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Old 12-21-2011, 11:40 AM   #91
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Smiley- I know exactly how you feel. I have my port for 1 year(post treatement) now and every month I got to get it flushed is hard. The smells the sounds all reminders! I just smile and pray for those there. I won't get mine removed for a while as my veins are so bad.

LMP- Hope you are feeling better. Did you every get your washer/dryer fixed? I don't know what made me think of that.

Patsmom- Kids! What can we do?!?!? Good thing you got her an appt before the deadline.

PNM- I always like working those days because they are usually slow, WOOSAAAAA days. The hospital is empty. They usually hold annual office chair races in the basement!

Lisa- How are you? Hope you are feeling energized like the bunny!

Snappy, Sha, Cheryl, Merry GAGWTA!
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Old 12-21-2011, 12:27 PM   #92
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PNM- I always like working those days because they are usually slow, WOOSAAAAA days. The hospital is empty. They usually hold annual office chair races in the basement!
Chair races, that sounds like fun!

We're actually usually pretty busy, as most patients who are able, go home, and those left are pretty ill. But we try to make it fun by bringing in stuff and making some merriment in between the running around.

lmp, I must have missed your post below. Yay for good BPs! PM me if you have any ?s about nsg schoo that I can help with!.
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Old 12-21-2011, 02:31 PM   #93
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Candy - sounds like you work at a fun placeWe had to get a new washer. Dh called the whirlpool people up and described the problem. They basically said it was not worth fixing.

Linda - thanks about the nursing schools. He is in various stages with all the 4 places and now is doing a 5th. I dont know how many he should apply to/odds etc. He said his gpa is 3.6 now, that is last semester, waiting for the new grades.

Lisa - hope you are feeling well

Laurie - bet you are glad to have dd home. You have a full house now!!

Anne - continued prayers for Avery

Well dh called me and told me his old big boss, who actually is still his boss, has demanded he get back to China asap. Geez! So he asked me when the biopsy was (Jan. 19) and hopefully he will be back before then. So now ds21 will have to take me for the blood and sono stuff. I just want this traveling to end. And now the airline has changed their rules so the miles arent worth as much etc. I have 1 christmas card left to send (need an address) and now on to decorating the tree soon.

I am getting nervous about the specialist tomm. I just dont want any more invasive procedures. Just so sick and tired of all of this but know something has to be done to figure it out etc.

GAGWTA
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Old 12-21-2011, 06:21 PM   #94
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Good for you, Linda, for working over the holiday. Sounds like the staff working over the holidays make the most of it. I really like that positive attitude.

MaryAnn, I hope you can avoid anything invasive. Please keep us posted. Sorry your DH will be gone to China again. I hope he does not have to leave until after New Years'.

Yes, DD21 did come in about an hour ago. It sounds like she will be home for about 10 days. I am very glad.

I forgot to relay what happened with one of her grades this semesters. One day last week after finals she checked the course grade on line she was livid when she saw she had a B- in the course. The prof had given her a 0 for one assignment that she knew she turned it. So she wrote an email. He responded that she got a 0 because she graded her peer's presentations to easy and it was if she had not participated.

She told me and we talked about how unfair this seemed, since grading presentations is very subjective, especially when the grader is also doing a presentation. So the next day, she both called and even went to see the teacher's assistant. Later, she checked her grade again, and they must have capitulated since her grade magically became an A-.

She told me she thought the grade was changed so she would not bug him anymore, lol.

She is pretty determined once she gets started on something. I guess it is a good trait to have after all.
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Old 12-22-2011, 08:35 AM   #95
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Good Morning Everyone. My name is Leslie. Mind if I join you? I was diagnosed this week with Ductal Carcinoma In Situ stage 0 (DCIS). I met with the oncology surgeon yesterday expecting she would recommend a lumpectomy and a little radiation and we would be done with it. The news she delivered in person was not quite as simple and easy as what I got over the phone. Although, my biopsy came back as non-invasive, she said because we can feel a lump she expects it is invasive. She is setting up an MRI so they can have another way of looking at the area. Also, my mother and one sister have both had breast cancer. Therefore, she wants me to have the BRAC test. I go tomorrow for an appointment which means I need to deliver this news to my 84 year old mother three days before Christmas. I really had hoped to wait until next week when the holiday was behind us. If the BRAC comes back positive, the surgeon recommended a double mascectomy and removal of my ovaries. So, I have three possible options, pending the results of the MRI and BRAC. I am looking to hear your experiences and advice. Not to mention it helps to have someone to talk to since I am trying to limit who I tell until Christmas is behind us. I have a 17 year old daughter and she has no idea this is going on. I dread delivering the news to her next week. She and I are extremely tight. How many 17 year olds describe their mom as their best friend?!? I just want her to be happy and I hate to put her through this with me.
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Old 12-22-2011, 09:41 AM   #96
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Hey, Leslie. Glad you found us.

I have a friend who like you, had a family history, and recently went through this whole rollercoaster thing being told initially she had DCIS, then finding out after the surgery it was invasive, then having to have a couple more surgeries in order to get clean margins, then found out some nodes were positive so she'd need chemo, etc. It seemed like every week it was more bad news. So in a way, even though it's frightening and overwhelming, it probably is good to at least go over the possibilities at the outset, and then if it doesn't happen, great. Your surgeon's probably seen it happen enough that she'd rather take that route.

I was diagnosed with invasive ductal carcinoma, two nodes positive, triple negative, and had a lumpectomy with chemo and radiation. I also had BRAC and the new BART testing done with the idea I'd have my ovaries out if positive, but testing was all negative. Diagnosis was 8 years ago and knock on wood I am doing well. My twins were 5yo and had just started Kindergarten when I was diagnosed, they are now 14 and I am grateful for every moment I've had with them. Physically and emotionally it was a rough road, but like everyone else does, you just get through it somehow.

I know you said you are worried about your diagnosis with starting a new job and all. That does seem tricky. But you will somehow get through it. Over the years here we've had some amazing stories and women who had some unthinkable stuff to deal with around the time of their diagnoses, just for your inspiration. One of our current posters, Smiley, lost her 28 yr old son in a horrible accident right around the time of her diagnosis. She's had a lot of ups and downs but she's hanging in there. I also remember a poster a few years back who found out she was pregnant right at the time of her diagnosis and had to consider whether to terminate the pregnancy or not given the concerns for birth defects with chemotherapy. She chose to keep the pregnancy and the baby was ok. My own inspiration during my treatment was a woman I met through a friend who was quite young at diagnosis and had a huge tumor but one of the greatest attitudes I'd ever seen so she held me up a lot when I needed support. I also went to a support center and met some amazing people there, too. Of course the ladies here I had the great fortune to meet after treatment had ended (planning that great post-treatment trip!) and they've been incredibly supportive as well. (Some may have other types of cancer or be the support people for loved ones with cancer, but we've all been touched by it in some way.) I think that's one of the nice things (if there can be any) of cancer is it changes you and you meet so many great people you wouldn't have otherwise met, etc. So I hope we can be there for you as well during whatever hurdles your facing.

I think radiation centers have work friendly hours these days so maybe you could go either before work, after work, or on your lunch break, say. Go somewhere near your work.

It will be hard for your mother to hear, but she'll understand, and the time of year probably won't matter much. She will just be concerned with you and your doing what you need to do. It might be scarier for your DD, but you'll weather it together. I think you are right to say it's survivable and the chances are very good that you'll be ok, which of course will be her biggest concern. I am very close to my kids I'm sure in part because of my cancer diagnosis. I was very concerned, even at their young ages then, how it would affect them and you know what, I think it just helped make them more compassionate people. Once your DD starts talking about it a bit, she'll discover that many people she knows have had cancer that she didn't even realize, and many kids she goes to school with have had parents fight a cancer battle as well. It's just that once it goes away, it's not talked about all that much. But once you start talking about it, you hear everyone else's stories, too. I was actually floored at some of the people I'd known for a long time that I didn't realize had had cancer. Hearing their stories and seeing them on the other side I always found helpful.
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Old 12-22-2011, 12:39 PM   #97
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Leslie - Welcome. Sorry you have had to join the clubh that you wish you would not have to. Sending you lots of and prayers. You have found a good bunch of ladies here. They are encouraging and have a wealth of information to share. You can come here to ask,cry,vent etc. anytime. I have a different kind of cancer (thyroid) but they have adopted me. Wishing you all the best. I am sure it will be hard on your family and your dd. I have 3 ds so they were not all that emotional for the most part they kept it inside. They just wanted me well and better. Hang in there!

Laurie - good for your dd challenging the grade. 2 of our ds have doen that several times and come out ahead too. Middle ds is happy he gets a C. sigh.

Cheryl and Janet - post about your trips when you can. Would love to hear about them.

Candy - safe travels. Are you bringing the dog or having someone watch your house?

PatsMom - hope your dd gets the visa stuff worked out. My dh hates the food in France. Our friends dd went there too last semester and hated the food too. She brought some nutella and crackers etc.

Well I am back from the specialist. She sees nothing major wrong. Wants to do a kidney ultrasound and PatsMom...I am thinking of you...the dreaded cystoscopy, but not until March. Gosh, you have to wait so long for everything there. In the meantime she wants me to try a new med so I wont be running to the bathroom all the time. We shall see. My bp was good and I lost 10 lbs. Wowsa. I think that is due to the new bp med because everytime you eat something high in fat your body, um..gets rid of it quickly. So more tests etc. I am getting weary of this.

Got a nice card and letter from the long lost relatives in our town. She wants to get together in the warmer weather. Said she goes to Florida alot to visit her grandkids. Hmm, maybe a disney meet up if they are near there? We shall see.

Its beautiful here weatherwise. Doesnt feel like christmas, more like Florida

GAGWTA
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Old 12-22-2011, 04:53 PM   #98
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Leslie - Welcome to the thread, but sorry that you have to be here. You will be facing many challenges in the coming months and we will be here to support you.

Well, gifts are all here and wrapped (still waiting for one), Christmas cards are all mailed and everything else we need for the holiday has been purchased. My energy level has been very low this week. Thank goodness Meg has been here to help out. She just returned to Orlando as she is working the next three days and not looking forward to the crowds. DS has even helped out this week - he made dinner last night, Meg's favorite Chicken Parmasean. It was delicious!

I have to go see the vampires tomorrow to have my big labs done. I have to see the Miami doc next Thursday and my local oncologist next Friday. Was hoping to get to the end of the year without having to deal with them. I will let you know what the next step in my treatment is when I find out.

Wishing everyone here a Blessed and Merry Christmas or whatever you are celebrating!
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Old 12-23-2011, 11:27 AM   #99
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Leslie, I am glad you posted here.

I am sure this is the worst possible time of year to receive this news. However, you may feel relieved once you have disclosed it. I think your mom and daughter might already sense something is amiss, depending on how long this has been going on. It is not easy to tell but it sure helps to have that support system close and by your side. Know too the ladies on this

How was the possibility of DCIS detected, through discovering the lump or based on a suspicious mammogram?

I was diagnosed with DCIS in two places on one breast, and the stuff actually snaked all around my breast (my mom had a similar deal about 4 years later).
I also had an area of invasion, but it was small and apparently all taken out during the stereotactic needle biopsy since no more invasive cancer was found in the testing after the breast was removed. Because the area of invasion was only 1 mm, chemo was not recommended.

I did not have the additional testing you are facing, since the DCIS was found in multiple areas, the only real surgery that was recommended was a mastectomy. That was the standard of care at least back in 2004 for multi-focal DCIS.

Do you have your MRI scheduled yet? An MRI showed that my mom's DCIS had also run rampant throughout her breast but there was no invasion so she had the mastectomy but no radiation or chemo, just like me.

The MRI seemed to be the definitive test for my mom. I hope the same goes for you. Not knowing what your facing is the hardest part of this, along with giving bad news to your loved ones, as you know.

Please feel free to ask further questions, come here and vent, whatever you need. You might be surprised how it is also helpful to us to share our stories here, and respond to your questions/concerns. It is very healing, even after the over seven years since my diagnosis.
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Old 12-23-2011, 12:02 PM   #100
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Hi Ladies! Sorry have been MIA again. I wanted to wish you all Merry Christmas

Leslie welcome!

Working right now actually, waiting for clients to finish lunch. Went with mom to follow up oncology appt. All is good. No more scans unless something shows up in labs etc. going every 6 months now. So next appt is in June. Nodules in lung exactly the same and unchanged. Nothing "glowed" on PET scan. Very good news for Christmas!

I miss you all and have just been overworked. Christmas cards aren't done, tree is up with lights but no decorations. Will do tonight though. Sticks to my German heritage I guess. Presents still to wrap and a couple last minute items for my one (trouble child) sister. I am getting ready for next weekend though!! Will see R. in a week and can hardly wait. We are going to be at WDW with my mom, sister M, nieces S and A. We are staying in a Tree House Villa!!!!!!!!!!!!!! Super nice as we got to see an empty on last week when Mom, DN A and I went for a night.

The issue I had is a cyst that should reabsorb on its own. No fluid or anything noted. Should be resolved in 2 months. Had some Ca markers done and they were negative. Will do another US though in June. whew! so thankful it was a etopic pregnancy! (or worse).

love to you all and a Merry Christmas and GAGWTA
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Old 12-23-2011, 01:13 PM   #101
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Wow, Sha, busy life, huh?

Have a wonderful time over New Year's. I bet you will love the tree houses at Saratoga. What fun!

Glad to hear Mom received good news, as well as you with that recent scare.

Merry Christmas to All!
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Old 12-23-2011, 01:42 PM   #102
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Hello Leslie and welcome to the cancer survivor's club, the one no one wants to join! You've gotten some pretty good advice from some very smart ladies who have dealt with breast cancer. Sucks to get the diagnosis so close to Christmas but I don't think there is ever a good time to be told that you have cancer. And it really sucks to have to tell you child that you have cancer. My daughter was home from college for the summer when I had to tell her.

MaryAnn, hope you get some good results. It isn't pleasant to have a cystoscopy but after all you have been through, it will be a piece of cake. I've heard of people who have had anesthesia for them. One friend of mine has low grade bladder cancer that keeps recurring and her doctor burns out the new tumors while doing a cysto. Low grade doesn't tend to spread, just keep coming back. I almost prefer having my high grade cancer - bigger chance of it progressing but no wide awake burning out of tumors! Urologists do so many cystos that they are very good at it. They do use a topical anesthetic that helps. I must confess I take a lorazepam before the procedure but I think that is more for the anxiety about what they will find. You are awake and I don't know about all uro's but mine lets you watch the monitor. Kind of odd to be looking at the inside of your own bladder!

Got the pathology back on the urine sample. Blood in the urine again but it cultured positive for bacteria. So what we thought were side effects from the treatment turn out to be a UTI. I am on antibiotics and will have to go supply another specimen when they are done. Hopefully then I will be all set until March when I have my next routine three month cysto.

Seasons Greetings to everyone! I am heading out tonight to finish up my Christmas shopping and then the marathon of visiting and eating begins tomorrow!
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Old 12-23-2011, 02:12 PM   #103
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Sha - you are one busy lady for sure! I am glad your mom got good news. Enjoy your time with R. I hope your medical issues get resolved also. The treehouses sound interesting. Hope you like them!

Laurie - enjoy the bonfires!

Lisa - sounds like you have the present situation under control. Ds20 loves chicken parm too! Sorry you have to go to the drs. over the holidays,

PatsMom - Ok. I just about puked when I read your post about the procedure. They did give me some written instruction thing. I am so on the fence about this.

I have had it with the invasive procedures. Tired of the cameras up my nose, down into my vocal cords, needles in the eyes, next the lovely pelvic sono, then the cysto. I have had it! I know they want to be careful and watch everything and rule out stuff, but I am so weary of all of this. Guess I know I also have the blood tests and neck sono which are my regular 6 month follow ups and then the eye surgery in April. Oh I forgot about the kidney sono the new dr. now wants. I just want a break once in a while, hence my Disney World trips! Only thing besides God,dh and praying that keeps me sane!

Ds20 got a B in chem, so he is happy.Good enough grade for nursing school I hope. He is doing another chem class in the spring and a nutrition class that some schools want.

Cant wait to see ds20 be Joseph tomm!

GAGWTA. Wishing you all a blessed Christmas and Holiday Season.
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Old 12-23-2011, 06:28 PM   #104
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Pre Christmas eve bonfire structures



I am going to try and get some more tomorrow night!
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Old 12-23-2011, 07:23 PM   #105
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Hi everyone

I've been absent in posting for some time but I think of all of you very often and try to catch up on what is happening with you. I hope this New Year will bring comfort and good health to all of you and a "lightning of your heavy hearts" for everyone who is going through a procedure of some kind or awaiting results.

Wishing you all a very Merry Christmas and a Happy Holiday.

Hugs,

Barbara
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