Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney Trip Reports > Pre-Trip Reports and Plans
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 03-16-2011, 06:27 PM   #1
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

Wink September 6-12 is a great time to go to GKTW Eva Paige's Wish Take 2

Hi! I am Angie single mom of one adult child, a 17 year old daughter Carissa, my nearly 6 year old AJ and my miracle Eva who is now 3.

Eva was born at 22 weeks 3 days gestation and after 128 days in the NICU she came home. As most know a preemie is a roller coaster and boy did she take us for a ride!
Dec. 4th, 2007 began like any other day. I was in my 22nd week of pregnancy and looking forward the upcoming of Christmas. This day I had not been feeling well chalking it up to just a normal day of pregnancy symptoms. Little did I know that my roller coaster ride was about to begin.
Around 8 pm that night I went to the bathroom only to discover that I had lost my mucous plug. I honestly thought that my eyes were deceiving me. I called my mother who said to call my OB/GYN to be on the safe side. Of sourse given the fact that I had a history of premature labor I was told to proceed to the labor and delivery room for a quick check up. I then called my husband and waited for him to get home from his job at the airport. I began packing a small overnight bag and suddenly felt contractions. I called my mother immediately to please take me to the hospital because I could not wait the hour for my husband to get home. We got the the hospital in record time and learned that I was 4 cm dialtated. Believing that I had a stay for a few weeks ahead of me, I was pretty calm. Things moved quickly. I was given a steroid shot to develop my daughters lungs and the nurse started magnesium sulfate. No sooner started my water broke. Panic set in and I became hysterical. My doctor came in and decided to do an emergency c section due to the baby being breech and he thought that she had a good chance because she measured at 24 weeks.
I believe that the c section took all of 1/2 hour . There was no noise when she came into this world and it was several hours later that I was able to lay eyes on her. Eva Paige was born weighing in at 1 lb 2 oz. She was only 11 1/2 inches long.
She required a high frequency ventilator and intense medical intervention. When she was born she started out life well behind other babies, she had pneumonia and a collapsed lung. While in the NICU she battled off sepsis, Strep B, meningitis and she had several blood transfusions.
The day after she was born we had her baptized because I wanted to make sure that it was taken care of before something could happen to her.
We were told just a few weeks before Christmas that there was little to no hope left because the infections that she had were no responding to antibiotics. We began planning her funeral. I cannot tell you the pain that I have in just talking about this . It is the most emotionally difficult time I have ever experienced in my life.
Days later she was placed on a worldwide prayer chain and she began to respond. I can honestly say that prayers have kept her in this earth.
We spent 128 days in the NICU with her and on April 9, 2008 we were able to bring her home. She was little just over 5 lbs. and all mine to care for. Such a scary proposition to be doing it all myself.
From there Eva was hospitalized in June of 2008 for failure to thrive and was needing an NG tube for eating since she was not taking in food well and not gaining weight.
In November of 2008 she underwent surgery for the placement of a peg tube. Spunky little Eva had become a thumb sucker and found ways to remove her feeding tube from her nose.
Eva turned 1 on Dec 4 2008 and this was a milestone for her too since she was just getting the hang of sitting up on her own. We had a small family get together and it was all that Eva could handle. She was not a happy participant even if it was for her honor.
December 25 2008 Eva spent Christmas Day in the hospital with respiratory issues. Quite a scary experience especially with it being during the holidays.
We have had numerous hospitalizations in the past year. Eva does all on her own time and in her own fashion.
Currently we have the diagnosis of Global developmental delays, Grade 1 Stenosis of throat, Silent aspiration, reflux, failure to thrive, Chronic lung disease, difficulty swallowing and she has vision deficits, seizures, microcephaly and leg length descrepancy.

We have our meeting with MAW this Saturday, after talking with her worker on the phone it seems like Disney is a go.

We are trying to get Grandma and Grandpa to go because I need help with the children I hope they approve them!!!

Curious as to how fast this can be done too.

Any words of wisdom are appreciated. Have been to Disney but it was 25 years ago!!!



Pretrip Links

Mickey and Minnie Mail from the Fairy Godmailers
Happy Day Here
Eva's Gift from Aunt Doris and Friends
Our Autograph Book!
Pixie Dust
Presentation Invite
Disney gets postponed
New Dates
Back to school
Tentative Plans
OUR BIG REVEAL PART ONE

Last edited by angeque143; 07-23-2011 at 11:52 PM.
angeque143 is offline   Reply With Quote
Old 03-16-2011, 07:16 PM   #2
tinytreasures
DIS Veteran
 
tinytreasures's Avatar
 
Join Date: Oct 2008
Posts: 1,696

Welcome the Dis
My dd is a 22 week miracle too
tinytreasures is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 03-17-2011, 07:00 AM   #3
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

Quote:
Originally Posted by tinytreasures View Post
Welcome the Dis
My dd is a 22 week miracle too
Thank you!! I read about your special family...I was adopted at 6 1/2 my sister was adopted also....Something special about God made families!! 22 weeker's are a world of their own!! We have yet to meet a doctor that has not been stumped with dear Eva! My world has come full circle when God blessed me with her...I was an LPN and worked with special needs children before her but IT IS SO DIFFERENT being on the other side of the fence!!!

I would not trade her for the world though....we have been put through the wringer a few times and unfortunately her dad just could not handle it and had a complete breakdown...so now I do it alone. This is why I was so astounded when MAW contacted me. I pray that we can go to Disney, we would never be able to do it otherwise....Saturday is the day we will know more....48 hours to sit on pins and needles!!
__________________

Angie (41) Carissa 18 Anthony 6 and Eva 3 (wish child)
Miss Eva's GKTW/MAW PTR
Eva's Caring Bridge

Last edited by angeque143; 05-18-2011 at 07:40 AM.
angeque143 is offline   Reply With Quote
Old 03-17-2011, 11:11 AM   #4
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

SOme pics of my cutie.....This was Day 1 born at 18 ounces and 11 1/2 inches long

When she used to eat by mouth

On Valentines day before we cut her hair!
__________________

Angie (41) Carissa 18 Anthony 6 and Eva 3 (wish child)
Miss Eva's GKTW/MAW PTR
Eva's Caring Bridge
angeque143 is offline   Reply With Quote
Old 03-17-2011, 04:06 PM   #5
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
blessedmom4's Avatar
 
Join Date: Apr 2010
Location: I am not religious, I have a relationship with God.
Posts: 4,458


Only time for a Quick note ( I am cooking dinner). WELCOME TO THE DIS!!!! I will be back.
blessedmom4 is offline   Reply With Quote
Old 03-19-2011, 12:05 PM   #6
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

Quote:
Originally Posted by blessedmom4 View Post

Only time for a Quick note ( I am cooking dinner). WELCOME TO THE DIS!!!! I will be back.
Thanks so much!! We met with MAW today..they were so sweet! Eva turned on her charm and actually said hi and bye to them!! They felt that the trip would be a sho in and we are just waiting on date confirmation. May or June!!!! I am freaking out now bacause I have no clue where to start to get ready. I need to see what clothing the children need and have to borrow some suitcases or something to pack in!!

I have no clue what to do or what to see since I was 16 when I went and it has been over 25 years!!

Eva just loved her Mickey Mouse Clubhouse dvd that they gave her!!
__________________

Angie (41) Carissa 18 Anthony 6 and Eva 3 (wish child)
Miss Eva's GKTW/MAW PTR
Eva's Caring Bridge

Last edited by angeque143; 03-19-2011 at 12:09 PM. Reason: fingers have dyslexia!!
angeque143 is offline   Reply With Quote
Old 03-19-2011, 12:28 PM   #7
tinytreasures
DIS Veteran
 
tinytreasures's Avatar
 
Join Date: Oct 2008
Posts: 1,696

Yah for the granters coming
Hope you get dates soon.
Our 22 weekers are miracles there is not other word for them
tinytreasures is offline   Reply With Quote
Old 03-20-2011, 08:51 PM   #8
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

I spent way too much time on the internet after our MAW meeting and after getting a follow up email from my MAW wish grantors about how "magical" Eva's wish was going to be.

AM I the only one who gets tears when reading other PTR's I am so glad that I am not giving out wishes because I would give ANYTHING!!!

So I have started making lists of what to do now, I tortured my poor little ones trying on clothing to see what fits and what we would need. Dear Eva tolerated it well. Poor chicky is sick with a low grade fever though so tomorrow we are off to the Dr. again...We were supposed to see her Endo BUT I am not going to put her thru 4 hours in the car sick especially since her thyriod levels seemed to have gotten back on track thus proving that it was an illness that caused it to go out of wack. I am just hoping that whatever it is that she is good to go for yet another 4 hours in the car to see her Orthopaedist to address her limping and the leg length descrepancy....the right is shorter than her left leg and this causes so many problems with her walking. We also have to address her tone and her rolling of her ankles.

On a good note I got a lot of great tips in seeing that thread of what to buy ahead!! Sure can use those money saving tips!!

I should be hearing the dates by Friday!!! I just cant wait!!!!
__________________

Angie (41) Carissa 18 Anthony 6 and Eva 3 (wish child)
Miss Eva's GKTW/MAW PTR
Eva's Caring Bridge
angeque143 is offline   Reply With Quote
Old 03-22-2011, 09:06 AM   #9
brookerene
DIS Veteran
 
brookerene's Avatar
 
Join Date: Jun 2010
Posts: 897

You are not alone! I'm so glad Eva made it! and is here today! Every little life is precious... and she is precious! Hope the info gets here soon! Sometimes it is hard to wait, we've been waiting over a year to go! I look forward to following!
__________________
brookerene is offline   Reply With Quote
Old 03-22-2011, 11:51 AM   #10
billwendy
DIS Veteran
 
billwendy's Avatar
 
Join Date: Aug 1999
Location: essington, PA
Posts: 4,938

HI!!!! Just catching on to your PTR, dont know how I missed it!!! She is just darling!!!!!!!

Hoping you will hear your dates real soon!!!!
__________________
Wendy Billy and our fur ball Tigger

Traumatic Brain Injury 2/5 & 9/6/2013
March is TBI Awareness Month!
Life changes in an instant! Shine On!
billwendy is offline   Reply With Quote
Old 03-22-2011, 02:53 PM   #11
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

Quote:
Originally Posted by billwendy View Post
HI!!!! Just catching on to your PTR, dont know how I missed it!!! She is just darling!!!!!!!

Hoping you will hear your dates real soon!!!!
Thanks!! I am really blessed to have been given a child like Eva!! She is what makes me smile on those bad days because for the most part ...She smiles through it all!!!I spoke with MAW today and they have sent papers off to the Doctor but I believe that I will hear by the end of the week as far as tentative dates!!!
__________________

Angie (41) Carissa 18 Anthony 6 and Eva 3 (wish child)
Miss Eva's GKTW/MAW PTR
Eva's Caring Bridge
angeque143 is offline   Reply With Quote
Old 03-23-2011, 12:35 PM   #12
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

All papers have been received... Now the waiting game begins!!!!
__________________

Angie (41) Carissa 18 Anthony 6 and Eva 3 (wish child)
Miss Eva's GKTW/MAW PTR
Eva's Caring Bridge
angeque143 is offline   Reply With Quote
Old 03-23-2011, 12:59 PM   #13
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
blessedmom4's Avatar
 
Join Date: Apr 2010
Location: I am not religious, I have a relationship with God.
Posts: 4,458

Hi Angie! Sorry I was a "type-by" visit last week. I have been meaning to get back to say HELLO! It has been a little at my house (Okay, if I am honest it is ALWAYS a little at my house.

Eva is absolutely precious and such a miracle. I hope you will hear news soon, waiting can be hard. Hugs for having such a wonderful family to love! I hope you will post more pictures of everyone when you have time.

blessedmom4 is offline   Reply With Quote
Old 03-23-2011, 02:15 PM   #14
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

This is a photo video I had done of Eva's progress:

http://www.rockyou.com/show_my_galle...ceid=152820043
__________________

Angie (41) Carissa 18 Anthony 6 and Eva 3 (wish child)
Miss Eva's GKTW/MAW PTR
Eva's Caring Bridge
angeque143 is offline   Reply With Quote
Old 03-23-2011, 05:16 PM   #15
angeque143
Mouseketeer
 
angeque143's Avatar
 
Join Date: Mar 2011
Location: Afton NY
Posts: 415

WE HAVE DATES!!!!!:cool1 artyarty:

We go from May 11-17!!!
__________________

Angie (41) Carissa 18 Anthony 6 and Eva 3 (wish child)
Miss Eva's GKTW/MAW PTR
Eva's Caring Bridge

Last edited by angeque143; 03-23-2011 at 05:24 PM.
angeque143 is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 02:15 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: