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Old 09-13-2012, 12:45 AM   #946
LeeLee2U
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Leah, I hope they find out what is wrong with Tyler. I am praying for him.


How exciting about Sea World and all the other fun! I think the Alamo is a great place to visit!


He went in to get blood tests again so who knows? He is getting his energy back.
That's good!

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Sorry he still so sick. That a really long virus

Did they run any blood work on him? Could he have lyme disease maybe?

Whatever it is, hope he feels better soon

Your trip sounds awesome. Sure kids will love whatever you pick

Blood work was o.k. the other night at the E.R but he will have more run. He has had gastritis since he was 9 so that doesn't help and then he had H Pylori so that makes it worse but the fever and the vomiting we don't have any idea. He is better this evening though! He had an appetite and has kept it all down!
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Old 09-13-2012, 04:48 PM   #947
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That's good!



Blood work was o.k. the other night at the E.R but he will have more run. He has had gastritis since he was 9 so that doesn't help and then he had H Pylori so that makes it worse but the fever and the vomiting we don't have any idea. He is better this evening though! He had an appetite and has kept it all down!


Leah, I hope they figure this out.



It looks like from what I am seeing in Scotty's test results we might finally have an answer. He test high for a stomach bacteria. Hopefully we are near the end.
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Old 09-14-2012, 01:00 AM   #948
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Leah, I hope they figure this out.



It looks like from what I am seeing in Scotty's test results we might finally have an answer. He test high for a stomach bacteria. Hopefully we are near the end.
Oh good. Glad they are getting closer

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That's good!



Blood work was o.k. the other night at the E.R but he will have more run. He has had gastritis since he was 9 so that doesn't help and then he had H Pylori so that makes it worse but the fever and the vomiting we don't have any idea. He is better this evening though! He had an appetite and has kept it all down!
I am glad he is able to keep his food down. I hope that means he is getting better
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Old 09-14-2012, 04:31 PM   #949
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Oh good. Glad they are getting closer



I am glad he is able to keep his food down. I hope that means he is getting better

I was wrong. We are no closer.
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Old 09-14-2012, 07:34 PM   #950
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I was wrong. We are no closer.
UGH

What now?
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Old 09-14-2012, 07:55 PM   #951
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UGH

What now?

No clue. He was vomiting last night too. I kind of wondered if last night was because he and the dog had jogged in 97 degree weather.
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Old 09-14-2012, 09:08 PM   #952
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I was wrong. We are no closer.
I Hate this Chele!!!
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Old 09-14-2012, 09:24 PM   #953
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Took Tyler to the Dr Yesterday. She gave his some antibiotics for a severe sinus infection. They also help treat H Pylori which we are pretty sure is back active. Also his gastritis is back active which we knew but we got new meds for that. She was able to give us a ton of samples which helped tremendously since he has no insurance at the moment. We are waiting for his insurance to get a referral to a GI at Tx Childrens Hospital. We were in the process of switching gastro Drs as he has gotten to where he hates going to his. His Dr got very rude the past 2 years and has made him feel very uncomfortable. He was better but started running fever and getting very sick again last night. I took Braeton to his well child check up today and his Dr who is the head of the Clinic the boys go to told me she thinks the meds he is on and the referral to the gastro clinic is the right thing but this is wa to long to be throwing up and if he keeps this up we need to go back to the hospital immediatly. So we are just watching and praying.
Braeton has been much better this week and then in the middle of WalMart today he just dropped and started crawling on the floor! He couldn't even stand n the edge of the front of the buggy for me to push him. I had to carry himand push a loaded buggy to the front of the store. He has an appointment in November for new genetic testing since they are pretty sure these lapses of no energy are due to his mitochondrial defect. So yes I'm pretty scared.
I haven't really said much about it but I can vent to you guys!! I amscared. Tyler is doing exactly what I did before I was diagnosed with cancer and just the thought of any mito defects petrify me even though I have known Braeton had extra mito cells since he was almost 9 months old.
I am believing and praying that Tylers is just the gastritis on top of H Pylori and catching these viruses and that Braeton is just fixing to go thru a growth spurt as that can cause these symptoms for kids with mito problems and Cerebral Palsy! I have planned a fun year of schooll this year and we are jusst going to enjoy it!. Braetons Dr really encouraged me today as she wa excited we were homeschooling again and encouraged me to relax and have fun with it this year. To just focus on the subjects they were having problems with (MATH!!) and do fun things on what we were studying! They homeschooled their oldest 2 boys for many years so she is all for it and both of her boys are doing great. One is in law school and the other med school I believe so.... that helped!!!
Braeton did good in everything today except the eye exam. He failed it bad! I'm hoping it just had to do with the energy lapse that showed later. He already has NO peripheal vision but had perfect straight vision so I hate the thought of him not seeing on top of everything else. He also had problems hearing out of his left ear but there was fluid from sinuses in that one so it wasn't scary!
O.k now that I've got that all out to all ya'll I'm going to give the last round of meds and hope we can all settle down!!!
Hope all is well with all of you!
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Old 09-14-2012, 10:10 PM   #954
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Quote:
Originally Posted by LeeLee2U View Post
I Hate this Chele!!!

Scotty is getting rather discouraged. I am at my wits end because I don't know what to say or do.


Quote:
Originally Posted by LeeLee2U View Post
Took Tyler to the Dr Yesterday. She gave his some antibiotics for a severe sinus infection. They also help treat H Pylori which we are pretty sure is back active. Also his gastritis is back active which we knew but we got new meds for that. She was able to give us a ton of samples which helped tremendously since he has no insurance at the moment. We are waiting for his insurance to get a referral to a GI at Tx Childrens Hospital. We were in the process of switching gastro Drs as he has gotten to where he hates going to his. His Dr got very rude the past 2 years and has made him feel very uncomfortable. He was better but started running fever and getting very sick again last night. I took Braeton to his well child check up today and his Dr who is the head of the Clinic the boys go to told me she thinks the meds he is on and the referral to the gastro clinic is the right thing but this is wa to long to be throwing up and if he keeps this up we need to go back to the hospital immediatly. So we are just watching and praying.
Braeton has been much better this week and then in the middle of WalMart today he just dropped and started crawling on the floor! He couldn't even stand n the edge of the front of the buggy for me to push him. I had to carry himand push a loaded buggy to the front of the store. He has an appointment in November for new genetic testing since they are pretty sure these lapses of no energy are due to his mitochondrial defect. So yes I'm pretty scared.
I haven't really said much about it but I can vent to you guys!! I amscared. Tyler is doing exactly what I did before I was diagnosed with cancer and just the thought of any mito defects petrify me even though I have known Braeton had extra mito cells since he was almost 9 months old.
I am believing and praying that Tylers is just the gastritis on top of H Pylori and catching these viruses and that Braeton is just fixing to go thru a growth spurt as that can cause these symptoms for kids with mito problems and Cerebral Palsy! I have planned a fun year of schooll this year and we are jusst going to enjoy it!. Braetons Dr really encouraged me today as she wa excited we were homeschooling again and encouraged me to relax and have fun with it this year. To just focus on the subjects they were having problems with (MATH!!) and do fun things on what we were studying! They homeschooled their oldest 2 boys for many years so she is all for it and both of her boys are doing great. One is in law school and the other med school I believe so.... that helped!!!
Braeton did good in everything today except the eye exam. He failed it bad! I'm hoping it just had to do with the energy lapse that showed later. He already has NO peripheal vision but had perfect straight vision so I hate the thought of him not seeing on top of everything else. He also had problems hearing out of his left ear but there was fluid from sinuses in that one so it wasn't scary!
O.k now that I've got that all out to all ya'll I'm going to give the last round of meds and hope we can all settle down!!!
Hope all is well with all of you!



Leah, I pray that Tyler is on the mend. This is terrible and I can understand that being in your thoughts. It has crossed my mind that Scotty has a problem like mine.
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Old 09-15-2012, 07:15 PM   #955
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No clue. He was vomiting last night too. I kind of wondered if last night was because he and the dog had jogged in 97 degree weather.
That could be it. Not good idea to be out jogging as you know in that high of temp. Very dangerous.

Hope he does not do that again
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Old 09-15-2012, 07:17 PM   #956
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Leah, you have so much on your plate. I don't know how you do it.

I am praying this last round of meds help Tyler. That is way too long to be that sick. I am hoping he is turning the corner now and those meds she gave will help him.

I pray that Braeton is just going through a growth spurt and nothing major

Your doctor gave good advice about the home schooling.

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Old 09-16-2012, 03:23 PM   #957
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That could be it. Not good idea to be out jogging as you know in that high of temp. Very dangerous.

Hope he does not do that again

I know and he says "oh the heat wasn't bothering me. I was more worried about Roy."
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Old 09-16-2012, 05:05 PM   #958
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I know and he says "oh the heat wasn't bothering me. I was more worried about Roy."
That man can not stand still and relax it seems. he needs to take it easy right now


So, god I feel like an idiot. It was Kacy who got a job right?

When does she start? Is she part time? What will she be doing?

You know me and my questions
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Old 09-16-2012, 05:13 PM   #959
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That man can not stand still and relax it seems. he needs to take it easy right now


So, god I feel like an idiot. It was Kacy who got a job right?

When does she start? Is she part time? What will she be doing?

You know me and my questions

No he can't but you know I think he feels better when he is active. I just don't know with him.


Yes, it is Kacy. She starts on October 3rd. Tomorrow we go get her drug test. She is going to be a cashier and then possibly move into different departments. She will be working 15 to 21 hours a week. She is so excited. They sent her to the break room to wait for the interview because the manager was running behind. Several of the employees came back to meet her and then when the interview was over they told her that they hoped she got the job.
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Old 09-16-2012, 05:31 PM   #960
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No he can't but you know I think he feels better when he is active. I just don't know with him.


Yes, it is Kacy. She starts on October 3rd. Tomorrow we go get her drug test. She is going to be a cashier and then possibly move into different departments. She will be working 15 to 21 hours a week. She is so excited. They sent her to the break room to wait for the interview because the manager was running behind. Several of the employees came back to meet her and then when the interview was over they told her that they hoped she got the job.
Yeah, everyone different I guess
Whew...I was right

That sounds awesome and get amount of hours. Sounds like she will have nice co workers which always make work more fun

Very happy for her

on side note, her first day of work is my first day of Disney
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