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Old 04-23-2012, 10:24 AM   #1
Kenziema
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Kenzie's magical golden flower a Make a Wish PTR. May 24-30

Hi guys thanks for joining us. I have been checking out these forums since my dd told me what her wish would be. But i guess the best place to start would be the beginning.

This is all about Mackenzie, a lively spunky almost 3 year old. this is her...[IMG][/IMG]

When Kenzie was about 21 months old I woke up one morning and noticed her eye was a little swollen and she had a ball hanging under her chin, that was a weekend. I spent that weekend Googling and did not like what i saw. Monday morning I rushed her to her ped, who told me she had pink eye. Now I am by no means a medical professional but I had pink eye as a child and I didn't fell that that was pink eye, so I asked him "what about the ball under chin ( by that time google had already told me it was called a lymph node). His response was that the infection was probably draining into the node. I told him that she was sweating really bad at night and was waking up screaming a lot. He gave me eyedrops. Two days later I wake up the whole left side of Kenzies face is swollen, I told my husband I'm taking her to the ER. As soon as I told the ER doctors what her ped had told me they agreed that it was not pink eye, and said that the wanted to give her a CT scan. That day forever changed our lives.

For those wondering who I am, my friends call me Danie and I'm Kenzies very proud mommy. Kenzie is my and my husband Johns, very 1st child. We have been married for almost 4 years now and are staring to think of adding to our broad.
[IMG][/IMG]

Back to the worst day of my life. Once the scan was over they came back and we were told there was something in her left maxillary sinus but they were unable to tell if it was solid or liquid, she would need a biopsy, and they were moving us to a hospital that would be able to help us more. That day we where moved to NYP-WC in NYC. A few days later Kenzie was diagnosed with Lymphoblastic Lymphoma stage 4 high risk, there was a tumor in the lms, it was in her lymph nodes as well as in her bone marrow. Treatment would last about 2 1/2 to 3 years. We ended up staying in the hospital for 2 and a half months.

Kenzies type of cancer is very similar to ALL and when we went to Sloan Kettering we where told her diagnosis could have gone either way, but since she had a physical tumor it was Lymphoma instead of Leukemia and that the treatments where identical, and that they would do the same thing that NYP was doing, the two hospitals worked together often, and that our onc was trained by the top ped onc at MSK. We decided to stay at NYPWC.
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Old 04-23-2012, 10:51 AM   #2
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On to how Kenzie got to MAW. Once day at the onc clinic I saw that there was a new lady walking around with the social worker, I didn't think anything of it. Now Kenzie is quite the social butterfly at clinic. She's singing and dancing, after the other kids get the port done she tells them good job, she tries to get everyone up to play. The lady saw her doing this and came up to us, turns out she was from Make a Wish but at that time Kenzie was to young for a wish(she had just turned 2). She took our info, and a few months later the social worker came and told us that MAW was asking about Kenzie and if she could send in the paperwork now that she was old enough I was like sure, 3 weeks later we got the letter saying she was approved for a wish. Three weeks ago we got the call that our wish granters where coming to the house to meet us and get Kenzies wish. I asked her what was she going to wish for, she told me school. LOL. We are waiting until her treatment is down to once a month as now she goes once a week and has monthly overnight stays. Just this weekend we had to stay for 4 days. Thankfully we where told she would be going down in about 2 months with no more scheduled admissions, so hopefully come September she will be in nursery school. So I asked her what her other wish would be, of course she told me a princess. Her favorite movie is Tangled, but she calls it princess movies, she had gotten 2 princess outfits for Christmas this year, and she had Tinkerbell wall decals all over her bedroom. So 2 Sundays ago when her wish granters came over, after a mini concert by Kezyonce (my nickname for her when she starts her singing) she told them her wish. So that where we stand now waiting for our dates, mid to late November or late September while I obsessively plan.
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Old 04-24-2012, 05:43 PM   #3
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What a beautiful princess you have ! So sorry about her diagnosis .. I pray all goes well with her treatment.
I'm so happy that MAW is granting her wish !! You guys are going to have an amazing time !! Now that I've been on our trip I am even more excited for everyone else that is going !

Thank you for sharing your families story.
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Old 04-24-2012, 09:39 PM   #4
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What a beautiful princess you have ! So sorry about her diagnosis .. I pray all goes well with her treatment.
I'm so happy that MAW is granting her wish !! You guys are going to have an amazing time !! Now that I've been on our trip I am even more excited for everyone else that is going !

Thank you for sharing your families story.
Thank you, your boys look like they'll be heartbreakers one day, so handsome. Thank you for taking the time to read as well. It has been a rough time. Kenzie is everyone's 1st (baby, grandbaby, niece), do it's been hard to deal with. My husband and I are lucky both of our families live close so there is always a hand to help. Now GET BACK TO YOUR TR, lol.
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Old 04-24-2012, 09:49 PM   #5
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Kenzie is a beautiful little girl! Hope you get the dates you want...who knows, maybe we will end up there at the same time
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Old 04-24-2012, 09:53 PM   #6
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Kenzie is a beautiful little girl! Hope you get the dates you want...who knows, maybe we will end up there at the same time
Did you get your official dates yet? Our 1st choice was the week after Thanksgivng, followed by the week before Thanksgiving or Halloween. I wonder how good they are at giving you the exact dates you ask for
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Old 04-25-2012, 04:49 PM   #7
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Dear Danie, Thank you for leaving me a message on our TR so I could find you! Mackenzie is ABSOLUTELY beautiful and may I say so are you and DH!!! I love the idea of going to WDW the week after Thanksgiving, my DREAM is to go the first week of December...decorated for Christmas and VERY low crowds! Sounds good to me! Whenever you go, you will have the most amazing time. This far out you should get your first choice!

I look forward to getting to know your family more and I am so happy you are posting and sharing!
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Old 04-25-2012, 05:06 PM   #8
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Just stumbled across your TR... I have a Kenzie, too! It seems like only sunny, vibrant little girls who love to sing are allowed to have that name! Your little one is beautiful-what a gorgeous smile! I'm sorry for what you have had to go through with her, but how thrilling to be granted a MAW trip! We've been the week right after Thanksgiving, it's great-hope that's when you get to go!
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Old 04-25-2012, 05:21 PM   #9
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Dear Danie, Thank you for leaving me a message on our TR so I could find you! Mackenzie is ABSOLUTELY beautiful and may I say so are you and DH!!! I love the idea of going to WDW the week after Thanksgiving, my DREAM is to go the first week of December...decorated for Christmas and VERY low crowds! Sounds good to me! Whenever you go, you will have the most amazing time. This far out you should get your first choice!

I look forward to getting to know your family more and I am so happy you are posting and sharing!
Thank you. We are thinking about extending our trip 2 or 3 days so we would be there that 1st week. Your whole family is amazing you must be a very proud mommy. I look forward to getting to know you guys more as well( even though as of now I probably know you better than I know my neighbors)
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Old 04-25-2012, 05:25 PM   #10
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Just stumbled across your TR... I have a Kenzie, too! It seems like only sunny, vibrant little girls who love to sing are allowed to have that name! Your little one is beautiful-what a gorgeous smile! I'm sorry for what you have had to go through with her, but how thrilling to be granted a MAW trip! We've been the week right after Thanksgiving, it's great-hope that's when you get to go!
Thanks for reading. It does seem the same inspires outgoing children. She is just so happy all the time, even when the chemo makes her sick, it's amazing to see. You guys are going to Disney in 3 days, LUCKY.
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Old 04-27-2012, 05:51 PM   #11
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Thanks for reading. It does seem the same inspires outgoing children. She is just so happy all the time, even when the chemo makes her sick, it's amazing to see. You guys are going to Disney in 3 days, LUCKY.

Enjoy the lead-up, it is SO much fun dreaming, wishing and planning! I hope yur beautiful daughter is feeling well!
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Old 04-28-2012, 05:48 AM   #12
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Just stumbled across your PTR so glad your princess is getting her wish.

I am very familiar with NYH-CP_WC that is wear my DS developmental pediatrician is.
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Old 04-28-2012, 07:29 AM   #13
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Enjoy the lead-up, it is SO much fun dreaming, wishing and planning! I hope yur beautiful daughter is feeling well!
Kenzie is doing really well. All I seem to be doing is dreaming these days. My husband has told me I've become obsessed with Disney.
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Old 04-28-2012, 07:33 AM   #14
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Just stumbled across your PTR so glad your princess is getting her wish.

I am very familiar with NYH-CP_WC that is wear my DS developmental pediatrician is.
Thanks for stopping by. You are really going to Disney 3 times this year, I can only imagine. I love the Hem-Onc team at NYPWC we were going to go to MSK across the street but when I went there it just felt too big, you know.
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Old 04-28-2012, 07:40 AM   #15
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Omg lady's, when I got home last night Kenzie greeted me covered in Chocolate frosting. She had opened up the cupcakes I had bought and used one of her toy knifes to cover her whole face in the frosting. She made a mess, but she looked so funny I just had to laugh.
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