having a 3 course meal why not pack him one. Yeah it might not be as fancy but it can still be great. The less u stress the less he will.

Just an idea hope this helps
I don't know if they are staying at on site or off site villa, but all of the on site DVC villas have microwaves in the rooms. The off site villas I have seen had microwaves. So, while they are at their resort, they should not have any problem with warming food.

That is good advice for people staying in a room at one of the resorts with a food court - most of those food courts do have microwaves.

The quick service locations in the parks mostly don't have microwaves.

Hydrofoil or thermos is a good suggestion.

Other people have also found it helpful to do as several other posters suggested - give a list of things you can have will be helpful to let the chef picture what could possibly be made. And, a written list of the problem foods is also a good idea so they have something to refer to - especially as the list is long.
__________________
SueM in MN
Moderator of disABILITIES
Link to disABILITIES FAQs thread

Spaceship Earth: We are all passengers together.
Life is what happens to you when you're busy making other plans......John Lennon
Be a rainbow in someone else's cloud. Dr. Maya Angelou
trip report link in Memory of eternaldisneyfan, who lived these words: Some people are always grumbling because roses have thorns. I am thankful that thorns have roses. Alphonse Karr
SueM in MN is offline   Reply With Quote
Old 09-13-2012, 01:46 PM   #26
seven dwarfs
DIS Veteran
 
seven dwarfs's Avatar
 
Join Date: Jul 2006
Location: somewhere out there
Posts: 1,046

I am just back from a trip with my son who is nut free and can't have any gluten. This is including it in the form of brown rice, corn...he eats no grains basicly. He also can't have seeds. It was a complete nightmare at most restaurants. The chef's were so rude and many brought out things he could not have. He was so sick after three of his meals. It does not cause him to have any issues with breathing yet, thank God, but after reading your situation, I would not eat in Disney. The only places that we had good luck were Boma, CRT and 'Ohana. We had an awful time at Le Celliar, Tusker House, Germany, CP and Hoop Dee Doo. (I forget where else we had reservations right now) If you have a basic allergy like dairy or nuts or even just wheat, I think you are fine but when you start adding more and more, it is just to much for them to handle.

I know it stinks. We were so excited because we never get to eat out and my other children miss out sometimes. When we go back in December we will pack our food.
__________________
seven dwarfs is offline   Reply With Quote
Old 09-13-2012, 02:16 PM   #27
Talking Hands
|,,|/ DEAF DISNEY LOVER
Mom to 2 beautiful young ladies
SIGNS TO OLDIES ON THE RADIO
 
Talking Hands's Avatar
 
Join Date: Mar 2002
Location: Pooh's Thoughtful Place AKA SE Fla
Posts: 10,155

Quote:
Originally Posted by seven dwarfs View Post
I am just back from a trip with my son who is nut free and can't have any gluten. This is including it in the form of brown rice, corn...he eats no grains basicly. He also can't have seeds. It was a complete nightmare at most restaurants. The chef's were so rude and many brought out things he could not have. He was so sick after three of his meals. It does not cause him to have any issues with breathing yet, thank God, but after reading your situation, I would not eat in Disney. The only places that we had good luck were Boma, CRT and 'Ohana. We had an awful time at Le Celliar, Tusker House, Germany, CP and Hoop Dee Doo. (I forget where else we had reservations right now) If you have a basic allergy like dairy or nuts or even just wheat, I think you are fine but when you start adding more and more, it is just to much for them to handle.

I know it stinks. We were so excited because we never get to eat out and my other children miss out sometimes. When we go back in December we will pack our food.
There is no gluten in brown rice or corn. It is found in wheat, rye and barley. While your child may have problems with these it is not a gluten problem.
__________________

Talking Hands
|,,|/ DEAF Disney Lover
Talking Hands is offline   Reply With Quote
Old 09-13-2012, 10:01 PM   #28
seven dwarfs
DIS Veteran
 
seven dwarfs's Avatar
 
Join Date: Jul 2006
Location: somewhere out there
Posts: 1,046

Quote:
Originally Posted by Talking Hands View Post
There is no gluten in brown rice or corn. It is found in wheat, rye and barley. While your child may have problems with these it is not a gluten problem.
I am not looking for anyone to diagnose my son or looking to debate what food contains gluten. I am only posting to help others understand that when your allergies are more complex disney isn't as good as someone who maybe has a dairy allergy or nut allergy or even just a "wheat" allergy. I would like to spare others from our disasters we experienced. If my son had issues with his breathing from his food allergy then I would not risk eating at Disney.

With all that said, people who have gluten issues may be able to tolerate oats. There are plenty of people who can't. Just because it can be tolerated by some does not mean oats are gluten free. Gluten is composed of two smaller proteins named prolamine and glutelin. Prolamine is the most studied. Different grains have different kinds of prolamine. Gliadin is the name of the prolamine found in wheat. It has been studied as the cause in celiac disease. But, there is so much left unstudied right now. Research is starting to show that it is important to pay attention to all grains including corn and rice. They do contain "gluten type protein". If anyone reading this has issues with gluten that has removed the standard wheat, rye, and barley yet still having problems; remove corn and rice and see what happens. It has saved my sons life. You can read more about these studies on Town Wellness Center, Dr. Peter Osborne's website.

WATCH THIS http://www.youtube.com/watch?v=Cu9ZHb7oUqQ
__________________
seven dwarfs is offline   Reply With Quote
Old 09-14-2012, 10:38 AM   #29
mistysue
DIS Veteran
 
mistysue's Avatar
 
Join Date: May 2009
Posts: 1,892

I don't think the PP was trying to diagnose, but may more have been trying to point out that if you just said "no gluten" they would not have known not to give him corn, rice or oats because they do not contain the protein commonly identified as gluten. As you said they have "gluten-like proteins", which are still not "gluten". I don't know anything about how you ordered, did you list everything out for them, or just say "no gluten" and expect them to know you meant rice, corn and oats that are not cross contaminated? I really do want to know, because if you said "no corn" that is really scary.

I'm sorry you had such a bad experience. My son has a lot of allergies and we just went for two weeks. Even though they are not allergens for him, he barely had rice, oats or corn. Buckwheat was our trouble one, it's like they were so proud of themselves for being free of everything else they forgot to check for it. The large enjoy life cookies have it, which he was given a few times.

Quote:
Originally Posted by seven dwarfs View Post
I am not looking for anyone to diagnose my son or looking to debate what food contains gluten. I am only posting to help others understand that when your allergies are more complex disney isn't as good as someone who maybe has a dairy allergy or nut allergy or even just a "wheat" allergy. I would like to spare others from our disasters we experienced. If my son had issues with his breathing from his food allergy then I would not risk eating at Disney.

With all that said, people who have gluten issues may be able to tolerate oats. There are plenty of people who can't. Just because it can be tolerated by some does not mean oats are gluten free. Gluten is composed of two smaller proteins named prolamine and glutelin. Prolamine is the most studied. Different grains have different kinds of prolamine. Gliadin is the name of the prolamine found in wheat. It has been studied as the cause in celiac disease. But, there is so much left unstudied right now. Research is starting to show that it is important to pay attention to all grains including corn and rice. They do contain "gluten type protein". If anyone reading this has issues with gluten that has removed the standard wheat, rye, and barley yet still having problems; remove corn and rice and see what happens. It has saved my sons life. You can read more about these studies on Town Wellness Center, Dr. Peter Osborne's website.

WATCH THIS http://www.youtube.com/watch?v=Cu9ZHb7oUqQ
__________________
Me(33) DH(33) DD(11) DS(5) DS(3)

I like vacations.
mistysue is offline   Reply With Quote
Old 09-14-2012, 11:44 AM   #30
seven dwarfs
DIS Veteran
 
seven dwarfs's Avatar
 
Join Date: Jul 2006
Location: somewhere out there
Posts: 1,046

Quote:
Originally Posted by mistysue View Post
I don't think the PP was trying to diagnose, but may more have been trying to point out that if you just said "no gluten" they would not have known not to give him corn, rice or oats because they do not contain the protein commonly identified as gluten. As you said they have "gluten-like proteins", which are still not "gluten". I don't know anything about how you ordered, did you list everything out for them, or just say "no gluten" and expect them to know you meant rice, corn and oats that are not cross contaminated? I really do want to know, because if you said "no corn" that is really scary.

I'm sorry you had such a bad experience. My son has a lot of allergies and we just went for two weeks. Even though they are not allergens for him, he barely had rice, oats or corn. Buckwheat was our trouble one, it's like they were so proud of themselves for being free of everything else they forgot to check for it. The large enjoy life cookies have it, which he was given a few times.
I understand that most people do not include corn and rice in the gluten family as of yet until science cathces up. I was very very clear with my sons allergy and listed them each as their own.

He was given bread. Guess what it was made with? He was given powdered eggs after I made it very clear they need to be real eggs. The chef lied to me about them and you could see and taste that they were not real eggs. Those eggs also had a piece of glass in them that thank God he had picked through and found it before it was in his mouth. The glass came from a rim of a glass. This was at Tusker House. I was worried that someone else may have other pieces of glasss in their food so I let the chef know. He told me it didnt come form his kitchen. I did not bring the glass with me. It matched the rim of the juice glass perfect and was in the middle of the egg. My son was not harmed due to the fact he found it before it went into his mouth.The chef also brought out a stew of tomato, squash and peppers which these were listed as things he can not have.

At our very first meal he was told he could have the potato and cheese bake. I questioned the chef because I thought they would have a flour to thicken them. He claimed no. When he started throwing up a different chef said "oh sorry those have wheat flour in them." There is not enough space here to type all our problems we encountered. The reason I have responded to this post is if my child was so severe that he could not breathe if he was to eat something he should not have, I would not risk it. It is unfortuate enough that my son was sick.

I would like to add Brandon (sp?) at 'Ohana was wonderful. Very nice, caring. Double checked things and made Jared feel so special. Boma with chef Chris (need to double check his name) was also wonderful. He was very nice and did not make me feel bad. I had butterflies in my belly everytime I had to talk to the chef. My son felt so bad and wanted me to cancel but didnt want his family to pay because he is sick. We did not even attempt any CS meals as I figured it would just be way to hard and to much risk.

I just would like others to know that it is not all wonderful for everyone and Disney really needs to work on how to handle people with mutiltiple allergies better. I do think there is enough people where they need to have someone who deals only in allergies in the restaurants. I did see the same chef seemed run ragged by all of the tables that had allergy issues plus having to go and fix the meals. Maybe they are just over worked.

I am hoping that Disney is able to use what we experienced to make it better for others. I know that allergies are a big deal, a huge liabilty and a pain in the rear. I apprecaite that they are trying to make it enjoyable for those in that catorgory. But for us they missed the mark.
__________________
seven dwarfs is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 04:13 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.