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Old 05-04-2012, 07:36 PM   #1
lovesLilo
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Any Parents With Disabilities?

Hi I'm just wondering if there are any parents with disabilities out there?
I was just thinking it would be great to connect with others in similar situations.
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Old 06-26-2012, 05:33 PM   #2
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I am!
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Old 06-27-2012, 02:08 PM   #3
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Old 06-28-2012, 10:02 PM   #4
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I have a few things going on, unfortunately.
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Old 06-28-2012, 10:24 PM   #5
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Empty-nester, but DD used to fight with DW to push my wheelchair.
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Old 07-03-2012, 04:20 AM   #6
lovesLilo
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Glad to hear I'm not the only one out there. Thus far, I've thankfully been able to independently care for my son. However, I'm anxious because I know there will come a day in which my disability limits how much I can care for him due to him getting bigger, more mobile etc. Any tips for dealing with that challenge of parenting?
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Old 07-03-2012, 08:46 AM   #7
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hi again...Ive looked online for resources/ message boards for disabled parents, havent ever found one, do you know of any? I am 35, i have aa DD5 and DS11m. I have ME/CFS/CFIDS...lol too many names. chronic fatigue syndrome I guess is the recognized but least descriptive name. also fibromyalgia and some arthritis. Ive been a hot mess of flares and low NK cells lately so everything is hard/...am starting to worry about our WDW trip in october. is anyone nervous about handling a trip? any tips? I am able to care for the kids about 75% of the time now so I shouldnt need wheelchair etc. we will see. Ive worked SO hard for this trip and it means so much to me that if I couldnt enjoy it or the kids couldnt do thigns because of me I will lose it

One good thing about growing up with a disabled parent? Your kid learns to play on thier own and be more imaginative. DD knows fi I am doing really badly she and i can watch a movie, or she can play while I rest...coming up with inventive things to do on the couch/bed or on her own. legos, anything to build or create as well as little animal and people figurines are great for this. art too! kids also learn to be more empathetic
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Old 07-04-2012, 10:27 AM   #8
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Hi, I am 24 and use a manual wheelchair due to a TBI in my early teens. Unfortunately I haven't found any forums, or really much of any support out there for parents with disabilities, online or in person. That's why I posted here.
I'm sorry you're stressing over your upcoming trip. DFi and I will also be going to WDW in October. It is my first-ever trip to WDW and his first as an adult. I'm a bit nervous but mostly excited. I hope going once for an adult only trip will be helpful for strategizing in a few years when DS (6 months) will be old enough to enjoy WDW. Thank you to everyone for the replies and support.
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Old 07-18-2012, 12:38 PM   #9
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Yep!

Hi! I am a single mother to my DD who is 5. I am in a wheelchair and will be taking her to Disney in August. We are both so excited since it will be her first trip and my first trip in 15 years. The best part about Disney is that they are so accommodating to all types of disabilities. So many rides at different amusement parks are just not okay with a wheelchair but Disney is so the opposite. If you have any questions about your disability and Disney, let me know and I can try to find out the answer when I am there.
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Old 07-19-2012, 09:21 PM   #10
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Quote:
Originally Posted by teachtlb View Post
Hi! I am a single mother to my DD who is 5. I am in a wheelchair and will be taking her to Disney in August. We are both so excited since it will be her first trip and my first trip in 15 years. The best part about Disney is that they are so accommodating to all types of disabilities. So many rides at different amusement parks are just not okay with a wheelchair but Disney is so the opposite. If you have any questions about your disability and Disney, let me know and I can try to find out the answer when I am there.
I just wanted to say welcome to the DIS!

I hope you guys have a great time on your trip!
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Old 07-30-2012, 07:05 PM   #11
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I am! Though looking at me you cant see them. So some ppl think I am making it up but it isnt fun let me tell you.Its good that there are more ppl that may not have the same thing I have but know how I feel
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Old 08-21-2012, 11:29 AM   #12
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I personally do not have a disability, but my DH is vision and hearing impaired due to Usher's syndrome. The hearing isn't quite as much of an issue, but the vision is difficult because he has little vision at night or in the dark, and has lost his peripheral vision...making it almost tunnel like to some degree. The two time I've been to WDW with him have definitely been new learning experiences for me.
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Old 08-21-2012, 01:33 PM   #13
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Quote:
Originally Posted by lovesLilo View Post
Glad to hear I'm not the only one out there. Thus far, I've thankfully been able to independently care for my son. However, I'm anxious because I know there will come a day in which my disability limits how much I can care for him due to him getting bigger, more mobile etc. Any tips for dealing with that challenge of parenting?
Learn how to give them "The Look". I realize it depends on the child but my daughter never ran from me. We played around but when it was time to be serious we didn't have any arguments.

As a wheelchair user I found overalls to be a lot of help. I could reach over and grab the back of the overalls with one hand and lift my DD right up into my lap. It's great for crawling babies.
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Old 08-27-2012, 09:52 PM   #14
lovesLilo
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Quote:
Originally Posted by BillSears View Post
Learn how to give them "The Look". I realize it depends on the child but my daughter never ran from me. We played around but when it was time to be serious we didn't have any arguments.

As a wheelchair user I found overalls to be a lot of help. I could reach over and grab the back of the overalls with one hand and lift my DD right up into my lap. It's great for crawling babies.
Thanks! Both of those are super helpful. Little man is crawling now
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Old 09-10-2012, 07:45 PM   #15
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ME!!!! I have polymyositis. It took away my ability to walk at age 29. I'm 35 now. In remission and currently learning how to walk again!
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