Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney Trip Reports > Pre-Trip Reports and Plans
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 07-17-2012, 01:50 PM   #1
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 759

Trevor's Star Wars Make A Wish trip

We found out in May that our son Trevor qualified for Make A Wish and he would be granted a wish! In June the wish grantors came and asked Trev what his wish would be. He said to be a Jedi during Star Wars weekend. Trev is obsessed with Star Wars and Legos! His back up wish was to go to Lego Land. Trevor found out a few days before his birthday that his wish will be granted!

Here is Trevor's story:

In the summer of 2005 I was on hospital bed rest waiting for my firstborn to make his arrival. I had many complications but nothing ever pointed to the fact that Trevor had anything wrong with him.

Trevor made his entrance and his hands and feet were a little blue ut the nurse reassured us this was normal for newborns. He was our first so we did not question it. The room was packed with family and friends and they were all holding him. I figured I would get my chance once the visitors left. Boy was I wrong! At a couple hours old the nurse said she had to do a routine check. Next thing I know there were about 10 doctors and nurses surrounding him saying he was very sick and needing to go to the NICU Immediatly. Our lives were forever changed.

I just had an emergency c section so I could not go with him. Luckily my Dad was still there and went with my husband to go to the NICU with Trevor. My friends stayed with me. My Dad came back up to my room and looked like things were very bleak. He explained something was wrong with his heart and they were uncertain if he would survive.

The Doctor came to the room and explained that Trevor was born with a congenital heart defect, pulmonary atresia w/ivs. Basically the blood flow from the heart to the lungs was blocked. He had to be rushed to the local children's hospital immediately. My dad and husband followed Trevor down there while my friend stayed the night with me.

At less than 48 hours Trevor underwent his first heart surgery. They put a stent in his PDA. And ballooned his pulmonary artery. The dr. still was unsure if Trev would make it. They tout he may be in the hospital for months. I finally was released when Trev was 4 days old and set up our home away from home. A little over a week later to the surprise of everyone our little rock star was released!

We had weekly monitoring by the cardiologist. At 3 months old he needed another heart surgery. Again Trev was a rock star and came home within a couple days. We waited for Trevor to gain enough weight for his next surgery. He surprised the doctors and his right ventricle actually grew to close to normal size!

At 9 months old he had open heart surgery to remove his pulmonary valve and conduit. As well as scrape out his right ventricle as it was very thick and muscle bound. Trevor had a very rough recovery. He was expected to go home within 5 days, but it was 5 days before he would even wake up! He had multiple high fevers, a blood transfusion and did not have the correct urine output. He. Finally did wake then had more fevers, could not eat (oral aversion ) and threw everything up. He ended up getting 2 new teeth and a double ear infection while in the hospital!

Since he was so behind developmentally he started 3 different therapies while in the hospital. After almost 3 weeks we were finally home! At 15 months he went in again for surgery.

Everything was going well until preschool and at 4 he had another heart surgery. Then the following year in kindergarten he got his appendix out! We are now waiting for his next open heart surgery where he will get a pulmonary valve and conduit.

Trevor is exceeding everyone's expectations. He is above grade level in reading, spelling and math. He loves to play soccer, baseball and basketball. He loves all things Star Wars and Legos.

3 years after Trevor was born we added twin girls to our family. Trevor just celebrated his 7th birthday this weekend and Allie and Kara are 3. We are so blessed to have Trevor in our lives. We are also very blessed for Trevor to be able to go one make a wish trip.

Thanks for reading! Sorry it is so long!

Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
Lilfoot93 is offline   Reply With Quote
Old 07-18-2012, 07:25 PM   #2
maroo
DIS Veteran
 
maroo's Avatar
 
Join Date: Aug 2008
Location: MS
Posts: 8,042

I found you!!!

I will post a link to this report on the Wish Trippers thread and hopefully some folks will be able to come find ya!

Do you guys have dates for your trip already?

I like Star Wars, too - and once went to Disney for Star Wars Weekends that happens in May/June.
maroo is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 07-18-2012, 09:17 PM   #3
Moodyzblu
DIS Veteran
 
Moodyzblu's Avatar
 
Join Date: Apr 2006
Location: MA
Posts: 1,572

Another heart (and twin) mom here !! Looking forward to getting to learn more about your family and hearing all about your plans.
__________________
Michelle ... Single Mom to:Jayden(9) Jesse(9)
Jaymee (27) Jillianne (25) Jeremy (22)

Come check out ..
Jayden's Wish pre-trip report !
It Smells Like Elephant and Forbidden Journey's Wish Trip Report ... in progress
The Moodys Do Disneyland!
Youtube channel ... http://www.youtube.com/user/Moodyzblu
Moodyzblu is offline   Reply With Quote
Old 07-18-2012, 10:02 PM   #4
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 759

Quote:
Originally Posted by maroo View Post
I found you!!!

I will post a link to this report on the Wish Trippers thread and hopefully some folks will be able to come find ya!

Do you guys have dates for your trip already?

I like Star Wars, too - and once went to Disney for Star Wars Weekends that happens in May/June.
Thanks! We do not have dates yet. Trevor really wants to go during Star Wars Weekend and since that does not happen until May we will have a long wait

Our wish grantors said it would probably be around December/January when Disney has the dates set so then we can choose when we want to go. We are hoping for the first weekend of it so we will see...

That will just give us lots of time to plan since we have never been to Disney World!

Quote:
Originally Posted by Moodyzblu View Post
Another heart (and twin) mom here !! Looking forward to getting to learn more about your family and hearing all about your plans.
Hi! I have "met" you on the DISabilites board. I decided to go ahead and start my trip report now even though we have a few months. Crazy we both have a heart kid and twins!

Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
Lilfoot93 is offline   Reply With Quote
Old 07-19-2012, 03:09 PM   #5
carebearkidney
Mouseketeer
 
carebearkidney's Avatar
 
Join Date: Jan 2012
Location: North Atlanta
Posts: 337

Star Wars! An excellent wish. I'm sure the force will be with you in regards to dates. You should check out the weekend guests for each weekend and see if they are having one person that your son would be more excited to see. I know they have had the people that have played Boba Fet, Chewbacca and C3PO before.
Don't forget to head to Downtown Disney and make a custom lightsaber...my boys love theirs.
__________________
Karen (the momma) Ian (the daddy) William - 8 (the Cars boy) Matthew - 6 (the all out Disney NUT)

Trick or Treat Trip Oct 11-16th 2014
Shades of Green :

Our MAW PTR
To Kidney - and Beyond!

Our kidney-versary trip - celebrating one year anniversary of kidney transplant!
kidney-versary trip 2011

Kidney-versary trip 2011
MAW trip Feb 17 - 23 2013
carebearkidney is offline   Reply With Quote
Old 07-19-2012, 04:41 PM   #6
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 759

Quote:
Originally Posted by carebearkidney View Post
Star Wars! An excellent wish. I'm sure the force will be with you in regards to dates. You should check out the weekend guests for each weekend and see if they are having one person that your son would be more excited to see. I know they have had the people that have played Boba Fet, Chewbacca and C3PO before.
Don't forget to head to Downtown Disney and make a custom lightsaber...my boys love theirs.

Thanks for the tips. I didn't know they had custom lightsabers. Even my girls would be up for that! I think they are such huge Star Wars fans because of their big brother!

Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
Lilfoot93 is offline   Reply With Quote
Old 07-19-2012, 06:02 PM   #7
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 759

I finally figured out how to post pics! Here are a couple from Trevor's Heart surgeries.

Trevor at a few hours old being transferred to Children's for his first heart surgery. It was done at less than 48 hours old.




Trevor a couple days after open heart surgery 9 months old.




Trevor finally waking up after 5 days from his open heart surgery.


Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
Lilfoot93 is offline   Reply With Quote
Old 07-19-2012, 06:33 PM   #8
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 759

Pics of the kids

Here is a pic of Trev today.




Allie
[IMG][/IMG]



Kara



Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
Lilfoot93 is offline   Reply With Quote
Old 07-19-2012, 07:10 PM   #9
maroo
DIS Veteran
 
maroo's Avatar
 
Join Date: Aug 2008
Location: MS
Posts: 8,042

pictures!!!!

LOVE the pictures!!



you have a beautiful family!!
maroo is offline   Reply With Quote
Old 07-19-2012, 09:27 PM   #10
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 759

Thanks!

Now that I have finally figured out how to post pictures I will post some of Trevor's birthday party this weekend. We did Jedi training. We had it in the works before we knew about him being qualified for MAW! And of course his wish is to be a Jedi during Star Wars weekend

Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
Lilfoot93 is offline   Reply With Quote
Old 07-20-2012, 08:48 AM   #11
Moodyzblu
DIS Veteran
 
Moodyzblu's Avatar
 
Join Date: Apr 2006
Location: MA
Posts: 1,572

Sounds like an awesome birthday party !
__________________
Michelle ... Single Mom to:Jayden(9) Jesse(9)
Jaymee (27) Jillianne (25) Jeremy (22)

Come check out ..
Jayden's Wish pre-trip report !
It Smells Like Elephant and Forbidden Journey's Wish Trip Report ... in progress
The Moodys Do Disneyland!
Youtube channel ... http://www.youtube.com/user/Moodyzblu
Moodyzblu is offline   Reply With Quote
Old 07-20-2012, 02:17 PM   #12
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 759

Trevor's 7th Birthday Party Pics (Star Wars of course :))

Here is the gang getting ready for their training!



Practicing their skills so they can defeat the dark side...



The entrance to to begin training.



Defeating Darth Mal!



The kids had a great time! I can't believe my baby is 7 now!

Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
Lilfoot93 is offline   Reply With Quote
Old 07-20-2012, 02:45 PM   #13
carebearkidney
Mouseketeer
 
carebearkidney's Avatar
 
Join Date: Jan 2012
Location: North Atlanta
Posts: 337

Ha - Pool noodle lightsabers - LOVE it! So creative!

And as for the custom lightsabers - they are quite awesome. You can choose your handle and colors (green, blue, red or purple). They come with sound effects of turning the them on, waving them around and the "clash/sizzle" sound when it comes in contact with another lightsaber. Can you tell we use ours a LOT?!?
__________________
Karen (the momma) Ian (the daddy) William - 8 (the Cars boy) Matthew - 6 (the all out Disney NUT)

Trick or Treat Trip Oct 11-16th 2014
Shades of Green :

Our MAW PTR
To Kidney - and Beyond!

Our kidney-versary trip - celebrating one year anniversary of kidney transplant!
kidney-versary trip 2011

Kidney-versary trip 2011
MAW trip Feb 17 - 23 2013
carebearkidney is offline   Reply With Quote
Old 07-20-2012, 10:34 PM   #14
MomOfAnAngel
Earning My Ears
 
MomOfAnAngel's Avatar
 
Join Date: Feb 2012
Posts: 20

I love the pool noodle lightsabers, what a great idea for the kids to be able to play and not hurt each other. I hope you get the weekends you want so his wish trip is perfect for him. You have a beautiful family, I will be following your plans for your sons perfect wish trip.
__________________
~Becky ~ Kevin ~ Sierra - 13 ~ Braden - 7 (wish kid)

Braden's Big Wish ~ A Wish Trip in the Making

MomOfAnAngel is offline   Reply With Quote
Old 07-20-2012, 10:58 PM   #15
Lilfoot93
DIS Veteran
 
Join Date: May 2012
Posts: 759

Quote:
Originally Posted by carebearkidney View Post
Ha - Pool noodle lightsabers - LOVE it! So creative!

And as for the custom lightsabers - they are quite awesome. You can choose your handle and colors (green, blue, red or purple). They come with sound effects of turning the them on, waving them around and the "clash/sizzle" sound when it comes in contact with another lightsaber. Can you tell we use ours a LOT?!?
Thanks! They were super cheap and easy to make And the kids LOVED them We made the robes out of felt and found a great deal on it. We just made a slit in the middle for them to put over their heads then got some lighter colored felt for the belts.

I told Trev about the custom lightsabers and he said that was the first thing he wanted when we got to Disney... I tell you this kid eats, sleeps everything Star Wars!

Quote:
Originally Posted by MomOfAnAngel View Post
I love the pool noodle lightsabers, what a great idea for the kids to be able to play and not hurt each other. I hope you get the weekends you want so his wish trip is perfect for him. You have a beautiful family, I will be following your plans for your sons perfect wish trip.
Glad you are joining in! It seems so far away and we have never been, I don't know where to begin with planning I am getting a lot of great tips and ideas from reading these boards though

Jackie
__________________
PTR: Trevor's Star Wars Make A Wish Trip

TR: Trev's Star Wars MAW trip

Trevor DS 9 (wish kiddo) Allie DD 6 Kara DD 6
Lilfoot93 is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 01:26 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.