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Old 10-15-2012, 11:57 AM   #166
DizNee Luver
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Thank you Laurie.

I skimmed your pre-trip, and I was just floored by all you have gone through this year. I am so sorry.

Gotta get ready to get up to the hospital. Poor E.
Thank You Molly......I decided being 49 was a bad, bad thing......so now that I hit 50 last month.....things will start looking better!! (of course, I'm still waiting for that to happen)

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Old 10-15-2012, 12:20 PM   #167
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Molly, I said a prayer for your MIL. I am sorry that you all are going through this. Especially E, it isn't easy spending all that time at the hospital when you're a kid, or to truly understand everything that is going on. Please know that you all are in my prayers.
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Old 10-15-2012, 05:42 PM   #168
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Molly I'm sorry you are all going through this. It is so hard, especially when you don't know what's going on.
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Old 10-15-2012, 06:23 PM   #169
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Thank you, friends!

We're home from visiting her; went down this morning to take the car, and found the garage door was broken. So we walked, which was fine in the sunny morning, but now it's raining! Very very normal for Fall in Tacoma, but we weren't prepared, so now we're nice and soggy.

This one is being called a "mild stroke", which is actually an upgrade in what seems to have happened. Was less scattered in her brain, more localized to two or three areas. They call it mild, I call it escalating.

Since she's not going through scary things *right now*, they are basically leaving her alone to sleep, which is a good thing. And her blood pressure is being decent, so the machine doesn't squeeze her arm too terribly often.

I bet she'll be released tomorrow or the next day, and maybe it'll never happen again. Dream a little dream, right?
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Old 10-15-2012, 06:58 PM   #170
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Right now sleep is good for her and I am glad to hear they are letting her sleep. Hopefully she won't suffer too many side effects.


Bummer about the soggy trip home, but it's nice that it is within walking distance.
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Old 10-16-2012, 08:29 PM   #171
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Sitting with her at the hospital, E is at a friend's, and I have my laptop.

I had the UN-fun of seeing one of the ministroke episodes today. They are getting "lighter" in that they aren't including a loss of consciousness, but it's not much nicer *for her*. Very scared, feels like everything is a dream, inability to remember things like who people are and where she is...memory goes back and forth repeatedly during it.

I'm finding it amazing how well I can read her. She was going into it while one of the professionals was in the room, and the medical professional (honestly I don't remember who it was) didn't see that it was odd at all. Within minutes, though, the memory stuff started. Sigh.

She is really really scared of losing all of her memories. I've already identified two areas that she's lost from today just from this episode. Sadness.


Thanks for listening.
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Old 10-16-2012, 08:50 PM   #172
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Molly, that had to be hard on you too. Hopefully they can get them under control.
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Old 10-16-2012, 11:52 PM   #173
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So hard when the memory starts going.....my dad was alzheimers and not strokes but seeing it go day by day was hard on him and everyone around him. Prayers for strength for all of you!!
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Old 10-17-2012, 12:34 AM   #174
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Thanks to both of you!


So there have been 5 known episodes, and 2 of them that we/I were there for started almost immediately after she was reading something. I know that's not even half, but I don't know what she was doing *exactly* for the other 3. So it's incomplete data.

But it's interesting to think about, that's for sure.


Everything that can be done is being done. OK well I haven't taken her to a naturopath, or acupuncturist, or any other kind of alternative provider, so I haven't done EVERYTHING, so let's say that every *western* medicine thing that can be done is being done. So, apart from going and spending 1000s out of pocket for the other things (Medicare not being big on paying for those other things as far as I know), it's all being taken care of and we just hope that whatever is sparking these will stop.

A non-hospital OT I was talking to yesterday brought up the idea that seizures are causing these. Sounds interesting. But a quick medical google showed me that seizures don't *cause* strokes. They can look the same, or they can start AFTER strokes (b/c of the scarring of the brain tissue), but I couldn't find that they can *cause* them. If they could, and if she were having seizures, there are things to be done to help prevent those. But I think that would be super-hard to prove, and this set of doctors/nurses are respectful, but NOT so into hearing the thoughts and ideas of tired daughters in law.

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Old 10-17-2012, 01:05 AM   #175
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For fun, a few more pix. One of the cars wouldn't start, so we went from third in line to second.







You can see the first car on the ride in front of us! It was at this point (knowing the car behind us was nowhere in sight) that I slowed way way down so I wasn't worried about running into the little guy I knew was "in charge" of driving in front of me.

















This is one terrifying road sign:
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Old 10-17-2012, 10:27 AM   #176
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You were able to get some nice pics on Autopia......the last time we rode on that, the car vibrated so much that getting pics was almost impossible!! I think we'll be doing that ride again in December.....the twins are at a good age for enjoying them. (not a huge fan because of my long legs....lol)
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Old 10-17-2012, 09:57 PM   #177
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Drs and nurses are notoriously bad about wanting to listen to people. Frankly it would help if they listen.



I really enjoyed your Autopia pictures. That area is so cute.
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Old 10-18-2012, 12:38 AM   #178
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Originally Posted by DizNee Luver View Post
You were able to get some nice pics on Autopia......the last time we rode on that, the car vibrated so much that getting pics was almost impossible!! I think we'll be doing that ride again in December.....the twins are at a good age for enjoying them. (not a huge fan because of my long legs....lol)
Thanks! We had a really steady car, and since all I have to do nowadays is push the pedal to the metal (apart from when I needed to slow down so we COULD do that without running into the first car), I was free to snap away!

I bet Tuck and Roll's is fabulous for you.

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Drs and nurses are notoriously bad about wanting to listen to people. Frankly it would help if they listen.
You sure would think! I do adore the guy from the Neuro-Intervention floor, though. he's not a doctor, but he's just incredible, and I wish I were in school with him so we could talk and talk and hypothesize and whatnot with him. He's really interesting, and the most amazing thing he says is that despite all their knowledge, they know only a tiny bit about the brain.



Anyway, she's home now and my dinner tonight consisted of 4 servings of veggies, 1 serving of Marzetti's Simply Dressed Ranch (so so so delish and in such a cute bottle), 6 Milano cookies, and 22 oz of beer. Tracked it all, but still, not such a great meal. Actually it WAS a great meal, LOL, but you know what I'm saying. I just needed that beer; when I took the first drink there was such a strong "yummmmm" reaction to it that I thought "woo, glad I barely drink anymore, because that reaction was a little scary!"

She gets surly when she's being released (and her in-hospital, post-meal, blood sugar was 190, which just makes me scratch my head that they think that's OK, especially when it goes along with a NASTY mood in her) and just sat there being annoying and being annoyed by me and saying "yes" to the doctor and nurses then asking me what they were talking about (head nearly exploded because of that today), and complaining about how long the discharge took (hello, this is how it works in hospitals, now SIT DOWN and relax!), etc etc.

So we get her home, I go through her pill box to make it right, we get her settled, we race home, get ready for the Y, get to the Y, get E safely into ballet, I go do my run (turbo-style so that I can get up for the end of ballet b/c there's a dancer's brother who likes to physically harm Eamon and I wanted to be there as back up Eamon who wanted to deal with it on his own), it's all done, we go to the store to get the above combo of food and an Amy's meal for E...and she calls to ask if I can drive her to temple on Sunday. Which is, like, an hour away. And doesn't even INVITE me to temple, NO, I'm apparently not good enough for that, no, just drive her there and leave, and someone else will take her home.

I said yes, hung up, burst into tears. So tired.

She talks a good game about how she doesn't want to be a problem, doesn't want to be a burden, doesn't want to bother us, feels sorry for Eamon, feels sorry for me, for having to be there for her, do things for her, all the time (while flat out rejecting assisted living)....and then doesn't even ask ANYONE else to do this for her.

I mentioned it to Robert, he went ballistic, he called his brother, and his brother called her to ask if he can take her to give me a break. Which is nice, but the problem is that I'm going to "get in trouble" for this. But BIL went rogue after Robert went rogue, and they decided to take action without asking my opinion on it. Good thing is that they'll have my back if, NAY, when she complains about me not taking her to temple.

Sigh.
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Old 10-18-2012, 12:56 PM   #179
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Hang in there Molly!!!!

PS: Never done the Tuck & Roll ride
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Old 10-18-2012, 01:17 PM   #180
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Hang in there Molly!!!!

PS: Never done the Tuck & Roll ride
Thanks, and don't do it! You'll be miserable. Send someone else on with the girls when they want to ride it, someone shorter or really bendy.
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