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Old 08-10-2011, 10:37 PM   #151
mphalens
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Quote:
Originally Posted by mrsksomeday View Post
I love the planning spreadsheet . Thanks for posting that, I showed it to Bill so he could see I was not he only spreadsheet planner, he just shook his head at me . The outfit ideas sound adorable.

We are going to be at DHS on Dec. 2nd too .
Yay! Tracy - we'll have to plan to meet up! I think Dec 2nd will probably just be my mom and the kids and I (or maybe just my mom and Sheriff Shortstuff & I, depending on who plays golf that day) . . .

I totally have Amber to thank for the spreadsheet (although mine is NOTHING compared to hers) . . . so you can definitely tell Bill there are plenty of us out there that use a spreadsheet to plan Disney

Quote:
Originally Posted by DisMomJill View Post
Subbing.... Came over from the DisBoutiquers thread when I noticed you would be there at the same time as us. I'm still trying to finalize our park days and ADRs because we didn't even decide to go on this trip until about 6 weeks ago. And then I need to get busy sewing since I got this crazy idea to make clothes for my DD (even though I haven't sewed anything in about 10 years)!
thanks for coming on over!
you can do it!!! there are so many more cute ideas for GIRL outfits - I get bored thinking of all the easy fits I'm going to be sewing for this trip

Quote:
Originally Posted by Monknmom View Post
Sorry I didn't realize the ages!

No worries!

Quote:
Originally Posted by Monknmom
You are SO organized! I should hire you to do mine! Including the clothes.... I am still trying to figure out if I should make them or try to buy them? I love what the creative DISer's do so I am more leaning toward that! I mean if your going to be taking the photopass anyway...... I love the plans though!
Easy fits are pretty easy to sew! You could make your bottoms and purchase your tops if you were really worried . . . but I bet you could make them all!!!
Or do easy fit bottoms and get the DISigners to do some of their awesome work and then buy Amy_Mickey's fabulous iron-on transfer paper!!! Seriously, her transfer paper is THEE best www dot amymickey dot com

Quote:
Originally Posted by miprender View Post
Love the spread sheet too. 1900 PF was our best breakfast of our trip followed by Tusker House.

Which days do you need planning outfits for? It looks like you have mostly everything covered.

PS: I am so wanting to go back after seeing everything you have planned. I am in serious Disney withdrawals.




That is what we did. I ended up making outfits around some of our ADRs but didn't want them dirty before dinner so I then made more outfits. Then I lost track of how many I made for DD and she had more so I then needed more for my sons.
I think I more need to figure out what the heck I bought all this fabric for and why I feel the need to buy MORE Honestly, the boys ARE pretty easy - just easy fits and a coordinating shirt (of course, i need to applique by hand, so that will take some time since I don't have an embroidery machine) . . . it's more what to make MYSELF to go with them that I really need to sort out

hey - by the way - are you still up for trying to meet IRL when I get back to Rhody??? We're making the drive Friday I think . . . I am DEFINITELY going to Ryco (need to make an Elphaba tutu for a certain little girl's birthday party at the end of the month) and of course, Just Fabrics . . . I've also promised the boys trips to Norman Bird Sanctuary, Sweet Berry Farm and the Audubon Society's museum over in Bristol . . .
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Old 08-11-2011, 08:12 AM   #152
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Quote:
Originally Posted by mphalens View Post
I think I more need to figure out what the heck I bought all this fabric for and why I feel the need to buy MORE Honestly, the boys ARE pretty easy - just easy fits and a coordinating shirt (of course, i need to applique by hand, so that will take some time since I don't have an embroidery machine) . . . it's more what to make MYSELF to go with them that I really need to sort out
. .
Well I am just addicted to buying fabric. I keep buying more even though I don't have any plans coming up just yet.

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hey - by the way - are you still up for trying to meet IRL when I get back to Rhody??? We're making the drive Friday I think . . . I am DEFINITELY going to Ryco (need to make an Elphaba tutu for a certain little girl's birthday party at the end of the month) and of course, Just Fabrics . . . I've also promised the boys trips to Norman Bird Sanctuary, Sweet Berry Farm and the Audubon Society's museum over in Bristol . . .
I would love to meet up. How long are you up here for? I am working all week next week I have to cover since she will be in DISNEY.
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Old 08-11-2011, 08:28 AM   #153
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Quote:
Originally Posted by miprender View Post
Well I am just addicted to buying fabric. I keep buying more even though I don't have any plans coming up just yet.



I would love to meet up. How long are you up here for? I am working all week next week I have to cover since she will be in DISNEY.
We'll be there until the 26th . . . so the week following would work . . . or whenever!
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Old 08-24-2011, 12:41 PM   #154
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While I am somewhat organized, I am no where near as organized as you I love the spreadsheet and may just have to try it out for this trip.
As for making outfits, the only thing I've been doing is making t-shirts. After all, my dd is nearly 12 she's starting to get picky about what she wears.
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Old 08-25-2011, 01:12 PM   #155
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Originally Posted by mphalens View Post
Easy fits are pretty easy to sew! You could make your bottoms and purchase your tops if you were really worried . . . but I bet you could make them all!!!
Or do easy fit bottoms and get the DISigners to do some of their awesome work and then buy Amy_Mickey's fabulous iron-on transfer paper!!! Seriously, her transfer paper is THEE best www dot amymickey dot com

.
I did buy her transfers! Now I'm just waiting for DS to go to school so he doesn't see anything!
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Old 08-25-2011, 11:08 PM   #156
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Originally Posted by MARsMama View Post
While I am somewhat organized, I am no where near as organized as you I love the spreadsheet and may just have to try it out for this trip.
As for making outfits, the only thing I've been doing is making t-shirts. After all, my dd is nearly 12 she's starting to get picky about what she wears.
I am SO not organized in most aspects of my life (well, I think I am, but to the outside world I'm sure it appears the complete opposite!!!) - I'm sure my DH would get a big kick out of your very sweet comment!!!

And I dread the day my boys are more picky about what they wear . . . they're picky NOW - I can't imagine when they're pre-teens!!!

Quote:
Originally Posted by Monknmom View Post
I did buy her transfers! Now I'm just waiting for DS to go to school so he doesn't see anything!
Way to keep it a secret!!! SO MUCH FUN!!! We did that on our last trip and it was SO SO SO fun!!!!
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Old 08-27-2011, 04:41 PM   #157
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I am hopping that it will be that much fun!
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Old 09-03-2011, 09:41 PM   #158
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I just stopped by to see what's going on in your PTR... I really need to go read your ADRs again...

Glad you had a super fabulous garage sale today - way to rock the TSS!!!

D~
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Old 09-03-2011, 10:30 PM   #159
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Originally Posted by DMGeurts View Post
I just stopped by to see what's going on in your PTR... I really need to go read your ADRs again...

Glad you had a super fabulous garage sale today - way to rock the TSS!!!

D~

What's going on here . . . a whole lotta nuthin'

Can y'all weigh in on what you want to hear about? I seem to have hit a creative roadblock in many aspects of my life So - what shall I write about next???
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Old 09-14-2011, 01:57 PM   #160
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What's going on here . . . a whole lotta nuthin'

Can y'all weigh in on what you want to hear about? I seem to have hit a creative roadblock in many aspects of my life So - what shall I write about next???
Hmmmm.... You could tell us abut the customs you've been making.... or planning to make.

You could do a post about past trips... I know I'd love to hear about those... break them up into the trips themselves. That should give you something to write about. And I am dying to see pics of your notorious ILs.

What you're doing this time vs. what you've done before - what you liked and didn't like.

You could always talk about food.

THere you go... now start writing.

D~
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Old 09-14-2011, 04:51 PM   #161
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Quote:
Originally Posted by DMGeurts View Post
Hmmmm.... You could tell us abut the customs you've been making.... or planning to make.

You could do a post about past trips... I know I'd love to hear about those... break them up into the trips themselves. That should give you something to write about. And I am dying to see pics of your notorious ILs.

What you're doing this time vs. what you've done before - what you liked and didn't like.

You could always talk about food.

THere you go... now start writing.

D~
I'll get right to all that . . . after I get back from Finn's soccer practice!!!! Oh! And finish putting my closet back together . . . But seriously, I will!!!
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Old 09-20-2011, 10:00 PM   #162
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I'm very sorry I haven't added anything in a while. Things around here have been crazy and I'm going in about 100 different directions at once! Most days it's all I can do to keep up with the Disboutiquers thread and read a couple of MAW trip PTRs . . .

Anyway, one of the biggest "goings on" in my world involves someone very special to my family. Her name is Savannah and she is Sheriff Shortstuff's girlfriend . . . and the youngest sister of Mr CA's best friend . . .and the youngest daughter of my dear dear friend. She can bring a smile to your face and put a light in your heart.


She is only a month younger than Shortstuff . . . so these two have been together longer than even they can probably remember. Their bond, well, it continues to amaze me time and again. To look at the two of them, you'd never guess one of them is fighting a battle every day. You'd never guess the amount of time they've spent in the hospital or in doctor's offices while their parents looked for answers.

You see, Savannah has Mitochondrial Disease. Specifically, she has Complex I and Complex III Mitochondrial Disease. She was diagnosed 3 weeks after her first birthday but she has been fighting all of her life. Mitochondrial Disease has caused her body to experience poor growth, hypermobility (Ehler's Danlos Syndrome), hypotonia, Eosinophilic Colitis and other gastrointestinal issues, hypoglycemia, asthma, immunodeficiency, chronic infections, seizures, dysautonomia, polydipsia/polyuria, dysphagia, reflux, vasso-constriction/dilation and lactic acidosis among other things.

Savannah takes 14 different medications that help her body function better but there is no cure for Mitochondrial Disease...YET!


The above was copied from the Team Saving Savannah page of the UMDF Carolina Foothills Chapter Energy for Life Walk. I am a proud member of Team Saving Savannah as are both of my boys. Last year - the first year of the walk here in Charlotte - my boys & I raised over $5000 for the UMDF. We have 45 days to go until this year's walk and we hope to at least match our total from last year.

If you're anything like I was 2+ years ago, you've probably never heard of Mitochondrial Disease. You might be sitting there thinking, "What is Mitochondrial Disease?" and guess what! I have the answer for you!

Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.

Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.

Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection.


We all have mitochondria.
They exist in nearly every cell of the human body. They are like tiny batteries within our cells. Mitochondria generate 90 percent of the energy the body needs to see, hear, walk, and breathe.

Mitochondrial disease occurs when mitochondria fail. When the mitochondria fail, the body becomes unable to convert food and oxygen into energy. When these tiny power plants start to fail in the human body, the failure begins to affect organ systems, and the result is mitochondrial disease.

The parts of the body that need the most energy are the most affected.
The heart, brain, muscles, and lungs are often the most affected by mitochondrial disease. The affected individual may have any com- bination of symptoms including the following:
strokes, seizures, gastrointestinal problems (reflux, severe vomiting, constipation, diarrhea), swallowing difficulties, failure to thrive, blindness, deafness, heart and kidney problems, muscle failure, heat/ cold intolerance, diabetes, lactic acidosis, immune system problems, and liver disease.

Research says one in 4,000 people are affected by mitochondrial disease.
Mitochondrial medical experts believe that
number is closer to one in 2,000. Research tells us that every 30 minutes a child is born who will develop a mitochondrial disease by age 10. Further research indicates that one in 200 people carry a mutation that could develop into a mitochondrial disease in their lifetime. For many, mitochondrial disease is an inherited genetic condition. In some cases, the bodyís mitochondria have been affected by environmental factors. In other cases, mitochondrial disease seems to be a random occurrence.

Mitochondrial disease affects both children and adults. Mitochondrial disease affects people of all ages and races. Because symptoms vary, getting a diagnosis is difficult. Many affected adults have lived most of their lives not knowing what was wrong with them until they received a diagnosis of mitochondrial disease.

What is the prognosis of a mitochondrial disease patient? That is a tough question to answer because the prognosis depends upon the severity of the disease and other criteria. In some cases, patients are living fairly normal lives with the disease. In other cases, patients may not be able to see, hear, walk, or talk. Affected children may not survive beyond their teenage years. Adult onset can result in drastic changes from an active lifestyle to a debilitating illness in a short amount of time.

Is there a cure for mitochondrial disease?
At this time, there is no known cure for mitochondrial disease, but there is hope. While there is promise on the horizon, most current treatments and medications only address the symptoms of mitochondrial disease, not the disease itself.

Why should I want to learn more about mitochondrial disease? Because all of us have mitochondria. Maybe you or someone in your family
is affected by Parkinsonís Disease, Alzheimerís, heart disease, autism spectrum disorders, diabetes, cancer, and the aging process. Research shows that all of the above are implicated in mitochondrial dysfunction. Understanding mitochondrial dysfunction and disease has the potential to open a new world of knowledge: transforming medicine and cutting across all medical disciplines to uncover better treatments for these more common conditions.

You might be asking yourself why I'm sharing all this info about Mitochondrial Disease. Well, we all have things that touch us in our lives, that help make us who we are, shape how things happen in our lives. I have two healthy happy little boys. We don't have a lot, but we are a happy little family. Then i look at my dear friend and her family and what they've been through in the past 4 years. . . their son, Mr CA's best friend, was diagnosed with cancer . . . and they fought a hard battle but he's been tumor free since the fall of 2008. They had two little girls by that time - one was 2 and Savannah was just a couple of months old, but she was already fighting for her life. . .
I found myself wondering why? Why was this family given such a burden? To have a child diagnosed with cancer, well, I cannot even begin to imagine what that must be like. But we all know about cancer.
And then, after month after month of doctor's visits and tests and waiting and wondering and research, research, research, after a muscle biopsy done in a different city and more waiting, they learn that their youngest daughter has a disease for which there are no proven treatments, that it's all trial and error, that even though every 30 minutes a child is born who will develop a mitochondrial disease by age ten, funding for research is just pitiful. The National Institutes of Health devote only $11 million a year of itís 32 billion dollar budget to research into mitochondrial disorders and only about one-third of that is earmarked for primary mitochondrial disease research. Cancer research is slated to receive over six billion in NIH funds in 2011.

Really, I can't say it any better than my dear friend did in a blog post from last year entitled, "Not Rare. . .but Rarely Known"
Here is a small piece of that post:

We are still just beginning to understand mitochondrial diseases let alone be able to diagnose them. The first diagnosis of a mitochondrial disorder occurred in 1959, and the genetic material of mitochondria, called mtDNA, was discovered in 1963. It wasnít until the 1980ís that the first pediatric onset cases were diagnosed.

It would be hard enough to imagine your child fighting a life threatening disease like cancer. But can you imagine if your kid was fighting this disease in the time period not too long after it was even discovered??? A time when no treatments exist yet? No therapies have been proven? A time when the drugs prescribed are not covered by insurance because they are not yet FDA approved?

Yet that is what these kids with mitochondrial disease are doing everyday.

These kids need doctors. There are currently only 48 metabolic specialists in the country! We need more.

They need clinics or at the very least clinic days in every major city so that people like us (and just about every other mito family we know) donít have to travel to cities like Chapel Hill, Atlanta, Cleveland and Houston.

They need mito to even be covered in medical school so that they don't spend years suffering, being passed from doctor to doctor (while their parents get accused of Munchaunsens By Proxy) before getting properly diagnosed.

They need hospitals that are Centers of Excellence for Mitochondrial Medicine.

They need Grand Rounds and CME programs for doctors who have been practicing since before mitochondrial diseases were covered in med school.

They need Nurses, Therapists and Child Life Specialists and every other person involved in medical care to understand mitochondrial disease.

They need organizations like the United Mitochondrial Disease Foundation to become a house-hold name in the same way the American Cancer Society has.

They need clinical trials so that drugs can be proven and approved by the FDA and thus covered by insurance.

They need an office in the NIH for Mitochondrial Medicine so that funds can even be allotted to research.

I know it's going to take time for all these things. Itís just that itís time these kids don't have... 80% of children diagnosed with Mitochondrial Disease before the age of 5 will not survive to see 20 years of age.


So, I'll step down off my soapbox for now . . . I've probably given you all WAY more information than you could have imagined you'd be reading. . . but if you want to know more, or if you would like to help us in our fight for awareness and a cure, please visit http://www.umdf.org or my page for the UMDF Energy For Life Walk
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Old 09-25-2011, 12:29 PM   #163
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We Now Return To Our Regularly Scheduled PTR

Well - if you're still here following along after my last update, welcome back! If you're new here, welcome! and we will now continue with our regularly scheduled Disney planning!!!

Does everyone here know who the Disboutiquers are here on the DIS? They are a fabulous group of people who love to create Disney custom outfits as well as many other fantastic items. There is a thread in the Disney for Families section and right now they're on Chapter 27. . . if you haven't yet, you NEED to check it out!!!

I was lucky enough to stumble upon the thread early in my planning for this trip. And lucky is right, since Mr CA expects custom outfits for us for this trip - at least one per day and often times multiple outfits per day . . . remember how I told you his BFF was a MAW kid and his family were Big Give recipients? Well, since then they always have custom outfits for their trips to Disney. . . Mr CA thinks this is just how a family dresses when they stay on-site at Disney . . . and as much as I can, I'm happy to oblige him

So, I've been purchasing fabric since last spring . . . fully intended on starting to sew up outfits over the summer (for which I have my Disboutiquers to thank for all of their encouragement & assistance) . . . but then I started thinking, "What if these boys GROW? and grow right out of their outfits?!?!? Then what would I do?
So, I've waited . . . but waiting seems to have caused me another problem . . . I didn't stop BUYING fabric . . . when I went to tackle the stacks of fabric last week to figure out what I was making, I was faced with about 75 pieces of fabric

Obviously, I shouldn't use them ALL . . . but what to make? Where do I start?

That's where y'all come in . . . I took a picture of each and every fabric (I did NOT photograph solid cottons though) and put them into a public album on photobucket. . . I've labelled each picture . . . If I know exactly what it will be turned into, I've put that in the description.

So - want to check it out? Give me your opinions as to what to make??? C'mon, you know you wanna!!!
CLICK HERE FOR MARIANNE'S DISNEY FABRIC COLLECTION


Remember, this is our basic itinerary for the week:

Sunday - arrival day! 9:15am Crystal Palace breakfast
Magic Kingdom
8:00pm 'Ohana dinner

Monday - Epcot during the day
5:20pm Tony's Town Square dinner ADR
MK for Electrical Parade & Wishes & EMH

Tuesday - Animal Kingdom day! 8:00am Tusker House ADR
4:00pm Raglan Road ADR
MVMCP if we decide to do that, otherwise DTD for the evening

Wednesday - Hollywood Studios 8:00am ADR Hollywood & Vine
12:30 Sci-Fi ADR
Boat to Epcot 7:45 ADR Rose & Crown

Thursday - Not sure what day!!! LOL
Mickey's Backyard BBQ for dinner

Friday - 1900 Park Fare ADR 8:35 am
not sure which park we'll do
Afternoon in Epcot - attempt first seating for Candlelight Processional 7:45pm Garden Grill ADR

Saturday - DTD shopping/Raglan Rd lunch before we depart

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Old 09-25-2011, 08:29 PM   #164
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Just a quick

I didn't realize that you were doing a PRT. Needless to say, I should be working, (not $ working, just working) but I'm currently unmotivated so I've been trolling around the disboards.

I haven't read you entire PRT, so pardon if you've answered this question -- has your husband ever golfed at WDW? Mine says he's not interested, but don't know if he might someday.
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Old 09-25-2011, 08:34 PM   #165
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Just a quick

I didn't realize that you were doing a PRT. Needless to say, I should be working, (not $ working, just working) but I'm currently unmotivated so I've been trolling around the disboards.

I haven't read you entire PRT, so pardon if you've answered this question -- has your husband ever golfed at WDW? Mine says he's not interested, but don't know if he might someday.
Hi!

Welcome!!!!

I have not answered that question! DH, my FIL & Mr CA played Oak Trail Course . . . the course was great for taking Phalen, but not one DH would choose just for himself. He's hoping to play at least one of the other courses this trip!
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