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Old 03-13-2011, 02:48 PM   #1
Owensheart
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Owen's Wish DISNEYWORLD 2011!!

The wish granters from Make-A-Wish came last night and Owen wished for a trip to DISNEYWORLD!!! Before I introduce you to our cast of characters... I will start with the biggest introduction of the main character.. it is HIS wish after all!!

Meet Owen
Owen was born in January 2008 with a severe heart defect, Hypoplastic Left Heart Syndrome. The left side of his heart was underdeveloped and without corrective surgery shortly after his birth... he would die. The corrective surgery is performed in three stages... the Norwood (birth) , the Glenn (3-9mo) and the Fontan (2-4yrs). These surgeries won't fix his heart, but allow him to survive with 1/2 a heart until a transplant is necessary.

Owen had the first two surgeries in his first three months of life and at 10 months old was told he would need a heart transplant. We traveled 800 miles every few months from AZ to Palo Alto, CA to work with the transplant team at Stanford. Just this past December, we were told that since he's doing so great, he might actually qualify for the last pallative surgery (the Fontan). Before we can decide if the Fontan is possible, Owen had to undergo a 3rd open heart surgery to fix his severly leaking Tricuspid Valve. The surgery was a success and now we are just allowing his body time to heal. In July, we will go back to Stanford for a Cath and MRI to determine if the Fontan will work. If so, Owen will have a 4th open heart surgery (the Fontan) in late August. It's so exciting to see how far he's come... just two short years ago.. our only option was transplant. Miracle!!

We can't wait to plan his make a wish trip to Disneyworld and make it the best experience this little boy could imagine! We're hoping the excitment of his trip will motivate him to push through this summer of testing and surgery. He's going to get thorugh this and then we will celebrate at Disneyworld!!

We've never been to Disneyworld and would love any and ALL advice you have. We don't have dates yet, but put in requests for the first and second week of December. We know there is a ton of Holiday fun at Disney! I read all about GKTW and we are so excited at the idea of staying there! We spoke with our Granters about extending our trip (out of pocket) so we can see and do more while there. We should hear in the next couple of weeks exact dates/details/ect. If anyone has ideas of places to stay around the Magic Kingdom (for our extended trip).. money isn't a huge issue, we just want somewhere amazing!

Thanks for joining us!!

Last edited by Owensheart; 03-25-2011 at 05:53 PM.
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Old 03-13-2011, 04:31 PM   #2
cogero
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Thank you for sharing your story. I am adding you to my prayer list.
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Christmas & My Happy Place Equals Perfection. - A Dec 2011 PTR
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Old 03-13-2011, 04:46 PM   #3
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Owen is so adorable!!! I'm happy to hear that he got a Disney World wish granted!! I'm sure going during the holiday season will be absolutely magical for him. You'll learn a lot here on DIS!
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Old 03-25-2011, 05:42 PM   #4
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Meeting the Family

I've introduced you to our wish kid.. Owen. Now it's time to introduce the rest of our family. My husband and I have been married for 12 years.. we started young. We had Kam right away and she is the most amazing girl! Healthy, smart, witty, goofy and the best big sister ever!! After many years of infertility, 8 years to be exact, Owen came along. He has changed the way we view our lives and brought us closer together. Here we are...


We don't have dates yet, but expect Owen's trip to be the beginning of December. We'll have lots of planning to do. We've never been to Disneyworld and have no idea where to start with dining or parks. We have been to Disneyland several times a year so if anyone has questions on DL.. I can give you the hookup. :)

We can't wait to meet you all. I've read just about every finished TR on the Wish Trippers Thread. Too much time on my hands? Perhaps.
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Old 03-25-2011, 05:59 PM   #5
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I suffered with secondary infertility also. My son was born 6 years after my daughter and had surgery at 2 days for a congenital defect. He is on the autism spectrum but he is our miracle and are blessed to have him.

We love the decorations at Disney. One of our favorite tinges is the Christmas around the world. Each of the countries tell you about how the celebrate.
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Old 03-25-2011, 06:11 PM   #6
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Quote:
Originally Posted by cogero View Post
I suffered with secondary infertility also. My son was born 6 years after my daughter and had surgery at 2 days for a congenital defect. He is on the autism spectrum but he is our miracle and are blessed to have him.

We love the decorations at Disney. One of our favorite tinges is the Christmas around the world. Each of the countries tell you about how the celebrate.
Small world!! It's great to meet you! How's your son doing now?

We love to go to Disneyland during the Holidays.. it definetly has that extra special magic.
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Old 03-25-2011, 06:30 PM   #7
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You have a beautiful family. Hope you don't mind if I tag along to read all about your journey and Owen's wonderful wish!
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Old 03-25-2011, 06:44 PM   #8
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Hi

I'm signing up! Great photos!
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Old 03-25-2011, 07:01 PM   #9
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What beautiful children. We also sufferred with infertility and ended up adopting. Two of our kids have some issues, my dd 14 has aplastic anemia, a rare blood disorder, and was born seriously premature leaving her with the need for heart surgery just weeks after birth. My son is on the autism spectrum. Parenting my kids is an amazing journey, even if it isnt always easy. I imagine you feel the same way.
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Old 03-25-2011, 10:55 PM   #10
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Another CHD Mom here, I don't know how I have missed your PTR. Owen is adorable, Kam is beautiful and I love your family photo!

Owen is DEFINITELY a miracle, I am so happy he will be getting his Wish!


CONGRATULATIONS!!!

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Old 03-25-2011, 10:57 PM   #11
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Hiya! I don't have a wish kid, but I'm gonna join in too! I have a big gap in kiddos too, except, one is my step-daughter DD10 (she's mine though! lol) and my DS2. They are my world! Can't wait to read more about you and your family- It will be a great trip for sure!!
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Old 03-25-2011, 11:11 PM   #12
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Quote:
Originally Posted by Owensheart View Post
The wish granters from Make-A-Wish came last night and Owen wished for a trip to DISNEYWORLD!!! Before I introduce you to our cast of characters... I will start with the biggest introduction of the main character.. it is HIS wish after all!!

Meet Owen
Owen was born in January 2008 with a severe heart defect, Hypoplastic Left Heart Syndrome. The left side of his heart was underdeveloped and without corrective surgery shortly after his birth... he would die. The corrective surgery is performed in three stages... the Norwood (birth) , the Glenn (3-9mo) and the Fontan (2-4yrs). These surgeries won't fix his heart, but allow him to survive with 1/2 a heart until a transplant is necessary.

Owen had the first two surgeries in his first three months of life and at 10 months old was told he would need a heart transplant. We traveled 800 miles every few months from AZ to Palo Alto, CA to work with the transplant team at Stanford. Just this past December, we were told that since he's doing so great, he might actually qualify for the last pallative surgery (the Fontan). Before we can decide if the Fontan is possible, Owen had to undergo a 3rd open heart surgery to fix his severly leaking Tricuspid Valve. The surgery was a success and now we are just allowing his body time to heal. In July, we will go back to Stanford for a Cath and MRI to determine if the Fontan will work. If so, Owen will have a 4th open heart surgery (the Fontan) in late August. It's so exciting to see how far he's come... just two short years ago.. our only option was transplant. Miracle!!

We can't wait to plan his make a wish trip to Disneyworld and make it the best experience this little boy could imagine! We're hoping the excitment of his trip will motivate him to push through this summer of testing and surgery. He's going to get thorugh this and then we will celebrate at Disneyworld!!

We've never been to Disneyworld and would love any and ALL advice you have. We don't have dates yet, but put in requests for the first and second week of December. We know there is a ton of Holiday fun at Disney! I read all about GKTW and we are so excited at the idea of staying there! We spoke with our Granters about extending our trip (out of pocket) so we can see and do more while there. We should hear in the next couple of weeks exact dates/details/ect. If anyone has ideas of places to stay around the Magic Kingdom (for our extended trip).. money isn't a huge issue, we just want somewhere amazing!

Thanks for joining us!!
WOO HOO!!!! So happy he is getting his WISH!!! Something the whole family will enjoy!!! We went on my nephews trip last year, so if you have any questions about GKTW or anything just ask!!!!! YAY!!!!!!!!!!
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Old 03-30-2011, 10:35 AM   #13
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Precious!!!!!

Great job on your pre-trip report! You guys are going to have a fantastic time!
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Old 03-30-2011, 10:40 AM   #14
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Joining along for your adventure!
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Old 03-30-2011, 04:43 PM   #15
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