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Old 11-26-2006, 05:04 PM   #1
NHAnn
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Updates on AVERY. (good news update pg 33 post 489!)

I thought my first post on this board would be about my dear mom....8 years ago (at age 72)she had brain surgery for 2 anuerysms, she stroked, she was comatose for many weeks, in rehab for many mroe and in a nursing home since. But she has defied all odds, and surpassed all projections as to extent of recovery, even from world renowned neurosurgeons at Mass General. When Marsha started this board, I posted mom's pic at her 80th birthday in September, with her 83 yr old sister. A couple of weeks after the party she fell and broke her hip. She developed pnuemonia nd we almost lost her one night when she was in extremem resiratory distress. But she rallied and a week after the hip surgery was backat the nursing home and kicking butt at physical therapy and winning bingo games as usual.

Thanksgiving morning we got a call that she had been taken to the ER...she has pneumonia again.

But yesterday afternoon we were dealt another devastating blow...not about my mom, about my most precious first grandchild, my 5 year old Avery. He was diagnosed with luekemia. I can't even get my mind around this. He was not feeling well at the T-day table, I was a bit distracted worried about mom, but DIL said he hadn't been himself for a week or so. I noticed his color was off and he was unusually whiney and tired but I thought maybe he was getting a little cold, and they also mentioned he'd had a flu shot Monday. DH did remark on the way home that he was concerned about how sick he looked. Apparently he got worse Friday ...and yesterday they decided not to wait for his Monday appt and got him in to the doc yeaterday afternoon. Based on the physical exam and some rushed preliminary blood work they said he appeared to have luekemia, wanted him to go ASAP to Dartmouth Hitchcock Medical Center in Hanover, an hour or so from here, for a transfusion. They said plan on him being there at least a week, probably 2, maybe more depending on the further testing and treatment. They called us to come stay with his two little sisters. DIL's mom came up from Mass today and took over there. We do not know much more today, waiting for word on today's testing and meetings with pediatric oncologist. I can't even grasp that...pediatric oncologist.... I know medicine is wonderful now and he is in good hands there...but my heart is breaking. Please pray for my little guy.

edited to change title....we're out of shock and denial mode and ready for the battle!!
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Last edited by NHAnn; 06-19-2007 at 05:32 PM. Reason: change title
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Old 11-26-2006, 05:09 PM   #2
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I'm so sorry about your news. When life gets too much, just give it to God and let him deal with it. It's in God's hands now. My thoughts and prayers are with you.

I'm sending you some extra pixie dust your way.
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Old 11-26-2006, 05:17 PM   #3
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Ann... I just read this, I have pm'd you, and we will start praying for the little one....Hang in there, know we are here for you..

Dear God, how many more of us with these dreaded diseases...
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Old 11-26-2006, 05:21 PM   #4
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Your grandson will be in our prayers and thoughts....it is always harder to deal with these things when they happen to young ones. But don't forget kids have a lot of fight in them and are stronger and smarter than we give them credit for.
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Old 11-26-2006, 05:25 PM   #5
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Ann - you and your grandson will be in my prayers!
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Old 11-26-2006, 05:33 PM   #6
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I will keep you all in my prayers. It is so tough to watch a child suffer with an illness.
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Old 11-26-2006, 05:41 PM   #7
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I'm so sorry to hear this. I work in a children's hospital and I can assure you, they will do everything in their power to help him. It just isn't fair. Kids shouldn't get cancer. Where is that kicking the dog icon when you need it?
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Old 11-26-2006, 06:36 PM   #8
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Many prayers being said for Avery, dear friend. I always will remember his Christmas Sweater picture a few years back. One of my all time favorite pictures.

As the above poster said, in the Children's Hospitals they work as hard as they can. This is so true as you know George used to work at a children's hospital.

Always know I am here for you. I am praying for peace for you and the family during this time.

"God is our refuge and strength, always ready to help in times of trouble."
(Psalms 46:1)

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Old 11-26-2006, 06:46 PM   #9
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Dartmouth Hitchcock is wonderful...

I am so sorry to hear of your news. Prayers and hugs are with you. Dartmouth Hitchcock is wonderful. My kids go there for their surgery. They were born with a cleft lip and palate. In my opinion they have the best Doctors. Best wishes for your grandson. Please keep us updated.
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Old 11-26-2006, 07:10 PM   #10
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Im so sorry to hear this..your grandson will be in my prayers
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Old 11-26-2006, 10:06 PM   #11
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Ann my heart is breaking for you. Prayers for your little guy and the rest of your family.
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Old 11-26-2006, 11:12 PM   #12
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You and your entire family are in my thoughts and prayers. I hope that your mother continues to improve and your grandson gets well very soon.
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Old 11-26-2006, 11:18 PM   #13
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We've already talked, but just wanted to offer you a here, too.
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Old 11-27-2006, 04:50 AM   #14
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Ann, please keep us posted here, we are praying for your family... Hugs
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Old 11-27-2006, 05:15 AM   #15
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I'm so sorry Ann.....man, you've had more than your share I would say. I'll be praying for your grandson as well as your mom. Dear God....when is this going to stop!!!!! Too many stories of this dread disease. Know that we are here for you.....praying, praying, praying!!!!!
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