Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Community Board
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread
Old 02-01-2013, 06:48 AM   #1231
WDWDancer
Recruiting Mouse
 
WDWDancer's Avatar
 
Join Date: Aug 2006
Location: on the dance floor
Posts: 213

Hi All - Hope everybody is doing well!

I am 27 was diagnosed in Sept 2011 with thyroid cancer (surgery/radiation) and in December 2012 found a lump. After 2 wks of testing, testing, and more testing I had a lumpectomy. Saw the surgeon on a Thursday and Monday morning was in the OR. Results were DCIS.

We have been doing fertility treatments for the last 4 months and this was a concern from my doctors. Lymph nodes were negative and I'm meeting with the oncologist Monday to discuss.

It's a difficult decision and I'm wondering if the lumpectomy is enough - we've been down this road once and I refuse to jump into any treatment without consideration again. We want a family and the first time I trusted and didn't stop to consider my fertility, now that seems to be all I can think of......
__________________
"Remember a dream is a wish your heart makes!"
WDWDancer is offline   Reply With Quote
Old 02-01-2013, 09:29 AM   #1232
snappy
Survivor
Can't even start a dead thread!
Former 5 yr old STAR on stage!
 
snappy's Avatar
 
Join Date: Apr 2002
Location: South Lousiana
Posts: 6,280

Smiley, have a wonderful trip. Two weeks away at your favorite place sounds like just the ticket. I am sorry that the 2 year anniversary of losing your deal son was so difficult. I am glad you are still continuing with the counselor, it is so helpful to talk to someone.

Did not know they know how to celebrate Mardi Gras over there. Any excuse for a party, right?

Last night when I was walking our dogs down our street, I met a big group of paraders of a certain age (gray headed) loading up their vehicles with parade throws for a night time parade here tonight. They were already in let us say celebration mode, drinking wine it looked like out of goblets.

New Orleans has to get past the Superbowl first I goes, then on to Mardi Gras!

Cheryl, hope your CT meeting with your oncologist went well.

Peg, did you have your MRI and petscan? Hoping all the scans come out clear. I am glad you are feeling more positive but hate that you are facing the treatment you are. Hang in there.

Patsmom, think of you. Hoping your pain is under control.

LMP, happy 4th! It sounds like you are getting good reports! What did the endo say? DD22 is so busy, I have not heard from her since the weekend. Is the weather as awful there as it sounds?

DD22 got promoted last week to associate district manager. From intern to here in 6 months, not bad. She said it was bittersweet, as the position was open since someone was leaving, and it was someone she liked a lot.

I guess she is getting a dose of the real world. She said she hopes she can handle the workload.

I am just glad we will see her in 3 weeks. Now we have a true reason to celebrate.

LMP, we are staying at the Eventi in Midtown. I looked at a hotel on the upper west side but it just was too far afield. Our son is going up too, so I ended up booking 4 rooms, at a good price. At least it is all booked.

We are trying to figure out which plays to see but my brother is guiding us. February is apparently not the best time for Broadway shows, either shows closing, or show openings being delayed until later.

Sorry I have been MIA, but my mom has had a couple of issues, eye problems (extreme increase in "floaters",) which necessitated a trip to a retina specialist, and a deflating breast implant. The plastic surgeon just put in a temporary saline one back in 2008 as the plan was to go in later and swap it out for a silicone one. She was scheduled to do that one December but backed out. So now the temp one sprung a leak and suddenly deflated. Took her yesterday to have it removed, which was not a big deal since it had basically shrunk down to nothing. She declined putting in a more permanent saline one, even though it would have the opportune time.

She is just done with it, and realized she can swim just fine without a breast!

I am on course with my Ideal protein diet. I have lost more than 15 pounds and a lot of inches, especially the chest and waist.

I am trying to drop more before our NYC trip where i will go on a modified version of the diet for 5 days so that I stabilize and not gain weight but be able to eat more whole food. I will get back to the losing weight version and try to make my goal of 125 pounds. Working out at the gym and walking the dogs seem to be helping me. I feel very fortunate. I am also a bit surprised at my will power. I don't normally turn much down, but I feel better, and am learning which foods to eat together and how to space the carbs out in the future (eat for breakfast and then dinner to have 12 hour intervals between carb intake).

There is a lot about nutrition I never knew. The good thing is that even now I can have seafood (I have been eating a lot of shrimp and even had boiled crawfish!). I am just not eating them with any starches or sauces. I was able to make a mean gumbo with just okra, shrimp and fresh seasonings, no roux. It is pretty darn good, and compliant with the diet.

I can do this.

One problem I am having is a flare up of a neuroma on my right foot. Anyone here ever have it. I saw both a podiatrist and a orthopedic years ago but all they ever did was give me a cortisone shot. I wear wide toe shoes, but my right foot still gives me that constant nerve jolt. I guess i will go see about another shot but it it seems pointless.

Well, small enough thing to complain about compared to you ladies in treatment or facing more.

Have a nice weekend, ladies.
__________________
snappy is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 02-01-2013, 12:12 PM   #1233
OceanAnnie
I guess I have a thing against maroon food
If they are well behaved I'm okay
 
OceanAnnie's Avatar
 
Join Date: May 2004
Posts: 17,311

Quote:
Originally Posted by WDWDancer View Post
Hi All - Hope everybody is doing well!

I am 27 was diagnosed in Sept 2011 with thyroid cancer (surgery/radiation) and in December 2012 found a lump. After 2 wks of testing, testing, and more testing I had a lumpectomy. Saw the surgeon on a Thursday and Monday morning was in the OR. Results were DCIS.

We have been doing fertility treatments for the last 4 months and this was a concern from my doctors. Lymph nodes were negative and I'm meeting with the oncologist Monday to discuss.

It's a difficult decision and I'm wondering if the lumpectomy is enough - we've been down this road once and I refuse to jump into any treatment without consideration again. We want a family and the first time I trusted and didn't stop to consider my fertility, now that seems to be all I can think of......
Hi WDWDancer, I'm sorry to read about your news. I hope the doctors can come up with a treatment and a plan that will soon put you on the road to recovery and fertility.

I'll keep you in my thoughts and prayers.
__________________


"We do not see things as they are, we see them as we are." -- Anais Nin

"Some lived careful lives and some lived careless lives, and everything that happened could be explained by the differences between them." -- Anne Tyler

"When you are a hammer, everything is a nail." --- Unknown



OceanAnnie is offline   Reply With Quote
Old 02-01-2013, 01:36 PM   #1234
Pea-n-Me
Survivor
Call me crazy but I prefer the single bath
Nothing beats the Magic of a Disney Resort!
Will DIS from the Potty
Alice, how's it hanging?
 
Pea-n-Me's Avatar
 
Join Date: Jul 2004
Location: MA
Posts: 22,316

Quote:
Originally Posted by WDWDancer View Post
Hi All - Hope everybody is doing well!

I am 27 was diagnosed in Sept 2011 with thyroid cancer (surgery/radiation) and in December 2012 found a lump. After 2 wks of testing, testing, and more testing I had a lumpectomy. Saw the surgeon on a Thursday and Monday morning was in the OR. Results were DCIS.

We have been doing fertility treatments for the last 4 months and this was a concern from my doctors. Lymph nodes were negative and I'm meeting with the oncologist Monday to discuss.

It's a difficult decision and I'm wondering if the lumpectomy is enough - we've been down this road once and I refuse to jump into any treatment without consideration again. We want a family and the first time I trusted and didn't stop to consider my fertility, now that seems to be all I can think of......
First, a and Welcome. You poor thing. I've been down the infertility road, and the BC road, but not in my 20s and not with thyroid cancer to boot.

That's a tough one. I take it you were ER/PR positive? You must be worrying how all this will affect your chances of having children. And if I'm reading your post correctly, you are considering something like bilateral mastectomies?

I think you are wise to consider and explore it. Talk to your oncologist. There is a website called facingyourrisk. Also look into the story of the girl who played the daughter on Married With Children - can't think of her name. She had a similar situation and I believe she went on to have kids. (Don't know if had infertility.)

Glad you found us and hope you stick around.
__________________



Post your best iPhone/smartphone pictures here!

All Star Music 2001/Polynesian Lagoon View Concierge 2002/Contemporary 2003/Disney Wonder 2003/Yacht Club and Disney Wonder 2004/Pop Century 2005/Dolphin and Pop Century MNSSHP 2005/Disney Magic and Pop Century 2006/Coronado Springs MNSSHP 2006/Dolphin and Disney Wonder 2007/Port Orleans Riverside 2008/Caribbean Beach 2009/Dolphin and Animal Kingdom Lodge Concierge 2011/Grand Floridian and Dolphin, MNSSHP 2013
Pea-n-Me is offline   Reply With Quote
Old 02-01-2013, 05:58 PM   #1235
CherylDan
Survivor
 
CherylDan's Avatar
 
Join Date: Aug 2004
Location: north central Illinois
Posts: 631

Zelly, congratulations on the marathon! I hope your treatments continue to go well - I love your idea of treating them like your own personal marathon.

LMP, great news on your 4th and the good endo visit!

Smiley, have a great trip.....wow, two weeks sounds awesome! Do me a favor and go to the Jazz Kitchen in DTD and have the chocolate souffle - I have been dreaming about that ever since having it last year!

WDWdancer, sorry you are facing so much at such a young age. I hope your visit to the oncologist goes well and you get the best possible treatment plan for your situation.

Laurie, congratualations to your DD - sounds like she is doing very well for herself. Your trip sounds great, I'm sure it will be wonderful to see her. Congratulations on your diet success - sounds like you are doing great!

My oncologist visit was a bit of a mixed bag. In the good news side of things (VERY GOOD news) the CT scan is not showing any increase or change in the stomach mets. On the not so great side, my tumor markers have increased quite a bit. But since that is my only "symptom" I'm going to remain in the watch and wait mode. So, yay for no chemo right now! Trying not to think about how this is exactly the way it went when I was first diagnosed with the mets, and will just focus on enjoying the next two months before I have another CT scan, and probably a PET scan too.

GAGWTA!
__________________


Diagnosed Nov 2006, Stage 2B/grade 3, mastectomy, chemo, radiation, tamoxifen
Mets Feb 2011, chemo, arimidex
Mets Jan 2014, chemo Jan to Nov, to continue indefinitely
CherylDan is offline   Reply With Quote
Old 02-01-2013, 09:23 PM   #1236
snappy
Survivor
Can't even start a dead thread!
Former 5 yr old STAR on stage!
 
snappy's Avatar
 
Join Date: Apr 2002
Location: South Lousiana
Posts: 6,280

Wdwdancer, with DCIS sometimes mastectomy is necessary. It depends on how widespread the DCIS is. Both my mom and myself ended up with the widespread version, so the lumpectomy did not cut it. My mom's tumor extended beyond the edges of the surgical biopsy, so they did an MRI which indicated that a mastectomy was required. My case was a little different since I had multi focal DCIS, right under the nipple and then in the upper outer quadrant of my left breast. There would not have been much of a breast left after a lumpectomy anyway. Also, DCIS tends to snake around in the ductal system and it can be difficult for the surgeon to remove it all. At least this was the story back in 2004 when I researched and went through it all. Perhaps there are better ways now for the surgeons to know the extent of DCIS.

I am a little surprised though that you found a lump in your breast. I thought DCIS was usually found when the radiologist finds micro calcifications on mammograms. Again, maybe I am out of the loop these days.

I have wondered about a connection between thyroid disease and breast cancer. It worries me as I have had thyroid nodules for almost 22 years. We watch them, and they did seem to shrink some once I went on Synthroid for hypothyroidism in 2004. It just seemed like a coincidence to me that I was diagnosed with breast cancer and hypothyroidism in the same year.


As Linda said above, you are going through a lot for someone of your tender age. I hope you get some answers on Monday. Are they discussing genetic testing with you?
__________________
snappy is offline   Reply With Quote
Old 02-01-2013, 09:25 PM   #1237
snappy
Survivor
Can't even start a dead thread!
Former 5 yr old STAR on stage!
 
snappy's Avatar
 
Join Date: Apr 2002
Location: South Lousiana
Posts: 6,280

Cheryl, glad got another reprieve on treatment. It must be hard though being on the continual merry go round.
__________________
snappy is offline   Reply With Quote
Old 02-01-2013, 10:17 PM   #1238
WDWDancer
Recruiting Mouse
 
WDWDancer's Avatar
 
Join Date: Aug 2006
Location: on the dance floor
Posts: 213

Thanks everybody! For some reason I keep thinking it should be easier to wrap my head around this the second time...it never is.

My surgeon explained it that this is a collection of cells that started mutating but it has not progressed to cancer rather pre-cancerous cells that if left will turn.

I was on my 3 cycle of fertility medications when I noticed my breast just felt weird one morning. I debated because I couldn't decide if I felt something or not - I finally called my ob. She sent me for a flurry of testing which didn't show anything conclusive except I have extremely dense breast (it was a sea of white matter). I was sent for a molecular breast imaging test which showed uptake only in the right breast.

I have no family history of breast cancer or any cancer so I do tend to think there must be some link - I have spoken to a others who have had breast/thyroid. Whether its environmental or hormonal I don't know.

I'm hoping to have a clearer plan after Monday and then next Saturday my husband and I leave for our belated honeymoon (yea for making it through the first year of cancer survivorship) trip. When we come home we have a meeting with my ob and the reproductive endocrinologist; it was all scheduled before knowing. We've talked about canceling but right now I just can't make that decision.

Thank you for all the support - you ladies are truly an inspiration
WDWDancer is offline   Reply With Quote
Old 02-02-2013, 10:46 AM   #1239
snappy
Survivor
Can't even start a dead thread!
Former 5 yr old STAR on stage!
 
snappy's Avatar
 
Join Date: Apr 2002
Location: South Lousiana
Posts: 6,280

Wdwdancer, I think it is great than you are paying attention to your body such that you realized that something was up with your breast. It is much easier to deal with DCIS early on.

Another thing I wanted to say is that each case is vastly different, so it is not really helpful to compare your case to mine.

It sounds like you OB is a real keeper. Jumping on it the way she did was great! It sounds like you are in capable hands.

I think you are wise beyond your years not to make any decisions about canceling your meeting. Enjoy your trip. There s time.

And congrats on your recent wedding too!
__________________

Last edited by snappy; 02-03-2013 at 09:56 AM.
snappy is offline   Reply With Quote
Old 02-02-2013, 09:49 PM   #1240
jackskellingtonsgirl
Jello Shot Chick
I am scarred for life from wearing knock off brands
I opened the door and gave them the "nanny death stare"!
 
jackskellingtonsgirl's Avatar
 
Join Date: Nov 2004
Posts: 25,797

GAGWTA, Ladies!

Seems like forever since I have checked in here, but I think of you ladies often! I just realized this is my mom's 5 year "cancerversary". Diagnosed 5 years ago exactly. She is turning 65 this month. She will be flying down to see DS perform in a musical on the 15th. She hasn't flown in more than 30 years. In a lot of ways her cancer made her braver - made her want to do things and experience things. DS and I drove up to see her last summer and we had a blast. Went to dinner at a NICE place, went to a museum, went on a ghost tour.

Anyway, all is well and I just wanted to thank you all again for the support and kindness.

Sending hugs, good thoughts, and well wishes to all!!
__________________
"What a fool believes he sees, no wise man has the power to reason away." Doobie Bros.
"I'd rather laugh with the sinners than cry with the saints." Billy Joel
BLT/AKV May '15 AKV Oct. '14 GF/BWV June '14 BWV June '13 Boardwalk Oct. '12 AKV June '12
AKV CL June '11 AKV June '10 AKL Dec. '09 AKV CL Aug. '09 AKL/SSR/Poly/AKV Aug. '08 AKL Dec. '07 WL Aug. '07 AKL Feb. '07 Pop Dec. '06 AKL Aug. '06 Pop Oct. '05 Pop Jan. '05

jackskellingtonsgirl is offline   Reply With Quote
Old 02-03-2013, 09:24 AM   #1241
PatsMom
Sometimes has Dory moments!
I have two brothers and either of them would have been proud to be suspended for stinking up the bus
 
PatsMom's Avatar
 
Join Date: Feb 2000
Location: Northern NH
Posts: 5,756

WDWDancer, you definitely have a lot on your plate, especially for one so young. Good luck in your decision making process. At least I don't have to worry about fertility issues while making treatment decisions. I just had a total hysterectomy and it was just spare parts at my age!

Sounds like you are getting some good medical advice though. Christina Applegate is the actress someone referred to - she had a double mastectomy and went on to have a child. There was a story in People magazine. I am not sure what, if any, treatment she had after surgery. As you know, the chemo and radiation are what play hell with fertility.

I am still waiting to start treatment. My new doctor doubled my long lasting pain meds and increased the breakthrough meds as well. Who ever would have thought that a bunch of cancer filled lymph nodes could hurt this much. All of the doctors now agree that the cancer is not gynecological. There was cancer in the fallopian tubes, cervix, uterus and ovaries but it spread to them, not from them. The gynecological oncologist will be monitoring me for a return of the cancer in the area where the cervix was since it was pretty widespread. He said if caught early radiation will fix any recurrence. Although I am going to be blasted with so much chemo pretty soon that he doesn't think a recurrence is likely soon.

The new doctor obtained my pathology specimens. Wanted to do some more stains. Then everything is going to that hospitals tumor board. This is my third tumor board so maybe it will be lucky! I go back on Tuesday to see what this group has come up with. The doctor is fine with me going to China in March. Since they can't cure this, only contain it, she has no problem with me working on my bucket list! I am also considering a trip to Italy with my best friend and her sister this fall. I figure I may as well spend my retirement money now.

I think of all you ladies! It is surprising where you find support when you get cancer. I thank all of you for the prayers and good wishes!

Linda
__________________
1981 to 1983 - Disneyland many times November 1987 - Fairway Villas (prior to the Disney Institute)
September 1996 - Fort Wilderness (DD and DH's first trip) October 1999 - Fort Wilderness November 2001 - Fort Wilderness November 2004 - Fort Wilderness November 2005 - Saratoga Springs December 2006 - Saratoga Springs February 2007 - All Star Sports August 2007 - Boardwalk Villas November 2007 - Saratoga Springs February 2008 - Villas at the Wilderness Lodge August 2008 - Old Key West
December 2008 - Saratoga Springs February 2009 - Beach Club Villas September 2009 (50th birthday trip) - Bay Lake Tower January 2010 - Animal Kingdom Villas (Kidani Village) May 2010 - Old Key West September 2010 - Bay Lake Tower May 2011 - Beach Club Villas October 2011 - Saratoga Springs January 2012 - Old Key West May 2012 - Old Key West October 2012 - Old Key West January 2013 - Family gathering at Old Key West; May 2013 - Wilderness Lodge Villas; November 2013 - AKL Jambo House; February 2014 - Saratoga Springs
PatsMom is offline   Reply With Quote
Old 02-03-2013, 10:06 AM   #1242
snappy
Survivor
Can't even start a dead thread!
Former 5 yr old STAR on stage!
 
snappy's Avatar
 
Join Date: Apr 2002
Location: South Lousiana
Posts: 6,280

Linda, I hope the new meds are helping control your pain level.

Hope the third time is the charm with the tumor board. Like your attitude there, as well with the fall Italy trip. you are going to be one traveling lady!

You are an inspiration to us all!

I am off to help my sister celebrate her birthday at a seafood restaurant. It will be hard to pass up the "good" stuff and have plain fish, but I will. And no cake!!!

My DH worked late into the night working on switching our aquarium from the under gravel filtration system to a cannister style one. Big project. The aquarium store dude told us the under gravel system is antiquated-kind of like DH and me, lol.

DH is sweet to work on this upgrade, as keeping fish is really my hobby. Nice early Valentine's day gift.

having fun with the smilies today. I don't usually attempt them, but for some reason today they seem necessary.

GAGWTA!
__________________
snappy is offline   Reply With Quote
Old 02-04-2013, 03:14 PM   #1243
Feralpeg
Diet coke lover
Can now visit the parks anytime
My DD, the movie star
Sean Bean...is he related to Mr. Bean?
 
Feralpeg's Avatar
 
Join Date: Dec 2000
Location: Windermere, FL
Posts: 18,223

Linda, thinking of you and hoping for good news from the tumor board!

I finally have some good news to report! My PET scan came back clear. The cancer has not spread beyond the original area and a couple of lymph nodes. I see the surgeon again tomorrow. Hopefully, he will take out the remaining staples. I have a large hematoma in the area where he removed so much tissue. It needs to be drained. If we get the fluid buildup under control, I will have my first chemo treatment on Feb 13. If the fluid thing is still a problem, we will need to delay the start of chemo.

I'm ready to get it started so I can get it done! Feeling so much better now that I know exactly what I'm facing.

Hang in there ladies! Thinking of you all!
__________________
Feralpeg is offline   Reply With Quote
Old 02-04-2013, 10:13 PM   #1244
PatsMom
Sometimes has Dory moments!
I have two brothers and either of them would have been proud to be suspended for stinking up the bus
 
PatsMom's Avatar
 
Join Date: Feb 2000
Location: Northern NH
Posts: 5,756

Peg, so happy to hear that you got good results on the PET Scan. I'll be praying that everything goes right so that you can get your chemo started soon. I know how hard it is to wait. An you feel like this cancer is growing in your body so lets get started killing it.At least that is how I feel. I am hoping the doctor will have some kind of schedule in mind when we meet tomorrow.

Linda
__________________
1981 to 1983 - Disneyland many times November 1987 - Fairway Villas (prior to the Disney Institute)
September 1996 - Fort Wilderness (DD and DH's first trip) October 1999 - Fort Wilderness November 2001 - Fort Wilderness November 2004 - Fort Wilderness November 2005 - Saratoga Springs December 2006 - Saratoga Springs February 2007 - All Star Sports August 2007 - Boardwalk Villas November 2007 - Saratoga Springs February 2008 - Villas at the Wilderness Lodge August 2008 - Old Key West
December 2008 - Saratoga Springs February 2009 - Beach Club Villas September 2009 (50th birthday trip) - Bay Lake Tower January 2010 - Animal Kingdom Villas (Kidani Village) May 2010 - Old Key West September 2010 - Bay Lake Tower May 2011 - Beach Club Villas October 2011 - Saratoga Springs January 2012 - Old Key West May 2012 - Old Key West October 2012 - Old Key West January 2013 - Family gathering at Old Key West; May 2013 - Wilderness Lodge Villas; November 2013 - AKL Jambo House; February 2014 - Saratoga Springs
PatsMom is offline   Reply With Quote
Old 02-05-2013, 12:10 PM   #1245
Feralpeg
Diet coke lover
Can now visit the parks anytime
My DD, the movie star
Sean Bean...is he related to Mr. Bean?
 
Feralpeg's Avatar
 
Join Date: Dec 2000
Location: Windermere, FL
Posts: 18,223

Thanks, Linda. It is hard waiting! As it stands, I will start my first chemo treatment a week from tomorrow. I've had some problem with fluid buildup at my surgery site. The surgeon put a drain back in today. If things have cleared up, we'll proceed as scheduled in a week. If not, we'll need to delay.

I believe I've been to a different doctor every day. Crazy! To make things worse, they think Kendall may have systemic lupus. That would explain so many of the issues she's had over the years. She has four appointments next week and more to come. Thank goodness for insurance! We've already passed both of our deductibles for the year and will give the insurance company a workout this year!

Kendall and I made a pact. Since this year will be trying for both of us, we are going to go someplace special next year. Now, we are trying to decide where to go. At this point, we are considering England or Hawaii. We may also throw in a Disney cruise! Something to look forward to!

Thinking of you all!
__________________
Feralpeg is offline   Reply With Quote
Reply



Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 09:36 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: