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Old 09-02-2012, 04:15 PM   #1846
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Thanks

Thanks for the replies about the typical wait time for approval of a wish after the granters come out. As of today, we are still waiting, but I decided that it would still be OK to get as much info as I can about GKTW and some of the possibilities that we may run into.

One think I am seeing from reading here at the DIS is that Universal may not have much there for my wish kid to do... He is wheelchair bound and cannot transfer and cannot support himself on a ride. Sooo.... I am sure we would limit that to one day for sure, and I was wondering if anyone had some experience with that park that they would like to share. What things could he actually do? Would he find enough stuff there to interest him, or would it even be worth going? DH & I and our other son would probably have a blast - but this trip is for Ryan, after all!...

We think SeaWorld would work out ok with the shows and the aquariums and such... So I guess I am wondering what to do with the extra day... It really seems as though a fourth day at Disney World would be our best option, but I am not sure that our chapter would go for that. Of course, we could always ask.... If not, what other parks would be more accomodating? Would LegoLand have much there for him to do? We would probably avoid the waterparks because he is vent-dependent and wouldn't get to do much there. Anyone have any suggestions? I guess I just want to make the best of everything for him!

Thanks for all the help so far!

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Old 09-02-2012, 05:09 PM   #1847
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if you look on the gktw web site and find the family information book you can find a list of other things they can get tickets for. maybe something there will spark your interest.

and dont discount all there is to to at gktw as well.
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Old 09-02-2012, 05:18 PM   #1848
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lets learn from our mistakes thread

Not specific to wish trips but a really good thread. to waste pretrip time with.

http://www.disboards.com/showthread.php?t=2062337

the tip about using deodernt on a blister about to happen really does work! I was forced to go to a theme park and the state fair in brand new shoes. I brought the tiny end of some deoderant with me and when I was sure was going to pop a blister that first day I rubbed some on and never got that blister! magic!
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Old 09-02-2012, 05:34 PM   #1849
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Quote:
Originally Posted by blessedmom4 View Post

HI!!! Another heart Mom here (Lisa has had 3 OHS thus far and is waiting on two more). We took her trip in October, 2011. I just wanted to say Welcome to the DIS and Wishtrippers thread and READ, READ, READ...it will trigger LOTS more questions!!!!

We bought a night gown for Lisa to wear at the hospital so she could remember her wish trip and they sent it to Epcot Guest Services for us to pick up when we left Epcot...they just need several hours to get it there...
Thanks for the welcome blessedmom4, never fun waiting on OHS. While DDs scheduled ones are complete, I'm well aware that there are more at some point in our future, when things are going well, I keep waiting for the other shoe to drop.

I've been doing a ton of reading and browsing through this thread, up late every night enjoying wading through the thread

I've also been reading stories and PTRs, and trip reports and learning so much already. I'm feeling a bit more comfortable with my lack of Disney knowledge, as those tips are really informative. Now that I'm feeling moreo comfortable, might get started on at PTR of our own soon
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Old 09-02-2012, 05:36 PM   #1850
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Originally Posted by yeti5353 View Post

will you need the stroller or the double other than at the parks? If not your GKTW pass will give you free stroller rental at the park. So if you can get in the park with out the stroller you could do that. If you do bring a bandana or something unique to tie on your stroller so you can find it again in the stroller parking areas because disney workers keep moving them around.
I don't yet know how to multi-quote, so thanks for the tip yeti, and for the welcomes everyone
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Last edited by onceagain1; 09-02-2012 at 05:57 PM.
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Old 09-02-2012, 06:05 PM   #1851
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I keep learning so much every time I visit this thread... and it all has us that much more excited for our son's trip to Disney and GKTW in October!

A few days ago we were given a special delivery from some family friends, who are also a wish family that spent time at GKTW! I have updated our PTR with a couple pictures!

Now to try to keep the excitement contained even a bit for the next 6 weeks!
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Old 09-02-2012, 06:16 PM   #1852
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Originally Posted by Indykjt View Post
I keep learning so much every time I visit this thread... and it all has us that much more excited for our son's trip to Disney and GKTW in October!

A few days ago we were given a special delivery from some family friends, who are also a wish family that spent time at GKTW! I have updated our PTR with a couple pictures!

Now to try to keep the excitement contained even a bit for the next 6 weeks!
Braden looked so happy!!!!
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Old 09-02-2012, 06:21 PM   #1853
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Originally Posted by onceagain1 View Post
Thanks for the welcome blessedmom4, never fun waiting on OHS. While DDs scheduled ones are complete, I'm well aware that there are more at some point in our future, when things are going well, I keep waiting for the other shoe to drop.

I've been doing a ton of reading and browsing through this thread, up late every night enjoying wading through the thread

I've also been reading stories and PTRs, and trip reports and learning so much already. I'm feeling a bit more comfortable with my lack of Disney knowledge, as those tips are really informative. Now that I'm feeling moreo comfortable, might get started on at PTR of our own soon
I so get it.

I had such a blast learning so much before Lisa's Wish Trip. My best advice...ENJOY GKTW as much as possible. It really IS a once in a lifetime event! If you are getting tense, you need to stop and remember WHY you are on a Wish Trip and realize NOTHING will be perfect, but it WILL be fun! Things happen IRL and that doesn't change just because you are on vacation or a Wish Trip. You WILL have many memories to sustain you through any hard days ahead. I am so excited for al lof you here!
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Old 09-02-2012, 06:47 PM   #1854
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Quote:
Originally Posted by Indykjt View Post
I keep learning so much every time I visit this thread... and it all has us that much more excited for our son's trip to Disney and GKTW in October!

A few days ago we were given a special delivery from some family friends, who are also a wish family that spent time at GKTW! I have updated our PTR with a couple pictures!

Now to try to keep the excitement contained even a bit for the next 6 weeks!

Indykjt, I saw the pictures, he looks so happy, and a neat idea to count down the days!! I may have to do that for my daughter, Wednesday, her first day of Grade 1, will be 100 days until her trip!!
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Old 09-02-2012, 06:49 PM   #1855
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I so get it.

I had such a blast learning so much before Lisa's Wish Trip. My best advice...ENJOY GKTW as much as possible. It really IS a once in a lifetime event! If you are getting tense, you need to stop and remember WHY you are on a Wish Trip and realize NOTHING will be perfect, but it WILL be fun! Things happen IRL and that doesn't change just because you are on vacation or a Wish Trip. You WILL have many memories to sustain you through any hard days ahead. I am so excited for al lof you here!
I've read your story about Lisa, poor sweet thing. She's such a strong girl. Interesting about all your kids being born on the 3rd!!
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Old 09-02-2012, 06:51 PM   #1856
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Hello. I was wondering if someone could help me. I am trying to add pictures of Gavin but keep getting the red x's. Is there a trick I dont know?
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Old 09-02-2012, 08:30 PM   #1857
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I've read your story about Lisa, poor sweet thing. She's such a strong girl. Interesting about all your kids being born on the 3rd!!
Thanks for reading, I LOVE sharing my sweet family! Yes, the third is my lucky number!!
Quote:
Originally Posted by GavandGraciesMommy View Post
Hello. I was wondering if someone could help me. I am trying to add pictures of Gavin but keep getting the red x's. Is there a trick I dont know?

Are you using Photobucket? These are the instructions from the first page of this thread how to post pics. HTH.
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Old 09-02-2012, 11:17 PM   #1858
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MAW Trip 9/26-10/2 (my intro and PTR)

Hi,
I am new here. I am the wife of a soldier, mom of four incredible kids, dd age 14 (some hearing impairment and learning difficulties), ds age 10, ds's age 8 and 8, yes we are blessed with twins! All three boys have mitochondrial disease, eosinophilic esophagitis and high functioning autism (along with a myriad of other medical issues, including increasing cardiac issues, but all are likely related to the mitochondrial disease, as we are realizing more and more now). We just returned from Ethan and Aidan's Wish Trip this summer, which was an amazing two weeks in California. Their wishes were to go behind the scenes at Lego Land (Ethan), and Learn to Surf (Aidan), AND both wished to see family and cousins. We had moved away from our home and family in California seven years ago, to pursue better medical care for the boys, and because my husband joined the Army. We had no doctors in CA who had ever seen children like ours eight years ago, and have been blessed with amazing care out here, and thus have not been "home" more than once since. We had an amazing two weeks in California! LegoLand was fun, but the behind the scenes with the Master Builders made Ethan's day! As did the exclusive Darth Maul mini fig all the kids were given by the Master Builder. Aidan, and all of us, loved learning to surf! He was on his feet right away and LOVED the whole morning...he tired and was too exhuasted and cold to go on within two hours, so we didn't finish the morning out, but what an amazing morning! We also had an amazing week driving north to spend a week with family! We spent four days with my husband's family, and had cousins camp with eight other cousins besides our four! Then we drove farther north and spent three days in a cabin with my family, three sisters, two husbands, one boyfriend, ten children under ten, with a cousins camp party, day at the lake and a wonderful cabin experience! It was truly the trip of a lifetime and the boys, and we all, made memories for a lifetime! Make A Wish truly blessed us beyond belief!

Then we had enough money set aside, to use our military discount to do three days at Disneyland as well. I grew up going to Disneyland, as has our daughter, but this was our first time back in eight years, now with three boys with special and medical needs. It was hot, tiring, confusing with no plan, and while there were bits of magic, it was frustrating, until we gave up and simply enjoyed being there and the reality of literally only doing 3-4 things per day and then leaving. By the end Colin, our third son - who's wish is to do Jedi Training and go to Give Kids the World, was hysterical and said to cancel his wish. Thus why I'm on these boards, trying to do everything we can to make sure his trip is a success for him, and all the rest of us! Our trip to Orlando is the end of this month, and this time, the daughter gets to bring a friend, so the two teen girls can head off on their own to enjoy roller coasters, while we do what the boys can handle. We learned a hard lesson regarding wheelchairs for the boys, and have asked Make A Wish to rent them ahead of time for us, or else we will, we don't want to spend an hour each day renting and returning them...We need one regular size for Ethan and then one large size one for the twins to share...since there are only two of us to push them. And thankfully after reading through all these boards, it appears that the parking is very far from the actual entrances, so we definitely need the wheelchairs ahead of time.

I've been busy reading these boards for the last four days. Thank you so much to everyone before me who's posted so many tips and answers! I've saved several pages of tips along the way! I've also spent two days with Colin, just watching all the videos on the park websites, and on youtube, of all the parks and rides, so Colin knows what to expect and can make decisions of what he'd like to do. One of the hardest things about DL was that the boys didn't know what to expect for rides, and one boy would like one ride/show, but it would terrify the other two, and so we are working to figure out what each child wants.

I am slightly frustrated with the flights MAW chose for us, it has us arriving to GKTW at 530pm on the first day, and leaving for the airport at 715am on the seventh day. That leaves us only five days for the parks. Colin has decided on a day at Discovery Cove (we'll use this for our "rest" day, hopefully in the middle of our trip), one day or half day at Islands of Adventure to see Harry Potter world and the Marvel characters. He really wants to do Ifly, Swiming with the dolphins, the Disney Parks, and Harry Potter. His actual wish is Jedi Training, but now after a weekend of watching videos, he's actually excited about the rest as well. We have no illusions of spending the entire day in any of the parks. The teen girls we'll let go off on their own. We'll use our tickets to get them FP's for the rides they'd like to do before we leave a park, unless we can leave the GKTW GAC pass with them? We'll take the three boys to each park they want to do, and then leave when they are tired. We have a couple things per park that are must's and then whatever they are up to after that. Discovery Cove will be the day we all spend together, and evenings at GKTW. Colin's decided he wants to be sure we are back in time for the Santa night at the Big Splash Bash. Our days for the parks are Thursday, Sept 27 to Monday Oct 1.

Trip Plan:
Sept 26 Day 1 - arrive, enjoy GKTW, orientation
Sept 27 Day 2 - IOA for Harry Potter/Marvel Characters and then Aquatica in afternoon if the kids don't want to stay at IOA?
Sept 28 Day 3 - Disney MK?
Sept 29 Day 4 - Discovery Cove (for a day of downtime, possibly Ifly in pm?)
Sept 30 Day 5 - Disney HS?
Oct 1 Day 6 - Disney AK for the safari, Lion King show, and get FP's for girls then Epcot in afternoon with boys
Oct 2 Day 7 - fly home early

Somewhere in there we'd like to catch Wishes or Illuminations if possible. I'm calling Make A Wish on Tuesday, to see if we can possibly get the itinerary sooner, as our volunteers can't give it to us until three days before we leave due to their schedule, and I know I'll need to book Discovery Cove and make a couple reservations before then. I know that MAW is setting up Jedi Training, and something special (hopefully meeting Darth Vader) for Colin one day, and they are possibly also treating us to MNSSHP one night as well, which would move some of my days around. Oh and to add to all of this, this will be our last week together as a family for quite awhile, as my husband will deploy not long after we return. So we want to relax and enjoy this week together. If we don't get to do everything we have planned, oh well, we just want Colin to have a blast and spend time together!

I'm sorry if I've combined my intro and PTR in the same post, but I'm realizing we have not much time left till this trip and we have a lot to accomplish before we leave, not only for this trip but also in preparation for my husband leaving. Any advice, especially about which days for which parks, would be incredibly appreciated! OH and our boys are not able to eat food by mouth at all! They have only two safe foods, a certain brand of potato chips and apples...I know we can find apples at Disney, what about IOA? Or Discovery Cove? Any thoughts or help would be appreciated!
Thank you,
Jennifer
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Old 09-03-2012, 01:06 AM   #1859
hanori
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Smile Make a wish trip

We are going on a make a wish trip, my son Orion has a complex congeital heart defect. DD -Hannah. i am so excited. I can't wait to see there faces.




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Old 09-03-2012, 02:26 AM   #1860
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Make a wish trip

Hi everyone new here,
Let me introduce me and my family. Me and my husband Lonnie , My wonderful daughter Hannah 6 and my couragous son Orion 4 almost 5. We have been on quite a journey. My son has a complex congenital heart defect. He has a rare syndrome also heterotaxy syndrome, he has had 5 cardiac caths, 2 heart surgeries adn 2 open heart surgeries. He wished to see Mickey's animals so we are going to WDW. We are planning on Oct, 2012 but haven't gotten any confirmation as of yet. I am such a planner and this is driving me nuts. I have been compiling WDW Make a Wish stuff, GKTW info, info and lurking here for months. I am getting so anxious and have so many questions and so much info to process it's crazy. I just want us to have the greatest time, I know that we will. I am just so excited. I will post his story later but wanted to introduce my self and my family.

Hope I posted in the right spot but if not sorry just a newbie
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