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Old 11-12-2012, 11:01 PM   #2566
jas792
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was it disneyland or DW? I definetly have to look into this better -- maybe there is a certain time of year they come. thanks so much
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Old 11-12-2012, 11:04 PM   #2567
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was it disneyland or DW? I definetly have to look into this better -- maybe there is a certain time of year they come. thanks so much
Definitely Disney World.. They live in Northern Florida, and go once a year to Orlando. I know it was this last summer to celebrate her sons birthday (his choice).
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Old 11-12-2012, 11:39 PM   #2568
Nevada Jen
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For shirts, Walmart (or basically any drug store) in the sewing section. Buy black iron on patches and cut them into mickey head size and then iron them on. I hope she gets better in time for the trip. We battle seizures too and it seems that sometimes we hit the nail on the head on the first med change and other times we have literally battled for years to get them under control.
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Old 11-12-2012, 11:39 PM   #2569
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Originally Posted by NEmel View Post

If you are staying at GKTW, DO NOT BUY A PHOTOPASS! You will be given a code to redeem for a FREE Regular Photopass CD at orientation. The famous Maroo had a hand in suggesting they provide these for wish kids (she will say modestly it wasn't her; but, I remember a LOOOOONG time ago that she did indeed). I LOVED getting pics of the entire family together. I am sorry I don't kow about other wish organizations (Such as Sunshine Foundation. I hope they do as well, they deserve one also).
That is SO cool!!




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Originally Posted by KaylaM View Post
My daughter had her presentation party this morning. It was at a busy restaurant (wasn't expecting that), so she was a little agitated with all the people and loud noise, plus her seizures / spasms have been acting up the past few days, so that didn't help. She got a lot of neat things that local community schools, senior citizens, and quilt guilds gave her. M-A-W gave her her stuff for the trip (our limo leaves at 6:20a.m.). Our wish granter told us today about the photo pass - photos don't cost anything and at the end of the trip, you get a free CD of the photos. Apparently there is a new security line at airports for people with medications, medical devices, etc, so that is really cool and will cut down on time (no long lines).

Unfortunately, my daughters seizures and spasms have increased over past couple of days, so she had an infusion today. Hopefully it will help. So far it hasn't, and its been 5 hours. Her doctor wanted to hospitalize her, but I asked not to. I just hope we can stabilize her to where I am comfortable leaving. I want her to enjoy herself to and not be agitated all day like the past couple of days. Not fun! We see her doctor and neurologist tomorrow and again on Friday. Hope for the best!!!

I have been going over her packet with her, and keep telling her she is going to Mickey's World. She gets excited with the word Mickey! This almost seems like a dream that we are going to wake up out of. I am so excited for my daughter for this trip - I can't wait.
Praying the infusions work and she will be healthy for her trip.

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Originally Posted by jas792 View Post
our pre trip report for Anna's wish trip

--------------------------------------------------------------------------------

I hope I am doing this right I was trying to find ideas for Anna for her wish trip. So I typed in ideas for a wish trip and in the results I found this disboard. I loved reading all the stories - for the last few weeks - today I saw a post with a link to the board to start a thread --so I hope I am in the right place to start posting my PTR..Anna is getting a wish from Marty Lyons Foundation. She was approved a while ago but does not have clearancefrom the doctor to travel so we have waited. She can travel now so we are going to call back the wish granter tommorrow. The only problem is we still don't know what to ask for. She loves stitch -- he is her favorite - she wants to meet the other characters in the stitch movies. Problem is they are only in Japan Disneyland. When I see if I am doing this right I will post her story - just not sure if I am in the right place
Thanks
Jo
this should be the link to start you PTR...

http://www.disboards.com/forumdisplay.php?f=144

I am so glad Anna gets her wish!

Jackie
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Old 11-13-2012, 03:34 AM   #2570
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Hello! I have not been on here in a long time! We are going in January and are extending our trip by three days. Can we use any of the standard amusement park tickets during our extension (Disney World, Sea World, Universal)? Or are they that valid after we leave? Thanks!!
I can't believe you are finally going on your trip! I hope all is well. Maybe give us an update if you get a moment on how things are going. You are able to use the tickets on your extension of your trip. I am so happy your chapter allows you to extend, I wish all of the chapters were a bit more uniform on that. I think some have been burned in the past allowing extensions. That is a good reminder that as wish families we need to be on our best behavior for those who come after us. It only takes one bad experience to ruin it for others.

Quote:
Originally Posted by jas792 View Post
our pre trip report for Anna's wish trip

Jo
Hi Jo, I see you followed the link I posted to make your own PTR. This Link will take others to your PTR you started yesterday. I wanted to say WELCOME!!!

Quote:
Originally Posted by jas792 View Post
stitch is at the parks
Lilo is only at the polynesian breakfast -- but there are no other stitch characters --in any case there is no way we can go to Japan LOL.
I am going to call the wish granter back tommorrow and ask if we could go to GKTW --- we'll have to see what she says
Disney Character Central shows where to meet many of the characters in ALL of the Disney Parks around the world. This is the link to the Stitch Characters and where to find them. I hope it might help someone.
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Old 11-13-2012, 08:15 AM   #2571
wishin' on a star
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Quote:
Originally Posted by KaylaM View Post
My daughter had her presentation party this morning. It was at a busy restaurant (wasn't expecting that), so she was a little agitated with all the people and loud noise, plus her seizures / spasms have been acting up the past few days, so that didn't help. She got a lot of neat things that local community schools, senior citizens, and quilt guilds gave her. M-A-W gave her her stuff for the trip (our limo leaves at 6:20a.m.). Our wish granter told us today about the photo pass - photos don't cost anything and at the end of the trip, you get a free CD of the photos. Apparently there is a new security line at airports for people with medications, medical devices, etc, so that is really cool and will cut down on time (no long lines).

Unfortunately, my daughters seizures and spasms have increased over past couple of days, so she had an infusion today. Hopefully it will help. So far it hasn't, and its been 5 hours. Her doctor wanted to hospitalize her, but I asked not to. I just hope we can stabilize her to where I am comfortable leaving. I want her to enjoy herself to and not be agitated all day like the past couple of days. Not fun! We see her doctor and neurologist tomorrow and again on Friday. Hope for the best!!!

I have been going over her packet with her, and keep telling her she is going to Mickey's World. She gets excited with the word Mickey! This almost seems like a dream that we are going to wake up out of. I am so excited for my daughter for this trip - I can't wait.

I want to make a shirt for her and I to wear on our travel day, but am not sure what/how. Any ideas???


Go to the Creative DISigns board here on the DIS. I bet someone will help you create something fun acknowledging the wish trip that you can then print on iron on paper (you can purchase at any craft store along with the t-shirts). When we went on our wish trip, some of the DISigners helped me make cute personalized invitations that I gave the kids on the morning of special character meals or BBB. Be careful--if you've never checked out the Creative DISigns thread, you will get sucked in quickly! There are lots of great ideas on there!
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Old 11-13-2012, 03:46 PM   #2572
Emmaswishtrip
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We are having an amazing time on our trip! I just wanted to give some advise to any families coming soon! If you go to the magic kingdom before the new fantasyland opens. Ask to go in for a visit!! We said we are on a wish trip and stepped aside while they spoke with manager and our family got to go into the new Ariel and Belle and also be our guest! AMAZING!!
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Old 11-13-2012, 07:19 PM   #2573
KaylaM
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Originally Posted by Nevada Jen View Post
For shirts, Walmart (or basically any drug store) in the sewing section. Buy black iron on patches and cut them into mickey head size and then iron them on. I hope she gets better in time for the trip. We battle seizures too and it seems that sometimes we hit the nail on the head on the first med change and other times we have literally battled for years to get them under control.
good idea because joanns, michaels, and another craft store didn't have any disney iron ons. i like that idea, and i think i can do that.

thanks.

my daughter has a very complex sz disorder, and has never had them controlled. so its just getting her back to her baseline before we leave.
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Old 11-14-2012, 12:43 AM   #2574
Lilfoot93
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Quote:
Originally Posted by Emmaswishtrip View Post
We are having an amazing time on our trip! I just wanted to give some advise to any families coming soon! If you go to the magic kingdom before the new fantasyland opens. Ask to go in for a visit!! We said we are on a wish trip and stepped aside while they spoke with manager and our family got to go into the new Ariel and Belle and also be our guest! AMAZING!!

I'm glad you are having a great time! I can't wait to hear all about it when you get back! That is wonderful that you got to visit the new fantasyland!

Jackie
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Old 11-14-2012, 02:50 AM   #2575
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Originally Posted by wishin' on a star View Post
Go to the Creative DISigns board here on the DIS. I bet someone will help you create something fun acknowledging the wish trip that you can then print on iron on paper (you can purchase at any craft store along with the t-shirts). When we went on our wish trip, some of the DISigners helped me make cute personalized invitations that I gave the kids on the morning of special character meals or BBB. Be careful--if you've never checked out the Creative DISigns thread, you will get sucked in quickly! There are lots of great ideas on there!
Hi Laura! So great to see you! I wish I was brave enough to try iron ons by myself...I really want to sew, I have so many great ideas, but no machine...
Quote:
Originally Posted by Emmaswishtrip View Post
We are having an amazing time on our trip! I just wanted to give some advise to any families coming soon! If you go to the magic kingdom before the new fantasyland opens. Ask to go in for a visit!! We said we are on a wish trip and stepped aside while they spoke with manager and our family got to go into the new Ariel and Belle and also be our guest! AMAZING!!
That is SOOO exciting, I love to read about Pixie Dust.



I want to remind everybody about the WONDERFUL wealth of information Maroo has assembled on page 1, post two of this thread. Many of your questions and concerns are addressed here, because we were all new at one point in time on the DIS and had the same questions you have. Judging by the volume of PMs I get (and I am sorry, I can't answer all of them, I have a PM box nearly full and so many unread as of yet) many of you miss this wonderful post. The best way to reach me for a quick response is to post on my thread, otherwise I might not see it, I don't often have time to even post here. I HTH someone.
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Old 11-14-2012, 07:30 AM   #2576
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Quote:
Originally Posted by Emmaswishtrip View Post
We are having an amazing time on our trip! I just wanted to give some advise to any families coming soon! If you go to the magic kingdom before the new fantasyland opens. Ask to go in for a visit!! We said we are on a wish trip and stepped aside while they spoke with manager and our family got to go into the new Ariel and Belle and also be our guest! AMAZING!!
Awesome! So glad they let you explore!
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Old 11-14-2012, 08:04 AM   #2577
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Quote:
Originally Posted by jas792 View Post
our pre trip report for Anna's wish trip

--------------------------------------------------------------------------------

I hope I am doing this right I was trying to find ideas for Anna for her wish trip. So I typed in ideas for a wish trip and in the results I found this disboard. I loved reading all the stories - for the last few weeks - today I saw a post with a link to the board to start a thread --so I hope I am in the right place to start posting my PTR..Anna is getting a wish from Marty Lyons Foundation. She was approved a while ago but does not have clearancefrom the doctor to travel so we have waited. She can travel now so we are going to call back the wish granter tommorrow. The only problem is we still don't know what to ask for. She loves stitch -- he is her favorite - she wants to meet the other characters in the stitch movies. Problem is they are only in Japan Disneyland. When I see if I am doing this right I will post her story - just not sure if I am in the right place
Thanks
Jo
We just got back from WDW on Monday. We saw Lilo & Stich at Animal Kingdom, Hollywood Studios, and at MVMCP in Magic Kingdom. I'm sure you will be able to track them down somewhere!
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Old 11-14-2012, 02:05 PM   #2578
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We just got back from WDW on Monday. We saw Lilo & Stich at Animal Kingdom, Hollywood Studios, and at MVMCP in Magic Kingdom. I'm sure you will be able to track them down somewhere!
Welcome back!! Hope you guys had a wonderful time!!
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Old 11-14-2012, 04:44 PM   #2579
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KaylaM - Yay for the presentation party Sorry it was more than she expected though. Hope she's doing better today, and praying all is well before the trip.



jas792



Quote:
Originally Posted by Emmaswishtrip View Post
We are having an amazing time on our trip! I just wanted to give some advise to any families coming soon! If you go to the magic kingdom before the new fantasyland opens. Ask to go in for a visit!! We said we are on a wish trip and stepped aside while they spoke with manager and our family got to go into the new Ariel and Belle and also be our guest! AMAZING!!
Glad you are having an amazing time, and had such a wonderful opportunity.

Quote:
Originally Posted by that's nice View Post
We just got back from WDW on Monday. We saw Lilo & Stich at Animal Kingdom, Hollywood Studios, and at MVMCP in Magic Kingdom. I'm sure you will be able to track them down somewhere!
Quote:
Originally Posted by KaylaM View Post
Welcome back!! Hope you guys had a wonderful time!!
What KaylaM said
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Old 11-14-2012, 06:28 PM   #2580
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While putting around the house this evening i noticed how short the countdown chain is getting! I am so excited! Kyra is telling everyone she sees that she is going and that shes going to hug everyone! Now just to get the doctor in gear to actually sign the paper that says shes good to go now that shes less then 2 weeks from the trip. was supposed to be back today but nothing....this is the same doctor that took 7 weeks to sign the paper to get the approval. I hope she gets going :S
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