Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney Trip Reports > Pre-Trip Reports and Plans
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 06-28-2012, 04:44 PM   #1
Momtokcc
Mouseketeer
 
Join Date: Jun 2012
Posts: 85

Cade's Wish Trip Pre-Trip Report

We found out two weeks ago that my sweet Cade's wish to meet Lightning Mcqueen at Disney was approved through Magic Moments and we are all so excited! We haven't gotten dates yet, but we are hoping for October.

So this is who we are:

Me - Mom, DH, DD - Kendall (17), Cade (9) - the wish kid, I call him Super Cade, and Colton (7)

I know this may sound strange, but it was actually Cade's speech therapist who originally nominated him for a wish. She has seen him go through so much. Anyway - Cade has a myriad of issues that his doctors feel are all connected together in some way but despite extensive testing we have yet to come up with the answer...for me it is frustrating and sometimes scary as new symptoms appear. I'll tell you more about him in a later post.

[/IMG]

This is a picture of Cade from this past March when we were at the Miracle Rodeo.

[/IMG]

This is Colton - his teeth are growing in some. He is my little charmer.

I don't have a great one of Kendall, I'll have to find one!
I don't think I did the pictures right still, I'll have to work on it if they don't come up.
__________________
Cade's Wish Trip Pre-Trip Report

Wish Trip October 20-26th!!!


Jenn

DH
DD(17)
DS(10) Wish kid
DS(7)
Momtokcc is offline   Reply With Quote
Old 06-28-2012, 09:21 PM   #2
sarsop524
Mouseketeer
 
sarsop524's Avatar
 
Join Date: Feb 2012
Location: Michigan
Posts: 92

Hello! I found your report, but can not see your pics. It seems like I remember reading you are hoping to travel in October?? Our family will be traveling the week of Thanksgiving. I have twin girls who are 8, one of whom qualifies for the wish. I look forward to learning more about your family and your planning
__________________
Kylee
Wife to Andy, and mom to Sarah (wish kid) and twin sister, Sophie


http://www.disboards.com/showthread....sarahs+maw+ptr




sarsop524 is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 06-29-2012, 03:12 PM   #3
Momtokcc
Mouseketeer
 
Join Date: Jun 2012
Posts: 85

Quote:
Originally Posted by sarsop524 View Post
Hello! I found your report, but can not see your pics. It seems like I remember reading you are hoping to travel in October?? Our family will be traveling the week of Thanksgiving. I have twin girls who are 8, one of whom qualifies for the wish. I look forward to learning more about your family and your planning
Hi, yes you are right - we are hoping to travel in October. We did think about Thanksgiving, but my daughter has a band trip that week to Chicago so it was out for us.

I think I have figured out what I did wrong with the pictures so I am going to try again!!
__________________
Cade's Wish Trip Pre-Trip Report

Wish Trip October 20-26th!!!


Jenn

DH
DD(17)
DS(10) Wish kid
DS(7)
Momtokcc is offline   Reply With Quote
Old 06-29-2012, 03:41 PM   #4
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
blessedmom4's Avatar
 
Join Date: Apr 2010
Location: I am not religious, I have a relationship with God.
Posts: 4,378



To the DIS and CONGRATS on the wish! Looking forward to the pics!
blessedmom4 is offline   Reply With Quote
Old 06-29-2012, 04:08 PM   #5
Momtokcc
Mouseketeer
 
Join Date: Jun 2012
Posts: 85

Pics and more about Cade

[IMG][/IMG]
Colton

[IMG][/IMG]

This is my sweet Cade - I tried to make it smaller, not sure if it worked.

I still have to find a good one of Kendall to upload and put on here. She is such a great big sister.

Here is a little more about Cade and his history. He was born full term, but small at 5lb 13 oz. He was dx with Nystagmus at 5 mos and that is also when we found out that he had mild PVL. Not too long after that he had his first seizure that I noticed, but after seeing the neurologist realized that alot of the strange little movements he made were seizures and he had been having seizures all along. We were able to get his seizures under control and now he has been seizure free for over 2 years. As a baby/toddler the main things we dealt with were developmental/sensory...those type things. He was globally delayed and did speech, occupational, physical and also worked with a vision therapist. He seemed to be doing good - the only doctors we had to see were his eye doctor and his neurologist. His ped was handling his asthma at that time. We did have to do feeding clinic to teach him how to eat (we had had to teach him how to do everything else movement wise so it was no surprise), but he "graduated" from feeding clinic when he was about 2 1/2...just before Colton was born. After that it just seemed like things kept popping up. He was dxed with sleep apnea - a combo of obstructive and central. He had t & a removal and it helped! Still moving along with all his therapies but as time went by it seemed as if he wasn't growing and that is when the bigger workup started. Now Cade has had so much testing - by a regular genetics doc, a metabolic genetics doc, his neuro, his immunologist, his endocrinologist...and still no answers. So many normal...or not diagnostic tests for a child who is clearly dealing with too many things that are not "normal". He got his feeding tube when he was 6, but he can't tolerate a normal formula like pediasure, he has to have an amino acid based formula. We have no ideas as to why. His immune system doesn't work right - he has problems with his NK cell function, cytotoxic t cells and something else I can't remember right now...sometimes it works better than others. He has his immunologist confused...he has all his doctors puzzled. The IVIG infusions have helped him though, so I am thankful for that. He is so good about getting IVs too and sitting through his infusions. His GI isn't really sure what is going on with his stomach, but this past April he started having daily pain. He is on two pain meds to help it - his neuro thinks part of it is autonomic. I don't always know what to think. I just know that he missed part or all of every school day from mid April on b/c of it. GI did an EGD w/ biopsies but once again everything was normal.

One of the things that bothers (and worries/scares) me the most is his lack of growth. He is almost 10 and is the same size as his 7 year old brother. Cade is growth hormone deficient so we were doing growth hormone shots. We did the shots for almost 2 years and at our last visit with his endo we decided to call it quits. It made no difference in his growth rate...which is about 4 cm per year. I really wish someone could explain to me why the GH didn't work for him. He's also cortisol deficient and he wasn't always...so that can get scary at times too.

His energy level this summer is lower and I am noticing that his tolerance to heat is lower too than last year. Whatever it is he has seems progressive in that he adds health issues as he gets older, but we still have no concrete answers. Anyway - that is some stuff about my sweet super Cade! I didn't mean for it to turn into a novel.
__________________
Cade's Wish Trip Pre-Trip Report

Wish Trip October 20-26th!!!


Jenn

DH
DD(17)
DS(10) Wish kid
DS(7)
Momtokcc is offline   Reply With Quote
Old 07-04-2012, 02:40 AM   #6
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
blessedmom4's Avatar
 
Join Date: Apr 2010
Location: I am not religious, I have a relationship with God.
Posts: 4,378



from

blessedmom4 is offline   Reply With Quote
Old 07-09-2012, 09:09 PM   #7
GavandGraciesMommy
Mouseketeer
 
GavandGraciesMommy's Avatar
 
Join Date: Jun 2012
Posts: 182

My son has also wished to meet lightning mcqueen for his birthday. (October 15th) We are waiting to hear from Make a Wish if it is approved. Do you knoww here your son is getting to meet him at? I just wondered where Lightning even was in the parks. Love to hear how your trip goes. So exciting for our little guys
__________________
Latasha and Eddie
DS- Our Wonderful Wish Kid, Gavin - 7 1/2
DD- Princess Gracie- 4 1/2



Gavin's PTR: http://www.disboards.com/showthread.php?p=45494569
gavandgraciesmommy.blogspot.com
GavandGraciesMommy is offline   Reply With Quote
Old 07-16-2012, 11:52 AM   #8
Momtokcc
Mouseketeer
 
Join Date: Jun 2012
Posts: 85

Quote:
Originally Posted by GavandGraciesMommy View Post
My son has also wished to meet lightning mcqueen for his birthday. (October 15th) We are waiting to hear from Make a Wish if it is approved. Do you knoww here your son is getting to meet him at? I just wondered where Lightning even was in the parks. Love to hear how your trip goes. So exciting for our little guys
I do not know where he will meet him - he is at Hollywood Studios I believe. My son at first didn't even realize that LM would even be at Disney and then when he realized that he was so excited. I know we will also want to do the Lights, Motors, Action Extreme Stunt Show since LM is in that show now. Other than that I pretty much will just have to figure out what I think Cade will like. We are hoping to go on October 20 but we haven't gotten official dates yet.
__________________
Cade's Wish Trip Pre-Trip Report

Wish Trip October 20-26th!!!


Jenn

DH
DD(17)
DS(10) Wish kid
DS(7)
Momtokcc is offline   Reply With Quote
Old 07-16-2012, 12:08 PM   #9
Momtokcc
Mouseketeer
 
Join Date: Jun 2012
Posts: 85

We were out of town last week visiting my sister - we had a great time and Cade did great. He didn't get sick at all. He is pretty good at conserving his energy and not overdoing things.

We still haven't heard for sure about our dates for our trip. I am getting a little anxious because if we do get the October dates I really need to start making some definate plans. I have been reading and researching but I haven't been to Disney in so long (1982) and it is completely different now!
I know Cade wants to "meet" Lightning McQueen, but other than that he can't really tell me what he wants. He can talk but he has language issues and even if I show him options he just gets overwhelmed and can't make decisions. We will have to decide for him. I just want to make sure I get it right! Any advice or suggestions are welcomed!!
__________________
Cade's Wish Trip Pre-Trip Report

Wish Trip October 20-26th!!!


Jenn

DH
DD(17)
DS(10) Wish kid
DS(7)
Momtokcc is offline   Reply With Quote
Old 07-18-2012, 07:18 PM   #10
maroo
DIS Veteran
 
maroo's Avatar
 
Join Date: Aug 2008
Location: MS
Posts: 8,042

I found you!!

I linked you on the first page of the Wish Trippers thread where the people are planning trips and waiting on dates!

You guys are going to have a GREAT time!


You can meet Lightning McQueen at DHS. He has a little "meet and greet" area where you can meet Mater, too.

I am going to post a You Tube video here...it isn't mine...hopefully that is ok.

Note that they don't talk...I just don't want him to think they will and then they don't...??

Someone Meeting Lightning McQueen
maroo is offline   Reply With Quote
Old 07-18-2012, 09:12 PM   #11
Moodyzblu
DIS Veteran
 
Moodyzblu's Avatar
 
Join Date: Apr 2006
Location: MA
Posts: 1,568

I hope you hear your dates real soon ! We got to see Lights Motor Action with LM on our wish trip in April and it was such a cool part of the show ! Your son will love it for sure.
__________________
Michelle ... Single Mom to:Jayden(9) Jesse(9)
Jaymee (27) Jillianne (25) Jeremy (22)

Come check out ..
Jayden's Wish pre-trip report !
It Smells Like Elephant and Forbidden Journey's Wish Trip Report ... in progress
The Moodys Do Disneyland!
Youtube channel ... http://www.youtube.com/user/Moodyzblu
Moodyzblu is offline   Reply With Quote
Old 07-25-2012, 09:15 PM   #12
carebearkidney
Mouseketeer
 
carebearkidney's Avatar
 
Join Date: Jan 2012
Location: North Atlanta
Posts: 325

Just checking in to see if there's any word on those date! Hope you hear soon. Have you planned which days you will want to do things so you can go ahead and start getting your reservations in, even if you need to tweak them later?
__________________
Karen (the momma) Ian (the daddy) William - 6 (the Cars boy) Matthew - 4 (the all out Disney NUT)

Our MAW PTR
To Kidney - and Beyond!

Our kidney-versary trip - celebrating one year anniversary of kidney transplant!
kidney-versary trip 2011

Kidney-versary trip 2011
MAW trip Feb 17 - 23
carebearkidney is offline   Reply With Quote
Old 07-26-2012, 08:52 AM   #13
Momtokcc
Mouseketeer
 
Join Date: Jun 2012
Posts: 85

Quote:
Originally Posted by Moodyzblu View Post
I hope you hear your dates real soon ! We got to see Lights Motor Action with LM on our wish trip in April and it was such a cool part of the show ! Your son will love it for sure.
I love hearing that!! Now I really can't wait for him to see it - he probably won't say too much, but I'll know by the smile on his face!
__________________
Cade's Wish Trip Pre-Trip Report

Wish Trip October 20-26th!!!


Jenn

DH
DD(17)
DS(10) Wish kid
DS(7)
Momtokcc is offline   Reply With Quote
Old 07-26-2012, 08:53 AM   #14
Momtokcc
Mouseketeer
 
Join Date: Jun 2012
Posts: 85

Quote:
Originally Posted by carebearkidney View Post
Just checking in to see if there's any word on those date! Hope you hear soon. Have you planned which days you will want to do things so you can go ahead and start getting your reservations in, even if you need to tweak them later?
Yes! We found out yesterday that we got the dates we wanted. We will be going Oct 20-26 and I have no idea what we will do on what days. I need to get my planning cape on and get busy! I am just pretty lost as to what we are going to do.
__________________
Cade's Wish Trip Pre-Trip Report

Wish Trip October 20-26th!!!


Jenn

DH
DD(17)
DS(10) Wish kid
DS(7)
Momtokcc is offline   Reply With Quote
Old 07-26-2012, 10:18 AM   #15
Momtokcc
Mouseketeer
 
Join Date: Jun 2012
Posts: 85

Smile We got dates!!!

We found out yesterday that we are going October 20-26th. We will be staying at GKTW. I don't know yet about flight information - I hope we get an early one though. I really need to start planning now - it is all a little overwhelming to me. I still kind of can't believe that it is actually real!!
__________________
Cade's Wish Trip Pre-Trip Report

Wish Trip October 20-26th!!!


Jenn

DH
DD(17)
DS(10) Wish kid
DS(7)
Momtokcc is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 09:17 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: