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Old 08-02-2012, 08:36 PM   #661
Angel16
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Originally Posted by t_daniels View Post
just found out a friend who had CF passed away.. Bah. Finding these things out over Facebook is terrible..
I am so sorry Tina. It is a very nasty disease. And finding out through Facebook is so difficult.

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Old 08-02-2012, 08:42 PM   #662
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Quote:
Originally Posted by Pinkocto

I'm sorry for your loss

I lost a very good friend to CF when we were both 13. It is a horribe disease. What a blessing your friend was able to be with his family so long.
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Originally Posted by Angel16

I am so sorry Tina. It is a very nasty disease. And finding out through Facebook is so difficult.

Ann
Yeah. I texted the friend who posted it , found out more. He'd gone in for a checkup,his blood sugar was weird.... but they found an infection, couldn't get it, he ended up in a coma. Was really hoping he'd eventually make it on a transplant list.
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Old 08-02-2012, 08:44 PM   #663
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just found out a friend who had CF passed away.. Bah. Finding these things out over Facebook is terrible..
Tina, so sorry for your loss.

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Old 08-02-2012, 08:46 PM   #664
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Realized I never explained this so....



He was/is both. However he has left the risky actions pretty much behind him.
My DH is a surveyor and covers many parts of the state. Lightning is not uncommon all year long here. The first time he was in the military and on TDY.

The second he was surveying and lightning hit a metal fence he was next to, he was knocked to the ground and out cold for a few minutes. No burns or injury from either one.



He is always very lucky with lottery tickets, speeding tickets, gambling, finding money. Maybe we all need to get hit by lightning.



At the time it sure was. Now it is a great story, especially when he tells it.


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Old 08-02-2012, 08:47 PM   #665
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Tina, so sorry for your loss.

Kathy
Ty! Hugs always appreciated.
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Old 08-02-2012, 08:59 PM   #666
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Wendy, I hope you feel better soon. If it doesn't let up I'd suggest going to the Dr.
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Old 08-02-2012, 09:01 PM   #667
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Alison, how is Fran's leg doing?
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Old 08-02-2012, 09:34 PM   #668
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Had a wonderful two days at AKL CL. Special thanks to Don and Emily for making us feel like we were back at home. Loved all the animals outside our room (4 giraffe, 2 zebras, 9 Thomson gazelles, etc.). Ate at Jiko and tried Sanaa for the first time. It won't be the last!!! Absolutely loved it!!!!! Pool time was great too! Lots of activities and my son loved it.
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Old 08-02-2012, 09:39 PM   #669
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Alison, how is Fran's leg doing?
Monday the Doc said it looks the best it has since he took over her case in May. Medicare allows here five of the Applegrafts and got her fifth one on Monday. I like when she gets those because the dressing changes are much simpler and only have to be done every other day.

Next week she will have to switch to another "product". She gets her last dose of the antibiotics for the infection tomorrow and they will take out the pik line. She will be so happy about that, the darned thing catches on everything and is a real PITA.

It would be really nice if we could actually go on our F&W trip and she could take a shower on vacation without me having to bring along Saran Wrap and medical tape!
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Old 08-02-2012, 10:18 PM   #670
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Monday the Doc said it looks the best it has since he took over her case in May. Medicare allows here five of the Applegrafts and got her fifth one on Monday. I like when she gets those because the dressing changes are much simpler and only have to be done every other day.

Next week she will have to switch to another "product". She gets her last dose of the antibiotics for the infection tomorrow and they will take out the pik line. She will be so happy about that, the darned thing catches on everything and is a real PITA.

It would be really nice if we could actually go on our F&W trip and she could take a shower on vacation without me having to bring along Saran Wrap and medical tape!
I'm so glad she's progressing along. I was worried when she had that last new opening.
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Old 08-02-2012, 10:21 PM   #671
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Originally Posted by YCFAN View Post
Had a wonderful two days at AKL CL. Special thanks to Don and Emily for making us feel like we were back at home. Loved all the animals outside our room (4 giraffe, 2 zebras, 9 Thomson gazelles, etc.). Ate at Jiko and tried Sanaa for the first time. It won't be the last!!! Absolutely loved it!!!!! Pool time was great too! Lots of activities and my son loved it.
Sounds like great fun! Jiko is one of my favorites.
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Old 08-02-2012, 10:35 PM   #672
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Quote:
Originally Posted by YCFAN
Had a wonderful two days at AKL CL. Special thanks to Don and Emily for making us feel like we were back at home. Loved all the animals outside our room (4 giraffe, 2 zebras, 9 Thomson gazelles, etc.). Ate at Jiko and tried Sanaa for the first time. It won't be the last!!! Absolutely loved it!!!!! Pool time was great too! Lots of activities and my son loved it.
Aw! Glad you had a good time!
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Old 08-02-2012, 10:37 PM   #673
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so I get to add two days onto my trip, one extra park days and another for our last night. I figured that the day I run the half marathon I am not going to want to be in a park, so we are going to spend the day relaxing going swimming and downtown disney.
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Old 08-03-2012, 12:32 AM   #674
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Thanks RachelTori!

I was hoping it would be as good as the Jiko wine they serve. Darn!

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I can tell you it's definitely not "fine" wine! There's normally a 3 wine selection, 2 whites (Chardonnay and ?) and a red.



We like the beer selection much better! Tusker (the only other place we've ever found that is at the Dawa Bar at Animal Kingdom) and Yuengling.




Here's a picture of the Cordials (8-10pm)
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Old 08-03-2012, 05:57 AM   #675
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I can tell you it's definitely not "fine" wine! There's normally a 3 wine selection, 2 whites (Chardonnay and ?) and a red.



We like the beer selection much better! Tusker (the only other place we've ever found that is at the Dawa Bar at Animal Kingdom) and Yuengling.




Here's a picture of the Cordials (8-10pm)

Oh well, not a beer drinker, so guess I'll have to make due with the whites
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